Hi
Firstly, don't panic. When you're going through hell, keep going.
Tourette syndrome is more than just tics (my son has TS too). You will find when a person has one neurodiverse condition they have a higher chance of having a co-morbid second neurodiverse diagnosis (ADHD/ADD/DCC/ASD etc).
Anxiety is also very common with children and adults with a neurological condition. It's exhausting trying to hold those tics in, let them out, not feel you're weird or let others feel you're weird, concentrate on teacher but also not ticcing!
Have you ever used the Tourette's action website for advice or guidance for yourself, son or his school staff?
CAMHS in my area do not diagnose or treat TS because they say they are a mental health organisation and TS is a neurological condition. Some areas will have a person in CAMHS who has an interest or specialism in TS so you might be lucky. It's the wait though isn't it, we went private for therapy from a clinician, we got the details from Tourette's action who hold a list of professionals of many kinds who work with people with TS.
Tourette's action will also provide information for schools to support children with the condition, and how it is also a condition which effects emotions and behaviour.
My son reached crisis in school in year 2. He's year 5 now and diagnosed TS, developmental co-ordination disorder, and with and ASD. Unfortunately we have spent possibly £7k with private professionals to get where he is now, happy and supported.
All I can to you is be honest with the school about what you want (to remain in their provision or a move-very difficult to get into a specialist Sen school without an EHCP and also if academically able it's not right for them usually anyway).
Does school access local authority funding? You need him seen by an educational psychologist, school will refer him or sometimes they will ask you to request one from the local authority. Depends on how much they actually want to help and pay for.
An educational psychologist will do observations and also 1-1 with a child to gain a picture of their needs in all areas and recommend provisions from professionals (CAMHS, OT, Paed, school) as well as what family can do.
If no one will refer please consider if you can afford to get an assessment done privately. No one should have to do this I fully accept that but as a realist I know mum and dad are a child's best advocate and it falls down to us.
Your boy is struggling, school is struggling, you are struggling. No one is bad. People CAN help but WILL they? Not without insistence.
Local authority higher needs funding can be accessed without diagnosis, the school can request money for more TA time (1/1 or group activities) to help a child.
I'm sorry I'm really waffling it's just I know how it is to be called into school and be faced with the massive crisis and no one really guiding you through what can be done.
I just hope you know this is happening to lots of kids and it will get better