Not a good day. leukaemia diagnosis.

[biscuitsandbandages]

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

Oh best of luck! I'm keeping my fingers crossed for you x

Hello Biscuits, I saw this thread and just couldn`t ignore it. Just get through each day at time, that is how we have lived for the last 6 years. My dh was diagnosed with bowel cancer in 2008, not curable. Hey ho he has been in remission 2 years this month :) There seems to be no rhyme or reason to why treatment works for some and not others as far as I can see. I believe a strong positive attitude truly helps, on going support from family friends, and in his case three gin and tonics every night! I wish you all the luck in the world and will say a prayer for you xx

So glad to hear how well your dh is doing! Just goes to show what you can achieve.

Have been reading some academic stuff.
Seems the reason adults are assumed to do badly with ALL compared to children is partly due to other illness they accumulate with age that affects their ability to tolerate treatments but also genetics. Adults are more likely to have the complex mutations that make it harder to treat. I dont have any of that but there are no available statistics breaking it down taking age health and normal genetics. It would seem fair to assume that my prognosis is somwhere between adults and children but nearer the children end whicg has a much higher long term survival.

But seriously guys..... come on with the echo! It also seems a pericardial effusion can occur as a side effect of the chemo so if there is more it is annoying but not necessarily bad news... and several articles compared mortality from ALL with a pericardial effusion and found no difference.

Result still awaited and going out of my mind with worry although my brain says no big deal...

Any news?

Noooooo

What's happened?

The result must be available by now but the junior doctor who was chasing it up is on call and busy (which is fair enough as I am clinically stable) if he goes home with out telling me I am going to rip such shreds out of him on Monday it's not true.

Oh I see; Q: "Any news?" A: "No"

Sorry

Lol It was perhaps an overly dramatic no under the circumstances....... I'm so n edge about the result

Hope they come see you soon!

Another one here for a hand to hold (although I would imagine your hands are busy packing up your room) whilst we will the junior doctor to appear with your results soon.

Stay stale x

I have lurked and now I'm posting. Gosh, I hope they come back with the results tonight for you [fingers crossed]

Still waiting..... Though my hands are full of baby so it's a little better :-)

Ah, a cuddle for that beautiful baby.

Enjoy being in the moment with her & keep trying not to worry about what's to come, though easier said than done, I know.

What a pain........

I hope you do give him a rocket on Monday. Glad you have baby as a lovely distraction though

Has he come back?

Did he come back? Fingers crossed for you.

have you seen the website just for tiny people? (Children not hobbits!). They have some lovely gifts for toddlers like teepees. Perhaps a bit of window shopping will pass the time?

Fingers crossed for good results tonight. Enjoy having your hands on your baby.

Lovely cuddles with my darling..... He didnt come back as was stuck in CCU with a patient...... But did send the lovely other SHO on the team who happens to be on nights this week and I forgot!

So the fluid is still there around my heart which is why I feel symptoms sometimes... But is only a tiny bit bigger, probably not significant when compared to the last echo.

Feeling a bit better though constantly surprised by how every little new anxiety opens the old ones back up raw.

Will talk to lovely haematology registrar who is on tomorrow and always pops in but if they don't have a plan with regard to monitoring this properly then my back up plan is that we happen to know one of the cardiologists here on a personal and professional basis and given that I have a vested interest in not dying I have no qualms about calling him and asking his opinion myself! The are serious bad points to being a HCP as a patient, particularly when ignorance would be bliss but friends in high places gives confidence too at times.

Good idea. You are a remarkable lady you know... You sound so calm and logical in your approach to this. I'm absolutely sure you don't feel like that all the time though!
Anyway, it's good that you have professionals around you that you can trust to do a first rate job. Get a good nights rest and keep chatting to us over the weekend

Sleep tight. This is the moment to draw on favours and friendships. 'Probably not significant' is good although it must be like riding a galloping horse to manage the natural anxiety you feel. Did you get lots of glorious grins from your DD?

Morning Biscuits!

Hope you continue to have lots of positives this weekend. x

Still waiting for the doctor to make her appearance. I have a lot of questions. She is lovely but I am fed up of being protected... I do not want to be treated as a child. I am not that vulnerable. I am sad and scared not depressed or delusional.

For anyone around today... My daughters 12 week birthday... She is smiling for you on my profile which should be visible I think.

Ahh happy 12 week birthday. What a smile!