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Life-limiting illness

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Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
Timetoask · 18/04/2014 08:13

biscuits, I am thinking about you and your family. I can imagine how much you miss being with your children.

Happy to know that you are feeling well after the chemo, do you have albums of you with your children? Maybe DH can bring you a laptop with pictures, you could spend sometime organising them into booklets for the children? Just an idea to pass the time while you wait for the next chemo.

Stay strong and keep the hope.

CakeExpectations · 18/04/2014 08:13

Thinking of you, biscuits. Please lean on MNers if you can; supporting each other is something we're good at.

I'm in Devon. If you're anywhere this far SW I'd love to help with anything that your family needs.

Really really sorry that you're going through this. xx

SESthebrave · 18/04/2014 08:15

Just read the thread and be assured of my thoughts & prayers. I'm in Surrey. If I can be of any help please get in touch.

captainbarnacle · 18/04/2014 08:15

Fucking hell, such horrendous news for you and your family. All my positive thoughts with you all xxxx

TheOrchardKeeper · 18/04/2014 08:26

Oh B Sad

All my thoughts are with you and your family. What an earth shattering thing Thanks

Brew
goofygoober · 18/04/2014 08:33

A late arrival here, but thinking of you Biscuits and offering a hand to hold. I am so sorry that you are having to go through this, love and prayers to you and your family. Am in SW and more than willing to help in any way I can. I hope that you are managing to rest. I hope that the short visits from your DCs are lifting your spirits. So many positive words on this thread. Please keep popping back if you can. Much love Thanks

Incapinka · 18/04/2014 08:39

Another southerner handholding. Am really, really feeling for you and your family. I am in Dorset if that is near to where you are. If it is then do PM me.... Sending love xx

Rachie1986 · 18/04/2014 09:37

Try and stay strong biscuits - I know the stats might not look great but you need to try and fight it with everything you've got for your children.

Sorry if that's the wrong thing to say and I know it's so tough and so unfair but please don't give up yet xxx

yegodsandlittlefishes · 18/04/2014 09:49

Are there any crafts you do, biscuits? Can you crochet or knit? I'd be happy to send wools via the Woolly Hugs team, with postage paid, forbthem to send on to you, if you can use something like that?

yegodsandlittlefishes · 18/04/2014 09:51

A friend of mine made pressed flower cards when she had chemo.

If there is anything like that which you would like to make, we can help you.

Shreddiez · 18/04/2014 09:56

You poor thing. As you are worried about prognosis (and I hope it's much brighter than you fear) why not pass some time writing down memories and making photo albums for the kids? Hopefully it's totally unnecessary but it will still be a nice thing to have when you are older.

Can you have the baby in with you? Could you pay a maternity nurse to stay with you and the baby?

CoteDAzur · 18/04/2014 10:02

So sorry to hear that you are going through this, biscuits Sad

ProcessYellowC · 18/04/2014 10:06

Hi biscuits, there's nothing useful I can say but am still thinking of you.

Actually - this might sound perverse does the hospital that you are in provide breastfeeding support? If you can request one of the councillors can come and visit in the isolation room (I have visited someone in one before), she may be able to make practical suggestions about your milk production/expressing, and you can at least talk to someone face to face who isn't family/friends about how you feel about being forced to stop bf.

I know its only one of the many difficult and unfair things that you have been thrown in the past few days but there may be some help available for you.

ThermoLobster · 18/04/2014 10:15

Biscuits, so so sorry to read this thread. I cannot imagine how you are feeling. I hope your facebook post makes people rally around - am sure it will.

With regards to expressing, like another poster, I was also hospitalised with a blood clot on my lung after childbirth. My baby was 2 weeks old, and unable to visit. I gave her her last feed in hospital just before I was diagnosed and then I gave her some formula to make sure she would take it, and then she had to leave due to infection risk in the ward I was in. It was very tough. I had to express after a day or so as it was very uncomfortable. I got no advice on what to do, even though there was a maternity ward upstairs. I googled and decided to gradually express less and less, and after a few days, the discomfort was gone.

I had to go on complete bed rest until I was stabilised, and was in danger for a few days. I can remember being scared to shut my eyes. My heart goes out to you.

Burmahere · 18/04/2014 10:18

Offering virtual support and thoughts here biscuits. I cannot imagine what you and your family are going through right now and what a dreadful shock it must all be but you are being held up by a lot of positive thought and good will. Take each day as it comes and try not to look too far into the future although I know that must be very hard.

Love and strength Thanks

lougle · 18/04/2014 10:20

I've been lurking, but just want to say that I hope your day isn't as bad as you are expecting and that you get some quality moments with your family.

pigsinmud · 18/04/2014 10:38

Biscuits - thinking of you a lot (likes so many others on this thread) and sending you hope.

RockPaperScissorsLizardSpock · 18/04/2014 12:41

Hi Biscuits x

Keep strong my darling. You are doing so well with everything going on. I haven't read all the suggestions but I saw someone suggest something crafty to occupy your time, I think this is a great practical idea right now. Also, are you keeping a diary? Or a blog as someone said. This could be a great therapeutic way to process everything.

Remember, if you need any MNetters support just ask, lots have offered and given their location. Just someone to come and sit with you or help with the kids while your husband does or even just to bring magazines or crafty supplies, if you feel up to it x

fidelineish · 18/04/2014 12:48

Biscuits I am so sorry that this shit has happened to you.

Please try not to thing about 5 year survival rates - it is too big a thing to deal with and, however bad the odds, statistics are truly meaningless on an individual level.

How about breaking it down into smaller chunks? When's the end of the treatment plan? Can you book a family photography session for late summer/early autumn? Baby's 1st birthday? A family holiday next Easter? Plan to make more family memories and enjoy more family time IYSWIM.

Part of my head has been with you all week. I wish there was something more helpful I could say.

Artistic · 18/04/2014 12:49

Biscuit - life is unfair, cruel even.

Try focussing on your recovery & return to your family. The journey is a difficult one, but just pray that it's short & it ends soon. Just take one day at a time & never think of bad outcomes.

You will be in my prayers.

biscuitsandbandages · 18/04/2014 13:00

Thank you xxxx helps to feel less alone.

OP posts:
saffronwblue · 18/04/2014 13:03

Hope you have some nice moments somewhere along today.xx

antimatter · 18/04/2014 13:09

I am holding your hans right now.
Don't feel to compare your situation with others.
You will make it! You have your family to return to and to look after.
You are in my thoughts.

BigPawsBrown · 18/04/2014 13:11

This article is useful OP. www.nytimes.com/health/guides/disease/acute-lymphocytic-leukemia-all/prognosis.html

The response rate for adults is skewed because most adults who get ALL are elderly and cannot tolerant chemotherapy. You can check off on their list your type but it says T Cell has better prognosis than B cell Smile

fidelineish · 18/04/2014 13:47

You really aren't alone biscuits look at the size of this MN rabble beside you Flowers