Arthur, I hear you. There are little things that you are tripping over here, in the way you talk about your wife, that are making certain folk go for the jugular a bit. But I think I understand what you are trying to say. Mixed in with your very real feelings, are unfortunately things that you believe that are making this situation hurt even more than it needs to hurt.
For example.
You say you have done everything right, but may lose everything anyway.
I hear you on this. You have been "good". And yet, here you are suffering, and you fear you may suffer even more. It feels so unfair.
But my friend, you need to understand and accept something dreadful, and that is that being "good" guarantees you nothing at all.
You can be a selfish bastard your whole life, and be richly rewarded. You can be selfless all your life, and be punished to the very end. Being "good" is not a currency that you exchange for perfect safety and eternal love...
In fact, folk who focus on being "good", are often suffering from a miserable affliction called "codependency". You may want to look that up. It takes many forms, and can be particularly malignant in relationships that include a caregiving element, as you've described with your DS's care needs.
People who suffer from codependency typically believe that if they just take care of everyone, if they are perfect and wonderful and great providers, that they've somehow insured themselves against loneliness / relationship issues / abandonment. That, for example, their wife would adore them and be so grateful and life would be full of wonderful things. It's as if they "pay" for love, via taking care of everyone flawlessly.
The cold hard truth, though, is that a codependent person typically becomes less and less attractive to their partner over time. The partner senses that the codependent feels "entitled" to gratitude, to love, etc. Things don't feel freely given anymore. They feel forced. It all begins to go wrong. Intimacy dies. Closeness starts to feel wrong.
It's extremely difficult to maintain sexual love in a relationship where the partners feel that something is owed. I'm not saying it's your fault - I'm saying that a dynamic has taken root here. Both of you are contributing to it.
The long and the short of it is, you both need to get real about the fact that there is a problem here. These are the steps you need to take:
- Talk to her with the purpose of gaining agreement that there is a problem with the relationship. Not with her, not with you - with the relationship and its dynamics. Sexlessness is a symptom of that.
- Book couples counselling.
- Journal your feelings starting today.
If she doesn't get onside with 1 or 2, I'm sorry mate but you need to get your ducks in a row to leave. I know you don't want to hear that - but that's the truth.
You're within your rights to see your situation as unfair - but as long as you insist on maintaining that perception, you are going to keep on hurting with no end in sight.
I put it to you that the situation might be fairer than you think:
- You married believing that if you were "good", your wife would repay you with love and never abandon you.
- Your wife, over time, has noticed that you expect payment in return for your "goodness"
- As a result, her desire and intimacy has died.
- She now finds herself in a pickle. She thought she was marrying someone who loved her warts and all... but it turns out... she entered into a relationship of currency, not love freely given.
- She might wonder if she is even loveable enough to find a better situation than the one she is in...
I'm sure that the truth of it all, lies somewhere between your perception and hers, of course.
Don't be afraid of being alone. If you end up finishing this relationship, you will have the wonderful privilege of an opportunity to meet someone new. And that too might end. You will still be fine - ultimately, ALL of us are alone in this world. Accept that, and what relationships you do have, cherish them for what they offer while always knowing that you are able to tend for yourself, if things end or change (spoiler: ALL THINGS END. Be prepared.)
Just never again go through a relationship trying to be "good". It gets you nowhere. Be you. Get to know yourself. Be brave.