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New DLA wait times 2022

1000 replies

Momof2soonmomto3 · 19/04/2022 11:23

Iv made this new one as the thread I was following along with others has now been closed mine was scanned on the 18th Feb and still awaiting decision, I'm currently been waiting 40 mins on phone to DLA trying to get a update

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Original poster
Momof2soonmomto3 · 21/04/2022 13:05

Still no decision as of yet, the person I spoke to was very helpful though and told me I'm now the top of the pile and I should get a definate answer within the next 2-3 working days :)

OP posts:
Nicky80catri · 21/04/2022 17:03

Hiya mine was scanned on the 18th march for my daughter who has severe anxiety. Has anyone heard anything from march yet. Thanks. Five weeks and the wait is killing me lol x

Scanner20 · 21/04/2022 18:38

My dd form was scanned the 21st March she has now been accepted for an asd assessment. Does anyone know if it is worth me sending that evidence in to add. I put on the form she was being referred through school. She also has a lot of anxiety.
Had the education physiologist report and a statement from her teacher as evidence to begin with. Never know what the outcome will be but guess it's worth a go to see if she is awarded some dla.

Twinmummyanda6yearold · 21/04/2022 20:10

Sorry it's a bit random.. but now I've sent the claim forms in I'm starting to doubt myself 😔 my 3 year old is on the autism pathway, under speech and language and been diagnosed with GDD and is clearly way behind her twin sister, I know in my heart of hearts that she does need extra care than a child of 3 (her twin sister is prime example) but the more I read the harder it is to get awarded for a 3 year old. (The argument being all 3 year olds need extra care). Could anyone please tell me if they've been successful in their claims for a child as young as (or younger than) age 3?
I included paediatrician and SALT reports and pages and pages of extra notes from myself about everything I have to do extra on a daily basis for my little girl, I just hope it's enough😩

whitwoochantelle · 21/04/2022 21:00

My extra information still hasn't been sent up and said can take weeks I'm sure there just telling people different things. I'm going to ring next week if I've not heard anything.

Needanewadventure2021 · 21/04/2022 22:50

I found my confirmation of claim letter earlier and I cant believe how quickly the time has gone really. I'm over 7 and a half weeks in now but I'm too scared to call for an update.

I find my DS needs as so obvious. Every one of his consultants (for health related things) always tell me these issues are down to sensory difficulties and autism. Which I know, but our GP tends to make referalls on a poor health basis, not Autism. So why the hell it is taking so long to get him support when others can see it so clearly? It is really frustrating. As everyone medically trained can see it (without me even having to say anything) but the ones who are able to diagnose and support, it's a bloody battle to get them involved.
I think a no from the DLA will be devastating. These Easter holidays have been upsetting really seeing how being out of routine has affected his sensory, ocd, and anxiety. He has been constantly throwing himself off things and into things hurting himself telling me he has too much energy that's controlling him. I hate to admit it but it's been draining. We have only managed to leave the house twice because his fear of going outdoors is overwhelming. It hurts to watch him struggle through life and have no idea how to console him when he has his panic attacks and meltdowns.
Hopefully I dont have much longer to wait to hear, but a no would be crushing because life is hard

NoWordForFluffy · 21/04/2022 22:57

How long does it take to get a confirmation of claim letter? I'm trying hard to just let time pass without chasing. It's going to be tough though.

DS has now decided he can't sleep alone. Luckily DD has a bunk bed, but I'm not sure how long it'll work for!

Needanewadventure2021 · 21/04/2022 23:13

My DS hasn't slept alone for years. I find that hard too. He never settles and will be up all night when I try to get him in his own room. I even gave him a 'big boys room' hoping it would help and discussed the importance of him having his own space to relax. I think his spent about 2 nights in there in 6 months since its been donem before that he spent no time in his room in over 5 years. He cries for me all the time. Even if his in his room during waking hours, every few minutes he is calling me asking me where I am and please come closer.

My confirmation of claim letter came about a week after it was received. The received date was the same date Royal Mail delivered it

Nicky80catri · 21/04/2022 23:43

They sent me a confirmation letter two weeks after sending the form in. I am now 5 weeks in and just want to know. The anxiety is horrible. My daughter has really severe anxiety she's 12 and can't go out alone x

NoWordForFluffy · 22/04/2022 06:25

DS has always wanted me there while he settles (and didn't sleep all night in his room until he was 4), but this is new / a deterioration.

My form was signed for on 12 April, so I should hopefully get the confirmation letter soon.

Ltb17 · 22/04/2022 07:50

I feel your pain here, my little boy is 5 and he won't even sleep upstairs! He won't use the stairs at night time, I've spent every night on the sofa with him but the sofa has to be positioned away from the window. The anxiety is unreal, its overwhelming and at times it feels like there is no end to any of it. People often make comments to me about how it's wrong to be sleeping on the sofa with him, I would love for these people to see what it does to him when we try getting him up the stairs! Trust me if it was possible he would be up there, I have my own health issues and sleeping on the sofa every night really doesn't help!

Needanewadventure2021 · 22/04/2022 09:01

I say this all the time. People's opinions can be so exhausting but they don't know or see how things affect him. My DS is not naughty. His reactions are so severe to things that I used to feel horrendously guilty even questioning if he was badly behaved. I cant explain how, but honestly his reactions are so extreme it is embarrassing and heartbreaking at the same time. They aren't normal and he cannot be consoled. He is very black and white and only sees things one way. I know embarrassing is such a mean thing to say but I don't mean it to be horrible. The utter shock on people's faces is hard for me to see as they automatically see him as a naughty child. Which infuriates me. We barely leave the house. This I need to change but hours of screaming, hurting himself, clothes and shoes hurting his skin gets too much at times and leaving the house has been ruined by the battle to get out. Even for things he knows about and says he wants to do. When the time comes I still have the hours of meltdowns. It feels like home is his safe place and I am his safe person so it mostly erupts at home as he feels safe. But people say to me, you let him control you, you give him too much choice, you let him walk all over you. It's really hard

Mummyto4girls86 · 22/04/2022 10:33

My claim was scanned 17th February, rang for an update this morning and the lady i spoke to said no decision made as of yet and they are working this week on claims scanned upto and including 16th Feb. So probably next week for mine.

Naomis121 · 22/04/2022 10:39

Hi, has anyone on here done a change of circumstances at all?

any one know where they are up to date wise,

Vic88rj · 22/04/2022 10:54

I called this morning and got through. Ours was scanned on the 25th Feb and they informed me that they are currently working on the applications received on the 16th Feb. we should expect to wait another 2 weeks for a decision.

Ltb17 · 22/04/2022 11:14

@Naomis121 I'm waiting on change of circumstances, was 18 weeks for me yesterday, I was told should hear by 1st week of May as its about 20 weeks at the moment

Ltb17 · 22/04/2022 11:15

Yep, I actually had an elderly woman tell my my child was rude and ugly the day in our local city centre because he was laying on the floor having a meltdown because the sound of a digger suddenly drilling into the road set him off. I do really dread leaving the house!!

Naomis121 · 22/04/2022 11:23

thabk You! Mines only been 13! X

Naomis121 · 22/04/2022 11:25

Ltb17 · 22/04/2022 11:14

@Naomis121 I'm waiting on change of circumstances, was 18 weeks for me yesterday, I was told should hear by 1st week of May as its about 20 weeks at the moment

Mines been 13 weeks I was originally told it would take 12 but then 16, and 18 weeks x

Needanewadventure2021 · 22/04/2022 12:39

@Ltb17 it's horrible isn't it. I learnt to ignore it, but as he is becoming more triggered and difficult I find it hard to not react to people's unkindness. Not in a direct way as that would upset and scare my DS further but it makes me feel so angry inside and angry towards those who could be supporting us but aren't. To think that we are judged despite me battling for years to get him help.
As much as I admit my son is hard work I accept that I am still learning how to manage his needs as he clearly has alot that arent normal for his age. As hard as they are, sometimes outside view are harder because of how it makes me feel as a person and question if I am failing as a Mom

Nicky80catri · 22/04/2022 13:43

Rang them this morning and was told still in for a wait cus they are still on February atm. Mine was scanned the 18th march x

sunshinexx · 22/04/2022 23:40

My form was scanned on 28th February, so at the 8 week point now and still no news. Looking at previous comments it could be a couple more weeks yet if they are working on the 16th still.

The waiting for a decision is so hard. I’m not confident my DS will be eligible but here’s hoping,

Needanewadventure2021 · 23/04/2022 00:05

@sunshinexx we are the same date so fingers crossed will be hearing around the same time. Good luck

Kenziekyekalen · 23/04/2022 07:04

Morning.
Has anyone with abclaim around the 15th Feb heard anything yet. I am the most inpatient person ever!

Marzal · 23/04/2022 08:39

I’m the 15th feb the DM called me Tuesday so hopefully hear something soon I should of rang yesterday but too anxious to hear bad news!! Might call Monday if nothing x

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