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Anyone get PIP for anxiety depression ADHD with autistic traits awaiting ASD assessment

142 replies

Thevegetarianchef · 19/01/2026 17:06

I've got my assessment next week.I don't know anyone claiming PIP so I've filled the form in and we will see.Just wonder if anyone one here gets it.
I've not been assessed for autism yet but my ADHD assessor said I had traits.
I feel this explains why I've always had extreme anxiety and struggle in social situations.

OP posts:
2x4greenbrick · 22/01/2026 15:17

ArseInTheCoOpWindow · 22/01/2026 15:12

Mine was renewed in September.

In the ‘Don’t send’ list from the DWP was A letter from your Gp. This was listed along with things like hospital appointment letters.

It might be new because l don’t remember it being there when l first applied .But this time it was.

I fill them out regularly. Sometimes letters from GPs are considered even when the notes say not to send them. As I said, it depends on the circumstances.

patooties · 22/01/2026 15:54

this thread is wild. That is all.

Reassurancells · 22/01/2026 16:00

patooties · 22/01/2026 15:54

this thread is wild. That is all.

Why is it wild?

PurpleLovecats · 22/01/2026 16:37

patooties · 22/01/2026 15:54

this thread is wild. That is all.

Agreed. The amount of people on here who seem to think they know the OP well enough to comment on whether she is deserving of support or not.
I claim PIP, it was REALLY hard to get, and probably rightly so. I’ve commented on threads on here and been quizzed multiple times on why I think I deserve it, what do I spend it on. Queries over my MH, suspicions of my motives, questioning my accounts of my day to day. It’s infuriating really.

CatAsstrophe · 22/01/2026 17:03

@Thevegetarianchef

Disregard the negative comments on here. These people don't know you, and never will.

Prepare for your assessment by looking at the points descriptors (Turn2Us is a useful website - Turn2us PIP Helper) and making notes about how your conditions affect your every day life, what you can't do, what you really struggle with, and the encouragement and support you need from others with things like cooking, eating, washing/bathing, getting about etc.

It would be helpful for you to stop oversharing with others i.e. you must've told your colleague about your ATW taxi funding - it's really no-one else's business but yours and people can be arseholes when they think others are getting more than they are.

All the best for the assessment 🌻

Turn2us PIP Helper

Use the Turn2us PIP Helper to learn how to manage each stage of your PIP (personal independence payment) application process.

https://pip.turn2us.org.uk/

CautiousLurker2 · 22/01/2026 17:06

Thevegetarianchef · 22/01/2026 14:42

Cautiouslurker2
Im sorry about your daughter.I agree life would be difficult without him as he gets the food and often cooks.I struggle with bothering to eat myself and often forget or get too exhausted after a day masking around some colleagues and my job is on my feet all day which is fine so I fall asleep around six and miss tea.
I worry about germs so clean alot.My self esteem is low so often survive on a yoghurt with fruit as it's simple and I take supplements.
I get overwhelmed so I can't do cinema restaurant pubs etc.
I'm good with personal hygiene too .
People don't realize the effort of being late diagnosed ADHD with autistic traits.

All of this sounds as though you are someone who might have benefited from DLA/PIP many years ago as the money might have been used to help you be more independent of your DH. I would be very clear when you are assessed of what your day looks like (struggling with food etc) and how much you need scaffolding by your partner in order to function - precisely the ways you described here. If it helps, make notes on all of these things - have you completed the extended form/booklet yet? I recall there was a telephone screening call first and then they sent the paperwork - the paperwork was where we described everything from eating issues, inability to keep her living areas clean, safety in the kitchen, needing to rehearse train trips and have someone at the other end (and on standby for if the train was cancelled!) etc.

We then had a visit from the DWP (though I understood that to be a vetting session for me to handle/receive her money, but it seemed very obvious that he was observing DD in her natural environment). We then had the assessor interview. She called to arrange but (based on the notes from the DWP first assessor, it seems), she said that an in person visit was deemed to be too overwhelming for her and that she was happy to do the process by phone with just me as her advocate.

The process was long (9months from first call by me until award granted) but everyone I spoke to was incredibly kind and supportive. Try not to worry and just be very honest and very open.

Thevegetarianchef · 22/01/2026 17:22

Yes all forms completed in October.I had to tell my supervisor as DWP are about to call and she is in charge while she is away.Dont worry I will make sure manager knows it's confidential and I will drop the subject.
Unprofessional of her to have a dig tbh.She has been the same with all miniscule adjustments that don't affect her.

OP posts:
Thevegetarianchef · 22/01/2026 17:24

Supervisor in charge while manager is away I mean.

OP posts:
Thevegetarianchef · 22/01/2026 17:26

I don't worry what others think.
They are not me with issues.

OP posts:
Thevegetarianchef · 22/01/2026 17:28

I've been one a train once is 40 years with dh.
Our DS met us and he was so proud I visited him.

OP posts:
TheSunRisesInTheEast · 22/01/2026 23:08

ArseInTheCoOpWindow · 22/01/2026 13:11

My dd gets it for these conditions.

We sent in heaps of evidence. Also Dh is the nominated person as she wouldn’t speak on the phone.

She has significant fatigue too. And is on medication, but still struggles.

As for ‘The Sun Rises’ well they obviously don’t need it if they can do all that stuff. Confused

Wow, that's so insensitive and hurtful. You don't know me, you don't know the pain I'm in from waking until I go to bed, and in the night when I can't sleep for the pain. I take painkillers. I have my feet injected in between my toes for the Morton's Neuroma, I have my hips injected to relieve the bursitis, I've had fibromyalgia for over 20 years which is all over body pain, brain fog, depression, anxiety, et al. I've got spinal stenosis, but don't want the operation offered because I'm nervous of the outcome and I'm too busy to be incapacitated, the surgeon said if I change my mind in the future, it can be arranged. I often get sciatica. Yes, I have more than my fair share of pain. Despite all of this I am not disabled, there is nothing I can't or won't do. I help look after my grandchildren and I help out with the care of my 94 year old MIL who has dementia. I do my own housework, then rest. I do the gardening, then rest. I do the shopping, then rest. I don't socialise because I don't like crowds or a lot of noise, I've given up going to the theatre or cinema because I feel trapped in those environments, but it doesn't matter, I like being out in the open air. I fail to see how any payments from the government will ease any of the above. I like to be independent, it's good for my mind, my self esteem and my feeling of being "normal". If people ask how I am, I say "fine", people don't want to hear about your aches, pains and woes, and it would drag me down to keep talking about it anyway. Keep smiling and count your blessings 🙂🙏

ArseInTheCoOpWindow · 23/01/2026 12:21

TheSunRisesInTheEast · 22/01/2026 23:08

Wow, that's so insensitive and hurtful. You don't know me, you don't know the pain I'm in from waking until I go to bed, and in the night when I can't sleep for the pain. I take painkillers. I have my feet injected in between my toes for the Morton's Neuroma, I have my hips injected to relieve the bursitis, I've had fibromyalgia for over 20 years which is all over body pain, brain fog, depression, anxiety, et al. I've got spinal stenosis, but don't want the operation offered because I'm nervous of the outcome and I'm too busy to be incapacitated, the surgeon said if I change my mind in the future, it can be arranged. I often get sciatica. Yes, I have more than my fair share of pain. Despite all of this I am not disabled, there is nothing I can't or won't do. I help look after my grandchildren and I help out with the care of my 94 year old MIL who has dementia. I do my own housework, then rest. I do the gardening, then rest. I do the shopping, then rest. I don't socialise because I don't like crowds or a lot of noise, I've given up going to the theatre or cinema because I feel trapped in those environments, but it doesn't matter, I like being out in the open air. I fail to see how any payments from the government will ease any of the above. I like to be independent, it's good for my mind, my self esteem and my feeling of being "normal". If people ask how I am, I say "fine", people don't want to hear about your aches, pains and woes, and it would drag me down to keep talking about it anyway. Keep smiling and count your blessings 🙂🙏

What you posted was sensitive and hurtful too.

Just because you choose not to claim it doesn’t mean anyone else should.

Moffett · 23/01/2026 12:31

TheSunRisesInTheEast · 22/01/2026 23:08

Wow, that's so insensitive and hurtful. You don't know me, you don't know the pain I'm in from waking until I go to bed, and in the night when I can't sleep for the pain. I take painkillers. I have my feet injected in between my toes for the Morton's Neuroma, I have my hips injected to relieve the bursitis, I've had fibromyalgia for over 20 years which is all over body pain, brain fog, depression, anxiety, et al. I've got spinal stenosis, but don't want the operation offered because I'm nervous of the outcome and I'm too busy to be incapacitated, the surgeon said if I change my mind in the future, it can be arranged. I often get sciatica. Yes, I have more than my fair share of pain. Despite all of this I am not disabled, there is nothing I can't or won't do. I help look after my grandchildren and I help out with the care of my 94 year old MIL who has dementia. I do my own housework, then rest. I do the gardening, then rest. I do the shopping, then rest. I don't socialise because I don't like crowds or a lot of noise, I've given up going to the theatre or cinema because I feel trapped in those environments, but it doesn't matter, I like being out in the open air. I fail to see how any payments from the government will ease any of the above. I like to be independent, it's good for my mind, my self esteem and my feeling of being "normal". If people ask how I am, I say "fine", people don't want to hear about your aches, pains and woes, and it would drag me down to keep talking about it anyway. Keep smiling and count your blessings 🙂🙏

You are clearly disabled 🤨 Choosing to be a martyr doesn't get you anywhere.

Funnywonder · 23/01/2026 13:09

TheSunRisesInTheEast · 22/01/2026 23:08

Wow, that's so insensitive and hurtful. You don't know me, you don't know the pain I'm in from waking until I go to bed, and in the night when I can't sleep for the pain. I take painkillers. I have my feet injected in between my toes for the Morton's Neuroma, I have my hips injected to relieve the bursitis, I've had fibromyalgia for over 20 years which is all over body pain, brain fog, depression, anxiety, et al. I've got spinal stenosis, but don't want the operation offered because I'm nervous of the outcome and I'm too busy to be incapacitated, the surgeon said if I change my mind in the future, it can be arranged. I often get sciatica. Yes, I have more than my fair share of pain. Despite all of this I am not disabled, there is nothing I can't or won't do. I help look after my grandchildren and I help out with the care of my 94 year old MIL who has dementia. I do my own housework, then rest. I do the gardening, then rest. I do the shopping, then rest. I don't socialise because I don't like crowds or a lot of noise, I've given up going to the theatre or cinema because I feel trapped in those environments, but it doesn't matter, I like being out in the open air. I fail to see how any payments from the government will ease any of the above. I like to be independent, it's good for my mind, my self esteem and my feeling of being "normal". If people ask how I am, I say "fine", people don't want to hear about your aches, pains and woes, and it would drag me down to keep talking about it anyway. Keep smiling and count your blessings 🙂🙏

That sounds very difficult and of course it is entirely up to you whether or not you feel the need to claim PIP. But you could at least try to have some sympathy for others whose lives are impacted to the point where they CAN’T do the things you manage to do without significant help. People experience pain differently. People with ASD for example, are often known to either not be sufficiently aware of pain, leading to possible dangerous outcomes, or to experience pain very acutely to the point of being more debilitated than neurotypical people. You mention anxiety and depression. Well that can be anything from a prevailing low mood and a tendency to overthink, to an absolutely crushing feeling of no point and no hope with a fear of leaving your house, even your room. Or your bed. And everything in between. We are all different. You aren’t special because you soldier on. You’re just different from others who can’t. So yeah, count your blessings. Not everyone has a whole lot of them to count.

TheSunRisesInTheEast · 23/01/2026 13:16

No, not disabled, I'm able to do everything I want to do. I don't want to climb mountains, run a marathon or swim the Channel. I'm happy with my life. I used to go to a fibromyalgia support group, my god, enough misery to make me want to slit my wrists, and a lot of them were on benefits because they'd exaggerated what they couldn't do, they freely admitted to it at the group and encouraged others to do the same. Stop moaning and be thankful for what you can do. Needless to say I stopped going to the "support" group, I'm my own best support. And no, I'm not a martyr, I get pleasure from achieving things, if it's only cutting the grass and having a nice environment to live in. It doesn't affect anyone, because I don't moan about my pain, I'm fine, thank you very much. I only opened up on here because it annoys me how much money is claimed in this country for this, that and the other, and it will only get worse with the prevalent mindset of entitlement. Medication is readily available for all health conditions, I have paid for my prescriptions all my life until I was 60 last year, it's just how it is. Health is a lottery, I've just been unlucky, I don't need compensating for being in pain that subsides with painkillers, I control my anxiety with citalopram, job done 👍

Thevegetarianchef · 23/01/2026 13:21

I agree with this.For decades I counted my blessing and in a way still do.I thought everyone felt the same.I knew I had an eating disorder and had therapy.I knew I had hideous anxiety so accepted help when I couldn't leave my house or it was extremely hard.
I worked and worked as I cannot do much else like socialize go abroad.I may not even get PIP.
I'm hoping for the mental health support via access to work
.Im getting on a bit now so some help would be v useful as dcs live too far away for me to see regularly.Dh could pass away sooner than me.
Each to there own.Apply yourself as you won't get it unless DWP thinks that you should .

OP posts:
ArseInTheCoOpWindow · 23/01/2026 13:31

TheSunRisesInTheEast · 23/01/2026 13:16

No, not disabled, I'm able to do everything I want to do. I don't want to climb mountains, run a marathon or swim the Channel. I'm happy with my life. I used to go to a fibromyalgia support group, my god, enough misery to make me want to slit my wrists, and a lot of them were on benefits because they'd exaggerated what they couldn't do, they freely admitted to it at the group and encouraged others to do the same. Stop moaning and be thankful for what you can do. Needless to say I stopped going to the "support" group, I'm my own best support. And no, I'm not a martyr, I get pleasure from achieving things, if it's only cutting the grass and having a nice environment to live in. It doesn't affect anyone, because I don't moan about my pain, I'm fine, thank you very much. I only opened up on here because it annoys me how much money is claimed in this country for this, that and the other, and it will only get worse with the prevalent mindset of entitlement. Medication is readily available for all health conditions, I have paid for my prescriptions all my life until I was 60 last year, it's just how it is. Health is a lottery, I've just been unlucky, I don't need compensating for being in pain that subsides with painkillers, I control my anxiety with citalopram, job done 👍

It’s not for Long Covid and Chronic Fatigue. I’m currently bedbound. Maybe l shouldn’t receive it either?

LadyKenya · 23/01/2026 13:38

@TheSunRisesInTheEast Good for you, that you are able to work through whatever issues you are dealing with, and they are not impeding your life in a debilitating way. You should indeed count your blessings, and also understand that your life, and your body, are just that.

2x4greenbrick · 23/01/2026 13:39

that's so insensitive

A bit like some of your posts then. Just because you manage all that doesn’t mean others can. Some people are disabled.

To suggest there is medication for all health conditions is ignorant and plain incorrect. And that’s before considering that medication that is available for some conditions doesn’t help everyone to the point they aren’t eligible for PIP.

ArseInTheCoOpWindow · 23/01/2026 13:44

2x4greenbrick · 23/01/2026 13:39

that's so insensitive

A bit like some of your posts then. Just because you manage all that doesn’t mean others can. Some people are disabled.

To suggest there is medication for all health conditions is ignorant and plain incorrect. And that’s before considering that medication that is available for some conditions doesn’t help everyone to the point they aren’t eligible for PIP.

Yeah if there was medication for everything no one would dieConfused

Amiunemployable · 23/01/2026 13:50

Oh, well. They accepted a letter from my GP surgery. Or maybe they did disregard it. I have no idea. But that was the only accompanying evidence I sent with my application.

Reassurancells · 23/01/2026 15:29

TheSunRisesInTheEast · 23/01/2026 13:16

No, not disabled, I'm able to do everything I want to do. I don't want to climb mountains, run a marathon or swim the Channel. I'm happy with my life. I used to go to a fibromyalgia support group, my god, enough misery to make me want to slit my wrists, and a lot of them were on benefits because they'd exaggerated what they couldn't do, they freely admitted to it at the group and encouraged others to do the same. Stop moaning and be thankful for what you can do. Needless to say I stopped going to the "support" group, I'm my own best support. And no, I'm not a martyr, I get pleasure from achieving things, if it's only cutting the grass and having a nice environment to live in. It doesn't affect anyone, because I don't moan about my pain, I'm fine, thank you very much. I only opened up on here because it annoys me how much money is claimed in this country for this, that and the other, and it will only get worse with the prevalent mindset of entitlement. Medication is readily available for all health conditions, I have paid for my prescriptions all my life until I was 60 last year, it's just how it is. Health is a lottery, I've just been unlucky, I don't need compensating for being in pain that subsides with painkillers, I control my anxiety with citalopram, job done 👍

Yes but you know what? I can’t do the things you do. I can’t cut my grass.

I can’t do everything I want to do. And I no more want to climb a mountain than rise and fly to the moon.

im glad you’re able to function to a level that you feel you dont need pip. That’s great for you.

But I need it to cover the additional costs I have due to being disabled. It doesn’t cover them all but it helps.

plus it helps me get reasonable adjustment a - for eg at work I just printed off my entitlement Info

and as to “medication is available for all health conditions” that’s just nonsense.

Theres no medication I can take that gives me effective pain relief. None. I’ve tried them all. Up to and including morphine and fentanyl so that’s just nonsense.

ArseInTheCoOpWindow · 23/01/2026 15:33

I’m still waiting to here what medication is available for my condition. As it’s available for all conditions after all.

And even if it is available, not everyone can tolerate it.

I pay tax to support people in hardship. I’m perfectly happy with that.

Funnywonder · 23/01/2026 16:20

I agree with pp’s about medication. DP suffers from a particular type of fluctuating chronic pain. But he’s on medication for another condition that is contraindicated with the type of painkiller that would help with the pain. My son is in a similar situation where the most important medication he’s on, ie the one keeping him alive, immediately excludes him from taking many other medications that he might benefit him. It’s not always simple.

Thevegetarianchef · 23/01/2026 18:14

I could take ADHD meds except there is a serious heart condition in our family and ASD traits are exposed apparently which is fine except my ADHD covers some of my social issues and makes me more focused on tasks.
It majorly takes away appetite which is difficult when I already forget to eat.
Anti depressants don't work with ASD when the autism is the cause.

OP posts: