@dimples76 how's things been since your last post? More good than bad I hope. How was the riding? Dont think I knew you did that, I've read about some DCs responding well to horses. DD has no interest at all in animals atm.
We've had a tough week or so with DD. I'm wondering if it's side effects as she adjusts to the medication but just so so difficult - huge meltdowns, lots of self injuring head banging etc, keeps getting sent home from daycare because they just dont know what to do with her really. I was also on my own w her over the long weekend which was pretty testing tbh (but then I feel guilty that I find it difficult too).
I'm still deep in confusion re decision making. I've managed to talk to genetic doctor, have a general chat with a counsellor type person (2 hours..), had an early scan - was hoping all of this information would help lead me somewhere but to be honest not really. On the risk of recurrence they really can't say much, it's so poorly understood, but seems to be somewhere around 20% (some think less as you can rule out certain genes we've been tested against; but other figures say higher if existing DC is female as well as severely impacted). I think what I'm really grappling with is that I just can't imagine having another DC like DD, I don't think I / we could cope. And although it's a minority chance, I think probably you have to make peace with that possiblity / be open to it if you are to move forward? Not sure if that makes sense, and I really hope I'm not offending anyone I know it's a difficult and loaded topic, and because of that I also feel unable to talk to many people irl. I have kind of decided I want to move ahead and decide this weekend.