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One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
Thread gallery
12
ExpectMore · 17/10/2026 15:08

BluebellBeth · 17/10/2026 14:14

and how does a sense of duty fund petrol costs? Again, lucky you for having the money to do so, not everyone does. You really are deluded.

Remember where this is coming from: petrol costs for a family member in the scenario of them choosing that over a paid for taxi.

If they can’t afford the petrol money, opt for the paid for taxi!

It’s not complicated.

dreamiesformolly · 17/10/2026 15:08

AmberTigerEyes · 17/10/2026 14:45

They might suggest euthanasia, there is a worrying overlap amongst people who do not want to contribute their taxes to care for the disabled and the elderly and being in favour of assisted dying. Never mind that we will all get old and many who are abled will become disabled before pension age.

Agree. This worries me a lot too.

ExpectMore · 17/10/2026 15:11

BugJuice · 17/10/2026 14:15

And what if that ‘time of need’ lasts 40+ years? Our ‘time of need’ with DS had been going on for 7 years now, and will continue until he dies.

It is what it is and is part of the considerations people make when having a family.

EG we had to think long and hard about having a second as, as slightly older parents, were aware of the increased likelihood of them being born with additional needs and had to decide if that were to happen, could we make it work financially, logistically etc which is particularly challenging for us as we don’t live near family and recognising we know it wouldn’t just be until they’re 18.

That’s presumably what people do right? Not take gambles they can’t afford to lose or am I missing something?

ExpectMore · 17/10/2026 15:13

Noras · 17/10/2026 14:30

Yes when people are trying to make me work harder as an unpaid carer. I think that my response is quite muted.

People have staged rebellions when treated as slave labour which is what this is.

Your statement is completely disingenuous to those that were actual slaves and completely negates the horrors of their treatment. You should be ashamed.

roaringdragon · 17/10/2026 15:13

ExpectMore · 17/10/2026 15:08

Remember where this is coming from: petrol costs for a family member in the scenario of them choosing that over a paid for taxi.

If they can’t afford the petrol money, opt for the paid for taxi!

It’s not complicated.

It really isn’t that simple, though. Your lack of understanding and experience of disability shines though. There are plenty of reasons why someone would use family/friends over a taxi. For example, it isn’t always possible to get a taxi when you need one, particularly in some areas &/or at some times of the day. Another example, taxis aren’t suitable for all disabilities.

roaringdragon · 17/10/2026 15:15

ExpectMore · 17/10/2026 15:06

I can imagine the never ending nature of it would be tough. Personally I’d find that and the restrictions on my own free time challenging.

I don’t think you really can imagine. If you could, you wouldn’t be posting the nonsense you are.

Kirbert2 · 17/10/2026 15:15

roaringdragon · 17/10/2026 15:13

It really isn’t that simple, though. Your lack of understanding and experience of disability shines though. There are plenty of reasons why someone would use family/friends over a taxi. For example, it isn’t always possible to get a taxi when you need one, particularly in some areas &/or at some times of the day. Another example, taxis aren’t suitable for all disabilities.

Yep.

pp has clearly never had to order an accessible taxi before.

ExpectMore · 17/10/2026 15:16

XenoBitch · 17/10/2026 14:31

Burden? is that how you see disabled and elderly now?
My friend recently had her mum moved into a care home because she could not look after her anymore. It was not due to lack of wanting to, or trying to palm her off on to someone else. Her DM has dementia. As it goes on, it gets harder and harder to handle, and they need specialised care and someone with them 24/7.
No one can do that at home, and somehow work and bring up their own children at the same time.
My grandad had family help, but he drew the line at personal care. He had carers in for that. He wanted some dignity.
And it is always the women in the family that are expected to give up everything for their parents. My DM was a carer for her MIL... not even her own mum, but the sons would not lift a finger.

What do the people giving up work to look after their parents live on?

Well I think what many in this forum have described as what they have to do to care for disabled children / elderly parents satisfies the definition of “burden”:

Burden: a heavy physical load, a difficult responsibility, or an unpleasant worry that is hard to bear.

Pretty accurate to me no? Or don’t you think it’s such things?

ExpectMore · 17/10/2026 15:17

AmberTigerEyes · 17/10/2026 14:45

They might suggest euthanasia, there is a worrying overlap amongst people who do not want to contribute their taxes to care for the disabled and the elderly and being in favour of assisted dying. Never mind that we will all get old and many who are abled will become disabled before pension age.

Nope. Never. Neither that nor any other form of voluntary killing.

your statement is both hyperbole and offensive.

XenoBitch · 17/10/2026 15:19

ExpectMore · 17/10/2026 15:16

Well I think what many in this forum have described as what they have to do to care for disabled children / elderly parents satisfies the definition of “burden”:

Burden: a heavy physical load, a difficult responsibility, or an unpleasant worry that is hard to bear.

Pretty accurate to me no? Or don’t you think it’s such things?

I have never seen anyone who is a carer, be it for their disabled child or elderly parent, call them a burden.
That word came from you.

ExpectMore · 17/10/2026 15:21

XenoBitch · 17/10/2026 15:19

I have never seen anyone who is a carer, be it for their disabled child or elderly parent, call them a burden.
That word came from you.

It did, and I’m defending its use per its dictionary definition. You seem to be trying to be offended by someone using a word per its correct dictionary meaning which is a new one.

BoredZelda · 17/10/2026 15:22

ExpectMore · 16/10/2026 22:04

Rubbish. You’ve been drinking Nigel’s koolaid forgetting it’s laced with tripe.

“Johnny foreigner” is not to blame for our welfare bill issues. Even if he were, you wouldn’t only tackle British issues once Johnny’s issues have been resolved - the world doesn’t require sequential working in that sense.

Re. PIP, or a portion of it, being awarded in vouchers. Isn’t this preferential? Surely that way cost of living issues and inflation pressures are removed from the table and recipients don’t need to worry about turn.

ie 1 x voucher for 1 x hour of physio / kg veg or whatever will always get the recipient 1 x hour of physio / kg of veg independent of micro and macro economic cost increased, meaning recipients are sheltered financially?

Isnt this preferable?

physio / veg chosen as random examples only

What if a person needs 2 hours of physio and 1/2 a kilo of veg? What if the only place they can get that physio is two hours round trip and they have no taxi voucher left? What if they live rurally and the taxi company doesn’t accept vouchers? What if the vouchers can only be spent in the big supermarkets but they get all their veg from the local store?

Who is going to manage this voucher scheme and what will it cost? Remember the childcare voucher scheme, managed by companies like Sodexo? Apart from the fact they took 700 quid of my money in vouchers I couldn’t use due to covid, the admin it required from me and the restrictions on using the vouchers made it really difficult. Many disabled people who don’t need care, but are perhaps unable to navigate government systems which can be quite complex will find it hard to manage. It is unnecessary and there is absolutely no benefit to the tax payer, nor to disabled people. The only reason vouchers are ever used in these types of schemes is when someone decides the people who are claiming a benefit, can’t be trusted to spend their money wisely.

Do you think we should introduce a similar scheme rather than giving out pension money? How do we know pensioners are spending our money wisely? Why am I as a tax payer, paying for my pensioner neighbours to swan off on yet another holiday?

ExpectMore · 17/10/2026 15:23

Noras · 17/10/2026 13:23

just imagine being in your 60s and having to look after your adult son all day Saturdays whilst your friends go away for 3 weeks to Africa enjoying their retirement. You promote them out of bed, you take them for a walk * they can’t walk alone) you plan their breakfast, you take then in the evening to the theatre etc there is no let up. You play pass the parcel with your DH - today I organised his flu jab as it’s getting impossible to do with the GP and picked up his meds from the pharmacy.

My Facebook page is full of friends enjoying their 60s.

I have had enough of caring.

My dad died at home from horrendous melanoma cancer and was plus 2 so we were in on a rota to support the carer ( emptying the catheter and wiping his bum) and my mum had vascular dementia and was at home except for the last 6 months and I supported dad with her care. I’ve done my parents care.

On top of that my son was at the time of my mums death having prolonged fits lasting an hour and other issues eg severe asthma attacks ( hospitalised) He was also then bowel incontinent,

I have had enough of being a carer - no more admin.

II have already told social services that they can forget me being a carer especially at retirement age when I don’t even get the measly £85 ( on which I have to pay tax) as I get a state pension. This is disgraceful if I am still caring. So no I won’t do that and I won’t do any more admin,

People want to impose more admin / more bureaucracy but seem to think that this will be done for free - well no it will be the tipping point for many. The costs will be huge as the care bill will expand.

If people are that desperate to attack disabled people we can lock all our disabled people up and throw away the key - I mean clearly you hate their very existence and want to confine them to a low cost box with no sense of normality with vouchers for food and care costs etc. You want older aprents to act indefinitely as their carers - sorry no.

Unless you are responsible for a disabled adult child you have no idea and don’t even try to analogise it to looking after elderly parents ( we have had those too) Elderly parents die but our adult kids usually outlive us. At one point we have had enough.

Sp don’t add to the burden - it’s already too much.

@XenoBitchsee above quote where poster refers to the task as a burden.

ExpectMore · 17/10/2026 15:25

BoredZelda · 17/10/2026 15:22

What if a person needs 2 hours of physio and 1/2 a kilo of veg? What if the only place they can get that physio is two hours round trip and they have no taxi voucher left? What if they live rurally and the taxi company doesn’t accept vouchers? What if the vouchers can only be spent in the big supermarkets but they get all their veg from the local store?

Who is going to manage this voucher scheme and what will it cost? Remember the childcare voucher scheme, managed by companies like Sodexo? Apart from the fact they took 700 quid of my money in vouchers I couldn’t use due to covid, the admin it required from me and the restrictions on using the vouchers made it really difficult. Many disabled people who don’t need care, but are perhaps unable to navigate government systems which can be quite complex will find it hard to manage. It is unnecessary and there is absolutely no benefit to the tax payer, nor to disabled people. The only reason vouchers are ever used in these types of schemes is when someone decides the people who are claiming a benefit, can’t be trusted to spend their money wisely.

Do you think we should introduce a similar scheme rather than giving out pension money? How do we know pensioners are spending our money wisely? Why am I as a tax payer, paying for my pensioner neighbours to swan off on yet another holiday?

Don’t you plan on being a pensioner one day?

BoredZelda · 17/10/2026 15:35

ExpectMore · 17/10/2026 15:11

It is what it is and is part of the considerations people make when having a family.

EG we had to think long and hard about having a second as, as slightly older parents, were aware of the increased likelihood of them being born with additional needs and had to decide if that were to happen, could we make it work financially, logistically etc which is particularly challenging for us as we don’t live near family and recognising we know it wouldn’t just be until they’re 18.

That’s presumably what people do right? Not take gambles they can’t afford to lose or am I missing something?

What about people who aren’t “slightly older parents”? What about people who’s children become disabled due to accident or illness? Are you suggesting nobody should choose to become a parent unless they are 100% certain, given every eventuality that could possible happen, they would be more than capable of dealing with it, with absolutely no support from anyone except family? Where does that end? Why only put that on parents? Why not do the same for anyone who takes part in, say, sports. You choose to play rugby, if you get injured you should make sure you can look after yourself with no state help. Why not get rid of the state pension? You know that when you retire, you will need money to look after yourself or have your family do it for you. You’ve 50 working years to make provision, if you haven’t, you’re on your own.

You are speaking with an abundance of privilege, having had opportunities that many people have not, through no fault of their own. Any society is judged by how it takes care of its most vulnerable members. Do you really believe we should leave them to rot?

BluebellBeth · 17/10/2026 15:35

ExpectMore · 17/10/2026 15:05

There’s various scenarios under which it’d work. Proven by the fact people do it already.

Like them having money?

BluebellBeth · 17/10/2026 15:37

ExpectMore · 17/10/2026 15:08

Remember where this is coming from: petrol costs for a family member in the scenario of them choosing that over a paid for taxi.

If they can’t afford the petrol money, opt for the paid for taxi!

It’s not complicated.

And if you remember, I pointed out this would cost the tax payer far MORE than pip being paid in cash.

ExpectMore · 17/10/2026 15:37

BoredZelda · 17/10/2026 15:35

What about people who aren’t “slightly older parents”? What about people who’s children become disabled due to accident or illness? Are you suggesting nobody should choose to become a parent unless they are 100% certain, given every eventuality that could possible happen, they would be more than capable of dealing with it, with absolutely no support from anyone except family? Where does that end? Why only put that on parents? Why not do the same for anyone who takes part in, say, sports. You choose to play rugby, if you get injured you should make sure you can look after yourself with no state help. Why not get rid of the state pension? You know that when you retire, you will need money to look after yourself or have your family do it for you. You’ve 50 working years to make provision, if you haven’t, you’re on your own.

You are speaking with an abundance of privilege, having had opportunities that many people have not, through no fault of their own. Any society is judged by how it takes care of its most vulnerable members. Do you really believe we should leave them to rot?

Of course not, none can ever be 100% certain of anything. It’s about managing the balance of probabilities against your own personal risk threshold.

Trust me, I haven’t had an abundance of privilege in life, whatever you may think.

Kirbert2 · 17/10/2026 15:40

BoredZelda · 17/10/2026 15:35

What about people who aren’t “slightly older parents”? What about people who’s children become disabled due to accident or illness? Are you suggesting nobody should choose to become a parent unless they are 100% certain, given every eventuality that could possible happen, they would be more than capable of dealing with it, with absolutely no support from anyone except family? Where does that end? Why only put that on parents? Why not do the same for anyone who takes part in, say, sports. You choose to play rugby, if you get injured you should make sure you can look after yourself with no state help. Why not get rid of the state pension? You know that when you retire, you will need money to look after yourself or have your family do it for you. You’ve 50 working years to make provision, if you haven’t, you’re on your own.

You are speaking with an abundance of privilege, having had opportunities that many people have not, through no fault of their own. Any society is judged by how it takes care of its most vulnerable members. Do you really believe we should leave them to rot?

Yep.

I was 25 when I had my son who is my only child. He was born healthy and suddenly became disabled when he was 8 due to complications from an illness.

How could I have predicted that was going to happen?

BluebellBeth · 17/10/2026 15:43

ExpectMore · 17/10/2026 15:17

Nope. Never. Neither that nor any other form of voluntary killing.

your statement is both hyperbole and offensive.

So how do you propose family who have to give up their jobs to care for elderly/disabled family because their sense of duty should make them, survive when they end up with no income/not enough to survive on?

Ted27 · 17/10/2026 15:43

What is the obsession on this thread about taxis and petrol money

BoredZelda · 17/10/2026 15:48

ExpectMore · 17/10/2026 15:25

Don’t you plan on being a pensioner one day?

I do. Even though it is happening 12 years later than I was promised when I started working.

I started my own personal pension when I was 24. I’ve increased the amount I pay into my pension as my career has grown, to the point where my pension calculations make no allowance for the state pension. There is no guarantee of what it will be or when I will get it so I am not basing my future needs on it. I’m very privileged that I have been able to do that and am aware that for many people that isn’t possible. That’s why if in 15 or so years time, the triple lock has gone, or taxation on higher earning pensions rises, or the state pension is means tested, I’m entirely ok with that if it is done to provide for people who need the money more than me or reduces over half of the benefits bill.

If we remain as we are and disability benefits continue to be cut whilst people like my parents who could comfortably live on their private pensions still get a full state pension (yet complain whenever a change to state pension is suggested) then whatever state pension paid to me will be passed on to my disabled daughter who will definitely need the money to pay the additional costs she faces.

I also have to consider that she will not be able to step in and care for us in our dotage, because of her disability, so we will have to allow for provision of personal care. It’s not always as simple as “it’s what family does”.

ExpectMore · 17/10/2026 15:50

BluebellBeth · 17/10/2026 15:35

Like them having money?

Well fundamentally everyone needs money to pay for the things they need. Unless you can let me in on a secret of how to live cost free?!

BoredZelda · 17/10/2026 15:50

ExpectMore · 17/10/2026 15:37

Of course not, none can ever be 100% certain of anything. It’s about managing the balance of probabilities against your own personal risk threshold.

Trust me, I haven’t had an abundance of privilege in life, whatever you may think.

You’ve had enough privilege that you can’t understand why what you are arguing and the choices you made, are not possible for a whole lot of people.

The balance of probability is exactly why we have to make sure for those who the risks were low but the consequences were high, have the support and care they need rather than letting them sink because “well, life sucks sometimes”

BoredZelda · 17/10/2026 15:53

ExpectMore · 17/10/2026 15:50

Well fundamentally everyone needs money to pay for the things they need. Unless you can let me in on a secret of how to live cost free?!

This shows a deep misunderstanding of the issues around poverty and how it impacts on people. You should be ashamed of yourself.

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