Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

Just a quick de lurk - have been reading but not posting - hairy I tried to Pm you - but can't? Just to say it is still really early to see anything you know. HCG is good, you are definitely still in the game. Just want you to know I am rooting for you.

I will now go back into lurk mode xx

ps lovelybunch fab pregnancy news :) but :( about FIL news xx

Cheers Battery (I've changed my name hence probably why you couldn't pm?). That's heartening to hear.

Hi all, just checking in - I'm finding it hard coming on this thread because it's in the miscarriage section and I'm struggling with avoiding worrying and it feels like everytime I turn around I see another reminder that this is risky time for me. Have seen a heartbeat but as we all know it's no guarantee
Had a big howly-bag with DH last night as symptoms seemed to be easing, at least the nausea that had kicked in, seemed to have eased. Woke up today without it as well, but have a had a few waves again which is a little reassuring and am trying to accept that it will vary from day to day and that as I get better at finding things that help, it will invariably feel a bit better - mental I know.

Julez goodness your life doesn't get any less complicated, does it! I hope the finger is making a good recovery and good that the weight is regained now too. And I really hope you get a chance to just feet up and relax a bit.

MummyAbroad sorry this first cycle wasn't the one but as you say, a few reasons why the next cycle will be better. I hope things with DH are starting to pick up.

digitalgirl don't think I've properly congratulated you. Will see you on the freak out thread no doubt, but the lower back I think is form of cramping. I get it every so often, it always freaks me out because it's what I get before a period too but so far it hasn't prompted any bleeding or spotting for me.

lovelybunch my stomach got very bloated quite quickly, which makes me look more pg than I am. It's worse as the day goes on and I normally have to change into yoga pants or something when I get home. I'm putting it down to sluggish digestion system . Very sorry to hear about FIL.

justmee how are you find the injections? I seem to do ok most days but I've had one or two that really hurt and bruised. Think I'm going to have some explaining to do if a MW ever catches a glimpse of my belly.

HairyClairyFairy - I'm really sorry to hear your news. It's what we all dread happening and I'm just so sorry it's happened to you again. I hope your decision brings you some peace but do ask for help if you find you're struggling.

Lunatic so you're going to be induced this monday? Wow - good luck with it all. I really hope the favourable cervix means things go smoothly.

stillfrazzled that's v interesting about SCBU facts and I'm then that you did go early. Sounds like Finn knew what was best for him in the long run.

glittery glad the MW found the HB and also hurrah for fat clothes! Comfort is definitely the way forward.

hairylights - definitely do try to keep positive. When I got scanned at 5 weeks the sonographer said 'ok, so we're looking for a very tiny pregnancy, don't be concerned if we can't see much at all at this stage'. Which is exactly what they found. Something was in the right place but that was about it.

Hello confu3ed, coconutfeet, lovemysleep, banana, milkyway and luckyfor2

Well some of you may know from other threads but the 'life-changing' interview that my DH had was successful and he's been offered a job that will mean relocating to New Zealand. In May. We're still working out numbers and scenarios - not in the best place financially to be trying to sell or let our house, but this opportunity is really too good to pass up, and we think we can make it work. It does give me a whole nother chapter of things to think about but also feels very overwhelming on top of the pg stress.

I had another follow up with consultant last wednesday and we planned out next few weeks. He wants another scan at around 10 weeks and then to see me at 11. I think I'll probably just try to get the scan done directly before my appt with him, and if I start freaking out completely book a private one in between. He seems at pains to remind me everytime I see him that I'm not out of the woods, things can still go wrong. It makes me so - like we don't already know that! I just don't know how that is helpful? Obviously I don't want him to be falsely optimistic but saying nothing or waiting til I asked for for his opinion on likelihood (which I wouldn't!) would be better. Enough rant.

Spent much of last week feeling sick and horrid and wondering how on earth I'd cope with it for weeks on end (sorry Jules, it doesn't even compare with what you went through), spent last few days feeling less so and wishing I had it back. Can't win, huh?

banana87 i think we have paid about £850 so far - that includes the NK tests, some blood clotting tests and a thyroid test, aswell as our follow-up consultation. It also includes the £200+ private prescription costs for all the meds I think I may need.

Also, it was £288 on top of that for the intraplipid infusion.

Basically, we have set aside about £3000 of our savings to pay for this and we don't really want to spend more than that, if we can.

Hello, very sorry to see your news HairyClaireyFairy, it's just not fair. Hope you are/will be ok.

Just wondering - I've seen people on this thread talk about the "initial" bloodtests that are run for rmc, which is what I had last week - but what is there to ask for in addition to that? Is it only the NK cells that aren't tested for in the NHS blood tests, or are there more? I have a feeling if I don't go in armed with the right knowledge, I won't get anything .

Hi All,

ladyB congrats to your DH, and good luck for the big move. I know its extra stress, but it might be just the right sized kind of project you need to distract you? Shame your consultant cant seem to strike the right balance with his bedside manner

hairyclairey glad you will be sticking around with us for a bit longer. Hope you are feeling ok xxx

Iggi the "other" blood tests are for blood clotting type problems or genetic testing, I have not had them but plenty of ladies on here have, they can give you more details. Have you read Lesley Regan's book, "Miscarriage - what every woman wants to know" she pretty much includes all mc scenarios (which is quite scary reading, but v. imformative)

hairyfairylights wish I could think of something helpful to say! I so want it to work out for you! xxx

waves to lurky battery

Glittery sorry, never heard of shared care before, hope its as nice as it sounds. Glad the midwife was reassuring (and flexible!)

coconuts at baby coming out of your knee. (but very sorry about the FIL stress)

lunatic will be thinking of you on Monday... but then again you havent been on in a while and had some tightenings? Has it started already I wonder? Much love, we are all rooting for you!! xxxx

stillfrazzled I'm another one interested in your stats - but oh what a thought that it all could have ended differently! Doesnt bear thinking about.

sorry for only catching up with half the thread, I have been reading daily and now have forgotton everything else that happened to you all

I've not much to report except for my excessive therapy plan is working out great. I am doing couples counselling with DH and also seeing a different lady on my own. Both told me this week that they think I am suffering from post traumatic stress disorder because my mc was so long and drawn out and there were so many nasty procedures. I think they are right, I feel sick to my stomach having to get in those horribe stirrups and even in consultations well up or cry when telling my story. Anyway, talking is helping lots as is having all these feelings validated.

much love to everyone, hope you have a lovely weekend xxxx

mummyabroad -glad that the therapy is working out, and sure it will continue to help you get your head around what has happened to you. Take care x

Thanks lovemysleep. I called BUPA but they won't cover because I havent had the magic 3 consecutive . So I have emailed Dr. Shehata and asked if they know whether or not BUPA covers NK cell testing and if Dr. Shehata would be willing to JUST test me for NK cells as I have already had the other tests (and don't want to pay for something twice). If insurance wouldn't cover anyway and Dr. Shehata will just do a NK test then I will pay for it, especially as I will likely know the result before we TTC in the next few weeks.

Mummyabroad Pleased your counselling is going well :)

HairyFairy Oh dear, poor you :( I think the fact that your HCG has increased is a very very good sign. Are they re-doing HCG?

Not re doing hcg. I'm going out of my mind a but today :(

I'm sorry to hear that. And there is just nothing that stops the worry is there. But the time will pass! I decided after 2 to not have any "reassurance" scans for the next one. They were causing more worry than they alleviated.

Yeah I've just said the same to dp. No mire early scans. What is most worrying is that my nipples
were very sore yesterday but are not today. :(

hi hairy sorry to hear you sounding so worried. I can totally relate to feeling horrific about even going into the same hospital room where bad things happened before. I get exactly the same sick feeling, but then again I have just been told that is part of having post traumatic stress disorder. Just having someone put a label on it has helped. Is there anyway you can counterbalance all these stressful events with something more enjoyable, a massage, plan a trip, something like that? Sorry, I know I am suggesting you "do something else and take your mind off it" (might well be impossible) but you do really deserve to have some nice times, now more than ever you need some little treats to get you through this tough time. xxx

confu3ed can?t believe what an awful time you?ve had with the ERPC. It does sound like there?s something underlying all these symptoms. I?ve a friend of a friend who recently mc?d, went for medical management and is feeling lousy because she?s got an infection, too ? and has possibly had it for weeks. She?s now wondering whether it caused the mc. Hopefully you?ll be feeling better v soon ? and will never ever need to think about post-mc treatment again.

digital second everyone who says each pg is different. With DS1 I had no symptoms at all, pg2 felt I was about to come on, pg3 felt bloody awful, but worst of all the week I knew I?d almost certainly mc?d. Pg that became Finn I was periodically exhausted and feeling sick and sore, but every now and again I felt fine and panicked. Your mind can manufacture or remove symptoms at will, I think.

lovelybunch IUGR wouldn?t have been detected because everything was fine at 20-week scan and I wasn?t due to have any more ? so the blood flow problem wouldn?t have been noticed until it was too late. How are you feeling ATM? Really sorry about your FIL and the situation it puts you in.

lovemysleep Yay for Centerparcs, did you go to the spa? I love them. Glad you?ve started treatment, must make you feel a bit more confident?

hairyclaireyfairy Have so much respect for how you?re handling this, but glad you?ve also got some moral support if you do need to go to pieces a bit. Am thinking of you.

Glittery yay for hb and fat clothes! And totally second the ?means to an end? approach. I really didn?t want a c-section but frankly couldn?t give two hoots now that Finn here.

milkyway Know what you mean about looking after someone else helping. DH had an op at the height of my post-mc2 crash. I was run off my feet looking after him and DS1 and I think it was the best thing for me.

coconut FWIW, both my mcs barely interrupted my cycle. First one I actually got the BFP on CD28 which became mc2, second one the ERPC was CD1 and AF turned up round about CD28 IIRC. But they were both v early mcs, I imagine that makes a difference?

hairyfairylights I will be crossing everything for you. I?d fear the worst in your shoes too, but there are some positive signs so hoping it will mean a good scan next week. Take care of yourself, I know the wait?s going to be absolute agony.

LadyBee OMG, New Zealand! You are Superwoman to be taking all this on! And you?re right, your consultant?s a numpty. How many post-mc women does he see who blithely assume everything?s going to be just fine?

MummyAbroad Wouldn?t be a bit surprised if you had PTSD (walking past our EPU makes me feel sick even now) but glad the talking?s helping.

Hi to justmee, banana87, Iggi, lunatic, Julez, mumatron, batteryhen and anyone else I missed.

V quiet weekend ? we ventured into town today, think it was our first outing as a four that wasn?t to Tesco. Lunch in Starbucks (Finn slept through it) and a mosey round TopShop to look at things that don?t fit me ATM and can?t be worn while I bf. It was nice. Now attempting to make roast potatoes for first time in months. Was rubbish at them even when I was in practice, so hope DS1 and DH not expecting much...

Will do a catch up quickly while I have a spare minute but I may not get everyone in.

frazzled Roast potatoes sound good to me! I am okay thank you, keep having mini freak outs. Not many symptoms today but still had my head in the loo first thing so that's good I guess. Still crampy and I'm worried it's lasting longer than usual. But I keep telling myself that my uterus is a funny shape so possibly has to stretch more than the average. Although I don't remember having this with DD. We have no more news re FIL, just waiting to be called by MIL. It is amazing things happened for you the way they did, Finn must have known :)

hairylights It is noce to see so many of us venturing into the pregnancy and ante-natal threads :) Sorry you are still feeling low. It is understandable.

mummy Not surprised in the slightest at the PTSD diagnosis. I know when I went for my gynae appointment last month it was awful seeing all the rooms I remembered from my various visits and seeing doctors that told me my baby had died :( I do think counselling is a great idea and I wish I could be as brave as you and look into it.

I have to dash to cook dinner. Must eat Quick question though. I have follow up gynae appointment on 16th Feb. Do I still go? Do I call and say I'm pregnant do you still want to see me? Do I ask for a scan?

Coco it took me exactly twenty eight days after my ERPC to get my first period. (I'd had a negative test a week after).

I was told by the consultant at my follow up appointment that ideally for the recurrent testing you need to have no pregnancy hormones in your system, and they should be done 'between pregnancies'.

Thanks for your messages, and thanks MummyA I think you're definatley right. We went out for a walk earlier in the rain through the woods and it made me feel better, than I had a nice long sleep and DP is cooking dinner, and we'll watch Bruce Parry (swoon) later.

I'm going to just get my head down at work this week, and take a little bit of time off, probably book a massage or a facial.

Thanks for the replies re recovery time. Stillfrazzled - I think you're right and it probably does make a difference how far along you are. My two early mcs barely made a difference to my cycle. It does seem as though an ERPC takes longer than a nat MC to get things back to normal.

Ladybee - NZ sounds very exciting. I've got two sets of friends who have emigrated there and definitely don't regret their decision. Brilliant quality of life apparently. Do you have friends/family connections there already or is it going to be a complete leap into the dark?

This thread moves so fast I can't keep up so a wave to everyone else!

Lunatic so glad to hear you are doing OK, and have lots of vistors keeping you busy (but to the crappy internet link, that cant help!) So induction on tuesday or c-section on wednesday eh? one way or the other your little one is coming into the world!! Huge squeeze for both of you, hope it all happens in the easiest stress free fashion possible xxxxx

Thank you love my sleep, still bleeding :( been 11 days now on and off. Got hospital tomorrow for rm clinic, so will raise it then. Praying that there are no products left as I just canot go through another ERPC i Have to go back to work this week.

OMG Glittery 3 months of bleeding!! Mine seems to come and go, but just feel awful as its my birthday on Friday and it would be nice to go out enjoy it and not worry about bleeding or teh fact that sex is out of bounds!!!

Wow Milky your headaches sound awful. I still have mine although not as bad as it was a few days ago. Went to the quacks but worse than useless! FIrst he said that it is a reaction to the killer anti-biotics I am on and that I should stop taking them, when i pointed out that they were given to me to stop a potential infection, which if let to go untreated could result in infertility he said oh yes, I suppose you should carry on then. He then offered to change them for some strong penicillin, which if he had read my notes he would have known I am seriously allergic to and puts me in A & E! I left feeling really annoyed!!! It seems to be one thing afetr another.

HairyFairy, I feel for you, waiting is agonising, but they really cannot see much early on.

Hey Ladybee wow NZ that sounds AMAZING!! Beautiful country

Mummyabroad great that the counselling is helping.

Stillfrazzled - I have been thinking the same due to the night sweats during the PG. I just hope that the hospital can give me some answers tomorrow. I just want to move on cant with the constant bleeding.

Waves to everyone else!!

So cross, hospital just called and cancelled my appointment tomorrow :(

glad there is a plan in place!!

Wednesday.... Whoop Whoop! lunatic you must be excited and so so nervous all at the same time. Such a draining mixture of feelings! But will be lurking here all day Weds for updates!

for the lunatic asylum, it's fate!

Just passing quickly- want to say very excited for you lunatic - glad you went for the c-section! Didnt want to say anything earlier, but I was induced with my daughter and it was a terrible experience :( SO good luck and hope to hear of the good news tomorrow xx