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Recurrent Buns - MC Testing and Beyond... Part 4...!!!

966 replies

Julezboo · 01/02/2011 13:12

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

OP posts:
confu3ed · 15/04/2011 20:02

What a day, had my scan for rmc in the same ward as women who were delighted as tgey got to see their babies for the first time. Women smiling at me I actually wanted to scream! It just bought back the times where a scan brought bad news. I walked out and just broke down in floods of tears. Dp said I should just get over it and most days I can forget or at least pretend to, not today :(

hairylights · 15/04/2011 20:33

((((confu3ed)))

Lola78 · 15/04/2011 22:25

Awwww confu3ed, big hugs sent your way.

Havingkittens · 15/04/2011 23:14

Confu3ed, sorry to hear about your traumatic scan appointment. Seeing others' beaming faces grinning at their scan photos is not helpful at all. Like hearing people mentioning on the radio their excitement of their impending 12 week scans, and all you can think about are those awful moments when your world came crashing down... again.

Iggi, I just got back this evening and have opened my prescription envelope which arrived whilst I was away. It turns out that it's actually not a prescription but a form for my GP requesting him to prescribe the medication. Rather frustrating because by the time I am able to get to the surgery (which is luckily 3 mins walk from my front door) and get a prescription back I will have just missed my "window of opportunity". Still, it says that I should've been taking all the vitamins etc for 8 wks before pregnancy so maybe it's just as well to wait until next month. Anyway, the point I meant to make was, I think if your GP gets a letter from an NHS hospital consultant with a prescription request then they are probably obliged to carry out the request. If you saw Dr Shehata, or anyone else, privately then you would have to pay for the medication on a private prescription (I think) which would have nothing to do with your GP but would cost a bit more.

Havingkittens · 15/04/2011 23:22

Have just moved my details to "Undergoing Treatment"

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Dr Shehata on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.7 - 4MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. MC4 8 weeks. All natural, except MC4 managed with ERPC for karyotyping purposes. Hormone levels fine, but taking Metformin for mild PCOS. Clotting tests all normal. DH & my karyotyping normal. Awaiting results from ERPC karyotyping, plus test results for NK Cells, anti-nuclear anti-bodies and anti-thyroid antibodes. Will be under Dr Shehata's treatment program if high nk cells are found. Waiting to TTC.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

LAF77 · 16/04/2011 12:00

Scooter your GP cannot refer you directly to St. Mary's. As you are not in the London area, it has to come from a hospital consultant, so don't waste precious time trying to do this. I had my GP refer me at first and phoned St. Mary's and they said that they couldn't accept it. Insist that your GP or EPU refers you to a gynaecologist at East Surrey who will be able to refer you. It took me 2 months from seeing the consultant at ESH to seeing St. Mary's.

Hairy big hugs, I can totally relate to breaking down and feeling like everything has stopped for you. If feels like the world has moved on since you miscarried, but for you time stopped. That is exactly how I have felt in the 4 months since my third miscarriage. I'm not sure if I've been depressed or grieving, but either way, it has been a time without joy. There's not much I can say other than what you aren't alone in how you feel. There are so many painful memories each way I turn, but some how, I'm plodding along. Everyone thinks that I'm fine because I go to work and function, but I am a fragile shell of a person inside. I'm here to listen to you

Confused it is barbaric that they subject you and other women in our situations to be lumped in with the happy pregnancy area. Hopefully, the MN code of practice for MC will get the attention that it deserves and the experience will change for the better in the future. There is no reason why gynaecology areas of the hospital can't be a bit more sensitively placed so we don't have to watch the happy couples and amplify our pain.

Right, my update on my appointment yesterday, I was really surprised! I'm not sure if I was in the private patient area in the Mint Wing (even though on the NHS) because the waiting area was very bright and comfortable. I wasn't kept waiting either. I arrived early just to be safe and I was seen quite promptly. There was only one other couple waiting in the area at the same time as we did. I went through my miscarriage history with the consultant nurse and she explained what would happen next. I gave 4 vials of blood and have to return in 6 weeks time to give more blood and get an internal scan. I have my final appointment with the consultant on the 21st June when I will learn of the blood results. I have been advised not to TTC again until the consultation in June. Looking at the calendar, I should be able to TTC again that week as I would be mid-cycle, so as long as I stay as I have been with my periods, I have an end date in sight. She explained that they will test for a whole host of antiphospholipid disorders and clotting disorders. If they don't find anything with me, I could go onto the PROMISE trial with progesterone supplements and the impact on miscarriage.

She was very sympathetic when I explained how I had been treated by my EPU and said that it wasn't good (I even forgot to mention some parts of the travails with the EPU like the trainees in the room with me and the whispering) and said that for future pregnancies, I will be given scans every 2 weeks at St. Mary's. It won't be easy for me to get into central London, but I would do anything to avoid ESH EPU. She also said that even if the tests come back without any results, they would test me for TEG (thrombo elastogram) because sometimes that doesn't show up until you are pregnant.

DH didn't really need to come other than to give blood to be part of future research into MC.

So I was correct in my original thought after my MC in December that I wouldn't be able to TTC again until June. It is a long road, but at least I'm on it. I can't even begin to think of how I could cope with being pg again. I try to imagine my life with a baby and I just can't picture how it is possible.

iggi999 · 16/04/2011 20:59

I'm glad you made a positive start on testing, I hope you get the results you need to have a better pg result Laf. June seems a long time (on top of the rest) but it will fly by.
I'm a bit confused tonight as I have been starting to get hopeful about seeing Shehata and my antinuclear antibodies being the root of my problems - when today I finally got the result of my ERPC for number 3, and it had an abnormality (trisomy 8) so probably all just old/bad eggs after all and nothing anyone can do. Bugger.

iggi999 · 16/04/2011 20:59

I'm glad you made a positive start on testing, I hope you get the results you need to have a better pg result Laf. June seems a long time (on top of the rest) but it will fly by.
I'm a bit confused tonight as I have been starting to get hopeful about seeing Shehata and my antinuclear antibodies being the root of my problems - when today I finally got the result of my ERPC for number 3, and it had an abnormality (trisomy 8) so probably all just old/bad eggs after all and nothing anyone can do. Bugger.

hairylights · 16/04/2011 22:13

laf thank you. I feel like you really understand how I feel. You are right . I have no joy at all in life Nd I feel like a shell.

Sounds like your consultation went well. Which clinic did you go to? (sorry, have missed it earlier)

iggi so sorry to hear that .

iggi999 · 16/04/2011 22:24

Thanks Hairy. You asked me before about folic acid - I don't really remember what it does! Something to do with aiding cell division, I think. As obs happy to prescribe it I assume it is reckoned not to do any jarm.

scooterchaser · 16/04/2011 22:39

confu3ed thats awful for you, would be nice to find a little sensitivity in hospital sometimes, at the very least they could have offered you the first appointment of the day so you can just get the hell out of there before having to deal with that sort of thing. I arrived for my scan last Friday to coincide with a maternity wing tour, and had to walk through a swarm of beaming nearly due bumps at the hospital entrance. I could hardly believe my eyes and just looked at the sky thinking "Really God?" It just seemed cruel. What I envy the smilers is not their situation (after all its my baby I want, not theirs) but the blissful ignorance that makes them just assume everyone must be there there under happy circumstances. Oh for the days when I had no idea about all this!! Hope you've had a better day today and Dp being supportive.

Just re-read a few messages and have noticed so many people seeing Dr Shehata. I spotted someone referred to his approach as 'belt and braces' and this is exactly what I am after, want to leave no stone unturned. I am also intrigued by comments that NK cells are a likely cause for people who have had DC followed by rmc and for those who have overactive immune systems...I am never (touching wood) ill from 'things going round' etc and being a primary school teacher, thats odd. My only bouts of illness in years have been post mc - lost voice (after mc1) and cold (after mc2). Also my pregnancies have begun to fail at precisely the same stage (7 weeks) every time and I have seen hbs and good growth for two of them just before. Feels like my body just attacks them although it makes me sick to the stomach to face that :( Just wondering if people who have seen Shehata and have more info on his theory can tell me if I look like I might fall into that category??? My hospital consultant could probably refer me there but I would be knocking any chance of St Mary's on the head. My GP told me I have to make an outright decision and stick with it, its so hard to know what to do.
freelance is your GP really trying to go for both and see which is accepted?

Sorry for the indulgent message. Dh went to bed at 8.30, he's sick of me thinking about this so obsessively and is exasperated by my being so down... its only been a week :(

scooterchaser · 16/04/2011 22:47

Sorry I missed a few messages while writing all that!

Iggi sorry about that news, that's hard when you had thought you were close to finding a reason. Can I ask how long it took them for those results, my mc3 was sent off for chromosome testing last week, they said it could be months.

Hairy ditto 'shell', feel utterly and absolutely joyless too. Not even that keen on creme eggs anymore.... Pinning hopes on wanting to get out of bed tomorrow, that will be progress.

iggi999 · 16/04/2011 23:08

Hi Scooter. Only a week indeed, totally to be expected that this is all you're thinking about! I'd suggest you get all the preliminary blood tests done locally, then try to go privately if you feel dissatisfied with the answers or want other tests eg killer cells done. My ERPC was done on new year's eve, and the results have just come in - though the letter said something about a report at end of feb, so I think it actually took two months.

iggi999 · 16/04/2011 23:08

Hi Scooter. Only a week indeed, totally to be expected that this is all you're thinking about! I'd suggest you get all the preliminary blood tests done locally, then try to go privately if you feel dissatisfied with the answers or want other tests eg killer cells done. My ERPC was done on new year's eve, and the results have just come in - though the letter said something about a report at end of feb, so I think it actually took two months.

Havingkittens · 16/04/2011 23:45

Iggi it's true that chromosomal trisomy problems are more likely to crop up the older you get but it doesn't mean that history will repeat itself. I have been incredibly unlucky having chromosome problems come up twice in a row but it is very rare unless there is a genetic reason. If you are having recurrent miscarriage testing they would test for chromosome issues with both yourself and your partner which would hopefully rule out any concern. Also meant to answer your earlier question about Vit D. Dr Shehata was very insistent that it should be Vit D3 and no less than 25 microgrammes. There is a difference, something to do with how it is derived. Vit D2 is derived from plants and D3 from animals and is the form synthesized through UV light.

Scooter like you, I very rarely get ill, even when DP has a cold or throat infection I seem to manage to avoid catching it. So it seemed to add up when I got my NK Cell test results back reading almost double what they should. I think the only times I've had a cold in the last few years was whilst pregnant so my immune system was compromised. Also, interestingly, my mum was wondering if the raised NK Cells thing was hereditary as she doesn't get ill often either. She does have cancer now but after they gave her a 3 month break from her chemo the scan showed that it was stable and hadn't grown at all so she was wondering if she had a high level of Killer Cells keeping it contained (they are supposed to attack tumours after all).

LAF good to hear you had a positive experience. It can make a lot of difference just feeling like you are being taken notice of and taking steps towards getting some answers.

Luckyfor2 I know it's hard but try not to fret about lack of symptoms. It's early days yet!

hairylights · 17/04/2011 08:42

kittens I'm interested in your thoughts on chromosome issues as ive had different things said by docs. Consultant says unlikely that three in a row would be age related chromosome issues ... Gp says could be. Confused . could I have been terribly unlucky and had three mmcs due to age related increase in eggs with chromosome issues?

iggi999 · 17/04/2011 10:00

Hairy I suppose anything that's possible, is possible 3 times - but so unlikely (and unfair).
Havingkittens thank you for that, our karoptyping came back fine so that's something at least. My local RMC seemed to be suggesting it was time for me to give up Sad. Thanks for the vitamin D info. I've peeled the label off my Boots vit D, and it lists D3, no mention of D2. Odd though becasue they say they're veggie and you say D3 is animal derived?

Also (end of rant I promise) two weeks after my RMC appt and no letter giving me record of tests I've had, as promised. Need it for early May to give to Dr Shehata.
Sorry for such a self-absorbed post. And sorry if it posts twice, my phone is uncontrollable.

iggi999 · 17/04/2011 10:00

Hairy I suppose anything that's possible, is possible 3 times - but so unlikely (and unfair).
Havingkittens thank you for that, our karoptyping came back fine so that's something at least. My local RMC seemed to be suggesting it was time for me to give up Sad. Thanks for the vitamin D info. I've peeled the label off my Boots vit D, and it lists D3, no mention of D2. Odd though becasue they say they're veggie and you say D3 is animal derived?

Also (end of rant I promise) two weeks after my RMC appt and no letter giving me record of tests I've had, as promised. Need it for early May to give to Dr Shehata.
Sorry for such a self-absorbed post. And sorry if it posts twice, my phone is uncontrollable.

LAF77 · 17/04/2011 10:40

Iggi I'm glad you are going to Dr. Shehata because if your local clinic is telling you to give up, then shame on them! For most of us, it seems like we have to fight to get treatment and maybe answers as to why this happens.

hairy it is like we have been hit by an emotional tsunami. Like me, you have had 3 miscarriages in one year. I think that I haven't been able to grieve for each one completely because I would get pregnant and then miscarry again. I was relatively numb immediately after the third one, but the waves of pain started coming. Everyone else has moved on, but I couldn't just feel like I had moved on, even though friends and family thought I had. Not an hour goes by every day where I don't think about my babies. Maybe one day, it won't be like that, but I want and need to remember them in my life. My second baby would have been due around this time. We only had a few weeks together, but I loved her.

I've put on at least half a stone since the last mc and I've taken less care and interest in myself. I've barely done any exercise either. I just haven't been able to love myself on any level because of feeling like a failure to carry a successful pregnancy. It's just how I feel. However, I now feel a glimmer of hope, maybe there is a chance to feel optimistic now after my appointment.

I know that in spite of all of the pain and adversity, I am a fighter. I won't give up in my quest to have a baby.

scooterchaser · 17/04/2011 10:42

Iggi I am guessing you have already chased the letter from RMC. Just thought seeing as its not so much a letter you need but the list, are you near enough to walk in and ask a receptionist to either print one out if its standard tests you've had (I asked for this at my local EPU and seemed simple enough) or for them to photocopy that info from your file? Imagine your letter could be being stalled by a relevant consultant having to sign/being on holiday/whatever. Sorry if you have already explored these options with no success. The waiting is the worst part isn't it, it's not like it is good news we are getting on our doorstep but every piece of info moves things along a tiny bit....
Good luck, hope postie brings it soon.

scooterchaser · 17/04/2011 11:12

LAF I crossed posts with you sorry.

You ARE a fighter and will get there. And though it feels like it, we are not failures, these things are not under our control. I keep consoling myself about a time in the future when I will look back and understand why I had to go through all this, a moment when I will be looking into the eyes of a baby that I would not know without this heartbreak first. The GWB on this site have got to that stage, they give us all hope. You have started that road now, it may not be as long as you think :)

My mcs have been pretty much back to back like yours and hairy's, my body is wrecked and I have been allowed about a day to recover each time because DH is away with work again or because people try and tell you 'life goes on'. My relationship is falling apart because I just cannot hear 'are you in a bad mood again?' without wanting to throw something. No-one upon no-one around me has ANY idea. I can't bear to spend time with my family because nothing like this has ever happened to them and I know they are thinking its because I'm the 'stressy' one.... somehow if I just relaxed a bit..... [silent scream!] For people who cannot appreciate how HARD I have battled to keep these babies, how many vitamins, the balanced diets, relaxation techniques, how many barely heavy things I have avoided lifting just in case, how gingerly I crept about each time... I am not interested in anything they have to say to me by way of comfort, they will never know. They sailed through their pregnancies on a glorious zip-wire of ignorance, good for them.

Understand the part about not caring about yourself anymore. I can barely eat, I stay up late so I don't have to cry myself to sleep, I am slowly caffeinating myself into oblivion as a two fingers to the times when pg and ttc when I had to lug those wretched decaff versions round in my handbag. I just think - so what, what does it matter anymore? Then I remember none of this is helping me get into a physically good place and feel terribly guilty.

Is anyone having counselling? I think I risk bombarding this site in a blog like manner unless I start going down that road.

Love and hugs to all, Sunday family days in good weather are a tough call.

iggi999 · 17/04/2011 13:55

Hi Scooter. I've had counselling. Feel free to pm me if you want to talk about that or just to offload.
Laf tsunami just about sums it up. After my 2nd mc (I too had 3 last year, we're in some kind of special club) I used to describe how I felt by saying I feel like I've just been hit by a truck.
And I know I'm one of the lucky ones as I already have a ds, I never forget that and I feel guilty for how unhappy I feel when I have him. But oh everyone we see out and about has 2 children, without exception. I wanted to punch a woman I saw yesterday with a toddle in one hand, a large pg bump, and a fag in the other. Why has it worked for her, rather than me - bet she isn't on buckets of vitamins, no caffeine, booze etc. (Am aware this isn't my most admirable thought)

iggi999 · 17/04/2011 13:55

Hi Scooter. I've had counselling. Feel free to pm me if you want to talk about that or just to offload.
Laf tsunami just about sums it up. After my 2nd mc (I too had 3 last year, we're in some kind of special club) I used to describe how I felt by saying I feel like I've just been hit by a truck.
And I know I'm one of the lucky ones as I already have a ds, I never forget that and I feel guilty for how unhappy I feel when I have him. But oh everyone we see out and about has 2 children, without exception. I wanted to punch a woman I saw yesterday with a toddle in one hand, a large pg bump, and a fag in the other. Why has it worked for her, rather than me - bet she isn't on buckets of vitamins, no caffeine, booze etc. (Am aware this isn't my most admirable thought)

hairylights · 17/04/2011 16:11

scooter bloody hard isn't it :( I am so sorry you have so little support and I hope you know you can talk to us. I think you and I feel the same but I am lucky with dp and also my sister who understands as she has had a battle with infertility. I'm here if you want to talk/rant etc x

hairylights · 17/04/2011 16:15

sorry, above post for laf also . I feel like that too ... It's always on my mind and I really haven't had time to grieve. For me it's also about the great chasm in front of me ... The unknown and the "what if". Also the need to make choices and what feels like very limited time at my age.