Recurrent Miscarriage Support Thread 25 - tests, treatment and trying again

[Marchgirl]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

Hi there biscuits** - it was indeed me, and know what? It is still in my fridge...! Because collection co-incided with end of term/going away for a week and i still need to send it off. Can't believe dh hadn't tried to unwrap the strange foil parcel in the fridge. He probably thinks it's cheese!!! (Sorry...yuck factor...)

Thank you.
So here's my story...
Mc1 early 2014 @ 7 wks...nhs were more than shocking
Mmc 2 late 2014 @ 8 wks ...found at private scan and private Erpc
After this I totally gave up and thought I would never be trying enough if it should happen again and we looked into adoption.
We have got quite a way through adoption process and the next step is a weeks course, which we were on in June and it got cancelled, as did the July and been told very likely the September one, there MAY be one in dec.
The next day I spent the day with a friend and her new born.
Overnight Something switched and I felt I that waiting doing nothing was a complete waste of time and I owe it to myself and husband to try again.
Anyway after my babbling it comes down to me booking an appointment for tomorrow at a private misscariage clinic....hopefully I will get some results! X

Popping in to say hi. I don't find I have so much to contribute but I'm still lurking.

Sebs, many congratulations to you. So hoping this is your turn!

Welcome newbies. It's hard to go through this, but we're all at some stage of this horrible journey and the support here really helps.

Me: Five MCs after two DSs. Had NHS tests, normal; had Coventry tests, normal. Got pg and was on Coventry protocol. Had my beautiful DS in March. Happy if slightly frazzled bunny.

march thank you for the new thread

sebs congratulations. My 3rd miscarriage was shown to be chromosomally abnormal, not sure exactly what as I didn’t ask but now, 4th time lucky, currently 22+4 with no treatment so I hope it can be the same for you.

cloud glad you’re staying with us

lucky sorry to hear about your recent MC. Stick around and you’ll find plenty of company here….

bootles I know that this will not be true for you but 7+3 seems to have come quickly, I am sure it was only last week you got a BFP. Why is it that time doesn’t work the same when it’s you as when it’s other people. I know for you it will be 4 million years since BFP. Hand holding for the horrible anxious time.

Minnie hope today goes/went well.

leah Hope it’s a helpful appointment tomorrow. As you will see, lots of success stories on here after 3+ MCs so hopefully they will find something that can help you if you decide to give it another go before adoption.

tanny [waves]

So my stats:
Me 33, DH 31
No DC, TTC since Dec 12.
MC 1, 8+6 Nov 13, MC2, 10+6 Mar 14, MC3 10+6 Sep 14.
All testing clear, last MC chromosomally abnormal. Currently 22+4 weeks pregnant, no additional treatment.

barking thinking of you and your family. How is your Dad today?

Half-way through the 2ww and really turning a bit stupid here. Keep counting out the days, working out fictional 'due date', symptom spotting constantly (no symptoms really). It's maddening! Feel like a total moron. Anyone else? It's like waiting in all day for an unreliable workman, who you know is going to rip you off and has probably kicked of early to go to the pub anyway!

Welcome leah and lucky, I am glad you have found us. There is something very shocking about the 2nd loss I think. After the first, however heartbreaking, you are able to reason that 'these things happen', but the second is when I started to think hang on now...this isn't right. lucky take care of yourself and stick with us, and leah I hope your appointment goes well.

march i am feeling bad about the cheat sheet comment and my stats. I am very aware that you must have put alot of effort and time in to keep on top of it, and barking too for making it, and I have done absolutely zippo! It really wasn't meant as a criticism at all.

sasha hmm pred...this is my second time on it. The last time I felt sort of more buzzy but definitely had some insomnia from it - though obviously my anxiety was high anyway. I was on it until about 9+4, (when the pg failed) but was about to start weaning off it at 10 weeks when the placenta is starting to take over and it should have done its work on the lining to reduce inflammation. I didn't put on weight or notice any other changes. I didn't feel the utterly draining pg exhaustion I have had when not on it, and it definity masked symptoms such as nausea. This time, I feel very very jittery but don't know how much that is anxiety alone and I seem to be having stronger symptoms, despite the pred, which worries me. I could always accurately rely on symptoms to tell me what was happening but on pred I just can't. God what a lengthy explanation. Sorry!

Also lucky and leah I was not implying that something is necessarily wrong - plenty of people have 2 mc's and go on to have a healthy pg. Really hope that is the case for you both.Indeed I think its one of the reasons the nhs won't test until you have had 3 mc's.

Sorry for the bfn kaz

Good luck to those in the tww, and sorry to hear you feeling a bit insane freckle. You're not insane. You're really not. Everything crossed.

tanny I am sure you still have plenty to contribute - lots of experience and hope for one! We understand that you have a bit less time available though!

Thanks for the new thread march

Huge congrats sebs. Am well pleased for you! x

Me 38, DH 42?
1st MMC May 2011 - 5/6 weeks, miscarried at 9 weeks?
DS May 2012 - placenta praevia but other than that, all ok?
2nd MMC Feb 2014 - 5/6 weeks, miscarried at 7 weeks?
3rd MMC June 2014 - 5/6 weeks, miscarried at 12 weeks. Rcm tests @ Leeds all negative, prescribed HCG from next bfp? for suspected hormone imbalance
4th MMC February 2015 - no heartbeat at 20 week scan. Induced labour and gave birth to dd at 20+4. Low PAPP-A hormone found from 13 week combined blood test. Put on aspirin for suspected placenta problems (but that was clearly too late). Was also on HCG for first 12 weeks for the hormone imbalance. Have since been for tests at Liverpool (borderline high lupus anticoagulant, suspected hormone imbalance), Leeds again (nothing) and Coventry (nothing). Also had post mortem and histology performed – nothing.

Have Coventry phone call with Prof Q tomorrow and a final appt at Leeds in a couple of weeks to round everything up. Think Leeds will go for high dose folic acid, progesterone/HCG, heparin and baby aspirin should we ttc again. Am ok about all of this apart from the baby aspirin as Coventry very much against it and it didn't work last time. Then again, if I do have a blood-clotting problem, the aspirin alone last time wouldn't have been enough. Am just extremely cross I've got no answers and, therefore, have no idea which protocol to go for. It's all a bit arse, really.

So, am currently imbibing all manor of vitamins in an attempt to sort my body out, including agnus castus and wobenzyme. Could be a load of old bollocks but at least it feels like I'm doing something!

Hello newbies and sorry you find yourself here. Hope the rest of you lovely ladies are all well. x

bootles that is exactly how I feel.. 1st time you are told its so common and you were just unlucky, then the hospital convinced me it happened as I fell pregnant so quick after being on the pill for 10 years and it won't happen next time. Then it does and you think the world is against you! X

mrsd you're right, this is a different pregnancy and the clexane has done its job. Stopping it won't affect anything. Just thought I'd tell you what you already know, sometimes it's good to have logic quoted back at you .
Just throwing in a quick as well...

leah I can't believe you've gone from a June course to possibly a Dec course, that's outrageous! There's enough waiting time already in the adoption process. How does that fit with the government guidelines of getting from application to approval in a year?!

bythesea thanks, it's sweet of you to ask - not much change. Both mum and I noticed at the wkd that he wasn't using his right hand - he was reaching over with his left hand to reach anything on the table on his right, and when he tried to pick up his glasses he dropped them. Not sure whether mum has managed to speak to anyone useful about it yet, the nurses don't seem to know much and it's difficult to get much sense out of my dad at the moment .

Afternoon ladies. So had my Leeds appointment, all bloods perfectly normal. Good I suppose. But probably does mean I'm miscarrying due to my age. She said she was happy to follow the Coventry protocol as long as I didn't mind the faffing with injections (just said it's not something they normally follow as its a new thing) and to ring for a scan at 6 weeks or preferably earlier. She did say, as my mcs are both before and after ds and the last was more than likely a chromosome prob, that she didn't think it would make a difference but also that it wouldn't hurt either. She was pretty positive really and was happy to write to my GP about prescribing prog but to go back there if they won't. Basically said that MC is such a difficult thing to sort out because they don't really know if what they prescribe has worked or if it would have actually been a successful pg without it as there's just no way to know. Get cracking and good luck was the message I think! Oh and also answered my worry about prog stopping me getting pg even with a good egg by saying she didn't think that would be the case as you'd already be pg when you started using it, that only taking it from ov day would be an issue.

barking I'm sorry you're seeing worrying things with your dad. Seeing parents aging and ill is such a scary thing.

leah I'm a little like march in that I didn't deal with MC2 properly so mc3 hit me much harder. Take all the time you need to think and talk about it. It really helps. And at your cancelled courses. How can they expect people to stay the course if they're not being properly supported.

mrsd and snoopy ramped up anxiety here too. I worry about literally everything!

freckle nope you're not crazy. I'm 1 dpo (1 fking day!) and I'm already reading stuff into stomachaches, headaches, cervix position etc etc ebloodytc! And also worrying that I ov'd 5 days later than normal so (as I have a 24 day cycle since Cov) will now have developed a lp defect and nothing will ever implant! Aargh MC madness!

Welcome leah. Sorry you find yourself here. The adoption process seems frustratingly slow. I hope your appointment goes ok tomorrow and that you are able to pursue both routes at once.

barking, so sorry to hear your dad has other symptoms. Such an awful time for you and your mum. I do hope he regains the use of his hand when he gets his strength back.

bootles, do not feel bad at all! Now i have the spreadsheet up and running is very easy to update as it's on my phone (in fact it's already done but I'll just leave it until the next thread to post). My job revolves around spreadsheets so it's no bother . And I'd rather have everyone right.

freckle, I'm totally with you. I have another spreadsheet that has my cycle and due dates plus temp and other observations on it. I have always been a list person and it makes me feel like I'm making progress if I can tick off the days, but i admit it's a bit obsessive. I had a few spots of red blood this morning but it's gone away again now. I would previously have been convinced it was implantation but I've had it around this time in the last 4 ttc attempts and only one resulted in pg. No other symptoms so not very hopeful.

Phoned the gp today to find out if my prescription was ready. It turns out that my assumption that no news is good news was incorrect. The receptionist told me that she can see the gp has sent a letter (ffs!) To the consultant to ask about the pred. Haven't they ever heard of email? I was supposed to have the smaller progesterone for today (not an issue as I can cut the ones I've got), but worried that if I get bfp this week I won't have the pred to start straight away. Seriously considering sacking the gp and just emailing the prof for a private script but I'd just rather be above board with it if I can

If you counted day 1 from when you were due to start af (if you hadn't done Coventry) would you still be late ov minnie?, I think Coventry messes things up by making af come early, but really its a false af start.
Either way, I think it's unlikely to cause a LP defect, as that should stay pretty much the same, even if the follicular phase is long (meaning your cycle as a whole will be longer). I know it's easier said than done, but try not to worry x

Guys can I ask please, those of you that are using the Cylogest pessaries in early pregnancy, what dose are you taking? I've managed to secure 40 400mg pessaries from eBay from someone who had leftover progesterone from their IVF cycle. I know some of you talked about cutting them in half but then I have also read some people online have been taking 2x 400mg a day.

I know I'm acting like a mad woman but I just don't want to let this pregnancy slip away without trying to do something.

You're fine with 2x400 after bfp sebs and lots of people have been prescribed that from 7dpo (he prescribed me 2x200 from 7dpo which he said i could increase to 2x400 after bfp)

And you're not acting like a mad woman. You're just doing the best you can for that little baby of yours xx

seb I think 400mg once a day seems to be what most people take. I know that's what I've been prescribed.

barking so sorry to hear your dad is so poorly and all the anxiety the hospital is causing for you.

pop I started taking wobenzym! I'm not TTC in my wtf cycle so won't know until next month if it helps. Have you noticed any positives from it?

leah DH and I have discussed adoption and would be more than willing to give it a go but I hear so many stories like yours that worry me. People always make comments about people with fertility problems along the lines of 'why don't they just adopt?' as though it's as easy as popping down to the supermarket to pick up a child. The process seems as difficult as the process we are all going through.

march I think you could be right. I think I would have ov'd yesterday if I had had my normal cycle! Hope that's all it is. And keeping my fingers crossed for a happy ending to your tww xx

Thank you. I'm hoping that 1 x 200mg might do something if that's all I can cobble together.

Sorry I'm being such a stress head. I just don't know how I'm going to cope with another loss, seeing blood sends me into a tail spin.

Trust me adoption is definitely not an easy way! And the guidelines that states a year from start to finish only means the "official" part of it. ie after the course has been completed....to be honest the council have been a complete joke, which doesn't give me much confidence if I continue with them and we get further down the line x

Sebs - Congratulations!

Marchgirl - Email in the NHS sounds simple... Only all sorts of logistic issues about confidentiality/security etc. & hospitals only slowly moving to all be on NHS.net providers like most GPs. So often writing is the only way to get a formal answer out of someone. I doubt your GP would be offended at being "sacked" if you did use a private prescription to get something quicker - you can always write them a note if you wanted to let them know.

Thank you to everyone with words of wisdom in the last thread about my test results being normal. Turns out it looks like ov-ing early (for me!) this cycle as positive peak CB OPK this morning (from Os - no high, weird) & dark on IC this afternoon - wasn't expecting it until Friday earliest... So DH currently in transit & no trains late/early enough to travel back again to where he's working at the mo, so will then be doing a 5hr cab journey overnight - have I gone insane?!

First day back after last MC & I'm knackered! Held it together pretty well despite having an all day strategy day where a safety video was shown showing a heavily pregnant women and our PA had her 20 week scan and everyone was very excited to find out what the sex was. Definitely tears in my eyes for both but very proud of myself not breaking down in tears!

hello Leah & Lucky. Sorry your find yourselves here and hope we can help.

Barking, sorry to hear your dad remains poorly. Big hugs lovely lady.

Apologises if I've missed anyone. Me thinks I'm off to bed soon! X

Thank you March for starting the new thread.

Sebs hurrah for your BFP! I have my fingers crossed for you (and of course it is going to be fine whether I cross my fingers or not).

lucky and Leah welcome, and I'm sorry you find yourselves here.

I haven't had time to catch up properly, but did I read that longest's shortest is here? Congratulations, such good news.

Nothing much to report here. I think I have probably ovulated but I no longer chart and I didn't get ov pain this time. Anyway, I am not holding my breath during the 2ww (having only been pg twice in 6 years there's no room for getting excited each month). Have a follow up appointment on Weds to discuss my results, but I reckon it is just a case of me and Dh are getting older, and my eggs and/or his sperm ain't what they used to be (and I have drunk a fair amount of wine this month which I doubt is optimal). let's call it self medicating. Sigh. Actually, having spent the last 6 years being cross with my body for the ectopics etc, I have decided they have all been caused by dud sperm and am dosing DH up on manvits, q10, and high dose vit c. So now he too can rattle when he walks... Seems only fair.

Well done on getting through your first day back girlie, it will get better x