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SN children

Here are some suggested organisations that offer expert advice on special needs.

Friday night chat...

274 replies

signandsmile · 13/05/2011 18:51

How is everyone?

This week has been hectic, I feel like I am going to meet myself coming back IYSWIM, Grin

But ds had first visit to 'big school' left there for 45 mins with portage teacher. and did brill!

Also music sessions are going really well.

and my best friend is moving 2 mins walk away from me, (rather than 25 mins drive, hurrah!!!! )

I am on the Wine althou it is white not red.

and I have decided to loose a stone by the time ds goes to school. (yeah I know thats a really wimpy target, but there are a lot of stones to loose Blush and I want something that feels do-able and not another burden.)

OP posts:
Triggles · 13/05/2011 20:42

auntevil - and those checkers are there for a reason. Good info to know! Grin I think DH is a bit sad that DS2 has finally decided chocolate is okay to eat - no more advent calendars eaten by DH! Grin

smugtandemfeeder · 13/05/2011 20:43

Galena, I assume it is like the Bristol one. Anyone with a child with special needs can go there whenever it is open for as long as you like. You do not need a diagnosis and there are no criteria for what special needs are special enough if that makes sense. You can even go without your children if you just want a rest. Nice idea. Dont know about the Severn Springs one but the Bristol one was fairly quiet the first time I went and a bit busier the next day. The severn springs one says it has a one off membership fee on its website whereas the Bristol one is totally free.

EllenJaneisnotmyname · 13/05/2011 20:43

Hi Galena. You don't need a DX, but a lot of it is adventure playground. There's a sensory room, crafts and toys and small children's playground named for my friend's DD with Downs who died when she was 3. (You'll have seen her picture on the wall by the rocking horse at Battledown, in the corridor by the beach area.)

In school time they do have schools that visit, so always best to ring in advance to check on ages of visitors. If they are bigger children it may be too rough and tumble. I haven't joined there but if you join CADCAF, they do organised trips there in school holidays. CADCAF is a nice support group, based at Battledown these days. I'm pretty local, as is Triggles, if you ever want to chat.

Triggles · 13/05/2011 20:45

babyheave wow - the last beer and he handed it over? he's a keeper! Grin And 10 months for an assessment? for what - the paed? SA? That seems unreasonably long!

DS2 (and DS3 for that matter) gets upset at the monkey in Toy Story 3. The part where they show the monkey always involves him hiding his head and saying over and over "quick, hide from the monkey!" but he still loves the film.

LeninGrad · 13/05/2011 20:45

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auntevil · 13/05/2011 20:46

10 months! that's a shocker. Maybe we should have a competition to see who has waited the longest for appointments and then name and shame the pct that wins?
The thing that i can never understand is that 10 months in the life of a child is huge in development potential - and lost potential. That is a whole school year. Can you imagine if we pulled out a child from education for a whole year how much of the proverbial would hit the fan?

Triggles · 13/05/2011 20:46

yup - that's me - local! hiya!

TheNinjaGooseIsOnAMission · 13/05/2011 20:46

no, chocolate should definitely be available on the nhs, works wonders for me

park was definitely a good place for meet up, dcs running amok while adults drink hot chocolate partake of healthy fruit juice.

LeninGrad · 13/05/2011 20:47

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Message withdrawn at poster's request.

LeninGrad · 13/05/2011 20:48

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nenevomito · 13/05/2011 20:48

10 months for an appointment at the local child development centre with the clinical psychologist. I'm back at the GPs next week for referrals to OT and a paediatrician and I'm going to raise it again then. The centre has just had their funding cut so waiting times have shot up, apparently. Still GRR.

Just checked out the hop skip and jump web page - that looks brill. Wish we had something like that around here.

Triggles · 13/05/2011 20:49

that is so true auntevil - it really galls me that they feel that we can just sit here and watch the time roll by while all that opportunity is wasted! Makes me so angry sometimes!

auntevil · 13/05/2011 20:51

Yes, we definitely partook of the juice of the cocoa bean Grin - and i believe that the juice from the leaf of a tea tree was also consumed - i think that counts as part of our 5 a day Grin

Triggles · 13/05/2011 20:51

We were quite lucky - DS2's appointments and such moved very quickly - but this blasted wait for the OT is driving me mental! I'm going to start calling them every week, I swear!

TheNinjaGooseIsOnAMission · 13/05/2011 20:53

excellent, who knew tea and hot chocolate were part of your 5 a day, should have had carrot cake and lemon drizzle cake and that would have been the day almost sorted Grin

EllenJaneisnotmyname · 13/05/2011 20:54

Hi LeninGrad. My DS2 has ASD but my NT DS1 didn't speak at 2, his only word was uh, which meant up. So, it needs the SALT waiting list, always very long (6 months or so) but easy to cancel if it comes on. Talk to moondog or 9while5, the usually answer speech therapy thread titles with info.

StarlightMcKenzie · 13/05/2011 20:55

'10 months! that's a shocker. Maybe we should have a competition to see who has waited the longest for appointments and then name and shame the pct that wins'

Yes auntevil That is EXACTLY what I am hoping the new accountbility group willl do. Keep stories, data and information, and track local services for their treatment of children with disabilities.

TheNinjaGooseIsOnAMission · 13/05/2011 20:55

ot has been our longest wait, just for them to basically say there's nothing they can do as they don't offer SIT. Grin

EllenJaneisnotmyname · 13/05/2011 20:56

So, it was that sort of 'hot beverage,' I might have known!

EllenJaneisnotmyname · 13/05/2011 20:57
LeninGrad · 13/05/2011 20:58

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Message withdrawn at poster's request.

Triggles · 13/05/2011 20:59

my turn to "humph!!" I've been getting my 5 a day through apples, bananas, oranges, and god help me broccoli! Why didn't anyone tell me that lemon drizzle cake counted???

StarlightMcKenzie · 13/05/2011 20:59

Some completely crazy mum has invited my ds to her daughter's birthday party tomorrow.

I'm over the moon of course but it is clear she doesn't know my ds has SN as she seems to have invited the whole class. I am told that only 3 out of the 35 are not going.

It is 3 hours long Shock and she doesn't mind whether we drop and go or stay.

Is this mum insane? Shock

Triggles · 13/05/2011 21:00

Starlight She may be insane, but let's face it, a majority of us are insane, and we're generally nice people. Grin Sanity is highly overrated!

EllenJaneisnotmyname · 13/05/2011 21:01

Lenin, he's NT but geeky! DS2 didn't talk either, but it was, well, different. No eye contact, no shared attention, just tantrums.