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Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Recurrent Miscarriage Support - tests, treatment, trying again - thread 10

988 replies

bakingtins · 02/06/2014 08:07

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

OP posts:
tannyLoo · 09/07/2014 19:20

Thanks everyone, I feel a bit of a wally for panicking like that. I've been getting more symptoms since lunchtime, so feel ill again (thank fuck!)

Cat, really pleased your appointment went well, that's great news.

I know I say it a lot, but I really love how supportive you are. I only really talk to DH IRL so it means a lot x

Triplespin · 09/07/2014 19:30

Hi cat - glad to hear you had a positive consultant meeting. What is the treatment plan going to be?

Tanny - glad symptoms are back!!

I only have cramping and no other symptoms eg like sore boobs etc and am also going into a panic mode about it being a chemical and AF may arrive anytime.

tannyLoo · 09/07/2014 19:41

Triple I'm a fine one to talk, but try not to worry, it's still very early for symptoms. Are you taking progesterone? This seems to really exacerbate my symptoms when they're there.

Justonemoretime · 09/07/2014 19:42

Glad you're feeling ikky again, Tanny ;)
Glad the appt went well, Cat. :)

Catlover2014 · 09/07/2014 21:08

Thanks everyone!

I agree with tanny it's so great to have one another's support. We're all going to get there! Glad you're feeling calmer too tanny.

My plan is Letrozole day 2-6, crinone gel (type of progesterone) day 16-28, take pregnancy test day 28 and if BFP continue crinone until 12 weeks. I will also take mini aspirin and 5mg of folic acid from day 1.

Plus I'm going to get lots more vitamins this week to go with the load I already rattle around with. Consultant says there's no evidence for supplements but also says it won't harm so I'm going for it.

XxX

Triplespin · 09/07/2014 22:09

Cat - you plan sounds good - as I understand the letrozole improves your chances as you may ovulate two instead of one egg.

Tanny - thanks. I just hope my cb digi moves up to 2-3 weeks soon. I am going to restrain and not testing until early next week. With my first mc I had 1-2 on digi then 2-3 and it went down to 1-2 again. At that point everything I read pointed to these tests being unreliable but in my case they actually were correct about my impending mc.

tannyLoo · 09/07/2014 22:36

Me too Triple, for me they have been far too predictable, and almost exactly the same as you for a couple, or a slow slow rise that never gets going properly before fading away.

Today was the second time I tested after my first BFP, I've been trying to avoid them as they do make me more anxious.

Really hoping you get stronger BFPs (but not too many - that way madness lies!) x

barkingtreefrog · 09/07/2014 23:48

cat glad you had a positive appointment. Interesting about the aspirin and high dose folic acid - regardless of what my test results might be I want to ask if I can try aspirin and folic acid alongside the progesterone on our next IUI.

Catlover2014 · 10/07/2014 06:28

Can't harm to ask barking. When do you get your results back?

I'm so desperate, I'll try anything now. Yesterday the consultant said it's fate that I would mc these last two times but that life is like that and things will get better or make sense in the end. I got very emotional.

This journey is so hard though :(

X

barkingtreefrog · 10/07/2014 09:11

Oh I'm a long way from that yet cat, haven't had the letter yet for the appointment at the RMC! Not got as far as having the tests done never mind getting results back! I'm hoping our appointment will be mid august. They only do one a month.

Triplespin · 10/07/2014 09:23

Barking - hope the letter comes through quickly. The waiting period is the worst, once you have the ball rolling there are more fixed dates and objectives to work towards.

Tanny - yes I am on progesterone. Don't feel much on it though. I have crinone and it can be quite watery some days, making me think that maybe my body doesn't need much progesterone! Anyway I will just have to hope that nothing happens in these two weeks (6 wk scan then) and symptoms grow.

Catlover2014 · 10/07/2014 10:13

barking I'm sorry to hear that. It's maddening how long everything takes. X

Catlover2014 · 10/07/2014 18:38

Hey ladies, I'm emotional and needed to vent. Found out my job is at risk and I know if that goes we can't afford fertility treatment anymore. I wish I was 17 again and could just live for the weekends! X

Triplespin · 10/07/2014 21:35

Cat - sorry you have job worries. Do you know when you would find out more definitively? If it helps I am in a similar boat myself.

Just - I read your blog in aspirin. V well written. I am in prof b camp on this one. St Mary's also only prescribe baby aspirin if you have a known clotting condition and otherwise agree there could actually be risks with it. A prominent ivf clinic I US (SIRM - geoff sher) also prefer only heparin - at least in ivf context. Have a read here.
haveababy.com/causes-of-infertility/causes-of-infertility-immune-factors/autoimmune-implantation-dysfunction

Justonemoretime · 10/07/2014 21:49

Thanks Triple, I'll have a read. The more I think about it, the less aspirin 'just in case' makes sense.
Hope you're ok Cat?

Catlover2014 · 10/07/2014 21:57

I'm ok thanks triple and just. I'll know more next week and am going to try not to worry in the meantime.

I'll have a read of the aspirin article. It's in my treatment plan and I'm cautious as have no known cause. That said I feel I ought to trust my consultant as he probably knows best. After five years ttc he's the only one who got me a BFP!

Hope we all get sticky beans this time!! X

twilightstruggle · 10/07/2014 22:24

Bad mood. DH has been admitted to hospital today for appendicitis. Been in surgery for last hour or so. Bit stressful. Makes you reflect on what you've got...

...not to say I'm not still highly fecked off about what I haven't got!

cat - I'm sorry about the news about your job. Do you know how long its going to be until you know the outcome?

longestlurkerever · 10/07/2014 22:29

Sorry to hear that cat. Please try not to worry too much. There is nothing to say that if you did lose your job you wouldn't get another fairly quickly. It is a kick you could do without though, I know.

I have been feeling quite a bit better the last couple of days. Even went out with friends this evening and laughed a bit. A few things are still hard. Have agreed to babysit for pregnant friend's scan which should be my scan and another friend gave me back some baby stuff I lent her. It was hard enough getting it down from the loft for her in the first place, thinking it should be my baby using it, am a bit sad about putting it back up there.

On the upside I took a pregnancy test which is negative so physically I seem to be over the miscarriage. The last one took ages longer but was more missed too. Feeling quite sick though which I think might be the vitex I started taking when I joined this thread. Am starting to think that was a bit rash and I should have waited till I have my hormone tests at least. At the time that seemed months away.

Wishing you all well. Good night.

twilightstruggle · 10/07/2014 22:48

Hugs longest. Glad to hear you're feeling a bit better. The things you've found hard sound pretty difficult to cope with tbh, do for what it's worth I think you're doing admirably! I don't understand the vitex thing but hopefully someone more knowledgable will be fling soon. Night.

Catlover2014 · 11/07/2014 06:49

twilight I hope your DH is recovering ok? Did it all happen really quick? You must be worried about him!

longest you are so brave and a very good friend. There's no way I could do any of that at the moment! When did you say your mc happened? Are you ttc again now?

XxX

JBrd · 11/07/2014 08:49

Cat Oh, rubbish, this is the last thing you need now! The uncertainty is awful, but I hope that things will resolve quickly. I was made redundant from a job a few years ago, and although it seemed like the end of the world at the time, it gave me a necessary kick in the butt to become more proactive. Job changes are hard, but sometimes you'll end up with amazing new opportunities. The financial side is obviously worrying, do you know if you might get any compensation, if it all goes tits up? Could family/friends help out?

twilight Hope your DH is feeling better soon! What a rollercoaster, wishing him a speedy recovery and that it's not too stressful.

longest It's those things that can be the hardest... Sending hugs. Baby clothes are a tough one, avoid if at all possible! I recently got some down from the loft to give to a friend, and it was so bittersweet, sorting through and deciding which ones to give to her. And we still haven't gotten round to putting the rest back up into the loft!
I hope the friend you are babysitting for knows how hard this will be for you!
Is Vitex Agnus castus? I've heard that it can be very tough on you, please be careful.

Well, after 2 years of ttc and 4 mcs, it has finally happened - yesterday night, I dreamt for the first time that I was pg and in hospital about to give birth. I felt awful when I woke up, not because the dream had been bad (it wasn't, at all), but because that sense of loss really hit me when I realised that I had been dreaming. You can imagine how my mood was yesterday! I am still very prone to putting my head in the sand, and I'm dreading our appointment with the consultant on the 22nd.

barkingtreefrog · 11/07/2014 09:12

cat hope it all has a good outcome, even if that means you have to uproot from what you know and get a super new job, paying more for working less hours Wink. I'm quitting teaching for a while after 12 years in the classroom and in 4 weeks I start working in an office for the first time in my life!! I made the decision after going through the IUI in the afternoon and sitting marking writing assessments at midnight, I can't cope with all the ttc stuff with all the hospital appointments and give teaching my full attention as well, I needed a break.

twilight is your dh ok?

longest give yourself a break (as the counsellor told me this week) some things just are tough. I don't have a dc1 but my grandma knits the most gorgeous baby cardigans that I've been giving out to friends for years. She's in her 80's and is slowly down quickly. The last three cardigans she gave me to gift on I couldn't bring myself to let go of. What if she isn't around and I never give her a great grandchild to knit for? I couldn't bear it so I've stockpiled them for myself Blush. Felt really good about this when I got my bfp, now they're just sitting there taunting me Sad.

Jbrd dreams are sneaky, I hate that moment when you wake up and realise it's not actually real life Thanks.

How are you doing today tanny?

Triplespin · 11/07/2014 09:20

Twighlight - hope your dh is better now and on his way to recovery?

Longest - I ended up giving away most of the baby clothes. I thought whatever miracle comes our way will be too special and I can probably then buy new stuff. I was also hoping to tempt fate by giving the away - didn't quite work like that!

Jbrd - how awful - but maybe it's a sign of things to come!

Quick question. Can anyone tell me whether the Coventry team suggest two cyclogests a day or just one?

TinyTear · 11/07/2014 09:43

triple one in the morning and one in the evening...

Twilight hope your DH is ok now after surgery...

jbrd odd dreams, i had one of those at university (20 years ago) and really freaked me out

longest i still have all the baby clothes in boxes in my bedroom... I half want to get rid, but on the other hand want to remain positive for one more attempt

  • - -

one of the mums from my DD nursery - who lives in my street and we had a couple of playdates - had her 2nd a couple of days ago... happy for her, but can't help thinking it should have been me

tannyLoo · 11/07/2014 09:49

God, what life-changing stuff!

Cat I hope you find out what's happening soon. I had a massive crisis after my last MC and ended up leaving work. I'm cacking myself about my business failing, but it's still the biggest and best thing to come out of this sorry story.

Longest I really hope your DH is recovering well. What a worry!

JBrd my heart goes out to you, those dreams leave me so shaky for a while after. All our baby clothes are stuffed in a cupboard. I can't bear to even think about them.

Just good blog! In some ways maybe it was lucky I only consulted one eminent gynaecologist! I can be your test case in the "nothing wrong" category...

Triple I've been taking two close to 12 hours apart, but originally I was prescribed 200mg twice a day, and then it changed to 400mg twice a day. Might explain why I feel so ropey. And I do feel really a bit rough. Slight anxiety about my boobs not being as big or sore, but otherwise I feel very pg.

I have my phone appointment on Tuesday and scan on Friday. Not that I'm wishing the week away or anything.

And I'm exhibiting this weekend at the neighbour's open gardens event, so between sleeping and groaning, I'm busy arranging display cases!