Recurrent Buns - MC Testing and Beyond... Part 4...!!!

[Julezboo]

Gosh we can chat ladies!!!

Part one HERE

Part two HERE

Part three HERE

List

STARTING TESTING

LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic for sure. No children, no RMC appt, no diagnosis and not TTC.
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 27 - DD age 3. 1st MC Oct
2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear - although high prolactin level found. Waiting for appointment at RMC with consultant, and wanting to be referred to St Mary's.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. Bloods taken from me and DH at hospital at last MC and awaiting results on baby from PM.
IGGI2011 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. Having bloods taken by obs soon.

UNDERGOING TREATMENT

CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, currently waiting one more cycle before TTC. Going to try aspirin and progesterone as per consultant. Clotting bloods normal.

TTC

MUMMYABROAD Age 35, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 Cycle 1
DIGITALGIRL Age 32 - DS 2.4 - 3MCs since ttc#2. MC1 5wks. MC2 6-7wks. MC3 7-8wks. Awaiting clotting & karyotyping results, under consultant care for rmc. Mild pcos. Currently TTC.
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells

PREGNANT

LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5), clotting problem, pg #5 section booked for 9th Feb @ 35wks. On 150mg aspirin daily.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks.
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus.
HAIRYFAIRYLIGHTS
HAIRYCLAREYFAIRY

GRADUATES WITH BABIES!!

STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction and currently in Special Care Baby Unit.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

Will do a catch up post now...

mummy i hope you get a reply soon. And good luck for this month.

jollster no problem, at least you have it ready for when you do have time to read it.

Well update!!

ım alivee so i think im gonna be ok

some of you might not even belive what im now gonna tell you but i went to doctors and had to get a 60 mg coz the 40 mg had finished too so me and ds go to doctors sergery and eveything is fine doctor says no problem she take me in the room my partner sez 5 times USE 20MG (the mark on the injection)which is eqivalent to 20mg which is what im on but ob its more expensive and half of it goes in the bin) and what does she do she injects the whole f**king lot!!!!!! so im sat crying thinking im gonna die can u belive my luckk onestly i just froze n thought omg thts it im a gonna dunt no why but then she went into a pankik and was shaking trying to call my doctor meanwhile nearly getting killed by my partner who wasnt being nice but i can see why he was trying not to panik me but i thought he was actually gonna cry ...well doc said it will be ok but to rest and not have one done tomorrow as iv been trippled dosed so the 1st 12 hours i have been sat here scared to even move but im starting to feel a bit better touch wood and im hoping im ok doctor has assured me tht it wont hurt the baby its only dangerous if i was to mc today and then i cud have hermoraged i dont want to go back to that doctor sergery nomore so i think im gonna get ds to do my injections i trust him more than them tbh bizaree inoo !! worst day of my life i think today it was onestly the cariest thing iv experianced! :(((

anyone else beat my day :) hope your all ok

Oh my god you poor thing, what a nightmare...I can't believe she did that to you! Are they going to get the 20mg injections for you in the future?

Hello all

Sorry not been around not really had my mind on things lately. Have first appointment next week and I think I'm trying to block it out as I'm realy nervous about it.

justmee what an awful experience, I hope you're OK today.

lovemysleep just wanted to say good luck for your scan tomorrow. I'll be thinking of you.

Hello to everyone else.

Hope you're okay after the drama justmee

Good luck with the scan lovemysleep, hope everything goes perfectly xx

It's been 2 weeks since mc :( Reading Lesley Regan's book when I get a few spare mins - in one part she talks about how if you miscarry an embryonic pregnancy, then it is not a hormonal issue but something has attacked the baby or stopped it from developing. I am sure my first and third mc's were anembryonic, but the two MMC's I had there was definitely a heart beat. The first MMC, baby had passed away at 7 weeks, so there must have been a heart beat.

Can I ask anyone who has had tests done on tissues from miscarriage, whether they can find out if it was a blood clotting problem or other problem in the mother? No one from the hospital has actually told me what they test for or when I will get results.

Goodnight all xx

Justme thats just such an awful story, how are you now?

milky I believe but cant say with a whole lot of certainty that they just look at the genetic sequence of the tissue they find. I had tissues analysed after an ERPC (three months after mmc) but they were only looking for once specific problem - to see if they were molar (containing 3 sets of chromosones instead of 2) I dont see how they would be able to tell anything about blood clotting issues, but presumably if they successfully extract the embryonic cells they can test for lots of different things. I had amniocentisis with DS and they told me it tests for over 300 different types of chromosonal abnormalities. Its certainly a good question to ask when you get the results (what exactly did they test for?)

In my case, they didnt find any molar type cells, and I now know that the placenta could not attach properly and get a good blood supply from the uterine wall because of the presence of scar tissue, this caused the developing embryo to die.

I would say that the longer it takes you to get those results, probably the more tests they are running. Amniocentisis took weeks to come back, apparently they have to grow cell cultures before they can analyse them so it does take a long time.

I hope you do get some answers from it all. xxx

hi guys im ok today altho i am not feeling possitive iv started spotting so i am thinking game over cant explain how i feel im a mess confussed and just dont want to be left alone as im scared of the worst to come xxxx

justmee :( I hope it's nothing, take it easy today will have everything crossed for you

lovemysleep good luck for your scan, thinking of you

Justme could it just be the delay in getting your injections? I hope things settle and its just a false alarm. Are you resting? and distracting yourself with something fun to try and keep the worry at bay? Take carexxx

lovemysleep best of luck with your scan

Clare what day is your appointment? Hope it goes well xx

Thanks mummyabroad hopefully I will get answers this time.

justmee :( You are in my thoughts, and hopefully everything will turn out fine xx

Layed in bed but not feeling pregnant at all I think you kind of realise when its going wrong ds keeps telling me not to stress but it's so hard it just feels like nothing will ever go right for me when It comes to having a baby I'm feeling so low :( and feel like that this was my last chance x

Hey Girls.

Just popping in to say hello. Hoping to get on over the weekend for a proper catch up. We are in the hell that is Colic. We are both exhausted. I am also still in a stupid amount of pain since my section which was 5 weeks ago today so when baby is sleeping I am either in bath or in bed or doing school run.

hugs to all that need them

Lunatic so glad you and your boy are coming home today! I cannot wait to see a piccy of him :)

waves to everyone else

Thinking of you justmee. Hopefully everything will be ok.xx

I have leaking nipples 3 weeks post ERPC, is that even possible, sore boobs again. I was only 5.5 weeks pg so I don't get what is going on. The doc said I need blood tests to check hormone levels but I can't have them till next week and the results will be the week after. When is this going to end?

confu3ed I have this same problem. I was so scared as it felt like my milk was coming in after I had my daughter. I am having blood tests done to check my prolactin level next week as it was high 6 months ago after my third mc, so I could have a problem there. I haven't experienced this with any of my other miscarriages.
Have you breast fed in the past? Don't touch them, and wear a tight sports bra so that they don't get stimulated in any way.
Mine aren't leaking by themselves - but they have grown a size or two - its been a week now, still not subsiding. The only thing I can think of that is causing this is the raised prolactin.
That's good your doctor has ordered blood tests - let me know how it goes - will be interesting to compare results

Hi milky thank you for the advice and good to know that this is not unheard of. What does a high prolactin level mean? I know it's not usual after a miscarriage especially an early one? What was said to you after your last mc?
This has not happened to me with either of my other mcs either?! And yes I did breast feed my dd but only for 4 weeks and that was 11 years ago.
Mine sound the same as yours , not leaking by themselves but swollen and I am aware of them being sore.

I hope the tests indicate what the problem is as I am sick of being told everything is fine when I know it's not.

Are you having tests this time to? Yes will be good to compare tests with you, and thank you so much for the response it is very reassuring to know I am not alone. But at the same time so sorry that you are going through this too x

Sorry misread your post as on iPhone and can't scroll very easily! I see that you too are having tests next week damn iPhone too small to use for posting! X

Hello everyone -I hope nobody minds me coming on here and I hope I'm I'm not "gatecrashing".

I just wondered if anyone has been in a similar position to me and if they could offer any advice.

I have just been for my second appointment with Mr Shehata who has told me I have high killer cells (1.67) and also high thyroid antibodies (597). I am hypothyroid and take 100 mcg of levothyroxine daily. I also have osteopaenia in my hips for which I take calcichew D3. I have had 2 miscarriages - both at 12 weeks and DS who is 4. I had 2 chemical pregnancies at the end of last year also. Mr Shehata has put me on the killer cell treatment programme and I now have my prescription for the steroids etc. Is anyone else in similar position. My mind is boggling at the moment . I am pleased to have an answer and a reason for the miscarriages etc but I am now very nervous!

Any info would be very welcome! Thanks

justme big hug from me.

I have my appointment on 29th march. I hope they start testing then and it's not another "consultation" meeting

Hi everyone. Have been away from here for a few days so not going to be able to manage a catch up. Was admitted to hospital via ambulance on blues on Thursday afternoon with severe cramping. Suspected ectopic although a scan yesterday ruled that out. Baby is in the right place and measuring 7+3 (so my dates are spot on) Was put on a drip for dehydration after discovering billirubin and ketones in my urine. No cause for the pain found so was discharged yesterday. Feel very weak still and still not much appetite but trying to force myself to eat and drink as much as I can.

Hope everyone else is ok.

Lovelybunch what a worrying time. Hope you start to feel better soon. Hugs.

coconuts Glad the baby is in the right place and healthy. Hope you are feeling better now - take plenty of rest and take care x

mattsmama Hope you are getting the info you need in the other thread. It must be a good feeling to find a possible cause to the mc's.

confu3ed lol - it's okay - I had never heard of this until it happened to me last week. I bf'd my daughter for 1 year, and a week after stopping I never leaked again - so this is very strange to me.
Prolactin levels are normally high in breastfeeding women and it can stop ovulation which is why some bf-ing women dont get periods. Essentially, high prolactin can mean an underactive thyroid - but it may not always be the case. An underactive thyroid can introduce a whole host of problems, including infertility. I know I hate being told everything is fine too - I can't believe everything is fine after 4 :( Will definitely compare results!

Could someone please give me some advice - I took a HPT today and it is still coming up positive. It's been over 2 weeks since my medical management and I have been spotting for 2 weeks now. I didn't bleed heavily after I passed everything, and now I am worried I have retained products. I also took a first response test (I got buy one get one free last december :()so thinking it's too accurate?
I thought I was ovulating these few days - have the symptoms - but am scared now. Anyone else have a positive HPT 2 weeks after a mc?

Hi Milkway, just wanted to say I had a positive test around 2 weeks after my ERPC. It was very faint, but def there. I did one at 3.5 and it was negative. I didn't have spotting after the bleeding stopped.
Looking back I too thought I was heading for ovulation at that time (EWCM!) but I wasn't testing/temping so not sure what was going on.

Coconuts hope you are ok.

It's been 2 and a half weeks since my blood tests were done, surely I should have had some results by now? (ever hopeful)

Milkyway2007 - yes - thank you. Really appreciate you pointing me in the right direction. thanks again xx

coconuts OMG what a shock for you! I hope you are OK? Are the planning to give you another reassurance scan or monitor you further?

mattsmama Hi, welcome to the thread, I am afraid I dont know much about killer cells, but I believe there are two (pregnant) ladies on this thread who do, PrettyVacant and Pink (she changes her name a lot but its always got pink in it) I've asked them if they have any info to share with you.
I'll repost our stats list in a mo, so you can see who is at what stage of testing, feel free to copy and paste and add yourself in.

Milky Having been on the JustMCandTTCagain thread for 7 months, I know A LOT of ladies who have had positive tests for longer than two weeks and been just fine. Having said that I got a positive 3 months after my mmc and DID have retained tissues, so it is something to monitor closely (obviously if you have smelly discharge, pain or fever go STRAIGHT to a doctor for antibiotics ASAP) Why not get some cheap tests from Amazon (25 for £5) and test everyday until you get your BFN? You should see the line getting feinter if the HCG is dropping. How long it takes to get a BFN usually depends on how advanced the pregnancy was.

Julez sorry to hear about the colic and c-section pain, not a good combination at all. I do hope both problems ease soon. xxx

Not much to report my end 8DPO and starting to symptom spot already, and just generally wishing the days away until test day.