DLA WAIT TIMES THREAD 54

[zoeybrooks45]

Hello everybody, I have made a new thread please put in your scan date, hopefully we hear some good news this month. please be kind and feel free to share scan date, entitlement award and what child is diagnosed with as others in similar position can feel uplifted in these stressful time.

wait time are currently between 20-25 weeks. However most likely is between 18-22 weeks.

I’m a few days after your SD 12/8 I was hoping to hear something soon too because of the 15 week letters they have sent out! but looks like they still working on early July dates yet! 😬

Congratulations on your award 🎉 was it marked urgent?

I would ring again. They are allowed to tell you. Good luck x

Scan date 5th of July just phoned and he told me a decisions been made but he couldn't say what the decison is as it don't show up yet?? Anyone got any advice because I really don't want to worry about a letter lol xx

17 weeks for mr still not assigned to a decision maker. Another few weeks for us:(

No you don’t always get a text. It’s hit and miss so I wouldn’t assume it’s a decline going off no text. Regarding payment I’m not sure how quickly they issue back payment.

I’m sorry. I haven’t called them today, we are only at week 14

I’ve been told 28th Jan and to allow 25 weeks that’s MRs are currently taking. Yesterday a decision maker said they were working on 19th June MR dates. COC following a renewal for my son we submitted it late. He currently get HRC and LRM we are asking for the mobility part to be changed.

I'm a few days after you I'm the 5th July my decison was made today x hopefully you'll hear something soon x

Congratulations to everyone that’s got there award today 💖

fingers crossed for more good news to everyone that’s still waiting 🙏🤞

S/d - 18/07

xx

The letter we got said 11 weeks for a decision. They are now saying 25 weeks, big difference!

I ended up phoning. Scan date 12/07. Lovely lady said no decision still. She said she could see a few notes on there to be marked as urgent. She said she would add another note due to struggling financially due to care needs. I don't know how long it will take. This is the 4th time I've called now and every time no decision. They're giving false hope marking it as urgent and then not looking at it.

I'm not even bothering calling today going to hold off till Friday. 21 weeks for me today and looking likely even longer as been with the Dm since 7th !! 😭 x

i regret going urgent on my COC as I felt they rushed the decision and didn’t change the award. I called morning no decision and then called back evening decision was made. You probably don’t have long left. Hopefully you see a good outcome xx

06/06 scan date, DECLINED , absolutely gutted and going for a MR, I could cry, they didn’t reach out to anyone such as school, GP, CHAMS, Paediatrician, apparently it’s normal for a six year old to display the symptoms he does 🤔 well here’s to the next journey 😥
good luck everyone x

Oh no! Keep
your head up and keep fighting xxx

Oh I am so so so sorry!!!!

I'm so sorry to hear this 😢

Congratulations to all of those awarded and good luck to those still waiting and I hope it’s not much longer for you. I’m so so sorry @SweetSugarPlum. Did you send much evidence? Well, the school hasn’t sent the form off yet, but they gave it to me to do! I’ll send it next day delivery this afternoon. I had a read and they said she has no awareness of common dangers, needs help dressing, needs support with learning etc. Just that she is able to eat and toilet without help. Does anyone think this will go in our favour? X

Oh am so sorry 😞! Good luck on MR don’t give up fighting 🙏!x

so sorry to hear this especially after the long anxious wait! Did you send in an extra evidence?

definitely go for the MR

good luck 💖🤞

So sorry to hear this! Keep fighting - was this a new claim?

So sorry. Definitely a MR. Stay focused, the fight is not over!!

Just called and spoke to a lovely gentlemen who confirmed that decision was made on 11/11. My 8month son will be receiving HCR until 2026. Huge relief! Scan date was 03/07 and I only sent a discharge letter from the hospital from when he spent months in intensive care with heart defects, oxygen 24/7 at home, stoma and NG tube. Good luck to everyone! Looks like they are working on early July dates.

Yes This was a new claim, 6yo, ADHD pathway to CHAMS, previously under the community paediatrician who said he certainly needs an assessment and his own words “I will be surprised if he doesn’t get a diagnosis on what I have seen today” switched over to CHAMS due to turning 6 during the waiting period. Sigh I am drained!
school are on board, support in place such as 1-1 counselling sessions for emotional dysregulation and violent outbursts.
Unable to process information which Is impacting his education, I have parents evening today, again not the usual 10 min time slot but a 45 minute meeting as we need more time discussing his needs, they also referred him to CHAMS as they are struggling to support him.
Todays meeting will be a great time to ask for “evidence” I am also going to enquire about an EHCP,
Their reasonings were that he doesn’t have a diagnosis, he isn’t on sleep medication so can’t have sleep issues 🤔 (bit backwards but here we are!), as he is 6 years old it’s not uncommon for children to almost get ran over, six year olds need help wiping (my son will not wipe if I don’t do it),just everything I said they said wasn’t uncommon and I really disagree with absolutely everything the DM said.

Atleast now I know where I stand and I can gather as much evidence as I can! If anyone is also going through the MR could you please inbox me as I’d love to have someone to go through this process with for some support and guidance.

you’ve all been amazing and supportive, I’m not giving up the fight for my son, hang in there everyone ♥️