Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

sorry justmee stupid though re. posting, can you use the 4.00 twice? I really hope you can get someone to help you.

coconuts you have my total sympathy, I have suffered from that before, its really not nice, as much as you probably want "symptoms" I am sure you dont want to feel that rough

justme this might sound weird but I have had to do it before, why not sit down with your telephone book and phone everyone you know in Turkey and ask if they happen to know someone who has contacts in the depo/hospital and can help? Are turkish people generally helpful and friendly, its very "who-you-know" over here but also people like to help out someone in need. I am sure if you explained the circumstances you will get lots of sympathy. Can you call the depo direct by the way? and ask them how you get an emergency order?

iggi thanks for the info! I messaged you!

lucky I sympathise with you about the age comments aswell :(

coconuts Hope you feel better with the meds :(

justmee I feel so sorry for you - you must be going out of your mind - wish I could help...I found this website that I think do international prescriptions - you could call the number and ask if they cover Turkey too? I know you need it desperately though :(

Hi to everyone

Morning all,

My appointment is at 11.20 so hopefully the meds work and she doesn't admit me to hospital. I am feeling worse and worse everyday. Feel weak and shaky, constantly hungry and thirsty although the nausea makes me not fancy any food or drink. It's grim.

justme Really hope you can get the 4.0 today. The Turkish healthcare system is shocking and you have my sympathies.

lucky mummy milky thanks for your sympathies, hugs are much needed right now :(

hello again, I've been a way for a couple of weeks. There has been so much going on here.

Hope that just mee and coconuts are feeling better today.

I had an appointment with the consultant at the local hospital today. I was kept waiting for an hour, but she has agreed to refer me to St Mary's without any delay. One small victory for me. So many hurdles to go. I would expect to be seen at STM is by the end of March, I think. So my time frame of being able to TTC again in June is probably right.

She told me that there was nothing to be found in the karyotyping of the tissues I brought in. They were more me, than our baby. I didn't really expect anything to come of it. I feel badly that I am more likely to be the cause of our babies dying then anything wrong with them.

She explained to me things I already knew, that 10 women in 100 will have a miscarriage and 1 in 100 will be recurrent miscarriers. Lucky me. She said that half of these women will never have a diagnosis for the cause either.

It was really hard going to the hospital today. I thought that the clinic was in the same ward as the EPU and I had to physically brace myself walking into the EPU. I don't know if I can ever go back there again. Fortunately it wasn't there and I had to wait somewhere else.

I had a blood sample and had bloods taken at the same time as a young pregnant mother with her toddler and she was chatting away with the nurse that she was going to have a boy and it was nice to have one of each. Meanwhile, the nurse said to me that it was unusual do these sorts of tests for chromosomes, that it was more common to test for Downs. 1 in 100, me.

I've been reading about Zen philosophy on my holiday and the process of emptying your mind and I found it quite helpful to try and stop obsessing about the miscarriages. I'm not a total success with it. I need to have a plan as to how things might go so I can mentally prepare myself for it which is not Zen. I'm content with knowing that the summer is the likely time for TTC again. I set small mental goals so to protect myself from total meltdown like I might have had when giving blood. I am going to focus on shifting a few pounds before I start TTC as I put on all of the weight I lost earlier.

Hope all is well with everyone else.

LAF horray!! I am so so pleased you got your referral, and that you didnt have to go totally beserk to get it! I can totally understand that its already bringing up lots of emotions about how you feel about finding/not finding something, I know that is very hard, but you are now pointing in the right direction and on the road to getting real answers and real treatment plan in place. Sorry you had to go through those first steps next a chirpy pregnant lady that really wont help at all! I hope the next step gives you lots more encouragement. Take care xxx

Hi everyone

Justme how did you get on?

Coconuts hope everything went okay at your appointment.

LAF77 hope you had a nice relaxing holiday with lots of pampering. Really glad you got the referral to St Marys, I know the wait is painful but at least now you have something to focus on. I do the same with the mental goals otherwise you can go crazy. The statistics are crap! Like as if that's supposed to make us 1 in 100s feel better. I don't know much about Zen philosophy but maybe its worth reading up on...anything to get us through the torment!

In case anyone is interested re. NK Cells.
I had a conversation with Prof. Quenby's research assistant today. She has no funding to do NK cell testing at the moment but they're hoping funding will come through very soon (within next few months). She has agreed to see us (with referral from GP) and advise (and if she feels necessary prescribe) on our circumstances but until the funding comes through she wouldn't be able to do a biopsy to check for the nk cells. She will not see anyone privately as she believes that every women should be entitled to the same care. Quenby did a trial of 700 women who had had recurrent miscarriages without cause. Half were given prednisolone (steroid to decrease nk cells) and half a placebo (fake pill). The results to this trial are being collated and will be released soon. I'm sure most of you have already looked into this but I've attached some links that are quiet interesting though abit old.

news.bbc.co.uk/1/hi/health/4103884.stm
news.bbc.co.uk/1/hi/health/4104178.stm
www.dailymail.co.uk/health/article-1053964/How-1-month-drug-end-misery-miscarriages.html
www.timesonline.co.uk/tol/news/science/article4720133.ece

laf nice to see you back. Very happy to hear you got your referal. Hope it comes through quickly. Completely understand the setting of goals for yourself. I did the same, it defo helps.

lucky I almost took part in that trial, lots of discussions but at the time dr quemby was moving clinics I think and everything was a bit mad for them. Will be very interested to see the final result.

sorry cant do personals, was hoping to have a bit of peace ane quiet but Eliza has other ideas! Will try again tomorrow.

Coconuts - I hope you're feeling better now. When I was on the ward for the ERPC there was a woman with hyperemesis and it was so dreadful for her. You have my sympathies.

Justme - Did you have better luck today?

I've been on the phone to the hospital to find out when my appt for the miscarriage clinic was going to be as I wanted to ask them a few questions. I was really upset to discover that, despite it being written on my discharge form and the fact that my SRPC was 2 weeks ago, no-one had done the referral and I seem to have slipped through the system. Someone was supposed to call me back and no-one has. I don't feel very good about it at all. I've decided to go to my GP, explain all this and ask for a referral to St Mary's. Do you think she will be able to do this (I live in London, so it's reasonably local)? My GP appt isn't till 5th March, so I feel like so much time has been lost already. I'm 43 so don't feel like I can hang around.

Sorry for not sending more personals but this thread moves so fast, I can't keep up. Hope everyone's OK though!

AF arrived :)

I am now "officially" TTC :) Only I can't help but be convinced the next one will mc too. Psychic or paranoid?

Sorry for me me me, a bit drunk (oops) so will catch up tomorrow.

Hairy - I am so sorry.

Wow been away for a few days and loads to catch up on!

Hello to everyone, will catch up properly tomorrow.

Had my appointment today at rm clinic, only it wasn't, just another referral! Been told that the clinic will see me despite the fact that I have only had 2 rmc as I have had 3 in total and am now 35. The doctor spoke little English and didnt explain anything other than to say that they will do tests, one of which we have to travel to a specialist hospital to get. No idea what they are at all. He also told us not to take Clomid until we have tried without it for 3 months. Stupid I reckon as I ovulate on Clomid and my results without it were poor. I am so bloody confused!!! I guess we should take a break from TTC until we get the tests and the results, but now worried that if we do try again it will not happen as I am not on Clomid! ahhhhhhhhhhh frustrated.com!!!

sorry as all about me, just cross and not enough time to catch up properly now!

thought I would dig out the list so people can update if they want. Hairy I didnt know if you wanted to move back to "Testing" or not, so I'll let you add yourself in. Hope you are OK xxx

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 2
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

PREGNANT

GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Ladies, I am so sorry for all I've missed. Work has gone completely bonkers and I've barely touched the ground the past few days. I know I've missed some very important appts, so I just wanted to send a big hug to those of you who need one right now and I'll try to be here a bit more when things calm down a smidge. Love to you all.

Luckyfor2 thanks for that NK cells info, very useful. I'm very confused trying to work out if I've had first period since ERPC or not (one gush of blood only, sorry tmi) and my charting made it look like I ovulated last Thurs but the OPK didn't come up positive till yesterday (mon). And went away without DH for a few days to see family on Sunday so I have blown this month's chances..
Does anyone else feel it can be a relief when you are not pg, as the thought of another loss is just so terrible? I never felt this way before, was always a bit more hopeful than not.
Sorry, late night waffling.

Luckyfor2 thanks for that NK cells info, very useful. I'm very confused trying to work out if I've had first period since ERPC or not (one gush of blood only, sorry tmi) and my charting made it look like I ovulated last Thurs but the OPK didn't come up positive till yesterday (mon). And went away without DH for a few days to see family on Sunday so I have blown this month's chances..
Does anyone else feel it can be a relief when you are not pg, as the thought of another loss is just so terrible? I never felt this way before, was always a bit more hopeful than not.
Sorry, late night waffling.

iggi I had one gush one day and then nothing and then one gush the day after and it wasn't until two days after that it finally came now its really heavy so maybe its on its way? I'm so scared about ttc incase I have another mc. I've also been hopeful up to now and trusted the doctors "Bad Luck" theory but feel theres nothing else I can do now, which is why I'm looking into the NK cells, its just testing takes so long so not sure whether to risk ttc this month - so scared.

Sorry you're feeling that too. We set ourselves a limited amount of time to keep trying so don't feel can wait for test results - you're a lot younger than me so perhaps you could give yourself a break for a bit, if that's what you want.

Sorry you're feeling that too. We set ourselves a limited amount of time to keep trying so don't feel can wait for test results - you're a lot younger than me so perhaps you could give yourself a break for a bit, if that's what you want.

Just popped in to see if any update from Lunatic. She posted on her chat thread yesterday that she was feeling very low and feeding for Lewis wasn't going well. If you're reading here Lunatic, hope this morning things look brighter xx

http://www.mumsnet.com/Talk/_chat/1146141-LunaticFringes-Big-Day Lunatics chat thread

ringes-Big-Day Lunatics chat thread

Lunatics chat thread

poor lunatic. hope things improve for them all soon, she deserves a bit of good luck.

mummy sorry if you have already said but did you get a reply from the doctor yet?

jollster did you get the book?

hi mumatron no I didnt get a reply yet. I wrote to him again yesterday but still nothing. I think he might be on holiday or something because in the past he has been lightening quick to respond. I am feeling less of a sense of urgency this time to know what he says because we are TTC anyway, so its not like I am waiting for his opinion before making a decision. I am 5DP at the moment, so as long as I get some info in time for next month (if needed!) that will be OK. Hope you and the family are doing OK? xxx

mumatron - so remiss of me, sorry I thought I'd said. Yes it arrived the very next day; have started, but am also working through a `speech therapy book for DS, and feeling guilty that I should be prioritising the child I do have rather than the ones I may never hold IYSWIM. But many thanks again - you're v v v kind x