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Miscarriage/pregnancy loss

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Original poster

Recurrent Miscarriage Support Thread 16 - tests, treatment and trying again

986 replies

Justonemoretime · 18/01/2015 07:46

Information, support, hand holding, tea, sympathy and a hell of a lot of combined knowledge - all welcome as we try to make sense of the RMC roller coaster of tests, NHS admin, heart ache and (hopefully) happy endings!
Please start with a recap of your stats :)

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Original poster
Justonemoretime · 19/01/2015 17:36

Brummie, so sorry to hear about your cat. Its so sad Sad

I wrote https://justonemoretimeagain.wordpress.com/2014/06/16/dark-days-and-how-much-i-miss-the-cat/ this blog post sometime after my cat was run over between MCs 2 and 3. I really thought the universe had it in for me and it took me ages to emerge from the grief. Thinking of you, and everyone who takes comfort from a furry friend.
Cat, yay for your test results!
Belle, I had a 16 week appointment, I had to book it myself, though, maybe call your MW. They will go though your test results, listen to HB and generally answer and questions.
Baking, glad Faith is responding, hope they can find an answer and treatment soon.
Waves to everyone. x

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Original poster
Justonemoretime · 19/01/2015 17:37

Try this link for the blog if you're interested.

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Original poster
Justonemoretime · 19/01/2015 17:38

Betty, great new from you, too! Smile

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Justonemoretime · 19/01/2015 17:42

Tiny, too. Great scan news.

I should really make notes before I post so that I include everything I want to in one go!

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BettyButterchops · 19/01/2015 18:30

Haha just that's what I do. Not even a goldfish would use me as phone a friend, I have a half second memory.

barkingtreefrog · 19/01/2015 18:34

Wow, 105 posts already?! No wonder I can't keep up!

Good luck/great news for scans that have happened / are happening this week!! I've already forgotten who!!
All still going well on this thread which is great to see Grin.

brummie so sorry about the cat, my dog is my baby substitute (yes, I have become that person, although I do not have a small dog...) and it's amazing how much your pets become part of the family.

tannyLoo · 19/01/2015 18:41

Brummie so so so sorry to hear about the family cat. I have cried so much over Minnie's death, it just felt so raw somehow. I went to visit a family today who have lots of cats and nearly cried into their fur. Big hugs.

Baking, pleased you are able to take Faith home. It is no exaggeration to say you are in my thoughts several times a day. Tons of love to you x

Belle I have a movement panic fortnightly on average and my midwives are lovely and reassuring. Don't be afraid to go in for them to have a listen. They would rather that than you sit at home worrying.

Tiny and Cat lovely and encouraging news. Am getting excited about all the thread babies we will have this year...

Betty congratulations on making it to 13 weeks! Yes, I missed that one too..

Sorry, my powers of recall have failed me! I am struggling to keep up. We are over 100 posts in and I still haven't done my stats. Slack tanny!

Brummiegirl15 · 19/01/2015 19:02

Thanks Just your blog was lovely. And yes I feel exactly the same - thanks universe, was that really necessary?

Tanny Minnie and Rodney will be together snoozing and chasing god knows what.

The irony is not lost on me. I can post on fb about Rodney and how he has left us and we are devastated, and put piccies up - and people write lovely kind comments.

But I can't write "just suffered our 3rd miscarriage in 7 months and are beyond heartbroken"

Ah the irony Hmm

tannyLoo · 19/01/2015 19:52

Minnie and Rodney sitting in a tree...

Original poster
Justonemoretime · 19/01/2015 19:52

With Machiavelli Wink

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girliesaints · 19/01/2015 20:03

Another quiet day on here I see! ??

Brummie- sorry to hear about your cat. Another mad cat lady here x

Baking- glad to hear Faith is responding and fingers crossed good news continues x

Tiny- yeah for good scan x

Printed socks are apparently "in" according the Sunday supplement magazine I was reading yesterday. Perhaps others have heard about their lucky charms!

bootles · 19/01/2015 23:09

baking I do hope you are finding some answers. How did the MRI go, and how is Faith in herself? Quite understandable that your DH is finding it so hard, but It's tough being the one who holds things together and hope tbat you are coping ok. Thoughts still going out to you all xx

bootles · 19/01/2015 23:16

brummie I'm so sorry to hear about your cat, life must feel pretty shite right now. Hang in there xx

cat and tiny hooray for good appointments!

andcounting can you fling a bit of your positivity my way? I have run out. As you said before, we have some similarities - my DS is 3 and 3/4 and I had my 5th mc over Christmas. Hope is in short supply for me...

Worked the last two days and managed to cry both days. It's annoying me! I do NOT like to cry at work! Or anywhere really. Stupidly told a colleague

bootles · 19/01/2015 23:22

Pressed button too soon...

Colleague is basically nice, but her response was to tell me about someone else who has had RMC at work (I suspected an issue) and how her son was crying because he didn't have a sibling and wanted one so badly. Hmmm...anyone else think that's not entirely helpful to point out what is one of my greatest fears ??!! Hate the job and need to get out anyway. Sod the lot of them...again!

longestlurkerever · 19/01/2015 23:35

Home from work at last and about to collapse (not being qllowed water in a 7.5 hour debate is taking the piss quite literally!) but pleased to hear baby Faith has been responding to treatment and of the good results news. Will catch up properly tomorrow. Night night!

bakingtins · 20/01/2015 01:48

We have hit the usual nhs problem that they are brilliant in a crisis (and they were) then once the heat is off you get tied up in all the bureaucracy. We are home waiting for outpatient appointments of which we have three in the next fortnight so far, still need cardiology, ophthalmology and MRI dates. What's the betting they all clash? It may not change her immediate treatment to know the underlying cause but it sure affects the prognosis, which at the moment is poor to 'catastrophic' for cognitive function. 1 or 2 cases per 10,000 children. Why us?

Marchgirl · 20/01/2015 06:51

Oh baking. So sorry to hear things are so difficult for you. Glad you are at least at home. I really hope the tests show you a better picture. She has been a lucky baby once and she can be again. Her name says it all. Wishing the best for you all x

Marchgirl · 20/01/2015 07:02

Big hugs bootles. No, not an entirely helpful comment from your colleague. Sounds like another case of well intentioned foot in mouth syndrome. If only this subject wasn't so taboo maybe people would be better at knowing what to say (and more importantly what not to say).

Don't beat yourself up about still being upset and tearful. It's not been very long yet so it's going to take time. Took me 9 weeks this time to emerge from 'the fog' and I'm only on my 3rd, so i can only imagine how difficult you must be finding it. You are strong and you will get through it. Flowers

Belleende · 20/01/2015 07:11

baking I am so so sorry. You must be frantic with worry. I think you are based bristol way but if you have cause to be in london shout if you need anything. You have always been so generous with you advice and help you deserve some back.

barkingtreefrog · 20/01/2015 07:11

bootles just Shock. People need to think before they speak!

baking it seems so cruel after all you've been through to have her. Fingers crossed for some answers and a clearer, more positive picture soon. She's clearly a strong baby, she might surprise you yet Thanks.

tannyLoo · 20/01/2015 07:48

Baking, I don't know what to say that won't sound like platitudes.

You must be going through such a hellish time right now, and I can totally understand you asking why you. It is ridiculous that you are being thrown more pain, worry and anxiety.

But you are strong, stoical, you have a strong faith and relationship and will love Faith absolutely and unconditionally, whatever her prognosis.

She will overcome all sorts of obstacles because of your love and support, and she will surprise you with her tenacity. I have true belief in this.

Your calmness and ability to stay focused are totally what is needed now to get through this next few weeks for a prognosis, but I know you will need time to wobble too. I hope you are able to have that time.

As I said before, I am not far away, and offer my services if they are of any use. Even if it is to make a meal, hoover the house, pick up the boys (I have a clear DBS!) please do let me know.

At times like this I wish I shared your faith as I would happily prey. As it is, I send you love and think healing thoughts on your behalf. xxx

twilightstruggle · 20/01/2015 07:52

Oh Baking that's such a hard prospect to be faced with. Do they have an estimate of when all the tests will be done and they'll know whether there is an underlying cause/what it is and be able to give you an idea of the prognosis? I can't believe you've been given the "bad luck" line for this as well. I'm not sure what the word is for that. How are your other kids faring up? Is DH any better today?

longestlurkerever · 20/01/2015 07:53

baking I just wanted to echo what the others said. You are being remarkably strong. Baby Faith is too. I really hope you get more positive news soon. [Flowers]

longestlurkerever · 20/01/2015 07:54

Flowers even

Flower29 · 20/01/2015 08:15

baking, hoping you get your appointments as soon as possible so you can get answers and hoping and wishing that they are as positive as can be. Thinking of you all Flowers x