Come on in, chat thread

[BlackeyedSusan]

Good morning. Come and chat. Somewhere to escape to if the rest of life is too overwhelming..or just to relax.
Help yourself to

It's been deleted already. Thank you mumsnet

I had to google ABA - appalling. What is wrong with people that they are promoting the erasure of neurodivergence? Glad the thread has gone.

I have to share with someone! So running to the Chat thread!
I've been crying emotional happy tears all day.
I got a job 😭 I've been applying for all sorts of schemes and jobs to help autistic people into a career and apprenticeships etc for months and months and every single time rejected, my inbox is just full of rejections. But I finally got offered one this morning. I can't stop crying happy tears! I feel so emotional.

that is wonderful news. Well done!

When do you start? What will you be doing?

That's wonderful news, @Tired2tired ! Congratulations! And congratulations to your new employer - they have just hired themselves the benefit of all your autistic superpowers.

Fantastic news! So happy for you.

That's great news! Congratulations @Tired2tired 🎉🎉🎉

Fantastic! Well done 👏

Thank you all so much for thecongratulations!!

It starts end of September, I'm going to be doing training for a couple of months and then working, it's going to be a combination of working with 3 different parts of the business to see which I like best as it's a huge company, it's all remote.

This has changed my life, so thank you all for celebrating it with me! I have a job 😱

Had a really tough month thinking I am never going to get one, every rejection was you have no experience type thing. I sobbed on the phone to the hr person when she rang to offer me the job 😂 so bit of a weird first impression!
I may have spent half the night planning what I'm going to buy with my money 😂

Congratulations!!! @Tired2tired

I live not too far from blackpool and its the air show this weekend, so 2 days of roaring engines which are my biggest trigger and I can't shut all the doors and windows cos it's too warm

First one went over 10 minutes ago and I was in tears. Dread it every year.

I'm wearing headphones but you can even feel the military ones.
The only sound that I cannot mask my discomfort too. My hands go immediately to my ears.

What a nightmare, ofwarren . Low-frequency noise from engines is the worst kind of noise. Is there any possibility of your going out of the area tomorrow to escape it? There's been an event near me today - music and loudspeakers blaring out (I live in an urban area). Not as bad as low frequency noise but irritating in an itchy sort of way. We braved the heat and opted for a low-key day trip to a nearby town.

On a lighter note, I had a little moment of joy this evening when my NT husband said something I really related to - watching a film set in the UK rather than the US and husband said: 'It's so nice to watch a film where the steering wheels are on the right side of the car!' 😄

My DS who's on the waiting list for assessment is in surgery at the moment. He had the worst meltdown I've ever seen in theatre and had to be sedated. I'm so traumatised. He was like a caged animal.
Just waiting for them to ring me to say surgery has finished but I've got nobody to talk to.
They said around 2 hours.
The sedation was so traumatic to watch. It made him feel like he couldn't breathe. He was gasping for breath.
I'm sat in the bar facing the hospital all alone waiting for them to call me. The only way to numb this feeling is to drink.
I'm so scared 😔

Literally sat in a wetherspoons on my own drinking wine and crying. He had a transplant as a baby but this is the first surgery in 8 years.
They have put in his notes that he can never be allowed to theatre without sedation before hand. It was so so bad. He's damaged his hand punching the chairs. He's 8

What a horrible thing for you both to go through. I can imagine how frightened your DS was. One of my earliest childhood memories is of having to have surgery and having a meltdown and refusing to get into the cage-like cot bed they wanted to put me into - they had to force the sedative into me and I eventually fell asleep on my dad's knee, I can still remember the dark blue flared jeans he was wearing and it's nearly 50 years ago.

Your DS will be under GA now so he won't be frightened any more - he is safe in expert hands and won't know anything now until after the operation and when he comes round he will be drowsy, which may take the edge off his extreme anxiety.

I hope it won't be long before you can take him home and he can do whatever he needs to do to relax in the comfort of home.

Sending positive thoughts to you both.

Thank you. It never gets any easier.
The poor thing was just screaming "I'm scared" over and over

He's having some surgery on a stent he has. Ballooning and possible replacement if it's not working properly.
I find it so hard because I have to mask hugely at the hospital.

It's so sad to think of you alone in the pub and crying, @ofwarren . Is there anyone at all who can be with you in real life?

Your son's operation will all be over soon and you will be back at home, and you can both do your favourite soothing activities. Try to hold on to the thought of yourselves back at home with the operation safely over.

No because we have to go to the specialist hospital which is 3 hours away in a different county

It must be terrifying. It's an experience that would frighten any child and parent, but then of course you have to multiply the typical childhood fear by 1000 when both child and parent are ND.

Hes back!!!
Flat out but back on the ward. Thank god for that.

Oh, what a relief! So glad he is safely out of theatre now. Did they need to replace his stent in the end?

I'm not sure. The theatre staff said to ask the doctors later on. His still fast asleep but they said that's normal cos of the sedation.
His obs are normal. Just want him to wake now.

@ofwarren - that all sounds so traumatic for you and your DS.

I hope that he heals well from the surgery and that it's not too long before you're both home. Will you be allowed to stay with him at the hospital until he can be discharged?

Take care both 🌻

Oh so sorry to read this @ofwarren

DS has a good chance of getting through this as YOU understand him. You will validate his experience and comfort him. I'm just sorry you're having to go through it though xxx