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A new Neurodiversity support thread for those with suspected or diagnosed ASD, ADHD and other NDs

1000 replies

PigPigTrotters · 19/10/2016 17:32

Yet another thread for neurodivergent mumsnetters.

Lots of links in old threads.

Anyone is welcome, it's not just about autism.

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PigPigTrotters · 06/11/2016 20:11

The meal looks lovely!

I masked in my ADOS because I felt so uncomfortable, there are times when I can't help it, I think it's a coping mechanism - something's wrong, look normal!

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PolterGoose · 06/11/2016 20:37

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CrohnicallyPregnant · 06/11/2016 20:46

Congratulations Polter! Think you earned that meal!

PolterGoose · 06/11/2016 20:57

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Albadross · 06/11/2016 21:04

Polter you must be knackered!

Were there lots of visual tests?

I'm told it's £900 to be assessed privately - I feel like if I paid and then it turned out I'm NT id be really annoyed Hmm

PolterGoose · 06/11/2016 21:13

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LauraMipsum · 06/11/2016 21:57

Would you mind saying where you went Polter? I'm considering a clinical diagnosis as well as the assessment I already have.

autisticrat · 06/11/2016 22:51

I'm beginning to realise how lucky I was to get an assessment on the NHS.

PolterGoose · 07/11/2016 06:21

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BigDamnHero · 07/11/2016 10:12

I'm so glad for you, Polter. I know the full clinical diagnosis doesn't really change much day to day for you but I bet it feels like you've been working towards this since you first had suspicions.

I've reached out a bit to the mum at DS1's school who gave us their old buggy when ours broke. I suspect she's already been reaching out and trying to be my friend anyway but it's still made me go all stimmy.

I think she might have an assessment for her youngest on the same day as DS2's assessment (I'd know for sure if I could find the damn letter - which is stressing me out) so we might be able to help/support each other through that.

It's been so long since I've really had a proper 'real life' friend, though, so I fear I'm a bit crap at it. Blush

BigDamnHero · 07/11/2016 10:22

Now, I'm also annoyed I wrote 'stimmy' when I could have used 'spergy', which I loved when other people were using it earlier in the thread. Grin

PolterGoose · 07/11/2016 12:22

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BigDamnHero · 07/11/2016 13:43

Polter, I'm really good at that sort of problem solving when it's someone else but am somewhat lacking when it's for me. Like, I'm always the first to ask if someone's taken painkillers if they say they have a headache but never think to take them when I'm in pain.

So, I was brave and agreed to go to Costa with the other mum on Friday and now I've had a phone call about a problem with my repeat prescription and I have to go for a doctor's appointment on Friday. Not only does this mean saying I'm no longer free all of Friday to the other mum after I said I was free all day but it also means I'll run out of my antidepressants before Friday. Ugh.

PolterGoose · 07/11/2016 13:50

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CrohnicallyPregnant · 07/11/2016 14:04

big can your drs prescribe you a few extra tablets to tide you over till Friday? You really shouldn't miss doses of anti ds!

If the doctors won't, do you get your prescription from the same pharmacy each time? If you go in the evening after your surgery closes, they should be able to give you an emergency supply and take the amount off your next prescription.

PigPigTrotters · 07/11/2016 14:06

Pleased you're back home safely Polter.

Steady day today, had a long chat with a neighbour who has an autistic son, nice to have people nearby who get it. Unlike another who took me to one side to tell me that another neighbour's child (under investigation for ASD - we're ASD Central here!) was making it all up and attention seeking Hmm. Very pleased with myself that I was able to tell her why that assumption was crap without offending her. Seriously, why does everyone always assume that a) it's parenting and b) the child is deliberately behaving differently, it makes them look very stupid and judgemental (perhaps I'll tell her that if she says it again!).

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PolterGoose · 07/11/2016 14:58

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PigPigTrotters · 07/11/2016 15:07

I did feel good that I spoke up, usually I'd nod and agree then feel rubbish after.
My neighbour (the one waiting for assessment) is going through a very similar time that we went through with ds2, and it's quite shocking seeing it from the outside, and hopefully I'm able to help her a bit, and understand what they're going through. She thinks she's ASD too, we compare traits sometimes!

Had a very productive day, and I'm now knackered and will need at least three days to recover Grin. On the plus side, the bathroom, which has been covered in fake blood since Halloween (thanks ds2!) is now clean.

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PigPigTrotters · 07/11/2016 15:10

And I have a new fleece, an eBay special blue fleece GAP hoodie, which I suspect may be a fake as it was sold as used and label cut out because it was itchy (who am I to argue with that? Most of my labels are cut out!), but it's clearly not been used at all and smells new. Ah well, was only £5 so I shouldn't grumble.

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CrohnicallyPregnant · 07/11/2016 15:15

Oh, just been to Lidl and they had gorgeously fluffy and soft women's fleeces in, grey with a collar and dusky pink with a hood. Unfortunately they only had small in the pink (and it wouldn't fit over my bump!) else I would have got one. They had large grey ones but I don't like ones with collars! Might have to check other branches to see if they have more in.

LauraMipsum · 07/11/2016 15:32

Urgh I want to hide under a table with a blanket and not come out. I'm not going to but I am struggling today.

PolterGoose · 07/11/2016 15:39

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LauraMipsum · 07/11/2016 17:33

Just tired and having an "I'm an awful person" day. I sometimes wish I had a NT repertoire of responses - or could learn some - because on the occasions when I get it wrong I really get it wrong. So far this week I've upset two people I love.... and that's the ones I know about. And if I get things wrong I get very anxious and when I'm anxious I catastrophise and when I catastrophise a minor misunderstanding turns into the worst thing in the universe.

PolterGoose · 07/11/2016 18:06

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BigDamnHero · 07/11/2016 19:24

Told the other mum so we'll sort something when I next see her at the school gate (her DS has been off ill so not sure when that will be).

Crohn, it just seems like so much in terms of both phone calls and walking (I don't drive and it's over half an hour walk to either the pharmacy or the GP's) that it almost seems like missing the pills would be easier. I might see if I can take half a tablet a day from now on, which will mean I'm at least taking something through 'til Friday. It's not ideal but any option at this point seems bad.

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