hey guys, sorry i've been quiet. We're 6 weeks old and going through the 6-8 week sleep chaos. I noticed that was the worst time with my daughter... and here we are again with our son. He wakes at 4-5am and is ready to party. Waiting for my new swaddle to arrive to strap him down 😂
Otherwise, he has a pretty hefty birthmark which is on his lower cheek/ear/neck, and I wasn't concerned about it at birth, but it suddenly puffed up. Apparently it is very common in low birthweight/premie babies, and is a haematoma (non cancerous tumour and something to do with blood vessels near the surface), but given where it is we're suddenly in doctors appointment chaos. There is a syndrome called phaces which is associated with this one type/physical location and has a 20% or so chance of being positive. All in all, it doesn't seem too bad from researching as it more can cause developmental delays etc, rather than real issues, but can have some other issues, so they are doing a lot of tests to rule it in/out and have him on beta blockers to reduce the swelling. I feel awful that he is 6 weeks old and tomorrow has a EKG heart check and on thursday has to get an MRI on his brain and spine which I think is going to be 3 hours long and will put him under anaesthetic. I know i'm in america and they are overly cautious, and this means if there is an issue even unrelated to this they will find it, which is good, but i'm a nervous wreck today. I think as the MRI place had us on a waiting list and then suddenly found us a spot, then moved us up to first place and it seemed more urgent, though they're probably just being nice. Anyway, if anyone has known baby under anaesthetic for a few hours please let me know, i'm a bit thrown by all this and hormones and sleep deprivation probably aren't helping. We had our dermatology consultation last week at the childrens hospital, and I saw a child with cancer and another blind and disabled in the lift, which put it in perspective at the time. Parenting is so hard and i'm just sending big hugs out to anyone who is going through things right now x