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Here you'll find advice from parents and teachers on special needs education.

Waiting time for DLA Third Thread

414 replies

Mummy2boys1520 · 22/11/2021 16:11

Hi the Second thread ended because when it reaches a 1000 comments it will close I thought I would set this up so everyone can talk again

OP posts:
Alk19 · 25/11/2021 08:30

I've found the new thread :)

Jneill2021 · 25/11/2021 08:57

@Alk19 good morning, did uc finally sort your back pay? Xx

Alk19 · 25/11/2021 09:07

@Jneill2021 nope nothing yet still with the approval team apparently they don't give much away xx

Jneill2021 · 25/11/2021 09:11

@Alk19 that is terrible for the amount of time uve waited, fingers crossed its sorted soon for you xx

Blabbermouth93 · 25/11/2021 09:12

I’m so drained today rather emotional my self today such a bad morning and night so hard trying to keep it together for them anyone know if I can ask for more support workers for them I’ve got 3 disabled children fighting me daily oldest isn’t as bad going to phone again now my claim was received the 17th of September sorry for the rant 🙄

Blabbermouth93 · 25/11/2021 09:24

@Jneill2021 my boy keeps stripping the paint and wallpaper off the walls and eating it 😑 my couch is getting chewed arms and faces are getting licked and clothes are horribly chewed lol 😂 I’ve tried my youngest with teething toys but nope he would prefer to lick everything or eat everything haha never boring our households though 😳😂

Alk19 · 25/11/2021 10:09

@Blabbermouth93 my son has ripped my wallpaper downstairs and eaten it and in his bedroom he was diagnosed with pica aswell he eats anything and everything Hmm

Alk19 · 25/11/2021 10:10

@Jneill2021 I hope so getting tired of waiting x

Blabbermouth93 · 25/11/2021 11:08

@Alk19 it’s frustrating isn’t it I’ve got chunks out of my hall and his room has been decorated three times this year he’s torn 3 full strips off wallpaper off I refuse to do it again 🙄😂 x

Blabbermouth93 · 25/11/2021 11:10

@Jneill2021 phoned again this morning still nothing still with cm women must have thought I was mad blubbering down the phone at her had to try explain it’s been a rough night 🙄😂😂 god help us x

Alk19 · 25/11/2021 11:12

@Blabbermouth93 yeah very I've refused to re do his room I had to take the lid of his toy box cause he stands on it had to get him a very low to the floor bed tv on the wall so his room is quite bare and basic x

Jneill2021 · 25/11/2021 11:26

@Blabbermouth93 @Alk19 my little boys the same I can't even have wallpaper coz he just picks it , o god they wanna pull there finger out ino there probably a backlog but they must have alot of decision makers and usually they only take couple hours to read through and approve or turn down xx

Blabbermouth93 · 25/11/2021 11:48

@Alk19 thank god I’m not the only one I was starting to feel like a bad mother cause there room is basic too tv on wall but they break everything drawers etc 🙄 currently 3 strips they’ve pulled off it looks like a doss room 😂 x

Alk19 · 25/11/2021 11:52

@Blabbermouth93 don't feel bad! I do understand though my 3 year olds room is full of toys proper typical boys room but the youngest isn't have you applied to family fund? X

Blabbermouth93 · 25/11/2021 11:58

I’ve got the form here ready to be sent away I just need a letter from universal credit but it’s all online so don’t know how to get it haha @Alk19 x

Jneill2021 · 25/11/2021 12:02

Currently on hold to see if there's any update and if they recieved a few more letters I sent earlier in the week, also have a email from the autism support team highlighting how difficult my sons behaviour is and how bad his sleep is as he wakes every night/early hrs for 2/3 hrs thinking its play time, very tired mummy here lol xx

Alk19 · 25/11/2021 12:09

@Blabbermouth93 I did all mine online and uploaded them to my application I got granted sensory equipment last week so his room will look a bit better now got him a big bubble lamp and a big wall aeroplane with loads of fidget stuff x

Blabbermouth93 · 25/11/2021 12:16

@Alk19 omg I didn’t know you could do it online 😳 haha thank you how long did it take you to receive it xx

Blabbermouth93 · 25/11/2021 12:18

@Jneill2021 know how you feel hope you are ok if only they had a monitor to see there day and night routine haha hope your doing ok such a shame we didn’t all live close could have had a play date my 8 year old asd can’t maintain friendships and is always playing with 4-5 year olds his development is at the stage of a 3-4 year old just now x

Alk19 · 25/11/2021 12:20

@Blabbermouth93 I was awarded dla 16th august so that's when I applied I got the grants last week had my phone call assessment around 10th October received the grants about 12 days ago Xx

Jneill2021 · 25/11/2021 12:24

@Blabbermouth93 I'm fine I think I've kind of got used to being tired lol my little girls 6 with autism and have been dealing with the same thing since she was born, ino it's a shame would be nice to meet with people you no who are going through exactly the same thing, my little boys 4 in April and he finds it really hard to interact with children and adults his hearing and speech and language are significantly delayed the peaditrician has got this down as the same as an 8-10 month year old xx

Blabbermouth93 · 25/11/2021 12:34

Have any of you had genetic testing my oldest sons blood has been kept for genetic testing by consultant as obviously all four of mine has either asd/ocd/adhd mines have been the same since birth also still have god help me days haha 😂 x

Blabbermouth93 · 25/11/2021 12:35

@Alk19 oh so it’s another 12 so weeks thank you x

Jneill2021 · 25/11/2021 12:39

@Blabbermouth93 The woman wasn't help at all just said yes had recieved my evidence but wouldn't tell me if it's with a decision maker or in pile to go to them, I'll ring again 2morrow lol , yes my daughter was reffered a few months ago to have genetics waiting on results as they can take 10 weeks my son just had his results every thing was normal apart from slight iron defininacty and slightly anemic , but this is mainly down to his diet as he will on eat liquid stle food such as yogurts custard soup xx his now on iron liquid to try get his iron levels up xx

Alk19 · 25/11/2021 12:42

@Blabbermouth93 yeah it's a long wait my soon had them tests done just before he turned 2 and everything was normal that's why they diagnosed him with pica aswell as he had no deficiency's X