Recurrent Miscarriage Support Thread 29 - Support for Tests, Treatments and Trying Again

[barkingtreefrog]

Support, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so prepare to read fast!

Previous thread here

Link to the RMC investigations information

Stats update:

allthereis: 29. DC, 4MC
anniehoo: 42. TTC#1 for 2.5yrs, 4MC
barkingtreefrog: 36. TTC#1 since Dec 11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 1TFMR, 4MC, pg
brummiegirl: 38. TTC#1 since Apr 14, 3MC, pg
bubblybubbles80: 34. TTC#1, 3MC
bumblebee0: 29. DS, 2MC, pg
bunnymad: 40. DD, 2MC
bythesea82: 33. TTC#1 since Dec 12, 3MC, pg
casiopeia: . TTC#1, 3MC
chrystley: 41. DD, 5MC, pg
cloudjumper: 43. DS, 4MC, pg
confu3ed: 39. DS, DD, 5MC, pg
desperatelyhopeful: DS, 10 MC.
emerald72: 43. DS, 3MC
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
fackinell: 44. TTC#1, 4MC
fififolle: 37. DC, 2MC, pg
flen: 36. TTC#1, 3MC, pg
floweroct: 34. TTC#1 since 11, 3MC
frecklefire: 40. DS, 3MC
genwah85: 29. DS, 3MC, pg
girliesaints: 37. DD, 4MC (1 twins)
girlinoz: 32. TTC#1, 3 MC
Ifinishedthebiscuits: 37. 2DS, 4MC
iloveyoubaby: . DD, 2MC
inamaymaybewrong. 37. DS, 2MC
jady77: 37. TTC#1 since Sep 14, 2MC, pg
kazz2112: 31. TTC#1 since Feb 14, 3MC
lauren83: 31. TTC #1 for 7yrs, 2MC (1 twins)
leah1984: . TTC#1, 2MC
loopyaboutmy2boys: 38. 2DS, 6MC
lovemylittlebear: 29. 1 ectopic, 2MC, pg
marchgirl: 37. DD, 5MC, pg
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC, pg
monten: 37. TTC#1 since Apr 13, 1TFMR, 1MC
morganlefey: 29. DD, 3MC
mrsb0710: 29. TTC#1, 2MC
mrsconfusion: 36. DD, 3MC, pg
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic , 3MC
onedaymaybe1: 32. TTC#1, 3MC
onestep2015: 39. TTC#1 since May 13, 3MC, 1 ectopic /PUL
patienceisvirtuous: 37. TTC#1 since Mar 14, 2MC, pg
peqpit: 33. TTC#1 for 2yrs, 3MC
portmoon: 43. DS, DD, 5MC
sallywade: 36. DS, 1TFMR, 5MC, pg
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC, pg
sizethree: 35, TTC#1, 3MC, pg
snoopysimaginaryfriend: 29. TTC#1 since Sep 14, 3MC
spamminit: 25. 2DS, 2MC
strubidooo: 34. TTC#1 since Sep 12, 3MC, 1 ect
sunandrainbow: 38, TTC#1, 4MC, pg
teach3: 27. TTC#1, 3MC
texta: 32. TTC#1, 3MC
thepopandcry: 38, DS, 4MC
thornfield38: 34. TTC#1 for 2 yrs, 2MC, pg
tomcat81: 34. TTC#1 since Oct 14, 2MC
twilightstruggle: TTC#1 since Nov 12, 5MC
wadsy: 36. DS, 1 ectopic , 4 MC, pg

ourdaywillcome
daisybell

Thread babies
bakingtins: 40. 2DS, 4MC. Faith born May 14
tannyloo: 42, 2DS, 5MC. Bertie born Mar 15
tinytear: 41. DD, 5MC. Alice born Mar 15
justonemoretime: 39. 3MC. Scott born May 15
purplefrogshoes: 38. 2MC, 1CMP. John born May 15
longestlurkerever: 34. DD, 3MC. Beth born Jun 15
catlover2014: 35. TTC#1 since 09, 3MC. Louis born Jun 15
boozle80: 34. 3MC. Mhairi born Jun 15
belleende: 40. TTC#1, 2MC, 1 TFMR. Cissy born Jun 15

[fififolle]

Thanks for the new thread. Looking forward to your BFP Barking .

[OneStep2015]

Thanks for new thread x

[Marchgirl]

Link to the RMC investigations information

STATS UPDATE

allmychildrenhavepaws: 27.TTC#1, 2MC
allthereis: 29. DC, 4MC
anniehoo: 42. TTC#1 for 2.5yrs, 4MC
barkingtreefrog: 36. TTC#1 since '11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 1TFMR, 4MC, pg
brummiegirl15: 38. TTC#1 since '14, 3MC, pg
brummiemum87:DS, 4MC, pg
bubblybubbles80: 34. TTC#1, 3MC
bumblebee0: 29. DS, 2MC, pg
bunnymad: 40. DD, 2MC
bythesea82: 33. TTC#1 since '12, 3MC, pg
casiopeia: . TTC#1, 3MC
chrystley: 41. DD, 5MC, pg
cloudjumper: 43. DS, 4MC, pg
confu3ed: 39. DS, DD, 5MC, pg
desperatelyhopeful: . DS, 10 MC.
emerald72: 43. DS, 3MC
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
fackinell: 44. TTC#1, 4MC
fififolle: 37. DC, 2MC, pg
flen: 36. TTC#1, 3MC, pg
floweroct: 34. TTC#1 since '11, 3MC
forestnest: 34. TTC#1 since '14, 3MC
frecklefire: 40. DS, 3MC
genwah85: 29. DS, 3MC, pg
girliesaints: 37. DD, 4MC (1 twins)
girlinoz: 32. TTC#1, 3 MC
Ifinishedthebiscuits: 37. 2DS, 4MC
iloveyoubaby: . DD, 2MC
inamaymaybewrong. 37. DS, 2MC
jady77: 37. TTC#1 since '14, 2MC, pg
kazz2112: 31. TTC#1 since '14, 3MC, pg
lauren83: 31. TTC #1 for 7yrs, 2MC (1 twins)
leah1984: . TTC#1, 2MC
loopyaboutmy2boys: 38. 2DS, 6MC
losttherythm: 42. TTC#1, 5MC
lovemylittlebear: 29. 1 ectopic, 2MC, pg
marchgirl: 37. DD, 5MC, pg
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC, pg
monten: 37. TTC#1 since '13, 1TFMR, 1MC, pg
morganlefey: 29. DD, 3MC
mrsb0710: 29. TTC#1, 2MC
mrsconfusion: 36. DD, 3MC, pg
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic , 3MC
onedaymaybe1: 32. TTC#1, 3MC, pg
onestep2015: 39. TTC#1 since '13, 3MC, 1 ectopic/PUL
patienceisvirtuous: 37. TTC#1 since '14, 3MC
peqpit: 33. TTC#1 since '13, 3MC
portmoon: 43. DS, DD, 5MC
sallywade: 36. DS, 1TFMR, 5MC, pg
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC, pg
sizethree: 35, TTC#1, 3MC, pg
snoopysimaginaryfriend: 29. TTC#1 since '14, 3MC
spamminit: 25. 2DS, 2MC
strubidooo: 34. TTC#1 since '12, 3MC, 1 ectopic
sunandrainbow: 38, TTC#1, 4MC, pg
teach3: 27. TTC#1, 3MC
texta: 32. TTC#1, 3MC
thepopandcry: 38, DS, 4MC
thornfield38: 34. TTC#1 since '13, 2MC, pg
tomcat81: 34. TTC#1 since '14, 2MC
twilightstruggle: TTC#1 since '12, 5MC
vicki272: 29, TTC#1, 3MC
wadsy: 36. DS, 1 ectopic , 4 MC, pg
yompingjo: 40. DD, 3MC

ourdaywillcome
daisybell

Thread babies
bakingtins: 40. 2DS, 4MC. Faith born May 14
tannyloo: 42, 2DS, 5MC. Bertie born Mar 15
tinytear: 41. DD, 5MC. Alice born Mar 15
justonemoretime: 39. 3MC. Scott born May 15
purplefrogshoes: 38. 2MC, 1CMP. John born May 15
longestlurkerever: 34. DD, 3MC. Beth born Jun 15
catlover2014: 35. TTC#1 since '09, 3MC. Louis born Jun 15
boozle80: 34. 3MC. Mhairi born Jun 15
belleende: 40. 3MC, 1 TFMR. Cissy born Jun 15

[Marchgirl]

Thanks for the new thread barking. Reeeeeeeeally hoping it's lucky for you. The stats sheet is here although it's in the same place as the other sheet so should be available if you log in with the email address. I'm not sure how it all works to be honest!

[Marchgirl]

Quick summary for me
Me 37, DH 45. DD bn aug 12, normal pg
Jan 14: mmc@12w1d (measured 6w)
Jul 14: mc@8w4d (measured 5w)
Oct 14: mmc@8w1d (after hb seen@7w1d)
Feb 15: v early mc@4w5d
Jun 15: v early mc@4w2d
No result from testing on embryo for mc3
All rmc testing and karyotyping on us normal.
Tested high for uNK at Coventry (7.9%)
Currently 7w0d pg on steroids, heparin and progesterone. Scan last week showed hb and measuring 6+1 (i thought 6+2, but I'll take it), scanxiety rising for second scan this thursday as the next two are my biggies in terms of danger points. Feeling very bleurgh although avoided actually throwing up yet, just almost constant nausea.

[Kazz2112]

Thanks for the thread Barking. Just found it very strange looking at the updated stats from March which says pg next to my name. Fingers crossed that'll be you next thread

[TinyTear]

Happy to see all the pg on the thread list!

[NotSpartacus]

My stats

Me 40 (ouch, just had a birthday); DH 42
2006: DD1, 6 months to conceive, pretty normal pregnancy (high BP (me!) and emcs but otherwise fine). Started ttc before she was one but nada.
April 2008: Ectopic 1 (treated medically, right tube)
July 2008: MC1 - very early (before 5 weeks)
September 2008: Ectopic 2 - surgery, right tube removed
October 2009: DD2 (hurrah), totally uneventful pregnancy but emcs at the end. Started ttc a few months later and nada again
December 2012: MMC @ 9ish weeks, ERPC
December 2013 : tests show good hormones, AFC etc and a normal uterus, but nothing happened, so by about Sept 2014 we gave up on the project.
April 2015: MMC @ 9ish weeks (Trisomy 13), ERPC. This pg was an accident (sod's law) but reopened discussions on the baby subject.

Tests show heterozygous MTHFR (have I spelled that right?) which has no implications apparently, and elevated TEG values so if I ever conceive again I have to have baby aspirin.

Now ttc in earnest, although God only knows how long it might take. We hit the timing bang on this cycle and I am being very good (no drinking etc). DH less so (he went out boozing the night before the crucial sex) so fingers crossed. Also taking omega 3, over priced multivitamins, vit D3 spray, co enzyme Q10 and some extra methyl-folate. Low carb diet (tedious, but trying to take my holiday weight off). I feel pretty good but rattle when I walk.

I've not been around much, as ttc can get a bit all-consuming, so I need to stay away in order to not lose perspective (or my mind) but I do lurk every so often. Thrilled to see so many pregnancies going well. Long may it continue!

[bootles]

Trying to catch up from memory from last thread..

patience I am so so sorry to hear your news. Just heartbreaking. I hope you are being well looked after. Do try not to feel too defeated by age - so many of us are older, including those who have successfully had their rainbow babies.

adamsmummy so sorry to hear of your losses. As I have heard many a consultant say, the only way to get there is to keep trying. Only you know when it's enough. So so hard though.

mrsb It is horribly difficult getting results. 2 of my 5 losses were chromosomally normal - one died at 8 plus 6 after a hb was seen, and the other was a tfmr at 13 wks after abnormalities were found. No known cause of the abnormalities. For you I know everything had looked normal? so understand its not quite the same. I was desperate to have a reason, and quite distraught that there apparently wasn't one. My heart goes out to you, its such alot to take onboard. Can you take some time off work now before your AL?

St.Mary's rmc said as not all the chromosomes are looked at when they do karyotyping on the embryo/baby, a random abnormality could still be the cause. At the clinic in Coventry, they said its not normal to have 3,4,5 etc losses in a row. I believed the random bad luck up until my 4th (3rd was T22) at which point I finally went to Coventry to get a different perspective. I guess what I am saying is that it still can be a case of random bad luck for you, but it may be worth trying to get some initial investigations too. Hope you are doing ok and getting through the day at work.

brummie great your cervix is doing well!

bumble that's brilliant news!

barking your family sound like strong individuals. The festival sounds like a definite distraction! Hoping and praying that the thread starting has worked it's magic for you!

flen grr to the spotting. Hand holding for Thursday, and hope you are bearing up with the hideous sickness.

Sorry to those not mentioned, bound to have left out loads x

[bootles]

Me 41, dp 47

DS born 2011
Mc 1 2012, mmc died 7 wks
loss 2 TFMR 2013 @ 13wks after crap 12 wk scan
Mc 3 2014 @10 wks, anembryonic,T22
Mc 4 2014 @ 8.5wks, hb seen at 7 but slow
Mc 5 2014 died at 9wks, looked good at scan few days before.

Combo of erpc/medical/natural

Rmc tests normal
Coventry after no.4, diagnosed with high nk cells at 6.1. On their protocol for loss 5.

Currently 15+1 wks pg with a healthy boy as per harmony/12 wk scan. Still finding the anxiety very hard to handle.

[bakingtins]

Checking in - we went to Camp Bestival over the weekend and have totally lost touch with the thread - will try to catch up later. Faith had a fab time and has had a little leap forward in development which is fab, she can now transition to sitting, pull up onto her knees and pull up onto her feet, plus stepping when you hold her hands. Not sure if it is the Snowdrop program or just time off steroids making the difference, but I don't really care!

Me, 40, 2 sons and 4MC all at 9-10 weeks, eventually got a high NK cells diagnosis from Coventry and had Faith, now 14m old, on their progesterone, heparin and steroids protocol. She has infantile spasms, a form of epilepsy.

[mrsb0710]

Still have not heard from consultant, so I've made a GP appointment for next week and written a list of bloods I want them to do. Hopefully I'll have some back up from.the hospital by then, if not I will just cry.
If the results don't show anything we'll save and go to Coventry.

Thank you to all for your advice, it's made me more determined to ask questions and push for further tests. "bad luck" or not, it's still completely shit and I think I deserve to know more.

Work is ok, I may have to have a meeting with HR as my absences have more than likely triggered a concern, but I'm not worried.
Applying for some annual leave in September at least I'll have that to look forward to.

[BumbleBee0]

Thanks for the thread Barking hoping it brings you luck!!

Me29 dh32
DS 2
Mc1 sep14 - MMC measured 8+5, had medical management
Mc2 jan15 - sort of MMC too, measured 4.5wk empty sac but took 4 wks to miscarry naturally
Diagnosed with fvl clotting disorder and high uNK cells.
Currently 10wk2d pg And on coventry protocol of steroids, progesterone and clexane til 12 wks.

[BumbleBee0]

Lovely to hear Faith is doing well Baking!

[BumbleBee0]

Hugs mrsB. Keep pushing for your tests/appointments/results, I know it's the last thing you feel like doing at the moment, but you can do this.

[clairemorgan81]

Thanks for new thread

Can you add me please

Me 33
Dh 30
Ds 2.5 yrs

Mc 1 - may 2014 7.5 wks (d&c)
Mc 2 - oct 2014 5.5 wks (d&c)
Mc3 - Dec 2014 5 wks (natural)

Currently await bfp so I can join response trial. Finally have a gynae referral for septemeber as I have brown spotting for 7 days every month prior to af arriving since last mc and convinced it's linked to not conceiving.

Thanks hope everyone is okay xx

[longestlurkerever]

Hoping this is a lucky thread for you all. Are we due another thread baby soon?

Really pleased to hear Faith is doing well and it sounds like you're getting some support at last Baking.

[Flen]

Hi all, thanks for the new thread barking, am bloody impressed you did it on your phone.

EPU has moved my scan to tomorrow afternoon due to the spotting which is great. I saw the GP today who was lovely but basically said "hang on in there". She also took my blood pressure which is apparently ridiculously low, which maybe accounts for some of feeling so rubbish.

My stats:
Me 36, OH 35, no dc. Ttc for almost 2 years.
Mc1 dec 2007, mmc found at 13 weeks (previous relationship)
Mc2 apr 2014, natural MC at 11.5 weeks
Mc3 oct 2014, mmc found at 9.5 weeks.
All tests are clear, unk cells clear. Am on progesterone and heparin this time round, have experienced bleeding/spotting since 6 weeks but also had three good scans. Another scan tomorrow...

[bootles]

baking I may not refer to faith these days but I think of you guys often. Lovely to hear she is starting to stand, and tbat the snowdrop programme seems to be helping.

mrsb I didn't intend to trivialise your losses as 'bad luck' - it is of course horrendous and hearbreakingly bad luck, if they were just random events. It sounds like you have a good plan to approach the gp. I was worried about tbe money for Coventry too - but its reassuring that its a one off payment, and they will see you more than once.

longest I have never got to the scottish islands for a holiday, but always thought it sounded lovely, rain and all. Bit of a late response I know....

[barkingtreefrog]

How are you doing today patience?

Mrsb keep plodding through you'll get out the other side again .

Thanks for the updated stats March, I failed from my phone!!

My stats:
ttc #1 since December 2011
summer 2013 clomid bfp then mc @7 weeks
summer 2014 iui bfp then mc @ 6/7 weeks
Failed iui cycle January 2015.
Failed ivf cycle May 2015
rmc diagnosed factor V leiden thrombophilia. nk cells 'normal'
Scans/blood tests/biopsy show I grow follicles at a normal rate but don't ovulate until much later, and then post ovulation the hormone levels in my womb lag a few days behind, then AF arrives by 8dpo. Not exactly conducive to conception..

Currently 10dpo in a frozen embryo replacement cycle. Went from 2 healthy embryos in the freezer to the first one perishing and the second one coming out of the freezer damaged. Dodgy one currently on the inside. Been injecting fragmin daily nasty little fuckers and shoving ustrogen up 3 times a day since it went in. Official test date Saturday.

[mrsb0710]

bootles all good - I didn't take offense. The term came from the midwife anyway. Perhaps she should have worded it differently. Thanks to you and other lovely ladies, I'm determined not to take no for an answer when I ask for bloods. I think the guidelines of 3 mc before testing is utter pants.

[Justonemoretime]

Marking my place, brief stats: 3mmc, #3 turner's syndrome. All tests normal, uterine septum removed, Coventry uNK cells normal, but took progesterone and fragmin for pg#4, resulted in Scott, born 6 weeks prem but doing very well now.

Sorry that some of you have had bad news this week. I wish you strength to carry on - I know you have it, but I also know its very hard.
Thanks for the new thread Barking, I really hope that this is your lucky thread.

[girliesaints]

Another thread already? really? We are a chatty bunch ????

My stats;

Me & dh 37, one dd
Ttc since Jan 14. One chemical and 3 mcs from Feb 14 to May 14.

No causes found and last embryos (twins) found to be normal. Currently on Ttc ban waiting hysteroscopy.

[girliesaints]

Baking, glad to Faith is doing well and you enjoyed Camp Bestival. always wanted to go but dh isn't keen on camping x