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Miscarriage/pregnancy loss

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Recurrent Miscarriage Support Thread 30 - Support for Tests, Treatments and Trying Again

765 replies

forestnest · 04/09/2015 12:30

Support, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so prepare to read fast!

Previous thread: www.mumsnet.com/Talk/miscarriage/2441180-Recurrent-Miscarriage-Support-Thread-29-Support-for-Tests-Treatments-and-Trying-Again

(stats etc to follow)

OP posts:
Salstar1979 · 24/09/2015 14:24

Hi,
Just need some support really cos I feel like I'm drowning at the minute. Me and DH are both 36. I had 2 miscarriages (1st at 5 weeks, 2nd missed miscarriage at 12 weeks, baby died not long after seeing heartbeat at 6 weeks) and 1 ectopic (in between miscarriages) before having our amazing son in 2012. I've since had 2 more miscarriages (latest being last week at 5 weeks) and 1 failed IVF cycle. We were all set for IVF #2 when I found out I was pregnant earlier this month.
Now we just don't know what to do. Do we try IVF again just to fail again or lose it even if we are successful? We also have issues getting pregnant in the first place, it taking 13 months between our last 2 pregnancies. I really am feeling awful. I have emailed Coventry about NK cells but I'm still undecided. I just can't rest until I have given my son a sibling. Most people I know think I am mad to keep going now we have 1child but it was never in our life plans to just have 1 and I can't let go just yet. Then I do feel guilty for moaning when others have no children. It really is a very lonely place. Sorry to be on such a downer, I really do just feel hopeless and helpless at the minute.
Thanks for reading.

Salstar1979 · 24/09/2015 14:27

Emerald, I also had adhesions after a d&c in 2010. Mine were removed by Mr. Lower. Hope all went well. Sorry I haven't read any histories. I am very new at all this!x

Minnie74 · 24/09/2015 19:01

Welcome sals so sorry you find yourself here. It sounds like you've had a really rough time and are pretty much in the thick of it now. This board is a lifeline for support and knowledge so you're in the right place. I totally get your desire for another child- I've got a 3 year old ds and understand that need to give them a sibling but also feel lucky to have him as its starting to look like he was a miracle! So sorry your IVF didn't work out- that must be devastating too. Have you had all the normal rm testing alongside the IVF testing? What have the docs said? Take it a day at a time. Big hugs xx

Emerald72 · 24/09/2015 19:58

Welcome sals and so sorry for your losses what a terrible journey you have had. You've found a good support thread here though, lots of lovely ladies with so much knowledge and support. Interesting about your adhesions too, where is Dr Lower? Well since joint here in June after my 3mc in a row, all 5/6wks no hb, I've gone to St Mary's and to see Shehata for NK cells and all bloods normal. There's lots of tests they can do, have you had any done as Minnie says? I have one ds age 2.5 before all the MC, and been told that as we are getting pg as a couple and had our son we are fertile and IVF is not recommended. I know what you mean about people saying or thinking we should give up as got one already etc,, but like you we didn't want him to be an only child. Don't give up, it can happen and right now it's still raw from last MC. Big hugs to you xx

Marchgirl · 25/09/2015 09:04

Welcome sal but so sorry to hear all you've gone through. To have not only rmc but also fertility issues is particularly cruel. I completely understand the need to give your child a sibling. And once you've decided you want another child, you can't put that genie back in the bottle. The more mcs i had, the more i felt like i couldn't let all this be for nothing.

I had my dd in 2012 and have had 5mcs before falling pg with treatment from Coventry (due to high uNK) and am currently 14 weeks. I honestly don't think I'd be here without their treatment, so would highly recommend them.

It is so lonely going through this, but hopefully you will find some support (and hope!) here. If you want to ask any more about coventry or any of the other clinics people have been to then there is plenty of collective knowledge here and on our fb group. Look after yourself xx

Considerphebas · 25/09/2015 09:34

Sorry to hear about your losses Sal and I hope you get some answers.
Well I managed 2 half days before having another big bleed with clots which wouldn't stop so going to try again next week! Finally got a scan and apart from a thickened womb lining which should come away with next AF everything else has gone. Scan lady was lovely and apologised for the indignity of an internal scan- I reassured her ive had half a hospital down there so no need to worry!

I'm stupidly stressing about my rainbow group- initially thought I'd need 2 weeks off but now thinking we won't meet until after half term and feeling guilty for letting the girls down, need to focus on work though.

Marchgirl · 25/09/2015 10:53

Sorry to hear you had another bleed consider. Hopefully that's the end of it now. Sounds very similar to what happened with my mc3. Did they take bloods for hcg as well? Hopefully next week will go more smoothly and try not to worry about your rainbows. You need to look after you at the moment x

Considerphebas · 25/09/2015 11:12

I actually feel better than I have for the last 2 weeks- fluids for blood loss plus knowing that it's nearly over have perked me up! I'm slightly worried people think I've been over playing it but it feels like the never ending miscarriage and the cervical shock bit was pretty grim!
Has anyone who's had problems with bleeding after miscarriage also had a pph? The doctors didn't think this was likely to have an impact but clearly my reproductive system likes to go overboard with these things.
salstar please don't feel guilty you can feel fortunate to have a child but still desperately feel the gap of the babies you've lost and wanted. After my first mcs I felt manic about wanting another, in the end I changed jobs as a way to take my mind away from it and force myself to have a break.

Frecklefire · 25/09/2015 11:23

Hi there friends and newbies. Have been caught up in start of term work and trying to keep up via facebook. Off work yesterday and today with MONSTER cold (pelvic floor after ds deffinitely not up to 200ml an hour sneezing) and supposed to have my scan/internal this afternoin at 4.10. I'll be lucky if i don't a)wet myself with the pint and a half i have to drink beforehand, or sneeze out the digerydoodah internal wand thingy! AND IM NOT EVEN BLINKIN' PREGNANT!

Sal, there are loads of us on here whose desperation for a baby is compounded by the desire to give a beloved child a sibling. You're not being greedy. Xxx

BumbleBee0 · 25/09/2015 16:16

Hello everyone!
Lost the thread for a bit as my link stopped working for some reason.
I'm good thanks bootles.
Recently it was the anniversary of mc1, in particular my birthday which I had been dreading all year as last year I was discharged from hospital the day before, so needless to say, it was the worst birthday ever. Being where I am now though makes me realise how lucky I am and how things can change so significantly from one year to the next (although I just need to state that I know there's still a long way to go yet and not taking anything for granted).

Yesterday I was at an extended family's funeral and her daughter (a 3rd cousin or something, not exactly sure of the correct name) has been having ivf. The first time worked but she ended up having a stillbirth son at 30+ wks last year. When we asked how she was she said she'd had a couple of mcs since. On top of this her mum has just died of cancer. Why is it some people have so much shit thrown on them, it's so cruel and unfair! Sad

Welcome salstar. I'm so sorry for your losses, it sounds like you've had a really tough time. I hope you find this thread as supportive and helpful as I have. I second what march says and would also recommend Coventry. I've also been on their protocol and am now 18wks, fingers crossed all going ok so far.

freckle good to hear from you. Hope your scan goes ok! Ha, hear you on pelvic floor - sneezing ain't good for me either! Wink

OneStep2015 · 25/09/2015 19:19

Welcome here salstar absolutely gutted to read of your losses and terrible experiences so hard for you!!! This thread has got me through some very tough times, not sure where I would be without it and the Facebook thread. Stick with us and you'll find great support and advice xxx

girliesaints · 25/09/2015 21:55

Sorry been lost in the wilderness since the hacking of the website. Hope everyone is well and will try and catch up X

barkingtreefrog · 26/09/2015 07:33

emerald good news on the clear bloods Smile

salstar welcome, but sorry to hear your story. Can I ask why you had ivf? Am I right that you've had 6 natural pregnancies? I've been reading a lot by Robert Winston recently so excuse me if I'm being overly intrusive, but he writes a lot about ivf being used unnecessarily given its low success rates. He believes that unless you have a diagnosed issue that is causing infertility (ie blocked tubes) you are just as likely to get pg naturally as through Ivf, and ivf is a horrible thing to go through if you don't need it. It gives me some hope that it could still happen for us, but not a lot, given we've been trying almost 4 years and haven't managed a natural pregnancy yet!
My advice would be to go to Coventry and get the nk cells testing. It's a hell of a lot cheaper than ivf! If you can conceive naturally the pregnancy has a better chance. Ivf pregnancies carry a higher risk of mc and premature births (depending on which research you read) and they're not sure of the long term effects on the child of some of the drugs given today (depending on your clinic and what they've put you on) - again I'm referring to Robert Winston's writing, but he talks about studies on mice showing altered behaviour in later life. Until the babies born today are approaching retirement, they won't know if they've been affected or not.
He's not saying there is a problem, just that we don't know yet.
If I thought there was the slightest chance I could get pg naturally, I would not be heading for my second ivf cycle (we had a fresh and frozen cycle earlier this year).
I'm really sorry if I've spoken out of turn, I'm just very absorbed in all this stuff right now.

consider I'm sorry you had another bleed but glad it looks all clear now. Look after yourself first Thanks When I went for the rmc tests I had an internal scan and beforehand the nurse started talking me through what would happen to prepare me for it. When I realised what she was doing I laughed and stopped her, saying I'd had a few already. Having now been through 4 rounds of treatment plus fertility tests plus rmc tests, best guess is I've had about 30+?! Totally normal to walk into a room, say hi to the nurse, drop my knickers and whack my legs up and out for the dildocam! Grin

Bumble Some people just seem to get lumped with all the shit, and you wonder how they find the strength to get through each day Sad

Good to see some familiar faces back in here Grin. I'm rather Envy that the apple people have a swanky new app though, I'm still struggling with the mobile website! (I currently have the thread open on my nexus so I can read it, and I'm replying on my phone!)

I've signed myself and DH up to a yoga day tomorrow. A 2.5 hour energising session in the morning, a mindfulness session, a veggie lunch and then a more relaxing yoga session in the morning. Saw a last minute deal and booked it a couple of days ago. I've not been coping since one of my last remaining childless friends announced she was pg, so I figured some relaxation was worth a try.
It's Saturday morning and I woke up at 5am. Been knackered all week, run down, feeling depressed, and like I'm fighting something off. Was really looking forward to Saturday morning lie in but seems that plan has been stamped with a big F you.
Got the work 'summer party' this afternoon. A bbq all afternoon, family invited. This means all the people in my team will be bringing their kids to meet me. I can't tell you how much I am not looking forward to this. It's Saturday. I strongly object to doing anything work related at the wkd, this was the reason for leaving teaching! It might be a 'social' but I wouldn't choose to go, I feel obliged. At least I'm dragging dh with me Smile.

girliesaints · 26/09/2015 09:15

Barking me too up early after
Looking forward to a lie in! Hope the you yoga day goes on k and the work party isn't too traumatic

Floweroct2 · 26/09/2015 09:47

Another early riser today, just really hoping the next few weeks go quickly! The yoga sounds lovely barking I hope you feel better for it and the party goes ok.

Sorry to see some newbies here but it's a great bunch and great support!

Marchgirl · 27/09/2015 08:02

Enjoy your yoga day today barking and your dh. Hope you find it peaceful and restorative x

Emerald72 · 27/09/2015 08:50

Yes have a lovely relaxing day today barking it sounds great! I love abit of yoga.
bumble that's awful about that cousin at the party, some people do have such terrible luck in their lives
Hope everyone has a nice Sunday xx

Emerald72 · 27/09/2015 08:53

Is MrsB still on here? Or on fb? Trying to contact about our southern meet up! For all newbies...we are having a meet up on Sun 18 Oct at lunchtime at Bluewater (venue yet to be picked), anyone welcome, please PM me x

Considerphebas · 27/09/2015 16:12

Yoga sounds lovely!
Quick question- did anyone find it took a while for their stomach to go down? I only put on 7lbs but my stomach is 3" bigger and looks really swollen and sticking out? Could be just comfort chocolate!

Emerald72 · 27/09/2015 21:25

My stomach took awhile to go down too consider but then it's always quite bloated! I've put on weight after my mcs too, it sucks!
How is everyone this eve? X

MrsConfusion · 27/09/2015 22:18

Hello all, lovely to hear from people again! When I got back from hols I thought everyone had jumped ship to Facebook Sad or been permanently scared off by the hacking.

Welcome to the new faces - so sorry to hear your stories and that you find yourselves here. It's a tough journey but you're not alone. There are so many examples of courage and hope on here.

As for me, I'm 18 weeks now - still can't believe it - anomaly scan is next week so the scanxiety is kicking in again. Does the fear ever go?? I've been trying to shift my brain into thinking like a 'normal' pregnant lady, and trying (failing) not to freak out every time someone congratulates me on my bump or asks normal excited questions about maternity leave...

Minnie74 · 27/09/2015 23:24

consider took a while for my stomach to go down too-largely due to the comfort eating ive done afterwards. It's like a constant cycle for me. Get pg-put on 5 pounds-lose baby-put on another 5 pounds- lose ten pounds-get pg and repeat. Wouldn't mind except I wanted to lose ten pounds in the first place!

mrsC 18 weeks! That's brilliant! I think you were one of the first bfps after I joined the thread. Gives me a bit of hope and a will to give it another shot. Hope scan day zooms round so you don't have to suffer the scanxiety for long!

barking your yoga day sounds great. Hope it had the desired effect. Also hope your work thing wasn't as bad as you were anticipating! Hate working weekends too- spent all Saturday/Sunday night on twinkl!

Afm had a talk with dh about what we're going to do now. We decided that we both are up for trying again. He said this is the last time though as he doesn't want to spend another day in the hospital watching me go through another medical management. I get his view but like I said to him, I don't think we can know that we'd do unless it does happen again. Anyway we're back on ttc and ov, if it happens this first month after MC, should be in the next week or so. Fingers crossed- I just can't face months of blank tests.

Hope everyone's had a lovely weekend and enjoyed the sunshine x

Marchgirl · 28/09/2015 07:03

Oh minnie, i really hope this is the one that works for you, so that you don't have to make that difficult decision again. I know when tanny got pregnant this time she said it was the last attempt, either way, and she ended up with bertie. When do you expect your results? Fingers crossed for testing. This one is wtf cycle conception.

Hello mrsc, nice to hear from you. 18 weeks. Wow. Great news.

consider, yes from me to retaining some chubb each time and putting on more each time. I did the 5:2 for a couple of months after mc4 as we had to have a break to wait to go to Coventry and felt so much better for it, but it was back on again after mc4 and never got it off again. Another joy of mc.

barking, hope you had a lovely time yesterday and feel nice and relaxed today x

mrsdiddlydoo · 28/09/2015 08:08

Ha jumped on to see if mrsC has been around and look... You have! (Spooky!) 18 weeks is brill Smile it doesn't go away, but it slowly gets a bit better. Hope your scan goes well next week. Please come back and tell us how it goes. Seems we're about 10 wks apart. 28 wks now. Well done on not trying to freak out at baby talk.

minnie I hope this time is the one. Will be willing things on from a far... x

Peqpit · 28/09/2015 15:36

Wow so much to catch up on

Congrats flower and paws!

Welcome salstar, sorry to hear about your losses, I hope you find the thread helpful, I find it comforting to know there are others that know exactly what you're going through.

mrsc congrats on 18 weeks! I hope your scan goes well!

good luckminnie!

No BFP for me this month so have hysteroscopy tomorrow. I am feeling pretty nervous about it. The consultant told me to use/take a cytotec (misoprostol) tablet a few hoursbefore to soften the cervix but he didn't prescribe it and I doubt they are just going to hand it out at the chemist...
Does anyone know if it is crucial or can they do it without.

Totally understand the stomach swelling thing, I am also convinced that my hips have grown wider! I've been doing the 30 day shred, it's an absolute killer but seems to be working a bit.

What is the facebook group?