Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

Evening everyone.

Just wanted to say to digi that I'm really pleased your appointment went well with Mr S and you're feeling more positive about the future, its a bummer about not O during this cycle. I didn't O for two months after my last mc (and I think my first mc) but at least you now have time to get all the vitamins and your body back in to shape before ttc.

I have also been horrible to my family. My DH has been great and really understanding even when I have attacked him out of anger and pain. I haven't seen most of my famly since my last mc and before that I didn't see them for months, firstly because I was in too much pain and then because I was hiding a pg, it was only when I got passed the 13 week mark last time that I started letting people back in, unfortunately everything went horribly wrong and put me back to square one. I have so many mixed feelings about seeing certain people, feelings of failure and embarassment, not knowing how I'm going to act and thinking that people are feeling sorry for me, its so hard and the anxiety is agony. I spent about 6 weeks in bed after my first and third mc grieving, the pain was so raw I wanted to be dead (not that I would have done anything). Nobody understands these feelings unless they have gone through the same thing and I think to everyone else these actions seem extreme.

Sorry if I've rambled on abit there I just wanted to get my experience across and say how MN has been so good for me over the last few months and thank you to everyone for being there.

Freelance not sure about most of the vit results sorry (did your GP not advise you?) but I do know that the ferritin is normal but like you say low. My level was at 4 before my third mc and I had to take three iron tablets a day. So it might be worth taking one iron tablet which certainly wouldn't do you any harm. Also it takes 2-3 months for iron levels to go up when taking iron tablets.

I have now got my prescription for the "promise" trial, starting tonight...really looking forward to that! Still not many symptoms here but I have started to feel more hungry and tired over the past couple of days. My concern is that I have always been constipated (sorry TMI) in my pregnancies and this time I'm not although I am very bloated though I have always showed v.early, I'm really petite and my tummy sticks out a mile, I really liked this when I had my two children but since my first mc it has made it much harder to hide! Also still getting brown discharge which is making me anxious. My scan was booked for Thursday which I have asked them to change as I would only be 5 weeks 2 days which I think would be way too early to see anything. So having to wait another week...ARGH!

I have also noticed other boards have referred to him as Mr S, I think that is a good idea.

Big hugs to all

Confused I totally understand what you mean about mixed feelings. For the first 3 months after my last miscarriage I didn't know if I wanted to try again. I stopped feeling broody completely actually. It was very confusing. Having had to spend an afternoon with a client and her baby a few weeks ago and then getting my test results back I am now feeling broody again and feel like I've clicked back into place, if that makes sense. Like a few of you I also had 3 miscarriages last year and I think so many disappointments in a row can make you feel a bit like switching off.

Digitalgirl glad you got somewhere with your appointment. It must be frustrating that you are not ovulating this month but, like you say, at least now you won't put yourself through 2 weeks of steroids for nothing as I know you have to give yourself a break from them if you don't get pregnant within a certain time frame so you can at least be biologically economical! Fingers crossed for you next month then! Maybe we will get to share a positive journey this time.

Lucky Have fun with those progesterone pessaries won't you! Fingers crossed they work their magic. I think it's a good move for you to reschedule your scan. If you go too early to see anything it will only make you more anxious. If you are only 5 weeks, perhaps the brown blood is just the residue from implantation bleeding. Also, don't forget that symptoms for each pregnancy is different so try not to worry that you don't have the same symptoms as when you had your DCs.

Freelance I wish I could help but I'm afraid I can't. I don't know where my results are from my previous tests so I can't compare them (and I'm away from home at the moment so little chance of me finding them).

I got a call back from Mr S's secretary who told me that it didn't make much difference if I wait another 2 weeks or not. I have been weeing on my OPKs and not got a positive yet so it's looking like I will make it home in time for the crucial moment, so, it looks like it's "all systems go" from here on in. Scary, to say the least.

Sorry for any I've missed. Not getting much time online just now. Thanks for sharing all your information and all your support. This thread is such a lifeline isn't it? When I get some proper time to be online I must remember to message Sotough and thank her for all the information she gave me just after my last miscarriage, but in case she is reading I want her to know how much I appreciate it. Since Christmas it seems like so many of us are embarking on the same tests and now treatment and as a result are able to share information between ourselves. There wasn't much of it available until quite recently. I so hope this is a good year for all of us!

Hi all, so great to hear that so many of you are taking great steps forward with testing etc.

I am getting a bit nervous - taking pregnancy test on Friday (if I can hold out that long - Friday would be a day or two early as it is). And I know everyone on this board knows that a positive pregnancy test does not necessarily equal unbridled joy and enthusiasm. I am almost dreading a positive test knowing that it will mean possible heartbreak all over again.

I have told just one friend who wondered how I could possibly think that I am pregnant before I have taken a test. I had to point out that as it could be the sixth time I've been pregnant, I am quite good at spotting the early signs now!

Hi Purequeen, I'll be doing some (very early) testing at the weekend too - no symptoms at all for me, so I think you're in a promising place!
I wonder has anyone experienced this. I've asked twice now (once my GP, once the obs at RMC) if I can get copies of the tests I've had done already to take to London. Each time I just get a letter that says "you are negative for blah blah and blah". What I wanted was the sheets with actual tests done/results - I used to get these sent to me when I was pg, so why can't I now? I checked with Dr S and his secretary said he would like to see the figures (I suppose what he sees as normal might differ).
So, any advice on what I need to say to get the right documents? (I am legally entitled to see them, aren't I?) I'll waste loads of money and time if I go to London with the wrong info!

Hi Purequeen, I'll be doing some (very early) testing at the weekend too - no symptoms at all for me, so I think you're in a promising place!
I wonder has anyone experienced this. I've asked twice now (once my GP, once the obs at RMC) if I can get copies of the tests I've had done already to take to London. Each time I just get a letter that says "you are negative for blah blah and blah". What I wanted was the sheets with actual tests done/results - I used to get these sent to me when I was pg, so why can't I now? I checked with Dr S and his secretary said he would like to see the figures (I suppose what he sees as normal might differ).
So, any advice on what I need to say to get the right documents? (I am legally entitled to see them, aren't I?) I'll waste loads of money and time if I go to London with the wrong info!

EasterIgg i'll check in with you at the weekend!

As for results, I too was getting really frustrated with the "they're fine" response. I asked my super duper teenage GP (not really, but he seems awfully young) for a proper print out and he was able to press a few buttons on his computer and now I have all the results and the actual numbers. Of course some results are literally "positive" or "negative".

With my lawyer hat on - under the Data Protection Act you are legally entitled to see all personal information held about you, but you shouldn't have to go so far as to making an official information request. Good luck.

Thanks Purequeen, that's just what I needed to know. If I'm fobbed off again I'll be ready!
I know they think I don't really need the results as there's nothing to be done.
What symptoms are you having, if you don't mind me asking?
Cheers
Iggi

Thanks Purequeen, that's just what I needed to know. If I'm fobbed off again I'll be ready!
I know they think I don't really need the results as there's nothing to be done.
What symptoms are you having, if you don't mind me asking?
Cheers
Iggi

iggy just ask for photocopies of the results as opposed to the results. Stress that you have an appointment with an rmc specialist and you need to take the results with you.
It took me ages to get my thrombophilia results from my hospital as they only existed as a hardcopy in my medical file. So trying to explain to someone that they needed to look through my actual file rather than my computer file took over a week. You just need to be persistent.

Good luck to ladies testing this weekend.

I am now really glad we're holding off ttc despite feeling as though I'm going to ov. I have just been to see the location for my next shoot and it is not somewhere I'd want to be in the early stages of pregnancy. I'm going spend two days directing a cast of 12 while riding rollercoasters and other theme park rides. All for the best.

Just to throw me off my stride I thought I'd do an opk as am feeling very bloated (which I usually get on or around ov day). I got a smiley face.

Despite the scan, my body is doing it's very best to ovulate right now - gallons of ewcm, open cervix and now an lh surge. Regardless, I shall look forward to getting AF in two weeks time.

That's really strange Digital, you'd never think it wasn't happening bar the scan. Do you temp?

Your shoot sounds terrifying exciting, btw!

I do temp. Will see if they rise, if they do I will assume I've ovulated. I am going to mention all of this to Mr S's midwife next week. Who, incidentally thinks I should wait for two post mc periods before ttc. Yeah, right - with a 60 day post-mc cycle and a 40 day regular cycle I'm not bloody waiting anymore.

That sounds like a challenging shoot Digital. Will you be going up with the camera or watching from a monitor at ground level? Probably not ideal being pregnant in that situation as they wouldn't let you on the ride!

I've been on a shoot with the most amazing performing dog this week. I couldn't believe some of the things she was doing. The owner showed us one of her tricks where the girl (owner) lay on her back with her knees pulled up and her feet in the air and the dog stood, balancing on it's hind legs on the soles of the girl's feet and stood in the upright beg position. I've never seen anything like it!

Hugs lucky I know exactly the feelings you describe. As a matter of fact, some of them are how I'm feeling right now.

DH's cousin just had her DD. She was due when my second would have been due. It brings it all into focus, what she gets to have and what I've lost. I feel incredibly drained, like all of the energy has been sapped from my body.

I was stressing over the last couple of days because AF was late and this is not normal for me. I've been spotting a bit over the last couple days and worrying that it was implantation bleeding (although it would have been nearly an immaculate conception this cycle, sparing gory details). I desperately didn't want to be pg. I couldn't bear the thought of getting pg whilst testing finally, and miscarrying and having to start all over again with the blood tests and results. I took a test and it is negative and the bleeding seems to be increasing, so I can't be pg.

I thought that I must be a pretty sick and twisted person to not want to be pg. I don't think that I could have coped. I was playing out all of the worst case scenarios in my head all afternoon at work, finding out I was pg, getting told off by St. Mary's for not being careful, the next appointments cancelled, and then losing the baby. I automatically assume worst case scenarios because I'm a basket case I think. DH wondered what was wrong with me when I saw him tonight and I had to spill the beans. He thinks I am ridiculous for thinking like that, but I can't help it.

Good luck on the testing Igg and pureequeen I hope that you start on your journey to a happy ending

kittens the rides that we can strap a monitor onto I'll go on, like the rollercoaster. And other rides where we can hear each other then I'll go on them. I'm hoping to avoid the wet ones though! Everything else I'll be reviewing on the ground. Performing dogs, eh? Are you on the bgt crew?

That sounds like a pretty hilarious day's shooting! I love rollercoasters. No, 8cm not on bgt but the dog and owner were in the '08 semi finals. I was working on a pet shop commercial. Not quite the pinnacle of my career but certainly entertaining!

Have just replied to your pm - have no shame, pet foods is about my level!

Sorry Laf x posted. You are not sick & twisted, you are perfectly sensible not wanting to get pregnant. And you're right to wait till you've had tests. In some ways I wish I'd waited to see Mr S after I got the all clear on my nhs tests, but I didn't and I miscarried again. So you are doing the right thing. You're being strong. And not many of us have that strength when it's up against the force of our desperation to get pregnant. Even now, with my bloody positive opk taunting me I'm constantly reminding myself that we mustn't accidentally forget to use condoms over the next few nights because I haven't been given a prescription for my medication yet. And I really really should wait to have one period...
Anyway, you have your period now so you're one more cycle closer to getting your results and that's a good thing. .

Laf there's nothing sick and twisted about you (unless you're a secret serial killer of course). We have a lot of complicated thoughts about our position, what we want and how scared we are of getting what we want.
I'm hopeful that this month's attempts have been successful, yet how stupid would that be given my appointment in London is in two weeks? But if I waited, I might think that that month was "the" month. There's no answer really is there. I think every day how lucky I am to have my DS, and I also regularly think that he is going to be taken away from me too as I'm obviously not fit to have a child.

And then other times I get drunk or watch TV or sit in the sun and just forget about it. It's a funny life.

PMSL, I meant to say I'm not on the bgt shoot, not 8cm !

erm, crew, not shoot. Oh dear.....

laf you aren't sick and twisted or a basket case. I feel just the same about it all.

thanks igg and digital it is such a confusing journey to be on when you have had RMC. Pregnancy isn't such a simple journey for us. Our fears and worries are of a different sort than those who haven't had these terrible experiences.

I'm relieved I'm not pg this time, but I realised last night that it doesn't mean that I can't cope with being pg in the future. I want to go through the full range of tests and come back with an answer as to why I had to go through this trauma. I may not get an answer, but I want to know that I did everything that I was supposed to. Then I can TTC again with a small measure of hope for the future.

It just makes it suck even more thinking that the relation is cuddling her new baby whilst my hopes for my baby died 7 months ago. I'm still stuck in the station, waiting for the pregnancy express to come and pick me up and take me away. (but I will not buy a ticket for the train until mid-June!)

thanks hairy x-post xx

laf I talked to my counselling psychologist last night about it all ... She confirmed I am not nuts! . She and my go both said the stuff we are all going through is enormously stressful and anxiety making and that the grief and self doubt is entirely natural.