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One in six PIP claimants have no extra costs linked to their disability

1000 replies

Allseeingallknowing · 15/10/2026 14:39

https://www.thesun.co.uk/money/40693771/pip-claimants-disability-benefit/
So, can money be saved here?

OP posts:
Thread gallery
12
ExpectMore · 17/10/2026 13:03

pointythings · 17/10/2026 10:34

I don't need to. The business case against vouchers is clear. The reasons why you don't accept that are yours to answer for. If you accept that there are no savings to be made by introducing a voucher system, then what is left by way of reasons for wanting it? It can only be not trusting disabled people, not wanting them to have the independence to spend their money as they see fit. In other words - punishment, because you want to impose a greater level of scrutiny on them than you do on non-disabled people.

What a load of rubbish.

roaringdragon · 17/10/2026 13:03

Kirbert2 · 17/10/2026 12:31

The longest hospital stay my disabled child has had is 10 months.

Days off for an op isn't unusual for a non disabled child. If you have a disabled child like my son, just a few days for my disabled child would be unusual.

This. It’s just not comparable however hard people who don’t understand want to try to compare them. A few days would be the dream. Despite is being able to provide a high level of care at home, including things like some IV meds, DS1 has multiple hospital admissions every year. In the last 14 months, he has had 4 admissions to critical care. Albeit two were planned following elective (but necessary) operations. With the critical care outreach team seeing him on the ward another time during those months.

roaringdragon · 17/10/2026 13:05

ExpectMore · 17/10/2026 12:59

My point was re. The toilet roll square calc which is relatively straight forwards and a poor example for the poster to have chosen.

No, it isn’t relatively straightforward and it wasn’t a poor example. The fact you think it is relatively straightforward and a poor example shows you lack insight into how disability can present.

Noras · 17/10/2026 13:07

ExpectMore · 17/10/2026 09:49

But they’re family? And surely have a responsibility to look after their family members eg by way of taxiing them.

This is what a prep poster was meaning re. people seem to expect the state to step in and support (in this case, by paying for the family members time - and fuel - if I’ve understood correctly) rather that it being an accepted responsibility to care for one’s family.

As an example, I commented on a dif thread. I have international family and in their country (European) it’s traditional for parents to move back in with children (note: into apartments so not luxurious mansions) as they age and need care. We used to do similar in the uk but nowadays people are aghast at the concept of having to (heaven forbid) care for loved ones.

It’s my adult son and I have no responsibility to look after him. What about elderly parents does everyone give up work to look after them? A few do but many don’t let’s be honest which is why we are in the mess. Off the few that do they are partly motivated by seeing a charge in their parents house. My son has no assets to claw back and it’s easy for me to refuse to care. I am not a slave to my adult son - my responsibility ended when he hit 18 and now he is t issue of the state. So sorry people like me will refuse to care and his care costs are absolutely huge - really huge.

So on that basis a simple low admin pip is an excellent idea. Maybe for some they can do vouchers but not for higher needs families - we are drained absolutely drained and have no more to give. Have you any idea what it’s like to be ranted at by a 22 year old who is bigger than you or have him constantly walking around the house talking to himself or like litmus paper suddenly blowing a fuse and threatening o die?

Just shut up please!

ExpectMore · 17/10/2026 13:16

XenoBitch · 17/10/2026 10:37

For some people, having their aging parents moving in with them would mean they might have to quit work. Some people need specialist care, and 24/7 of it.

Yes maybe. And that’s part of the duty of living and caring for family.

what’s the alternative? to put the burden on some disconnected randomer (= tax payer, with all the added bureaucracy cost associated with it).

It’s a mentality change but I really think society would be better if we got back to being more family oriented, understood what they meant in terms of duty and responsibilities, were more self reliant, and the state could focus on the big ticket items rather than have to step in so much on an individuals day to day life.

fridaynightzzz · 17/10/2026 13:16

One of the main reasons that benefits are so high is we have cut services to the bone and expect people to organise things themselves.
My mum ran respite homes for disabled children in the 70s/80s, we don’t have them now. We now give money to parents and expect them to organise things themselves. The fact they can’t find people to do this work is an ongoing issue.
This is all part of the massive cuts to LA as costs savings when often they saved on staff, the needs and costs of those needs are pushed somewhere else. Often ending up costing much more overall.
No party is going to start giving LAs more money to rebuild all the things we have lost, so this is where we are.

Noras · 17/10/2026 13:23

just imagine being in your 60s and having to look after your adult son all day Saturdays whilst your friends go away for 3 weeks to Africa enjoying their retirement. You promote them out of bed, you take them for a walk * they can’t walk alone) you plan their breakfast, you take then in the evening to the theatre etc there is no let up. You play pass the parcel with your DH - today I organised his flu jab as it’s getting impossible to do with the GP and picked up his meds from the pharmacy.

My Facebook page is full of friends enjoying their 60s.

I have had enough of caring.

My dad died at home from horrendous melanoma cancer and was plus 2 so we were in on a rota to support the carer ( emptying the catheter and wiping his bum) and my mum had vascular dementia and was at home except for the last 6 months and I supported dad with her care. I’ve done my parents care.

On top of that my son was at the time of my mums death having prolonged fits lasting an hour and other issues eg severe asthma attacks ( hospitalised) He was also then bowel incontinent,

I have had enough of being a carer - no more admin.

II have already told social services that they can forget me being a carer especially at retirement age when I don’t even get the measly £85 ( on which I have to pay tax) as I get a state pension. This is disgraceful if I am still caring. So no I won’t do that and I won’t do any more admin,

People want to impose more admin / more bureaucracy but seem to think that this will be done for free - well no it will be the tipping point for many. The costs will be huge as the care bill will expand.

If people are that desperate to attack disabled people we can lock all our disabled people up and throw away the key - I mean clearly you hate their very existence and want to confine them to a low cost box with no sense of normality with vouchers for food and care costs etc. You want older aprents to act indefinitely as their carers - sorry no.

Unless you are responsible for a disabled adult child you have no idea and don’t even try to analogise it to looking after elderly parents ( we have had those too) Elderly parents die but our adult kids usually outlive us. At one point we have had enough.

Sp don’t add to the burden - it’s already too much.

BugJuice · 17/10/2026 13:24

ExpectMore · 17/10/2026 13:16

Yes maybe. And that’s part of the duty of living and caring for family.

what’s the alternative? to put the burden on some disconnected randomer (= tax payer, with all the added bureaucracy cost associated with it).

It’s a mentality change but I really think society would be better if we got back to being more family oriented, understood what they meant in terms of duty and responsibilities, were more self reliant, and the state could focus on the big ticket items rather than have to step in so much on an individuals day to day life.

I did quit work to care for my son, and the state lost £££ a month in tax income. Far, far more than even the highest rate of DLA.

ExpectMore · 17/10/2026 13:25

BugJuice · 17/10/2026 12:14

Again, there’s nothing I’d love more than to move closer to family. Brexit has put paid to that. It would also only be very short lived support as my in laws are elderly, but my child will require life long care.
We also have our other two children to consider, who are settled in their schools/hobbies/with friends.
Do you think we wouldn’t love support from our family? We absolutely would. As it is, DH and I haven’t had an evening out together or slept in the same bed for 7 years.
Again, the fact that people think we are willingly choosing this life for the sake of £500pm DLA absolutely blows my mind.

Who thinks you’re choosing that life? They’d be fools to do so. I think every reasonable person wouldn’t have to become / support someone that’s disabled given the challenges associated with it.

Has someone said that to you or are you perhaps making assumptions and getting to the wrong conclusion?

Kirbert2 · 17/10/2026 13:26

roaringdragon · 17/10/2026 13:03

This. It’s just not comparable however hard people who don’t understand want to try to compare them. A few days would be the dream. Despite is being able to provide a high level of care at home, including things like some IV meds, DS1 has multiple hospital admissions every year. In the last 14 months, he has had 4 admissions to critical care. Albeit two were planned following elective (but necessary) operations. With the critical care outreach team seeing him on the ward another time during those months.

Yep.

I'm not just a mum, I'm a nurse, physio etc too.

ExpectMore · 17/10/2026 13:27

TigerRag · 17/10/2026 12:22

What's your experience with disability and the benefits system?

My parent was long term disabled till they passed. Added: granted that was c 20+ years ago.

Noras · 17/10/2026 13:28

ExpectMore · 17/10/2026 13:16

Yes maybe. And that’s part of the duty of living and caring for family.

what’s the alternative? to put the burden on some disconnected randomer (= tax payer, with all the added bureaucracy cost associated with it).

It’s a mentality change but I really think society would be better if we got back to being more family oriented, understood what they meant in terms of duty and responsibilities, were more self reliant, and the state could focus on the big ticket items rather than have to step in so much on an individuals day to day life.

Clearly you have never cared much - maybe for a parent but not for 2 parents and children who are disabled.

On that note why not make parents of adult offenders responsible for their adult kids crimes and to pay for their imprisonment

Why not make parents of adult bankrupt kids responsible for their debts

All these things cost society hugely

These adult might have family so their family / parents can pay for their crimes and their bankruptcy after all that’s a family’s responsibility.

Let’s ditch UC for those with adult kids who have parents with savings - after all families should stand together. The parents should pay their benefits.

Noras · 17/10/2026 13:32

lets ban child benefit for all those parents who in turn have parents ( grandparents ) who can help support their own kids. Let’s look at assets of grandparents and if above 500,000 ban child benefits for their grandchildren - After all families should look after each other should they not. why do they get state benefits if they have parents with assets?

This is an extension of the ludicrous argument that demands that parents should look after their adult disabled kids.

BugJuice · 17/10/2026 13:37

ExpectMore · 17/10/2026 13:25

Who thinks you’re choosing that life? They’d be fools to do so. I think every reasonable person wouldn’t have to become / support someone that’s disabled given the challenges associated with it.

Has someone said that to you or are you perhaps making assumptions and getting to the wrong conclusion?

There have been many threads on here where people have said things to that effect. Just this week there was a thread where posters were talking about the ‘financial incentives’ of giving up work to care for a disabled child.
You seem to think that there is a way for the most vulnerable people in our society to be cared for in a way that isn’t a ‘burden’ on the tax payer. Sadly, in a capitalist world, that’s just not feasible. It’s also part of the social contract… those who are able to look after themselves have a responsibility to help those who can’t.
By giving up my job to care for my disabled son full time, the cost to the tax payer in lost tax paid was considerable. Would I rather I could work? Absolutely yes.

dreamiesformolly · 17/10/2026 13:37

ExpectMore · 17/10/2026 13:03

What a load of rubbish.

What are your reasons for suggesting it, then?

TigerRag · 17/10/2026 13:42

ExpectMore · 17/10/2026 13:27

My parent was long term disabled till they passed. Added: granted that was c 20+ years ago.

Edited

Your lack of empathy is shocking

ExpectMore · 17/10/2026 13:42

fridaynightzzz · 17/10/2026 12:44

But that spending and systems need to be put in place before you take PIP off people. They won’t do that.
Clearly schools need a huge amount of money invested in general and SEN support. It’s not happening though and there’s no appetite to do it.
There needs to be jobs available for people with disabilities and for their carers that are actually flexible and supported.
We need better public transport again, not just in cities.
Taking PIP off people won’t make these things happen though. You’ll just make peoples lives worse with zero help.

Clearly. No one would remove one system before the other is in place.

ExpectMore · 17/10/2026 13:45

BluebellBeth · 17/10/2026 12:45

So you don't have an answer then? You want to implement a system but can't explain how this will work in reality. Which is the problem, in reality it won't work.

some people can't afford to give lifts for free. I know someone who recently had someone drive them over a hundred miles to a specialist hospital. Petrol is expensive, it's a 200 mile return journey and will likely happen frequently for a while. If you can afford to do that out of the goodness of your heart lucky you. Most people can't, not to mention they're possibly also losing a days wage to help in the first place.

It’s not out of the goodness of someone’s heart though, is it. It’s out of a sense of duty to one’s loved ones. Earlier this year in our family we had a medical situation which meant family members had to take weeks of work and fly to different countries to support. It just happened. As family are there for one another in times of need

Kirbert2 · 17/10/2026 13:52

ExpectMore · 17/10/2026 13:45

It’s not out of the goodness of someone’s heart though, is it. It’s out of a sense of duty to one’s loved ones. Earlier this year in our family we had a medical situation which meant family members had to take weeks of work and fly to different countries to support. It just happened. As family are there for one another in times of need

It didn't just happen though, did it? It only happened because they were able to take weeks off work in the first place and could afford flights.

That isn't possible for everyone.

and again, weeks is weeks. Very different to day in, day out, every single day.

Would they be in a position to just quit their jobs and move over there permanently with little notice?

ExpectMore · 17/10/2026 13:57

MissConductUS · 17/10/2026 12:53

I agree that the expectation that the government solves all problems is a big part of the problem, as is the lack of means testing for some benefits. Everyone loves free money, so politicians give it to them.

The bigger issue is that the benefits bill has grown to the point of being unsustainable. Foreign investors are demanding higher yields on government bonds, which reduces what the government can borrow and raises borrowing costs. And borrowing to fund benefits is like putting your grocery shopping on a credit card. Eventually, the bond market will refuse to lend to the UK at all; then you're looking at an IMF bailout, mandatory budget cuts, and a massive economic recession.

If the UK had stronger economic growth and growth in labor productivity, it might all be affordable, but very high taxes and excessive government regulation suppress economic growth and investment. Additional tax rises will just make things worse in the medium and long term.

But people think that an economic crisis can't happen in the UK; it's happened before. From The Economist:

Lessons from Britain’s humiliating IMF bail-out - Fifty years on, a fiscal crisis would play out very differently

You can always find a group of people who would benefit from government funding, but at some point there's no money to provide it.

Well said

ExpectMore · 17/10/2026 14:01

Kirbert2 · 17/10/2026 12:58

Exactly. With a disabled child, it isn't going to end.

My son has had 5 surgeries with at least 1 more upcoming.
He has had 3 stays in paediatric intensive care
If he gets a fever, it can kill him and he needs to be in hospital immediately

He can't just go to the local hospital. He needs to be at the specialist hospital 30 miles away.

How would I be able to 'plan' his unexpected hospital stays with a voucher?
What if I run out if he has more hospital stays than expected and have no cash?
What if the ambulance says it's going to be 6 hours like it did one time when I called them?

Or I can just use the motability car as intended and not have to rely on vouchers when my son's life is at risk.

Some people really are clueless.

lol you’ve just argued for the point you thought you were arguing against…. A mobility car is an example of a situation were something is provided direct to the individual in need rather than having to give them cash, them search for and procure the car.

So yes, I agree that situation is a good example.

fridaynightzzz · 17/10/2026 14:02

ExpectMore · 17/10/2026 13:42

Clearly. No one would remove one system before the other is in place.

That’s exactly what they want to do. Is anyone seeing real investment in schools?

Kirbert2 · 17/10/2026 14:04

ExpectMore · 17/10/2026 14:01

lol you’ve just argued for the point you thought you were arguing against…. A mobility car is an example of a situation were something is provided direct to the individual in need rather than having to give them cash, them search for and procure the car.

So yes, I agree that situation is a good example.

Except it is up to the individual as to what to do with the mobility component of their claim. Including the option of a cash payment.

So lol indeed.

ExpectMore · 17/10/2026 14:04

Noras · 17/10/2026 13:07

It’s my adult son and I have no responsibility to look after him. What about elderly parents does everyone give up work to look after them? A few do but many don’t let’s be honest which is why we are in the mess. Off the few that do they are partly motivated by seeing a charge in their parents house. My son has no assets to claw back and it’s easy for me to refuse to care. I am not a slave to my adult son - my responsibility ended when he hit 18 and now he is t issue of the state. So sorry people like me will refuse to care and his care costs are absolutely huge - really huge.

So on that basis a simple low admin pip is an excellent idea. Maybe for some they can do vouchers but not for higher needs families - we are drained absolutely drained and have no more to give. Have you any idea what it’s like to be ranted at by a 22 year old who is bigger than you or have him constantly walking around the house talking to himself or like litmus paper suddenly blowing a fuse and threatening o die?

Just shut up please!

A few do but many don’t let’s be honest which is why we are in the mess

Couldn’t agree more. That’s my and other posters point.

Telling someone to shut up just because you disagree with them is a bit extreme. Are you so rude in real life?

Kirbert2 · 17/10/2026 14:07

ExpectMore · 17/10/2026 14:04

A few do but many don’t let’s be honest which is why we are in the mess

Couldn’t agree more. That’s my and other posters point.

Telling someone to shut up just because you disagree with them is a bit extreme. Are you so rude in real life?

How different is it from me explaining how worrying vouchers would be in the case of my complex child considering his multiple surgeries and the fact that a fever can kill him and you start your response to that comment with 'lol' like it is all just so fucking hilarious?

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