Recurrent Miscarriage Support thread 13 - tests, treatment, trying again

[bakingtins]

Welcome everyone! A thread for anyone who has experienced recurrent miscarriages and is in need of information, companionship, tea and sympathy. Newbies welcome to join at any stage.

Start with the traditional recap please......

bootles I took pred from a BFP day 28/about 13 DPO, and had a panic rush around to get hold of it. For me it felt like a straightforward decision but my levels were higher (16%) and they were basically saying I had no chance without it. The risks that were discussed were increased (but still low) risk of cleft lip/palate for the baby, and low birthweight baby (though whether this is the pred or dodgy placenta despite treatment nobody is sure) They had a good look at lip/palate at 12 and 20 week scans and I had additional growth scans at 28 and 34 weeks. Had F stayed put until 40 weeks she was predicted to be a respectable 6.5lb, she was only tiny because she arrived early. Like tanny I put on a lot of weight, plus had insomnia, but nothing too terrible. On the plus side I had no MS whatsoever....
POA(nother)S tomorrow!

longest I took the progesterone until 12 weeks and was told to stop dead, but tapered down to one a day for a few days to use the rest up - it just felt a bit kinder on my body and less scary suddenly being med- free. The placenta is supposed to fully take over in week 10 so should not be needed after that.

Good luck this month cloud

How I could have not been stocked up on internet cheapies I don't know. So many other things going on right now too. Its the rare side effects to any potential baby that freaks me baking, the rest of it sounds horrible but I expect I could cope with it. I feel completely neurotic

My baby is doing beautifully, despite all my anxiety, if that helps. No cleft lip visible, all arms/legs/heads/organs where they should be, and following the 50th percentile at every scan.

With medicine in general being so amazingly cautious about medication in pregnancy, there is no way it'd be prescribed unless they thought it was safe for our babies.

Obviously, we are waiting with baited breath to see the outcome if your next poas!

Hello all,
Back with my head in a much better place. Reading back through the thread was like reading a book, I kept wanting to jump forward for answers and then back to get the details from others. Phew! Not leaving it so long next time.

bootles - fingers crossed for the evap line to become something more exciting. I hope people on here can help you feel more confident with meds etc, always a scary thing to feel you have to medicate for things.

flen and girlie sitting in the exact same boat as you (what an odd expression that is) have patiently waited my 6 weeks from negative pregnancy test and have RMC bloods taken tomorrow. I have an appointment with the consultant 3 weeks later so really hoping my results might be back but think it's more like 6 weeks. Can't decide how I feel about the enforced break, I think it was needed and the longer it is, the more rationally I realise it's doing me good. The idea of just finding out I am pregnant before Christmas and trying to hide it and all the anxiety which will go with it has decided me that we won't be trying at all until next year. I feel frustrated but like it's the most sensible thing.

Great news for those who recently had sucessful scans, who's next on the scan list?

Tanny I love hearing your ongoing positive news, it always makes me smile

longest Fab news, excellent!

bootles Go get yourself a digital test, no faffing around with evap line on those! And stop looking at your non-digitals after the recommended time, that was madness lies

just I also agree that you've done the right thing, letting your friend know in advance of your meeting. I have always found it incredibly helpful and was very thankful when people emailed me to let me know their happy news, so that I have time to digest and adjust before meeting them face to face. It seems such a little thing, but it isn't.

longest I also took progesterone until 12 weeks, although I would have liked to take it longer! It feels as if you are doing something, doesn't it?

Dtd again last night, and a nice steady temp rise indicates that I ov'ed on Monday... We shall see.

Hurray! The consultant has just emailed me - she's giving me heparin as a precaution. Hurray!

Digital says I am up the duff...in a state of panic for every reason imaginable..waiting for gp appt..ready to beg/cry in order to get my pred..

Hooray boozle for the more sensible consultant and getting the heparin
And massive Hooray bootles for the bfp. Wishing you a long and boring pregnancy ahead. And I Would definitely use tears with the gp if it helps get your pred!

Bootles use all the tears you can, and hooray hooray!

cloud I think I also ov'd on Monday. Not that we are trying. Just nice to know I have an ov pal...!

So bythesea, looks like it is me, you, march and girlie all entering the testing phase. I feel very glad to have company. I feel the same about not getting pg before Christmas, but hope it doesn't extend too far into the new year... Let me know how the tests go tomorrow.

bootles hooray! I know it's terrifying but step 1 is ticked off with that BFP. Step 2, go kick some doctor arse!!!

Good luck boozle and bootles.

I heard the HB today and they agreed to a elcs when the time comes.

Exciting news on the thread! Yeay bootles! Good luck with the dr. Well done boozle. Persistence pays off eh? Nice to see you back bythesea. Hugs to all of you waiting for tests, and to you cloud. Hoping this is your month too. And fab news tiny.

A mum at nursery asked if I am pregnant again, nodding at my tummy . I said yes but think it is just cake really! Told some more friends and my cousin today. Starting to feel more real. Would like my blood test results though.

Yay Bootle, good luck with your GP.
Great news, Tiny

Well I've had a tiny, tiny bit more brown spotting this morning which has now stopped, and which I rationally still think was the end of the irritation healing, however it was more than my nerves could take so I called the EPU and they're going to do an extra reassurance scan on Friday morning. So now I am getting scan doom for that, even though it was me that instigated it. I am officially crazy.

ah yes, well done, Boozle, too.

Hurray Bootle that's amazing, amazing news! Have you got an epu you head to? Xx

Just. Natural to be nervous about a scan but good idea to get some reassurance.

I am off out tonight to help choose a bridesmaid dress for me to wear in March. Bride wants yellow or orange. Am thinking this could be a challenge!

Bootle and Boozle and your confusing names! Big hurrahs all round.

Just we'll be here for hand holding on Friday. We understand the doom though...

Bythesea lovely to see you back, and thank you.

longest, I'm thinking a grecian style number might be good, fitted top and flowing from just below the bust so it'll fit a bump

If its any help just, quite a few women on the pg after MC thread are having brown cm with no cause found, and no MCs yet x

I'm feeling totally deflated. Just had a call from the hospital about the fetus that was in for testing. Apparently they weren't able to culture it so we won't be getting a result. I knew this sometimes happened but so disappointed as I was hoping it would give me some closure.
Also, now the nhs have this rule not to karyotype the parents unless the fetus shows a genetic issue then that leaves us untested for genetics, which I'm just not happy about. Has anyone come up against this new rule and managed to convince them to test still?

March, that is a blow, I'm sorry to hear it. Its a long shot , but has anyone in your family or DH's had MCs or fertility problems? We found out that a cousin had issues and were able to persuade the NHS to do our kayotyping on that basis. Good luck.

Thanks for the reassurance and hand holding, Longest and Tanny.

Congratulations bootle hope you managed to get your prescription.

march how disappointing. It seems v unfair that it rules out the karyotyping for you as well, though most genetic problems in the foetus are random.

just good luck for Friday!

longest a yellow maternity frock? She doesn't want much. Is this a bridezilla moment?

Thanks just. I was wondering about that. My mum had a MC before she had my sis and I. and now I've had a girl and then three MCs, so it crossed my mind that there is a genetic issue that favours girls in our family. Maybe I will raise it next week and see if they will test

Sorry to hear this march. I had the same result and was gutted. I wasn't specifically told that rule but wasn't offered karotyping either, even pprivately it wasn't recommended 'at this stage'. Tbh I was ok with that as not sure there would be much to offer in terms of treatment other than selective ivf and that felt like too big a step given I had had a successful pregnancy. Might have felt differently if I hadn't though.

Oh ladies, you all seem in positive places... And I don't want to rain on the parade but I feel so flat and confused.

I am a week past my ERPC (second in 3 months) and I am so in limbo. 2 MC's in a row means no testing, and am waiting for my body to recover now. I thought I'd be more positive, more focused on Xmas and the new year and work etc and instead I feel sad and angry. I guess it doesn't help when you get other people's 'we're expecting' news, especially via a text, due the same time as I would have been.
I thought a holiday would be good (albeit with a hideously grumpy toddler) but it's not helping. I am sorry to rant and I'm lucky to have one DS but I feel like shite. Is there anything I can do medically to find out now my chances of a 3rd MC? All the drs seemed to imply that I carried my DS (1st preg) to term so it's just been 'one of those things' but I can't help but worry there's something wrong with me x