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Anyone get PIP for anxiety depression ADHD with autistic traits awaiting ASD assessment

142 replies

Thevegetarianchef · 19/01/2026 17:06

I've got my assessment next week.I don't know anyone claiming PIP so I've filled the form in and we will see.Just wonder if anyone one here gets it.
I've not been assessed for autism yet but my ADHD assessor said I had traits.
I feel this explains why I've always had extreme anxiety and struggle in social situations.

OP posts:
Thevegetarianchef · 10/02/2026 20:04

Thank you.When I logged onto my account and read my difficulties listed under the categories I'm sure my long history sounds like I meet the criteria.
If I'm refused I tried.

OP posts:
Thevegetarianchef · 21/02/2026 18:46

My letter came and I scored zero on everything.
I won't be appealing.
Thank you everyone for the replies.

OP posts:
LilyBunch25 · 21/02/2026 19:54

Thevegetarianchef · 21/02/2026 18:46

My letter came and I scored zero on everything.
I won't be appealing.
Thank you everyone for the replies.

You still have the option of a Mandatory Reconsideration then an appeal.

Lougle · 21/02/2026 20:21

Thevegetarianchef · 21/02/2026 18:46

My letter came and I scored zero on everything.
I won't be appealing.
Thank you everyone for the replies.

Did you do your form yourself? From your description of your difficulties, you shouldn't have scored 0 across the board.

Thevegetarianchef · 21/02/2026 20:24

I did do the form myself.I also took the assessment alone as dh had some absences the week prior.
I can't believe I scored zero .

OP posts:
Orangesandlemons77 · 21/02/2026 20:33

What are the reasons listed OP? I have heard that working full time is used to deny people even though it's not an out of work benefit. Can you drive also

2x4greenbrick · 21/02/2026 22:09

I would try to get some support to help you with a mandatory reconsideration. From your posts, you should score. Citizens Advice or your local welfare rights service might be able to help. There are also often local charities who can help.

Thevegetarianchef · 22/02/2026 05:06

I stopped driving.I go to work.
ll I really do is go to work and get into my house.

OP posts:
LilyBunch25 · 22/02/2026 07:47

2x4greenbrick · 21/02/2026 22:09

I would try to get some support to help you with a mandatory reconsideration. From your posts, you should score. Citizens Advice or your local welfare rights service might be able to help. There are also often local charities who can help.

Agreed. OP if you decide to go ahead with support with a MR, contact PIP and ask for a copy of your PA4 (assessor's report) and make sure you have that and a copy of your claim form and decision letter for any adviser you arrange to support you. They will be able to go over all of this with you to ascertain if there are any areas in which the decision can be challenged and if so what points may have been appropriate. This paperwork is important to ensure you get the appropriate advice. Advice appointments are in demand everywhere so it is possible that any MR may not be done before the 28 days stated on your decision letter however this is legally not a hard deadline, as there is scope to submit a MR up to 13 months after the date of a decision if good reason is given on the CRMR1 (MR form) ie you needed advice and support. If success of an MR looks unlikely an experienced adviser will explain this to you as well.

LilyBunch25 · 22/02/2026 07:52

Orangesandlemons77 · 21/02/2026 20:33

What are the reasons listed OP? I have heard that working full time is used to deny people even though it's not an out of work benefit. Can you drive also

Yes both of these are often used to justify an assessor and/or decision maker not applying a descriptor in activities. The points can be argued when the decision is challenged if the justification used (ie can drive an automatic car so should be able to wash and bathe independently) is inappropriate to how the claimant's condition affects them within different descriptors.

Thevegetarianchef · 22/02/2026 19:39

They asked about unaliving ideation which I have had.Therapy I've had.
I did say I take meds and wash myself as I do but also said I struggle with proper meals as I often forget to eat can't food shop so dh will do these it's also in my ADHD report..
Because I can get to work it counts as planning a journey which is ridiculously simple as it's 4 stops on the bus.

OP posts:
2x4greenbrick · 22/02/2026 19:53

Do look for someone who can help you with a MR. This will help because they will know what counts and what doesn’t. For example, it is still possible to score on activity 11 and be able to travel 4 stops to work.

PurpleLovecats · 22/02/2026 23:13

It’s a really fine line isn’t it? I have MH issues and worked for years but it was a struggle. But I guess I made adaptations - I’ve never been able to use public transport for example but I did learn to drive, I have always not been able to do big supermarkets but could go to small shops if we needed something badly. Cannot go to theatres or similar.
Now my MH has declined. I cannot go to any shops, cannot leave the house. Cannot drive the car.

Crwysmam · 22/02/2026 23:44

We applied for my DH after he had a stroke. He scored zero despite multiple problems he faces day to day. The stroke association are currently trying to lobby re the lack of understanding the PIP assessors have re strokes. The cognitive damage is often difficult to describe. DH has no internal timeline so if he has an appointment or has arranged to meet up with someone he focuses on the time of the appointment but cannot factor/plan the preparation needed or the time it takes to travel. Before I realised this was a problem he would start getting ready for a GP appointment at the time he was due to be there.
He was meticulous in his self care prior to the stroke but I now have to remind him to wash or change his clothes. He also has no sense of his surroundings and will walk past jobs that need doing. In the past he was OCD in his tidiness and organisation.
But because physically he looks fine, can wipe his own arse and lift his hands above his head then he doesn’t qualify.
It was a couple of years ago since we applied so I may try again now we have a clearer idea of deficits.
To be honest, as a breast cancer survivor, I have a better chance of qualifying than he does but have never considered trying. It seems fraudulent to try since I don’t require assistance although at times probably need it due to the side effects of ongoing treatment.

I can understand how debilitating anxiety can be but we should be funding treatment rather than paying out for assistance. I’m sure most people with depression and anxiety would rather not have these debilitating conditions. The system is so upside down. With a better funded mental health service people wouldn’t need PIP.

2x4greenbrick · 23/02/2026 14:20

With a better funded mental health service people wouldn’t need PIP.

Some. Some wouldn’t. Some would. Just like with e.g. better physio and OT, some with physical health needs wouldn’t need PIP, but some would.

Did you/DH appeal?

Crwysmam · 25/02/2026 12:06

2x4greenbrick · 23/02/2026 14:20

With a better funded mental health service people wouldn’t need PIP.

Some. Some wouldn’t. Some would. Just like with e.g. better physio and OT, some with physical health needs wouldn’t need PIP, but some would.

Did you/DH appeal?

I did mandatory review but was still scored zero. What puzzled me was the inaccuracy of the report. I sat with DH during the assessment and made notes ( I’m an HCP so shit hot on accuracy) there were significant differences in my recollection and that of the assessor.
The assessment was via video link, DHs main disability is mobility, severe traumatic arthritis in his knee on the side affect by the stroke meant his level of mobility deteriorated rapidly. His knee destabilised without the muscle tone after the stroke. At no point did the assessor consider the mobility issue and relied heavily on the fact he could raise his arms above his head. He can no longer write with his right hand, not an issue in our modern world but it was the complete lack of consideration for his inability to plan that annoyed me since it was relevant to a number of the criteria. It is difficult to prove and as DH is heavily reliant on me then is almost hidden in real life.

In addition the lack of support ( entirely due to the pandemic) had a negative influence. We are an intelligent independent couple who have figured out ( muddled along) how to make the most of our situation but a blue badge would have meant accessing venues and everyday life would be easier.

DH is due to have a knee replacement soon ( currently put back due to bone cement shortage) so the mobility issue may well improve. But the last 4 years have been a logistical nightmare at times and DH has been effectively house bound as mobility has deteriorated. DH probably hasn’t helped himself since he refuses to use a mobility scooter.

Maybe if we had gone down the route of pestering OT the support for his application may have been more positive. There is a lot of truth in knowing how to play the system. But as hardworking self reliant individuals we are very reluctant to go down this route. Having never claimed any benefits before it can seem disingenuous to claim a payment even when you should qualify.

2x4greenbrick · 25/02/2026 12:47

Crwysmam · 25/02/2026 12:06

I did mandatory review but was still scored zero. What puzzled me was the inaccuracy of the report. I sat with DH during the assessment and made notes ( I’m an HCP so shit hot on accuracy) there were significant differences in my recollection and that of the assessor.
The assessment was via video link, DHs main disability is mobility, severe traumatic arthritis in his knee on the side affect by the stroke meant his level of mobility deteriorated rapidly. His knee destabilised without the muscle tone after the stroke. At no point did the assessor consider the mobility issue and relied heavily on the fact he could raise his arms above his head. He can no longer write with his right hand, not an issue in our modern world but it was the complete lack of consideration for his inability to plan that annoyed me since it was relevant to a number of the criteria. It is difficult to prove and as DH is heavily reliant on me then is almost hidden in real life.

In addition the lack of support ( entirely due to the pandemic) had a negative influence. We are an intelligent independent couple who have figured out ( muddled along) how to make the most of our situation but a blue badge would have meant accessing venues and everyday life would be easier.

DH is due to have a knee replacement soon ( currently put back due to bone cement shortage) so the mobility issue may well improve. But the last 4 years have been a logistical nightmare at times and DH has been effectively house bound as mobility has deteriorated. DH probably hasn’t helped himself since he refuses to use a mobility scooter.

Maybe if we had gone down the route of pestering OT the support for his application may have been more positive. There is a lot of truth in knowing how to play the system. But as hardworking self reliant individuals we are very reluctant to go down this route. Having never claimed any benefits before it can seem disingenuous to claim a payment even when you should qualify.

And when the MR was not successful, did you appeal? If not, you should have. A not inconsiderable proportion are only awarded on appeal.

It isn’t uncommon for inaccuracies in reports, either. That happens to lots and lots of people. That is why you appeal and provide evidence. More are recording assessments.

Knowing the criteria. What counts. What doesn’t. Evidencing difficulties is nothing to do with playing the system.

You can get a blue badge without PIP. There is nothing stopping you or DH applying for a blue badge and being assessed for one.

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