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One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
Thread gallery
12
pointythings · 17/10/2026 09:41

ExpectMore · 17/10/2026 09:37

Agreed. That would be a good idea also*. Similarly for JSA etc etc.

*not withstanding previous suggestion of scrapping child benefit

It would be a disastrous idea. What you would get would be people using their vouchers to buy approved things that they don't want or need, then selling those things to others for cash at below their market value. You'd end up with a thriving black market. All because people like you want to patronise those who are poorer.

emuloc · 17/10/2026 09:44

A voucher scheme in place of a PIP payment, has already been mooted, and discounted, for good reasons. Many posters have already taken the time, to detail why it would not be viable. It remains to be seen, what the Government's plans are for PIP, going forward.

ExpectMore · 17/10/2026 09:45

Noras · 17/10/2026 07:57

Running someone’s entire life is a admin burden as it is.

Imagine running someone entire life, where they go, what they do, how they do it and who does it for them

eg prompting them into shower when they lie and say the showered, deciding they eat for breakfast and prepping eg porridge , deciding what they wear, is their toilet blocked, have they taken their meds, liaising with go sorting out the flu jab, checking timetable what are they doing today, doing their shopping eg for more pants, checking UC messages, checking messages from college or university, changing mentor timetable as one mentor has dropped out, liaising with PA to discuss day, chasing taxi that is late, checking through tidying their room and cleaning their clothes, cutting food to help them make sandwich, making sure you are back for their return, debrief from the PA, dealing with a melt down and threats to kill themselves, checking therapy appointment, chasing a Pa who has not responded to requests to go on training and supply criminal records check, liaising with care agency about alternative recruiting, emailing university student support about exact funding for trip and what costing are, itemising costs for the week to do a bank transfer with clear annotations for social care audit. Checking university bag to ensure no rotten banana left in it. Cooking and showing disabled person what spices to use and how to cook ( having significant patience when allowing them to participate with what they can do ) listening to them explaining about issue they had during the day, noting nails needs cutting and getting DH to do this etc etc. running through their next days timetable and what they will be doing, telling them when to go to bed, being worked up at 12.00 with toilet blockage issues etc etc

Add in messing with vouchers - sorry it’s a no not unless they significantly increase carers allowance for the additional burden .

I can imagine it’s very much like looking after a child which we as all parents do (right down to buying their pants for them!) whilst also having to deal with the additional medical admin burden which I imagine would be frustrating given the current quality of the systems.

AmberTigerEyes · 17/10/2026 09:47

ExpectMore · 17/10/2026 09:36

Just like there’s a flood of fake digital train tickets, plane tickets, football entry tickets, uber accounts….? Clearly not. Digital is more secure than hard copy

If we look at event tickets alone, 14% of UK concert goers have been victims of fake tickets. Fake football tickets are very common too
https://anyseats.net/blog/how-to-spot-fake-football-tickets

Fraud on uber accounts is rife https://www.cbsnews.com/news/uber-doordash-lyft-rented-stolen-accounts-fraud-rideshare-food-delivery/

Train ticket fraud is very lucrative
https://www.facebook.com/yorkshirepost.newspaper/posts/two-university-students-pulled-off-a-jaw-dropping-140000-train-ticket-scam-by-ca/1102173925448203/

plane tickets also easily faked
https://www.bbc.com/news/articles/c743d7vdwzyo

It would be a doddle to fake some vouchers or post a fake gov approved catalog for disability equipment, or generate fake receipts for reimbursement.

BugJuice · 17/10/2026 09:48

ExpectMore · 17/10/2026 09:45

I can imagine it’s very much like looking after a child which we as all parents do (right down to buying their pants for them!) whilst also having to deal with the additional medical admin burden which I imagine would be frustrating given the current quality of the systems.

I have three children. Two are non disabled, one is disabled. In our particular case, it is impossible to compare the care of our non disabled children to the care of our disabled child. It just isn’t in the same ball park.

AmberTigerEyes · 17/10/2026 09:48

pointythings · 17/10/2026 09:41

It would be a disastrous idea. What you would get would be people using their vouchers to buy approved things that they don't want or need, then selling those things to others for cash at below their market value. You'd end up with a thriving black market. All because people like you want to patronise those who are poorer.

That is exactly what happened when food stamps (vouchers or restricted debit cards for food) were used instead of cash benefits.

ExpectMore · 17/10/2026 09:49

Noras · 17/10/2026 08:04

So that persons time is worth nothing?

Carers give up their lives and currently get about £85 per week. Many do so with no legal compulsion to care. The State has a duty to care and using parent carers is almost free in comparison. Once a child is 18 weeks can tell the state to take over and trust me, it’s tempting when you have burn out. you can go imagine the restrictions on your life when you have a disabled adult child. You see your mates go off for 2 week adult holidays with no cares and you can’t. You have to beg for respite time. Yesterday I had to get back from a night out at 11 pm as my sons Pa needed to get the last train home at 11.15. imagine having. Child that never grows up and being restricted permanently.

As it is it’s nit my fight as my sons pip goes on weekly psychiatry as counselling was not working.

But I can see that pip could help families who have lost a paid worker due to caring duties.

But they’re family? And surely have a responsibility to look after their family members eg by way of taxiing them.

This is what a prep poster was meaning re. people seem to expect the state to step in and support (in this case, by paying for the family members time - and fuel - if I’ve understood correctly) rather that it being an accepted responsibility to care for one’s family.

As an example, I commented on a dif thread. I have international family and in their country (European) it’s traditional for parents to move back in with children (note: into apartments so not luxurious mansions) as they age and need care. We used to do similar in the uk but nowadays people are aghast at the concept of having to (heaven forbid) care for loved ones.

ExpectMore · 17/10/2026 09:52

TigerRag · 17/10/2026 08:17

Why is there no extra cost if family do it? Is their petrol and parking free? My dad once had to get half a day off work because I had to have an emergency operation. We were there for about 3 hours. He was 45 minutes away so that was petrol, parking and loss of wages. Would you do that for nothing?

I sometimes go to a different hospital that's not local about 45 minutes drive. No parking fees thankfully. Would you do that for free on a regular basis?

Yes. Of course many people would. In immediate family, just had DB take time off (days, as major op needing recovery support) to support his child through an op (inc all the travel etc costs). Because… that’s what family do!

ExpectMore · 17/10/2026 09:54

AmberTigerEyes · 17/10/2026 09:16

😂 This is hopelessly naive. Work out in advance how many medical appointments for the year? Cannot be done for most disabled people because conditions fluctuate, conditions flare up, conditions cause other new conditions to emerge, conditions increase risk of accidental injury.

You would have an easier time predicting exactly how many squares of loo roll you use in a year.

You do realise that’s possible….? All you’d have to do is count over say a week or two then multiply… wouldn’t be that far out

BugJuice · 17/10/2026 09:55

ExpectMore · 17/10/2026 09:52

Yes. Of course many people would. In immediate family, just had DB take time off (days, as major op needing recovery support) to support his child through an op (inc all the travel etc costs). Because… that’s what family do!

And honestly, that’s great if you have family who can do that! I am very envious.
My family, including my brother, are dead. My in laws live abroad. I’m sure if any of them were able to, they would help.
But also when your child is disabled these aren’t one off things. This is every day life. We have had appointments every week, usually more than once a week, for years and years.

ExpectMore · 17/10/2026 09:57

pointythings · 17/10/2026 09:35

@AmberTigerEyes for a lot of people on these kinds of threads, having a voucher scheme isn't about saving money. It's about punishing people for being disabled. It's very sad the way some want to make disabled people's lives more difficult than they already are.

The arguments against vouchers are exactly as you have said, but people don't want to accept that.

I’d be interested in seeing examples of where people see the concept as “punishment” as it’s not something I’ve come across and would be amazed by. Could you share them please?

TigerRag · 17/10/2026 09:59

ExpectMore · 17/10/2026 09:52

Yes. Of course many people would. In immediate family, just had DB take time off (days, as major op needing recovery support) to support his child through an op (inc all the travel etc costs). Because… that’s what family do!

And what on earth do they live on?

leaderZ · 17/10/2026 10:01

My 17yr old has adhd gets PIP this is where it’s spent: uber to specialist college two days a week as can’t organise in time and would be removed otherwise (costs £100); during GCSE’s £800 pcm on tuition to have a side by side so she did do work (as can’t self organise) got great grades so will be employable as an adult; specialist exercise sessions to support concentration and posture.

if you do spend the money right it does really enhance their employability welfare and life

emuloc · 17/10/2026 10:06

leaderZ · 17/10/2026 10:01

My 17yr old has adhd gets PIP this is where it’s spent: uber to specialist college two days a week as can’t organise in time and would be removed otherwise (costs £100); during GCSE’s £800 pcm on tuition to have a side by side so she did do work (as can’t self organise) got great grades so will be employable as an adult; specialist exercise sessions to support concentration and posture.

if you do spend the money right it does really enhance their employability welfare and life

Spending the money 'right' will be different for every disabled person though, as our needs, are all different. And some disabled people will never be able to work, despite the money being spent 'right'.

Sirzy · 17/10/2026 10:06

Caring for someone disabled goes way above what is normal for family! People do it because they love their relative but we can’t downplay the massive cost - financial and otherwise - of that.

Having to get up multiple times during the night to deal with a 17 year old isn’t “normal”

Changing feeding tubes isn’t “normal”

having to always have someone trained in your emergency care to hand isn’t “normal”

We need to show more respect for unpaid carers not try to downplay what they do as being a normal part of being family.

BugJuice · 17/10/2026 10:11

Sirzy · 17/10/2026 10:06

Caring for someone disabled goes way above what is normal for family! People do it because they love their relative but we can’t downplay the massive cost - financial and otherwise - of that.

Having to get up multiple times during the night to deal with a 17 year old isn’t “normal”

Changing feeding tubes isn’t “normal”

having to always have someone trained in your emergency care to hand isn’t “normal”

We need to show more respect for unpaid carers not try to downplay what they do as being a normal part of being family.

Edited

Exactly. I have 2 non disabled children. I have a good idea, therefore, what is involved in caring for children in a ‘normal’ family, because that is also part of our life.
The care involved with my disabled child is so far from ‘normal’. It cannot be compared in any way, shape or form.

fridaynightzzz · 17/10/2026 10:15

AmberTigerEyes · 17/10/2026 09:16

😂 This is hopelessly naive. Work out in advance how many medical appointments for the year? Cannot be done for most disabled people because conditions fluctuate, conditions flare up, conditions cause other new conditions to emerge, conditions increase risk of accidental injury.

You would have an easier time predicting exactly how many squares of loo roll you use in a year.

We couldn’t do this. DH (not on pip) has a degenerative disease.
some years can be normal and predictable and sometimes it’s bloody constant. Consultants will decide that he needs a whole load of tests and scans and things, even if another department has done them, they want them done again. Some are local and some are needed regionally (can be a 2 hour trip each way). He regularly gets texts asking for blood tests, goes for one, day later asking for another. The NHS is very inefficient in this way.
A consultant will decide that they want to study something or test new/different medications which knocks on to more visits/tests.
A few weeks ago he had 8 appointments in one week, luckily our doctors is very good and pushed some together.

roaringdragon · 17/10/2026 10:15

I guess an easy criticism is ‘what if a family member typically provides a taxi service’…..well then there’s no extra cost is there?

Great! Can you let me know where the free petrol/diesel/electric is?

I never realised the obsession with people wanting to give friends / family petrol money. It’s never something I’d thought of as it’s never something I would have expected friends / family to want if they’re helping out.

Mentioning one element that needs to be considered is the same as an obsession. Not having to think about it is a privilege not all have. Some friends/family can only help out if they are reimbursed for their costs.

You do realise that’s possible….? All you’d have to do is count over say a week or two then multiply… wouldn’t be that far out

No. It isn’t possible for many. That isn’t how fluctuating conditions work.

Caring is not the same as looking after a child with some extra admin. It isn’t just a normal part of family life either. It is beyond what normal family roles are.

pointythings · 17/10/2026 10:31

ExpectMore · 17/10/2026 09:49

But they’re family? And surely have a responsibility to look after their family members eg by way of taxiing them.

This is what a prep poster was meaning re. people seem to expect the state to step in and support (in this case, by paying for the family members time - and fuel - if I’ve understood correctly) rather that it being an accepted responsibility to care for one’s family.

As an example, I commented on a dif thread. I have international family and in their country (European) it’s traditional for parents to move back in with children (note: into apartments so not luxurious mansions) as they age and need care. We used to do similar in the uk but nowadays people are aghast at the concept of having to (heaven forbid) care for loved ones.

Has it ever occurred to you that caring for adult disabled children and parents carries a cost, and that people may not have the financial means to carry that cost? Of course you haven't.

Just because we always used to do things a certain way that doesn't mean it's feasible or desirable now.

pointythings · 17/10/2026 10:34

ExpectMore · 17/10/2026 09:57

I’d be interested in seeing examples of where people see the concept as “punishment” as it’s not something I’ve come across and would be amazed by. Could you share them please?

I don't need to. The business case against vouchers is clear. The reasons why you don't accept that are yours to answer for. If you accept that there are no savings to be made by introducing a voucher system, then what is left by way of reasons for wanting it? It can only be not trusting disabled people, not wanting them to have the independence to spend their money as they see fit. In other words - punishment, because you want to impose a greater level of scrutiny on them than you do on non-disabled people.

TigerRag · 17/10/2026 10:37

People mention catalogues and vouchers - with disabled students allowance, you're assessed and part of that assessment shows what you've been awarded and how much it costs. They use certain suppliers and it's (or was when I was a student) more expensive than just popping to Currys to buy a laptop. As soon as the word disabled is slapped on an item it's more expensive. It's cheaper to go on a website like Amazon and pay the VAT

What works for one disabled person won't work for another. I think we know our needs best

XenoBitch · 17/10/2026 10:37

ExpectMore · 17/10/2026 09:49

But they’re family? And surely have a responsibility to look after their family members eg by way of taxiing them.

This is what a prep poster was meaning re. people seem to expect the state to step in and support (in this case, by paying for the family members time - and fuel - if I’ve understood correctly) rather that it being an accepted responsibility to care for one’s family.

As an example, I commented on a dif thread. I have international family and in their country (European) it’s traditional for parents to move back in with children (note: into apartments so not luxurious mansions) as they age and need care. We used to do similar in the uk but nowadays people are aghast at the concept of having to (heaven forbid) care for loved ones.

For some people, having their aging parents moving in with them would mean they might have to quit work. Some people need specialist care, and 24/7 of it.

OonaStubbs · 17/10/2026 10:42

Money IS vouchers.

XenoBitch · 17/10/2026 10:46

OonaStubbs · 17/10/2026 10:42

Money IS vouchers.

I am glad I am sat down, because I am shock I am agreeing with you... 😅but yes, money IS vouchers.
Why change something that already works?
What is going be gained by changing to vouchers?

It is a moot point, as it wont happen anyway. It seems to be certain sectors of frothing benefit bashers who want vouchers to happen... because they think the only effect it will have on them will be paying less tax. It won't.

GiaGia16 · 17/10/2026 10:48

XenoBitch · 17/10/2026 10:46

I am glad I am sat down, because I am shock I am agreeing with you... 😅but yes, money IS vouchers.
Why change something that already works?
What is going be gained by changing to vouchers?

It is a moot point, as it wont happen anyway. It seems to be certain sectors of frothing benefit bashers who want vouchers to happen... because they think the only effect it will have on them will be paying less tax. It won't.

It might if there’s a change of govt in two years.

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