Recurrent Miscarriage Support Thread 25 - tests, treatment and trying again

[Marchgirl]

Tea, hugs, a wealth of collective knowledge and lots of hand holding as we try again. This thread moves like lightning so hold on to your hats!
Previous thread here

Wow these threads whizz by! Thanks for the new thread march

My stats as always
Me 40 Dh 42
Mc1 6 weeks natural 2010
Ds born dec 2011
Mc2 6 weeks natural aug 2014
Mc3 12 weeks baby died 10+4 saw hb at 7 and 10 weeks. Medical management in hospital-baby/placenta tested couldn't grow cells but visually abnormal brain etc.

Seeing rmc at Leeds (back tomorrow for results of bloods from first appointment) only results so far are thyroid antibodies normal. Prescribed high dose folic acid and baby aspirin (only taking folic acid though) In first cycle of ttc since going to Coventry. Currently in tww (but not feeling positive) Will be asking about Coventry protocol at tomorrow's appointment.

freckle I'll let you know! I should have been there on the 15th too- they gave me two appointments then realised (after telling me to keep both!) and cancelled the 15th. No faith in their paperwork whatsoever!

girlie good luck back at work tomorrow. Positive plans are the way forward I think. Loving acupuncture here. If only for the twenty minute therapy session
beforehand!

lucky welcome and sorry you find yourself here. It's a great place to find support and knowledge and generally get things off your chest. A godsend really Xx

3luckystars, i am so sorry that this is happening to you again. I (and all of us here, i am sure) empathise completly with your total shock. One mc feels like a fluke, two a horrible joke (like you didn't get it the first time?!) You're probably in shock. I know i felt like i'd been hit in the face by a frying pan. But i promise you, you will not stay in this place. Shock, numbness, rage, hopelessnes - it is completly natural and we have all been there. You MUST take time for yourself. I think i tried to push it all away, deny my feelings, but it catches up with you if you don't just give yourself a break. Am sending you a hug comrade, across the etherweb. X

Snoopy, sorry to hear you are feeling depressed, been there hun, am pullin' up a chair with you xxx

snoopy I'm so sorry work are making life difficult still, it's so frustrating.

My stats:

me 35 (for 6 more days!) DH 34
TTC #1 since Dec 2011.
clomid bfp summer 2013, iui bfp summer 2014, both mc @6/7 weeks.
unexplained infertility (but very wonky cycles, late ov and short LP)
5 failed rounds of clomid, 1 failed iui, 1 failed ivf. 2 embryos in the freezer. Waiting for nk cells results before frozen embryo transfer.
factor v Leiden thrombophilia to throw in the mix as well.

It seems I can only get pg in the summer, so with a summer 2013 bfp and a summer 2014 bfp I have high expectations of a summer 2015 bfp... So I need to get this fet done by the end of August as it'll be too late by September!

Thanks for new thread March.

Me: 37, DH: 48, DS1, DS2
MC1, Nov 12, approx 7 weeks
MC2, Aug 13, approx 9 weeks
MC3, Nov 13, approx 5 weeks
Attended RMC, Prothrombin G20210A mutation identified. Prescribed progesterone and Dalteparin from next BFP.
MC4, Aug 14, approx 10 weeks
Attended Coventry in March 2015, results show NK cells normal.

Now three months post-Coventry, and no BFP so trying to decide whether to stop taking Progesterone from CD21 and only take after BFP. Although not 100% sure whether DTD at right time as didn't test for Ov.

Sorry 3luckystars, missed your post. Welcome to the thread. I'm so sorry you're going through this again. You're in shock and the tears will come when they're needed. Look after yourself and let people help out as much as they can. Do you have friends who know and can support you?

Minnie**, leeds are just such a bag of fuckwittery!!! ZOMBIES!!!

Stats:

I think I will alter my stats on the cheat sheet next time to 1 tfmr and 4 mc - its more reflective of my history. That's definitely not meant to be a criticism of your amazing update of the cheat sheet march - no mean feat to do all that! I often say 5mc myself for simplicity but its not really.

Me 41, dp 47

DS born 2011 - straightfoward
Mc 1 2012, mmc, died 7 wks
loss 2 TFMR 2013, after crap 12 wk scan
Mc 3 2014 T22
Mc 4 2014 8ish wks, hb seen
Mc 5 2014 10wks died at 9, looked good at scan few days before.

No's 2,4 chromosomes normal
No 5 couldn't get results

Rmc tests normal
Coventry after no.4, diagnosed with high nk cells at 6.1. On their protocol for loss 5.

Currently 7+3 wks pg on prednisolone, progesterone and heparin. Very very anxious.

Congratulations Sebs! Great news! :)

AF arrived this morning so no bfp this month for me. Not disappointed but hey ho! Just gotta get on with it!

That should've been I'm disappointed not not!!!

If it makes it easier here's mine for next time

Me 31
DP 38
TTC 7 years
2003 MC @ 8 weeks
2 own egg ivf
2 donor egg ivf
May 2015 MMC of twins after HB seen at 6.5, 8.5 week scan no heartbeat but perfect size. ERPC. Was on Gestone, Clexane and Prednisilone

Hi. I'm new to all this, when loads of you refer to tests and Coventy???

Thanks x

Oh kaz, sorry to hear that. Hope in a few days it'll feel like a fresh start.

lucky, so sorry to hear that you're going through this again. I found after the first I sort of believed it was just bad luck and took a few months off to repair myself. After the second I was in total denial and jumped straight back in. It was a really bad idea as I never really dealt with it (and consequently number 3 hit me really hard). I hope you'll never get to that stage, but do give yourself all the time you need to process this. It's a horrible shock and sometimes it feels easier at the time to just not think about it. Have you considered counselling? To be honest, if I'd found this place after mc2 i think I would have coped a lot better rather than bottling it up, so i really hope we can support you through it. Pull up a chair

Hi leah,
When we talk about Coventry we mean the implantation clinic at warwick hospital, Coventry, run by profs quenby and brosens. They test for uterine natural killer cells, which in high levels indicate an abnormal inflammatory response in the lining of the uterus that can cause problems with implantation (and therefore miscarriage). Many of us have gone there to be tested. It's nhs self funded and costs 360 all in.

Out of interest... does everyone tend to ovulate around the same time each month? This month was my first time using ovulation tests and I got my smileys on cd16 and on the morning of cd 17. If that repeats this month it'll be 23rd/24th of this month. DH goes to Germany for the weekend on 26th so not much leeway! Talk about added stress!!!!!

snoopy sorry work are being rubbish. I struggle badly with my anxiousness which is all related to mc and pregnancy. Are you getting any counselling? I can't remember. Sorry. Sod them for now and focus on what you need right now my lovely

Going to stop the clexane today. Bit scary thinking about how far I've got. Hope nothing bad happens. Have to keep reminding myself that this is a new pregnancy, not like the others and that the clexane isn't keeping anything alive. It's just helped the placenta etc.

Hiya, just got off the phone to Consultant's secretary and she didn't really understand why I was ringing her. Particularly since I hadn't even missed my period yet - I don't think they consider a positive test proof of a pregnancy interestingly.

She is going to email the consultant and see what she says. I suspect it will be a case of low dose aspirin and see where it gets you. Obviously now kicking myself that I didn't go to Coventry but I made my decision not to knowing I would most likely be having an unmediated pregnancy and now I need to man up and live with my decision. It's about now I wish I was rick and had my own private physician/gynae/obstetrician etc.

That would be rich lol, not rick

*unmedicated - oh the joy of using a small phone with fat fingers

Thank you marchgirl I know understand

Morning. Here is the link to the info I found on aspirin: justonemoretimeagain.wordpress.com/2014/10/05/it-cant-do-any-harm-the-aspirin-problem/
and here's one on Coventry justonemoretimeagain.wordpress.com/2014/08/31/practical-matters-what-happens-at-st-marys-and-coventry-rmc-clinics/
Hope they're of some help to some.

Congrats Sebs. And Brummie! Gosh I've missed loads but hope to catch up soon.

Freckle, think it was you who sent a sample to Greece? Just wondering whether you'd recommend it? Ignore me if it wasn't you!!

Me & dh 35, ttc#1 for 6 years, unexplained infertility followed by suspected diagnosis of luteal phase deficiency. 1 suspected mc at 5 wks following clomid in 2013. Two mmcs at 10 wks in 2014 following progesterone treatment. Currently 37 wks pregnant with baby boy following ovulatory drugs, progesterone, aspirin and inofolic. Got growth scan this week as bump is small.

Hi to newbies and to regulars. Just looked on the photo feed, wow what beautiful rainbow babies our feed creates! XX