Recurrent Miscarriage Support Thread 21 - tests, treatment, trying again.

[Justonemoretime]

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

barking I'm so sorry, I've just realised I've completely missed your post! It sounded very informative and helpful. The consultant sounds lovely too and how nice of them to tell DHs school off. Bonus if you can get the lining biopsy done closer too for a similar price as coventry. X

This made for interesting reading, and I'm going to post it on fb... http://huff.to/1H3W0Gb if the link works.

Bums.

Brummie, just a thought. Did coventry see your uterus to know it was ok re no adhesions/septum etc? Because if so, the only perk of today would have been the d and c. I may be remembering badly, but didn't you say coventry said they wanted to do another scratch for you but didn't worry about it because you were having the hysteroscopy? Could they do the second scratch now, if you want to ttc from May if that's all today was about for you? As coventry don't do their stuff under GA do they?

Apologies if I have got wrong end of stick re the point of today. No one had seen my uterus and I'd had an emcs, ELCS and erpc so the main point of mine was about checking for damage from the surgeries, and he found and removed adhesions and also did the d and c to help the lining. But I'm guessing if you had adhesions etc Coventry would have told you?

Just a quick check in. Not a lot to see on the scan cos its still early days but enough to confirm I am pregnant and to get the heparin. Relief to know its real enough and i'm not imagining things. Wish it felt more phewy but I guess we're passed that.

Or could Monica see if they have a date sooner if you opt for local rather than GA?

Diddly, glad to hear the scan went well. How weeks are you again?

Decided not going to say anything about seeing Bil at hospital. Very good chance he didn't see me as I was in the car and he was walking into the hospital. Really hope they are going for IVF again and it works, as they have had three cycles and it's not worked. Makes me realise despite the MCs, how lucky I am x

Diddly was just about to ask how it went. Glad it went ok, grow little bean grow.

Barking your consultancy sounds excellent. Really interesting that they check steroids would work first.

Brummie afraid I don't have anything to add to what others have said, but I hope DP supports you with whatever you decide.

Forgotten what else I was going to respond to now. Doh

That's good news mrsd . I know it's not as comforting as a later scan with a little hb flickering away but it is what it's supposed to be and not ectopic, so all good. Bring on the next scan!

Forgetfulness definitely a symptom Biscuits! Struggling to string sentences together today trying to remember names, words.

One thing that keeps ringing in my head Brummie is something prof quenby said. I asked if they would look at the uterus when they did the scratch and she said they were all about the lining at Coventry so whilst other places cut bits out, to them it's sacrilegious to cut anything from it. I don't know if that helps or hinders, but just thought I'd share.

On my phone so I'll be brief.
Brummie, gutted for you. I'd be tempted to TTC this month; if there are adhesions, they can't be that big otherwise they'd be visible on scan. And if they're only little they may nor affect a future pg. And if you don't get pg that cycle, nothing lost.

Sebs, I tried 3 months after I got the all clear basically because I thought the turner's diagnosis and all 'normal' tests might mean it was just bad luck. However, MCs #1and #2 were such a similar pattern I came to think that I had more than one problem and I sure that the heparin saved the day. So, so glad I waited for Coventry.
Yay for good scans and good consultant appointments today.
Cloud, this pg started with slight brown spotting, I though AF had arrived. It can happen, hope it works out for you.

Hi Loopy no Cov docs scan but can't actually see your uterus. I could go back next month to Cov, but then I would have to wait to try following cycle and I might as wait to see Mr Watts.

I can't have local - firstly a doc at Cov told me it really isn't a goo idea to have a hysteroscopy under a local as it's really quite unpleasant. Plus I've had 2 very traumatic loop diathermies and they were under local and horrific. I cannot put myself through it. Terror comes to mind. Today was just another look and an extra scratch. I've had 2 x ERPCs and if there was anything, Mr Watts would remove.

Why didn't I lie today? That said, I was coughing and they would've twigged at some point and it's unfair ( and irresponsible) to lie to the anaesthetist. I've seen the agony my sister goes through when something goes wrong - even though it's out of her control. To inflict that pressure and agony on someone else knowingly is wrong.

I'm angry that I could've had 18th May but because or work I can't. My flights and hotel are booked. If I don't go, we've wasted our presence - which is also paid for. Cancelling me going isn't an option.

I'm also upset that if my first appt hadn't been cancelled on 23rd Feb I could've been in a very different place by now

I'm sorry I'm very me me today. I think we will TTC next month and if bfn, don't be upset and take it that we weren't meant to get a BFP.

My only fear is living with myself if we had a TTC and it becomes a 4th mc. I guess that's the risk we take because that risk will always be there.

Anyway I'm very me me me. Barking I'm so glad today went well. And glad the hospital will support DH being there.

MrsD great about the scan. Get the heparin going my love!!!

Tanny would've been good to see the link if it works!!

Thanks Just and Jady think because I've been to Cov and got the protocol behind me and the scratch and instruction from Worcester of getting the heparin, i do feel better about jumping off that cliff so to speak.

Barking, sorry missed your post earlier. Sounds like you had a very good appointment that gave you options. Well impressed that their care extends to DH, so hope it works it magic with the school! X

Try try again... huff.to/1H3W0Gb

Yay!

brummie gutted for you. But it sounds like it's actually helped you make up your mind and move forward. There are no guarantees but even if you'd crossed everything of 'the list', there still wouldn't be a 100% guarantee (a thought that will petrify me if I decide to try again!) I'm so sorry there are no straightforward answers.

diddly woop!

freckle are you doing Coventry now you think ov is on its way? Or are you not bothering?

Great link Tanny and so bloody true!!!!

Pop you are right, there is no 100% guarantee.

My Mum is friends with Leigh who lost Hugo as she is an ex work colleague of hers. She was out with her last month to commemorate what would have been his first birthday. I was so shocked that it happened as I had this stupid idea that all premature babies made it nowadays.

Often when I'm feeling terrible Mum only has to mention a post on Facebook that Leigh has written and I hate myself immediately. She has lived her worst nightmare and is an amazing, amazing woman.

girlie 5+2 by date of last period. You can't be far behind me. Are your injections daily with the response trial?

Tanny super link!

barking Sounds like you had a productive appointment with the consultant, I hope it made you feel better. I always find that it's such a comfort just being listened to and being taken seriously. And great that he will write to your DH's school! It's so awful that they are being difficult.

brummie Honestly? I would wait a couple of days until you have calmed down a bit and then make a decision about how to go forward. You are very upset, which is totally understandable, but give yourself some time. Give yourself a bit of time, try not to think about the could/would/shoud, just focus on now. Do something to take your mind of things.

MrsD One step in the right direction! Hope you'll get on with the meds!

girlie Maybe better not to say anything at the moment to your sister and BIL? If they are so private about it all, they might prefer that. Are you close to your sister? Tricky one...

I've got my meds, finally got a call from the GP who asked me to come in straight away. No problems whatsoever getting the progesterone and heparin. Off to do the first round of both now, then bed. I slept so badly last night, could barely function today. I need to keep it together for the next 4 weeks... Trying to get a scan for 8 weeks, but might have to wait until the midwife gets in touch. The system has changed since I was pg last time, not helpful. Ah well. One day at a time. Spotting has calmed down, fingers crossed. Won't even try the front door for the progesterone, to avoid any irritation.
I cannot believe that I am having another go at this...

Crumbs I go away for the weekend and am now 6 pages behind! I'll try to read back and catch up.
This weekend a friend who knows about the mcs asked if I was getting good support, my first thought was of you girls. Thank you for being so brave, funny, adventurous, admirable, informed, empathic and totally kick-ass!
Off to rmc tomorrow, not sure what to expect. Trying not to expect any answers or a plan as all 3 mcs have been so different.
Love to all x

Hey barking glad it went well and they are outraged at the situation with your DH's work. It is a disgrace.

So sorry the op couldn't go ahead Brummie. Sometimes it feels like everything is against us, I had many such disappointments and set backs and it drove me utterly mad. If it were me I would keep trying while you wait. I was having tests when I conceived this one, I never stopped trying really.

Sorry I can't follow all the posts. Work is manic and I've got a lousy headache. So will just wave and say hello to everyone else!

XXX

Tanny, I totally misjudged your link, thought the 'bums' comment meant it was an article with a definitive answer to the front door vs back door debate!

But a really good article.

MrsD, glad everything OK.

Barking, glad appointment went ok.

Girlie, I think i'd mention it, I couldn't help myself. But as i'm always moaning about arguments with my sister, probably best to ignore me!

Diddly, I'm 4 wks based on ov date, which is how the Response trial dates pregnancy. Injections are daily.

Cloud, I'm with you to trying to keep calm. Decided to focus on staying pregnant each day, rather than thinking too far ahead. Glad to hear you got your meds x