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Relationships

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Married to someone with Asperger’s/ASD/ND: support thread 17

1000 replies

SpecialMangeTout3 · 20/11/2025 22:18

New thread.
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This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ourselves, very many of us have ND children. It is a support thread, and a safe space, it does get emotional at times. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
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It's complicated and it's emotional.
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The old thread is here.
https://www.mumsnet.com/talk/relationships/5355546-married-to-someone-with-aspergersasdnd-support-thread-16?page=10&reply=148665446

OP posts:
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5
AmusedAquaTraybake · 03/02/2026 14:38

Since a year, we've known my DH is ND. Best described as someone with left hemisphere stroke, except he's never had a stroke. He has been this way his entire life, just like his mother. He has some trouble understanding language and intent, trouble with word finding and expressive language and has difficulty focusing on a single task. He gets distracted easily. He grinds through tasks without understanding them, it's all rote learning without aha-moments. He recently told me he is having anger and irritability issues. I told him "You've always had those". His reply: "Now I'm noticing". (Probably because after 10 years I kinda sorta had my own explosion at him that he was making me feel like shit with his behavior. He has stopped that behavior but now it seems he's fighting the battle on the inside.) He sometimes feels like everyone (including me) is against him, why can't he achieve his goals otherwise? Yeah, without a left hemisphere, you get scattered real quick... Accused me of "holding him back", when I didn't do his bidding. He's also very naive and gullible at times, and then becomes suspicious about everything and everyone when he can't get his hands to do what his brain has thought up.

He is very very sensitive to rejection and criticism. To the point where I can't point out improvements to the house, or things that aren't quite where they should be. Everything hurts him, all the time.

Don't get me wrong, I've got PTSD to deal with for myself from a horrible childhood, so I'm no picknick to deal with at times either.

The irony is that I've picked a partner with a disorder, after escaping a collector's pack of disorders in my family. There's not a diagnosis in the DSM I haven't experienced first-hand by now. Sometimes I'm like "Of course, why not this too".

Just needed to get this off my chest. We're in a stable place right now, so that's good, but we're not there yet. I used to intuitively try to be his crutch without getting the acknowledgment, just got a lot of anger instead. After the diagnosis, I've consciously stepped back and now he's figuring stuff out alone. He's searching and fumbling. I'm letting him, I've backed off, he needs to come to terms with his disability. But I'm not sure how to get through the old resentment that is still lingering and the question of "In what ways can I rely on him and in what ways do I have to go at it alone?". Kinda painful, after a decade of therapy, failed careers due to personal and home stress, a failed business with DH, to find myself with more stuff to unpack. Sometimes I want to be done unpacking, and sometimes it's just yeah that's my life... I feel that if I can get through this part, and he can acknowledge his blind spots, we can make another improvement in our relationship. But my oh my it's all so much hard work.

SpecialMangeTout3 · 03/02/2026 17:34

@Echobelly do you think it would help to look at Colleges, BTech etc? Maybe go and visit the local colleges when they have some open doors?
I think it would help having a good idea of what’s possible, the more ‘transverse’ access to Uni. Apprenticeship too.

The only hurdle is getting a 4 in maths and English (otherwise, regardless of what your ds does, he’ll have to resit those). It’s not the end of the world. Just a pain (and stress/pressure for longer)

OP posts:
Theydontwantme · 03/02/2026 17:37

AmusedAquaTraybake · 03/02/2026 14:38

Since a year, we've known my DH is ND. Best described as someone with left hemisphere stroke, except he's never had a stroke. He has been this way his entire life, just like his mother. He has some trouble understanding language and intent, trouble with word finding and expressive language and has difficulty focusing on a single task. He gets distracted easily. He grinds through tasks without understanding them, it's all rote learning without aha-moments. He recently told me he is having anger and irritability issues. I told him "You've always had those". His reply: "Now I'm noticing". (Probably because after 10 years I kinda sorta had my own explosion at him that he was making me feel like shit with his behavior. He has stopped that behavior but now it seems he's fighting the battle on the inside.) He sometimes feels like everyone (including me) is against him, why can't he achieve his goals otherwise? Yeah, without a left hemisphere, you get scattered real quick... Accused me of "holding him back", when I didn't do his bidding. He's also very naive and gullible at times, and then becomes suspicious about everything and everyone when he can't get his hands to do what his brain has thought up.

He is very very sensitive to rejection and criticism. To the point where I can't point out improvements to the house, or things that aren't quite where they should be. Everything hurts him, all the time.

Don't get me wrong, I've got PTSD to deal with for myself from a horrible childhood, so I'm no picknick to deal with at times either.

The irony is that I've picked a partner with a disorder, after escaping a collector's pack of disorders in my family. There's not a diagnosis in the DSM I haven't experienced first-hand by now. Sometimes I'm like "Of course, why not this too".

Just needed to get this off my chest. We're in a stable place right now, so that's good, but we're not there yet. I used to intuitively try to be his crutch without getting the acknowledgment, just got a lot of anger instead. After the diagnosis, I've consciously stepped back and now he's figuring stuff out alone. He's searching and fumbling. I'm letting him, I've backed off, he needs to come to terms with his disability. But I'm not sure how to get through the old resentment that is still lingering and the question of "In what ways can I rely on him and in what ways do I have to go at it alone?". Kinda painful, after a decade of therapy, failed careers due to personal and home stress, a failed business with DH, to find myself with more stuff to unpack. Sometimes I want to be done unpacking, and sometimes it's just yeah that's my life... I feel that if I can get through this part, and he can acknowledge his blind spots, we can make another improvement in our relationship. But my oh my it's all so much hard work.

Yes to the unpacking!!!! Just when you thought one bag was empty another comes along…..the joys of generational trauma!

SpecialMangeTout3 · 03/02/2026 17:41

@AmusedAquaTraybake 🫂🫂

Im not sure what else to say, more because it’s so so closed to my own life.
I very much feel you’ve done the best thing to just let your dh learn from his mistakes. It can be hard to watch. Frustrating to see when you know you could just step in and it would be sorted. But as you say, constant scaffolding isn’t helping him either.

The question “In what ways can I rely on him and in what ways do I have to go at it alone?” is a hard one to answer. Because it forces you to look at the true impact of his disability/at his real capacity.
Again, not sure what the answer is. Just recognising it’s very hard to do (both if f looking at your partner or at yourself) 💐💐

OP posts:
Echobelly · 03/02/2026 18:03

I'm only just beginning to properly understand the post 16-if-you-don't-sail-through-your-GCSEs landscape myself, but I think yes, it will help for DH to see colleges and options, and where young people go on to from there. I'm hoping there might be some useful guidance from school.

The unknown is very scary for him - if he doesn't know he tends to assume the worst, eg, if you don't get good GCSEs your life is on the scrapheap. Its hard to get him to 'do the research' but I think that's what I need to get him to do, so he sees and understands there is a path and that it is set up (and I hadn't really understood it myself util this last week) that gives you some more shots at stuff. Shots I think DS will be in a much better place to take when in another few years.

At the end of the day, my gut feeling is that between being young in his year and the ADHD, DS won't be able to get the results he would otherwise have been capable of at GCSE because unfortunately there is no choice but to take them next year. And there is no particular intervention that will change that greatly - you could demand he does 4 hours of revision a day rather than 2, but I'm not sure it'll make a difference if DS can't hold onto/recall all that knowledge under test conditions. I think we should maybe focus on Maths and English and aiming to avoid having to retake, and encourage him in his strongest subjects (Science and Drama)

SpecialMangeTout3 · 03/02/2026 18:35

I think we should maybe focus on Maths and English and aiming to avoid having to retake, and encourage him in his strongest subjects (Science and Drama)

That makes sense!
im not sure you said that before, but has your ds any idea of what hed want to do? Or subjects he loves more than others? I’d support those too. And encourage him to look at what area would interest him after GCSE.
Then you can look at the different paths to get there and see which one would be best for him.

OP posts:
AmusedAquaTraybake · 03/02/2026 19:00

@Theydontwantme @SpecialMangeTout3 Thank you, for your acknowledgment and recognition

classicslove · 03/02/2026 19:51

Hi everyone, I very rarely post but always read. This may be a long shot but does anyone have any experience of dealing with an aged relative who is obviously (to me) ND but is now suffering from dementia. Not diagnosed, of course but the need for routine and everything being done HER way or it is WRONG and the constant negativity is proving difficult for both myself and all the carers I have set up for her.
I really am at the end of my tether and don't know where to turn for more help, Autistic Society recommend Age Uk or Adult Social Services who in turn recommend them and the GP's either don't believe me or push it back on Adult Social care.

SpecialMangeTout3 · 03/02/2026 20:09

@classicslove my only experience is with my FIL but he didn’t have dementia (he died of cancer).
And towards the end of his life, my MIL either did things as he wanted or grey rock him all the way.

I can see how dementia would make things even harder….

Is the plan to have your relative stay in her house as long as possible or for her to go into a care home at some point?
Im wondering if her infiexibility isn’t part of a pattern that says she needs more support than just carers

OP posts:
classicslove · 03/02/2026 20:18

@SpecialMangeTout3
She really does not want to leave her house but is, or makes out she is incapable of doing anything for herself. She has carers 3x a day and a personal assistant 2 days a week for 2 hours I'm also round 2 or 3 times a week. I do all her shopping and deal with all finances and anything else.
There is nothing more I can do but this just doesn't seem to be enough

Echobelly · 03/02/2026 22:45

SpecialMangeTout3 · 03/02/2026 18:35

I think we should maybe focus on Maths and English and aiming to avoid having to retake, and encourage him in his strongest subjects (Science and Drama)

That makes sense!
im not sure you said that before, but has your ds any idea of what hed want to do? Or subjects he loves more than others? I’d support those too. And encourage him to look at what area would interest him after GCSE.
Then you can look at the different paths to get there and see which one would be best for him.

I might have mentioned... he's interested in working with animals, so an animal care/management BTech could be on the cards post GCSE and there are a few places offering it. Plus I don't think it will generally require high GCSE marks, but may want a minimum in science, which I don't think will be a problem.

There is an animal management degree apprenticeship available near us which I have suggested as something to aim for or I'm wondering maybe something to do with conservation?

Echobelly · 04/02/2026 16:37

Two bits of good news today.

DH has been offered a job - contract, but up to two years, which is good. A lot seem to be really short term these days. He was pretty convinced after Monday interview that he had it and now he's on medication this meant he's done a lot of household stuff in the last 36 hours! I was beginning to worry today he might have been overconfident but they confirmed this afternoon.

Other bit of news is that school have said DS will get an assessment for exam access support - DH says when he last spoke to school they said they would go for as much as they can get, eg extra time, laptop scribe. I was just wondering when this would be dealt with as I assumed surely they had to get on the case soon and I was going to ask if I didn't hear by end of this term.

Allmyfavouritepeople · 04/02/2026 16:47

Just coming on to vent. Has anyone else noticed a pattern with their partner that if you have a bad day, they have a worse one?
I don't even think he realises he does it. I'm having a bad day for no real reason today but of course today is the day that we're mulling over something bad that happened to him 2 weeks ago. It's like he's picked up on my emotions and applied it to himself!

SpecialMangeTout3 · 04/02/2026 17:17

@Echobelly thats fantastic news on both account!!
Yay 🎉🎉

OP posts:
SpecialMangeTout3 · 04/02/2026 17:21

@Allmyfavouritepeople that sounds utterly exhausting. Like you can’t have a bad day ever because otherwise you’re dealing with your stuff and his grumpiness too,

Dh doesn’t do that. If I have a bad day, he just stays silent (his default mode) and basically avoids me.
But he wouldn’t cope with me having a bad day/being dysregulated if HE is having a bad day himself. He needs me to be regulated to stay regulated himself….

OP posts:
SpecialMangeTout3 · 04/02/2026 17:57

classicslove · 03/02/2026 20:18

@SpecialMangeTout3
She really does not want to leave her house but is, or makes out she is incapable of doing anything for herself. She has carers 3x a day and a personal assistant 2 days a week for 2 hours I'm also round 2 or 3 times a week. I do all her shopping and deal with all finances and anything else.
There is nothing more I can do but this just doesn't seem to be enough

Are you (or someone she trusts/who has some ‘authority’) able to have a discussion with her? Very factual, down to earth, unemotive, around her needs and whether this can be met at home.

When it comes to elderly parents, I feel a lot of the decisions comes down to how much you can absorb (work wise, demands from said elderly person, emotional strain etc…).
It sounds like you’re already at your limit on how much you can give. So the next step isn’t to spread yourself even more but to assess whether her needs can actually be met with that organisation.

Maybe ask on the Elderly Parent board if they have ideas.

i think in those circumstances, autism makes things harder for everyone. But just like with partners, it’s a reason. It can’t be an excuse to accept stuff you shouldn’t accept (in your case, maybe spending even more time with her, spreading yourself even more etc….)

OP posts:
Echobelly · 04/02/2026 20:07

SpecialMangeTout3 · 04/02/2026 17:17

@Echobelly thats fantastic news on both account!!
Yay 🎉🎉

Yes, very relieved about both.

It's a slightly 'risky' role for DH as it's not quite of a type he's done before, but this will be the first time he's worked while on medication. Good timing too, as has just established the right dose - the lowest wasn't enough, the highest one made him hyper-focused on just one thing at a time and messed up his sleep, but the middle one was the Goldilocks dose - he can focus on a few things, and he can sleep. I'm going to encourage him to get through a household to-do list before he starts (probably a week and a half) as he won't have time after. It's 4 days a week in the office, at least initially - I'll admit I'm kind of excited about getting the house back to myself more of the time. Also will leave him less time/energy to 'help' DS with his work - and mean we can afford tutors for English and Maths, which I think we should look into now.

DamageLimitation101 · 04/02/2026 23:38

STBXH is currently being assessed for autism. His psychiatrist is fairly confident he has it, just a few more forms to fill in. My feelings are incredibly mixed. I received an AuDHD diagnosis several years ago. Part of the context of our separation was the unequal mental load and lack of empathy from him towards me (along with his awful mental health and the impact on our kids). And now I feel like he has "reasons" for both of those things despite me overcoming my own shitty executive functioning to carry the whole household.

Theydontwantme · 05/02/2026 07:11

DamageLimitation101 · 04/02/2026 23:38

STBXH is currently being assessed for autism. His psychiatrist is fairly confident he has it, just a few more forms to fill in. My feelings are incredibly mixed. I received an AuDHD diagnosis several years ago. Part of the context of our separation was the unequal mental load and lack of empathy from him towards me (along with his awful mental health and the impact on our kids). And now I feel like he has "reasons" for both of those things despite me overcoming my own shitty executive functioning to carry the whole household.

The diagnosis sounds very similar to me and my partner. Except mine really tries, he props up where I fail as my memory and organisational skills are appalling. I take on more of the emotional load with the kids. In any relationship it’s about balance no matter what the label and playing with strengths and weaknesses. It’s not fair to bow out of everything and you can’t take the entire load. Label or not if it didn’t work it didn’t work. Many ASD partners are able to hold their side of the scales so it’s not an excuse.

Pashazade · 05/02/2026 09:25

A diagnosis is not an excuse. My DH is AuDHD and we’ve only recently found out about the ADHD. He was relieved to find the reason behind a lot of things for it, but he’s never used it as an excuse. We’ve been together over 25 years so have done a lot of growing and learning together, it hasn’t always been easy. He may realise after the fact that he’s behaved a certain way because of it, but if it requires it he will apologise. He has also learned to adapt and step up, I don’t know if masking some bits has been an overall negative for him or whether it taught his brain that the world doesn’t end if you do it this way. But negative behaviour that impacts on others with a refusal to take responsibility is just that and diagnosis does not give you carte blanche to destroy another person's wellbeing. With DS I give more grace for things he can’t control but there are still lines that do not get crossed and bad behaviour is always called out for what it is.

BustyLaRoux · 05/02/2026 15:14

Hi. I haven’t posted for a long time. I think about you lot often. Though not sure if any of the “old crew” are on here. @SpecialMangeTout3 i can see you obvs! Anyway, i hope you’re all well and those of you planning to get away were able to do so. And for those whose time had yet to come/chose to remain and navigate this life as best as one can, then love and strength to you all. Life is not treating me so badly. I use my pink kettle every day and think of you who helped me see/escape. Peace. ✌️

ANiceLittleHouseByTheSeaWithACatCalledBrenda · 05/02/2026 18:53

BustyLaRoux · 05/02/2026 15:14

Hi. I haven’t posted for a long time. I think about you lot often. Though not sure if any of the “old crew” are on here. @SpecialMangeTout3 i can see you obvs! Anyway, i hope you’re all well and those of you planning to get away were able to do so. And for those whose time had yet to come/chose to remain and navigate this life as best as one can, then love and strength to you all. Life is not treating me so badly. I use my pink kettle every day and think of you who helped me see/escape. Peace. ✌️

Lovely to hear from you @BustyLaRoux. My pink kettle is on its way 🩷🩷

SpecialMangeTout3 · 05/02/2026 19:36

@BustyLaRoux @ANiceLittleHouseByTheSeaWithACatCalledBrenda

Thats really nice to hear from you two.
And I’m so happy you’re still enjoying your pink kettle Busty!

🤞🤞 for you too ALittleHouse. I hope you will be able to use your Pink Kettle soon

OP posts:
BustyLaRoux · 05/02/2026 19:49

ANiceLittleHouseByTheSeaWithACatCalledBrenda · 05/02/2026 18:53

Lovely to hear from you @BustyLaRoux. My pink kettle is on its way 🩷🩷

And it will be marvellous NiceLittleHouse!!!! 🫖
Hang in there. I read back some of my posts from a year ago and I was in such a grim place. Your peaceful horizon awaits! Keep going. 🫂

mcrlover · 05/02/2026 23:42

Allmyfavouritepeople · 04/02/2026 16:47

Just coming on to vent. Has anyone else noticed a pattern with their partner that if you have a bad day, they have a worse one?
I don't even think he realises he does it. I'm having a bad day for no real reason today but of course today is the day that we're mulling over something bad that happened to him 2 weeks ago. It's like he's picked up on my emotions and applied it to himself!

Omg yes! Our baby and I have been ill with covid the past couple of days... I really felt DH's lack of support, would just love a hug or something to ease my anxiety about baby's health, but somehow today the conversation has ended on how DH is so unhappy with his job and he can't find a career to make him fulfilled... an issue that has been infuriating both of us for over 2 years and he is taking no steps to resolve.

Interesting point about the person with autism looking to you to regulate themselves, I reckon that's it! But while I'm navigating illness and worry about our baby's illness, I'm just finding it even more infuriating than usual!

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