Recurrent miscarriage support, tests, treatments and trying again.

[Monten]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Thanks brummie - am also going to ask for gas and air if available as that stuff is ace. Would love for it to be on tap for recreational use

minnie really glad you've decided on Coventry. I'm hoping to just get a different perspective on the whole thing so we'll see. Re Leeds: I was under Prof Walker last year but will see Dr Shillito in a couple of weeks as she will be doing the post mortem/histology results as well as blood results.

sebs just seem your post. WTF? Maybe give it a couple of days and then ring to see what the arses they're up to?

Sorry. Very sweary this evening for some reason! x

Good look tomorrow Pop! Looking forward to reading about your experience! When I went in I think the nurse could tell I was bricking it as she asked if I was ok straight away, so I asked about anesthetic and she got the gas n air lined up straight away and was so lovely. The gas and air was great tho, in fact I would actually have it done again just for the gas and air! I too wish we could have it for recreational use, bloody marvellous stuff!!

flen + biscuits hope it's the progesterone doing its job but that you both get BFP very very soon. brummie you too!

sebs bloody admin cockup or lack of communication by the sounds of it causing yet more aaarrrrhhhh! Hope the secretary can confirm what's happening.

erica that's what I hate about finding out early, it drags on even longer! I'm far too impatient though and I'll be testing several days early!!

Thinking of others too not in great places at the moment. I do truly believe you'll all get there in the end though. Because of the amazing strength and determination you all have.

Sorry if my post is a bit , been at the , but it comes from the heart! x

erica totally get the wiping fear. I have it every time. Spent far too much time looking at toilet paper over the last 6 months! Good luck camping (my idea of a nightmare, though Dh is desperate to go!) fingers crossed for good weather.

pop be interesting to see how you find Dr Shillito compared to prof walker. Going to Coventry is all about getting another opinion for me too. I'll be needing the gas and air though for sure!

Good luck today pop, really hope you find it a useful/supportive experience. Be interested to hear how it went later. Can You ask them how the unk level relates to the lining not being properly prepared? I'm stumped on that one!

Good luck today Pop.

Also with you on the wiping Erica. I'm only 3+6 and line has still only been a shadow. Keep thinking it's going to turn negative so am not going to test again until tomorrow.

Sasha I remember those feelings all too well. Still get them if I'm honest. I've got 2 counselling sessions left so need to use them well.

If you feel you need time off is it worth chatting to your GP?

Big hugs xx

Good luck today pop

sasha that dark hole is a horrible place but you will eventually crawl out of it. We've all been there and understand the mixed emotions. I found the anger was the starting point of feeling a bit more human. Still get sad days but the frustration is worse now. Sorry you find yourself amongst other close pg women- that's so hard. I'm avoiding two local friends at the moment as seeing them both together, happily pg with exactly what im desperate for is just too hard! Do you have another appointment coming up? That sometimes helps give a bit of focus. Big hugs xx

Ok, going to try and catch up but without mammoth post, so apologies for those I leave out.

Stats - er, bit late
Me 41, dp 47

2011 DS
MC 1 2012, 7.5 wks
TFMR 2013 @ 13 wks, v abnormal 12 WK scan, chromosomes normal
MC 3, 2014, T22
MC 4, 2014, HB seen but slow, finally died at 8wks ish, chromosomes normal
MC 5, 2014, all good at 9 wks, died a few days later, chromosome tests failed

Seen at St Mary's RMC after no 3 - normal
Seen at Coventry after no. 4 - high uNK cells

Currently TTC, now on cycle 4 (I think) post mc and if this month doesn't work, am due to return to Coventry for another scratch

Lots of rows here, so not enough DTD so unlikely to work this month.

Have been trying now for 3 years.

Sasha sorry you are feeling so low

pop good luck today

march I think high uNK levels indicate an abnormal inflammatory response in the womb. When this happens, stem cells mature too quickly and this results in inadequate nutrition/blood flow to the embryo. I am also still trying to work out exactly why.

Erica and jady good news on bfp

Glad you've been given some time off Sasha, shame your immediate boss couldn't extend some sympathy!

As expected yesterday's letter has brought everything flooding back and I now feel totally depressed again . My sons behaviour yesterday was horribly bad. I didn't like being with him at all. Weirdly since he has been terrorising the cat so mercilessly it makes not introducing a baby so much easier. I suspect he will be absolutely dreadful and I will have to have eyes in the back if my head, so perhaps with his personality he actually fits the 'only child' status rather well.

Minnie I too share your concerns about the Coventry protocol making my lining more selective than it is anyway. I think it might be part of the reason I haven't gone, that and the fact I'm not convinced my GP it consultant will actually prescribe the drugs they recommend anyway! If the baby had been shown to me chromosomally normal I would have definitely gone, now I have a reason I think I've lost that thirst for answers.

Oh I dunno, I'm being a miserable bag again and I don't know how I'm going to cope with seeing all of you get your BFPs whilst I sit here month after month trying. I can see me just sloping off in time and it's really shit

biscuits I love the no no no no yes thing, really resonated with me (in my case more from the ttc and infertility than rmc so it's bfn, bfn, bfn, bfn, bfn etc... bfp! and then desperately hoping it sticks)

Sasha . One step at a time, one foot in front of the other, you'll get out of the other side I promise. Who was the famous quote from? 'If you walk into hell, keep walking'

mrsd sorry you are so anxious - hope you get a scan soon, this bit is just so hard isn't it.

To be continued..

xpost Sebs For what it's worth, I think the 'only child' thing is complete crap, looking at the children I grew up with and my friends now. My SiL is an only child and she is the loveliest, most caring, well adjusted person you could ever meet! And every 1st child is an only child for a while anyway, I was an only child for more than 3 years before my brother came along! Do not beat yourself up about it. And I for one am very unlikely to be getting a bfp and making you jealous, I've been watching others on various threads get their bfps and leave for 3 years now!
Knowing that the frozen cycle of ivf is unlikely to happen before July, I've just signed up for a triathlon and started running again last night... I refuse to watch more of my life pass me by while I sit and wait to get that elusive bfp!!!

I hear you Barking

Life happens when you make plans is my mantra so I'm trying to carry on with life too.

Big hugs Sebs xx

Morning all,

I'm still trying to catch up

Flen I'm so sorry for the BFN, be kind to yourself, its natural to feel upset.

Interesting someone mentioned about prog making the lining too selective. I found this after my Cov appointment and Prof Quenby said to reduce to 200mg and only on BFP.

Sebs - that's awful, of all the things to mess with your head .

Minnie - glad you've decided on Coventry - how did your boss take the news?

Marchgirl - that's really interesting. I'd assumed that I couldn't take aspirin and clexane together but maybe both together is ok.

I've spent the last couple of days emailing everyone's letters to everyone else - so Coventry now know about the elevated TEG results and my local consultant now has everything in my file. Am hoping for some consensus!

Shit - think is happening again. Day 30, first cycle after mc at 5+3 last month and think the same thing is happening again - very very feint line on pg test, but definitely somthing there and absolutely no symptoms (which I had strongly by now on the two pregnancies where the fetus died at 7 weeks). Usual cycle is 26 days so line should be stronger now if this was actually a goer. Not sure I can take this again. Just feel like am going to breakdown.

Good for you barking. It's so nice to hear you sounding like you're going out and enjoying life again (hope that doesn't sound patronising, I honestly mean it) I also love the no no no no no no yes thing.

sebs, sorry you're feeling low again. This grief thing really does come in waves doesn't it. I hope you can ride out the storm and come out the other side feeling more positive. Don't write yourself off yet, you still have time

Sorry you're going through a dark patch too sasha. It's still very raw. Give yourself some time.

That helps explain the unk and reason for steroids but I'm still confused bootles! How does this link in to taking progesterone to prepare the lining for the people with normal nk, or is that just enough for some people but those with high nk need a bit more help? Or is the lack of selectivity/hyperfertility thing a totally different thing?

Cross posts sun. Please don't think that way. Symptoms are not the be all and end all. Every pg is different. Whispered congrats on the bfp. I know it's impossible not to worry, but you've just got to go with it and try to stay positive. 30 day cycle is perfectly normal, particularly after mc. Do you know when you ov?

brummie great you are ready to get going with TTC, understand the fear though.

flen sorry for bfn

sebs hope you can clarify your letter - how disconcerting to get that.

Cross posts..

sebs hugs, hang in there.
sun oh gosh..how hard for you, but don't write it off quite yet, hugs.
March I think progesterone 'drives the lining' so generally improves it, whether there are high uNK cells or not. And I think the hyperfertility thing is separate to the high uNK cells issue. I always have a million questions too, always leave with more. The fact is, they still don't entirely understand themselves, and are wanting to do more research.

Sun, step away from the test. My Mw has banned me from them after I got my bfp as continued testing can do more harm than good. I'm in the exact position (5+4) and the lack of symptoms is driving me crazy (literally) but my mw reminded me this week that symptoms are very small at this stage and most people don't even know they're pregnant at this stage. Hang in there and try and focus on the positive.

Thanks march, bootles. No not sure when I ov as had cm around day 14 but then again a few days later. Could have just ov late I guess. Not sure I can take back to back mcs. Feel like an trapped in a nightmare.

Thanks girlie - I know - it's just so hard to be positive when you're on the fifth go (discounting the extremely early cp) and there is nothing reassuring to hang onto. Would give anything to be chucking my guts up. Hugs to you - I really hope everything works out well for you too.