Pregnancy after loss part 2

[LER2023]

After the lovely Hopingrae had created such a wonderful thread.

I wanted to carry this on, as many more women need that added extra support.

Previous thread: https://www.mumsnet.com/talk/pregnancy/5016264-pregnancy-after-loss-support?page=1

Hope everyone can find some support on this thread x

@BreezyLemonHelper I was on 75mg aspirin then midwives at my 12 week scan today told me the recommended dosage for pregnancy is 150mg per day so I'm upping it to that until full term. As it's the recommendation, I'm sure it would do no harm staying on it as most women use it the full pregnancy.

I'm also on Progesterone pessaries, until 16 weeks, twice a day until 14 weeks then once a day until 16 weeks x

@BreezyLemonHelper
I'm on 150 aspirin a day! Started taking it at 16 weeks.
they said I should have been taking it from 12 weeks but not sure how that would have worked when only had an 8 week and 16 week appointment and no one had mentioned it 🙈😂

@BreezyLemonHelper yep, I've been on 150mg aspirin per day since 12wks. As others have mentioned, I was told 150 is now the NICE guidelines. I was on 75mg per day in my first pregnancy (2020) and think it's a relatively recent update.

I was started on progesterone pessaries at 8wks after spotting. At 12wks my consultant said I could stop but his preference was to continue to 16wks to be absolutely certain the placenta had fully taken over. However he did halve the dose at 12wks down to one pessary per day rather than two. I think weaning down also helped me psychologically to feel more prepared for stopping.

Sorry, yea, I'm also on a blood thinning injection which is likely why my aspirin dose is less.

Can I have a moan?

sorry!

so I went through EPAU and my gp on 3rd of April over my 3rd mc and was told I would be referred to recurrent miscarriage clinic, and I was due to have a call from them and todays the last day I should get a call before I have to call them.

I haven’t heard anything and my wait time has gone up on the nhs app from 12 weeks to 19 weeks!!!

do I ring the recurrent miscarriage clinic today or shall I leave it until Monday? I know today is the only time I would have the chance to ring them as there’s 2 of us at work today so I have the cover.

I think I’m a little annoyed that I’ve had the discussion well argument with the gp and was told they WILL call me, but they haven’t?

I expressed my concern of having to wait nearly 3 years to have my baby by the time I finally have my baby (if I don’t go on to have more mc’s) when I’ve asked about if I get pregnant in the mean time, can I have progesterone and aspirin, and they’ve said well it’s on a case to case basis😡
not exactly following NICE guidelines, as I should have started it before my third mc even happened but nobody was bothered and brushed me off as if everything was ok.
now I get a midwife appointment asap and a reassurance scan at 6 weeks with EPAU.
but that doesn’t give me much hope.

so my worry is have I been forgotten about or shall I just call the reassurance miscarriage clinic today and see what they say?

the numbers on my old phone as it broke so now I’m kinda stuck because I don’t have the number so will have to go through the switch board! 😭

so I don’t really know what to do, where to turn or who to ask!

@LER2023 oh that's so frustrating - completely get why you're annoyed. I think I'd ring just to ask in person and ask why the waiting time has had another 2 months added to it with no context/information (and ask if its likely to happen again?!). 2 months feels an eternity when you want to TTC. Hope you're ok.

@Traitors2024 me too but only since 28wks? They said aspirin still stays the same?! Must be one of those things that different Trusts do slightly differently maybe.

Thanks @Traitors2024 , that's an idea to try my GP. I've found them unhelpful in the past but will try and keep an open mind. And thanks, it is a good milestone to have got to, I'm a bit on edge waiting to receive screening results and then, if all ok, hopefully the next wait won't be too long.

Have you felt any better after stopping the progesterone?

Thanks also @T2024 @30somethingttc and @SnookyPook , I had 75mg in my head but have written 150mg in notes so am reassured given everyone's replies. I hope your scan went well yesterday @T2024 and that if you're also waiting for screening results, it doesn't take too long.

That sounds stressful @LER2023 . It seems like you'd have nothing to lose by ringing today, so worth a try? Unfortunately I know I found it impossible to get hold of them when I was on the waiting list, and the waiting list kept getting longer too. It caused me a.fair bit of stress.

If the waiting list is even longer now, would getting an initial private appointment be an option? I know it's not an option for lots of people, and it really shouldn't be needed, but I've read a couple of examples where people have had an initial private consultation and prescription recommended, that they have then taken to the epu once pregnant to get e.g. progesterone earlier, and had luck that way.

Yeah I was surprised I needed to up the dosage but going with their advice too, they know best 😊 You're consultant led aren't you? I am too, which is different to last time.

Scan went great, thanks so much. I was so nervous after the past 3 losses, but so pleased. Ah we don't do testing in nhs in Northern Ireland, over here we only have the option of doing it privately. It's so different to other places, I'm not sure why they don't do the screenings here.

@LER2023 That is frustrating, I was told the same re recurrent miscarriage clinic, although it would be 1 year for referral then a year for tests/treatment.

I ended up going to 2 private gynecologist appointments, got prescribed progesterone, aspirin, clexane and folic acid then went back to GP with letter and they prescribed it. They tend to take consultants advice as word and they go with it. Hopefully this is something that would speed your process up? x

Ah @T2024 glad the scan went well! I was very nervous after 3 losses too.

Girls super random and not sure if I'm losing my mind 😂 but this is my second pregnancy and I'm sure I can feel baby move (I'm 12 weeks, that's to early surely? But honestly I've felt it on my first like that bubbly gentle feeling, 12 weeks is to early ain't it?

@BreezyLemonHelper, the bloating definitely decreased a bit after stopping the progesterone but the irritability/swelling down there remains... 😐 Hard to say whether nausea decreased because of getting further along or because of stopping progesterone.

@SnookyPook, I was given the injections from positive test because I have APS (from recurrent miscarriage investigations) - what about you?

@LER2023 - definitely call them, you need to advocate for yourself!

@Mamaxo , I swear I started feeling things at 10 weeks!! (also second pregnancy past the 12 wk mark) but only recently feeling those undeniable movements at 17/18wks.

Update I’ve managed to call them, they were saying it’s a 6 month wait from getting referred and the first person on the waiting list is currently at 26 weeks waiting🥺

im kind of fucked off by that really.

excuse my language.
she said I’m really sorry I know it’s a long wait but it’s not just people from my area who are going to that place it’s all over the country.

don’t you just love when they act like they’re private when realistically they’re NHS.
shame on my doctors for telling me to call up in the 9th week of waiting too. Which means I’m pretty much at the bottom of the list.

unfortunately I don’t currently have the funds for a private consultation otherwise I’d have run there in the first instance.

just kinda feel a little deflated really, I feel like I won’t get to have my little baby and everywhere I look everyone seems to have a new born.

@LER2023 oh my love that's so frustrating for you! I'm really sorry that's the outcome. How far into the wait are you is it a couple of months? Re the GP saying you'll get early scan at 6 weeks o
if you get pregnant again, that's where I think the NICE guidelines come into play and if EPU see HB at 6 weeks on scan you'll get prescribed progesterone at that point. Hopefully that's the case 🙏

@Mamaxo I definitely felt this little one at 13/14 weeks, it was like tiny bubbles 🥰 waaay earlier that feeling DS for the first time give me a massive kick at 18 weeks! We were waiting for NIPT results and I felt like they were saying "I'm here" 💙

I've got my 20 week scan this afternoon. Can't believe we're here. Really hoping it goes smoothly. We're going to Cyprus on Sunday and want to be able to go away and chill out (as much as your can with a 2.5 year old in tow!).

Thank you. Sat waiting on my scan now and feeling very nervous this time round. I hope my gut is wrong.

I’m currently on week 9 of my wait, and they’ve said it will be another 6 months to wait, so 8 months to wait for a consultation from the reacurrant miscarriage clinic, not that we’ve ever stopped trying, I have just finished my period this week so fingers crossed this is our month for our BFP! Hope you’re getting on okay!xx

How you get on lovely?x

Sorry all, quick rant from me today. I am feeling really fed up. Atrocious hayfever, trying to concentrate on work and can’t because other than the HF to contend with I just can’t take my mind off my second loss. I am just dreading it being down to an immune issue and I think it might well be, rather than just bad luck. Doc thinks this is a possibility too. I don’t tolerate aspirin well but its anti inflammatory so I may have to try it next time.
i just keep thinking that that when I conceive again there is no point in being excited because the odds aren’t good and bluntly I am beginning to feel really bitter.
I am celiac but it is under full control. Lots of celiacs have healthy babies so why me!!
Sorry for the rant, I just keep crying 😩

@Traitors2024 ah, mine started at 28wks due to family history of PE plus my age etc counting as added risk factors. Perhaps the fact you've been on them the whole time explains the lower aspirin dose then.

@LER2023 - not surprised you're pissed off! That said, now you know the waiting list is so long, you can happily keep TTC for a while and hopefully safely get through a first trimester before having to cancel the appointment! Good job you checked in though - terrible they don't communicate these things better to people. Some will have put everything on hold waiting won't they.

@Hopingrae aw congrats on halfway point! How did it go? 💗

@OnNaturesCourse how did you get on lovely? Thinking of you 💕

@Carportforme so sorry you're struggling. Sending you a big hug. Hopefully very soon things will be looking lots brighter for you 💗

@LER2023 yes, all fingers crossed for you lovely xx

@SnookyPook all went well thank you so much, a perfect 20 week scan. Confirmed he's definitely a boy 💙 I actually felt excited this afternoon... it was a nice feeling. (I hope this isn't triggering for anyone) I also had my triage appt with perinatal MH team and they were really kind. It sounds like I'll be put on a trauma pathway for some unresolved birth trauma from DS, or talking therapies for anxiety... either way, feels like a positive step forward xx

Thank you Snookypook for your kind words, really appreciated.
Hopingrae, so hapoy that your scan went well. Really great news.

Officially 12 weeks today, last scan was at 10 weeks and next scan isn't till 14 weeks, trying to be hopeful and positive but gosh I'm scared, nausea hit me again to, hope everyone's doing okay xx

Just quickly checking in - I've taken the weekend off socials.

Scan was good. More than good.

Showed baby has gone from a week behind my dates to 3 days ahead instead. So has skipped ahead 1 week 3 days from last scan. Measuring bang on 12 weeks on Friday. So they've had a bit of a growth spurt finially...

No cause for bleeding, or the spotting. Suspected it is the pessaries and I've been told if I'm having a bad day with spotting to try rectal instead.

Ironically right after my last message I got the first flutters while in the waiting room. Had them on and off, very faintly, since then.

@OnNaturesCourse amazing news lovely, so glad everything's good xx