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Life-limiting illness

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Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
TanteRose · 14/04/2014 06:07

oh, biscuits, what an unbearably shocking situation

thinking of you Thanks

good to hear that you have several consultants on your case - they will find a way to get you through this, I'm sure

yegodsandlittlefishes · 14/04/2014 06:08

Hello biscuitsandbandages am here to listen too. What life changing moment it was for you to talk to ooh. It is good that they caught it and can treat it. Talk all you need to.
You will have to look the other way for the lumbar punctures. You can ask them to cover the needles and have that you don't like seeing needles put on your notes, if that would help. Is it there a friend or relative who can be with you for those times?

Goldensunnydays81 · 14/04/2014 06:09

Oh no biscuits will be thinking of you, both my dad and a close friends son have got leukemia so it is something that is in my life a lot!
Can you see if they have a Macmillan nurse that you can speak to I know my friend has found hers invaluable for all sorts of help and information.
Will say a little prayer for you and your children too.

biscuitsandbandages · 14/04/2014 06:13

This reply has been deleted

Message withdrawn at poster's request.

abitofanangrybird · 14/04/2014 06:13

Can I just add the I second the recommendation of talking to Macmillan. They may be able to advise/help with childcare arrangements and possibly funding.

DrewsWife · 14/04/2014 06:13

Morning. I am so sorry you were diagnosed. But I am so glad that they picked this up. Thanks

I know a few who have been diagnosed and survived.

You need to speak to McMillan nurses. Get assessed for DLA and some funding that they can help you with.

The nurses will also talk to you of all your fears.

Hubby can approach the bank and see about a short term change to interest only payments.

Try not to freak out. Family and friends should also help out and you might get funding towards the cost of childcare.

You must take everything one step at a time. Xxx

Here if you need an ear

SofiaAmes · 14/04/2014 06:15

biscuit, please let mumsnet mums help you. This is not the time to "be brave" and do it alone. Tell us where you are and how we can help you. If only to let you and your dh catch your breath so that you can collect your thoughts and spend your precious time with your dc's. Maybe someone can deliver a spare battery to the hospital so that you talk on your phone. Or a kindle or spare laptop. I am in another country, so can't help directly, but I'm sure that there is someone nearby who could bring you an old laptop so that you can skype with your kids while you are in hospital. And maybe someone else can help you and your dh get the services your need so that he can take a leave of absence and your mortgage can get paid/put on hold (there are ways of doing this and mumsnetters who know how).

WhereHas1999DissappearedToo · 14/04/2014 06:24

Oh I'm so sorry Biscuits, I know this must be a huge shock. We are here to help, please talk to us. Do you have any other family members that could help out? I'm also overseas so I can't help directly either.

Can you get your DH/family member to bring in a phone charger/laptop/tablet.

Take care, I hope you get some good news Thanks

Cuddlecouch · 14/04/2014 06:27

Biscuit that's sad news. I hope you've managed to get some sleep. Please keep talking to us if it helps.

Rosa · 14/04/2014 06:29

You poor thing what a scare. Hoping that daylight brings better news and sending you strength to get through this tough time. I hope you do have support and help for you and your family to get through this.

Wishfulmakeupping · 14/04/2014 06:29

I'm thinking of you OP and your family x
Like others have said do contact Macmillan they could offer some help. You are being so brave xx

MotherOfInsomniacToddlers · 14/04/2014 06:32

You poor thing, what a horrible day for you, can't think of anything helpful to say, except I bet more people rally round and offer help than you expect, I for one would be offering as much help with child care ect as needed if this happened to a friend, or come to think of it a stranger if they wanted and accepted.
Lots of people here to talk to too

NationMcKinley · 14/04/2014 06:37

Didn't want to read and run but off to work in a mo so just to say thinking of you, lots of Flowers and positive thoughts. I'm in SE London and more than happy to help if I can? Totally second MacMillan, I've had a lot to do with them over the years and they are ACE xx

headlesslambrini · 14/04/2014 06:38

Another one here thinking of you. I'm up north but there will be people around you in the hospital who can help. Dont be afraid to ask.

yegodsandlittlefishes · 14/04/2014 06:38

Tell the staff about the needle fear/phobia and see if you can get some counselling there to have help minimising the fear and help you prepare. Some hospitals even have hypnotherapists. You don't know until you ask.

I agree that Macmillan nurses are great and will be a world of help.

Any time you feel like dropping off to sleep, put that first.

Allice · 14/04/2014 06:39

You poor love, what an awful shock.
I'm in north Essex too and am happy to help in if I can.

TwentiethCenturyGirl · 14/04/2014 06:52

I am so sorry to hear about your diagnosis biscuits :(

Have you heard of the Mummy's Star charity? They provide all sorts of support for women who are diagnosed with cancer while pregnant or within a year of giving birth. This can include financial support for things like childcare while undergoing treatment.

I know that there must be so many things going through your head at the moment but please bear them in mind.

Thinking of you and your family.

MrsPixieMoo · 14/04/2014 06:52

Biscuits, just read your thread. I wanted to send a big hug and say how sorry I am that you have to be in hospital with all these invasive procedures and uncertainty. Hope you managed some sleep in the small hours and that your treatment is successful and your little ones have you home soon.

Misfitless · 14/04/2014 06:55

In another part of the country, but I'm here to listen, hold your hand and pray for you.

Reach out for as much help as you can.

xxxxxx

NCISaddict · 14/04/2014 06:56

I'm in North Hampshire/ Berks area if I can help at all? PM me if you want to. Which hospital are you in (if you don't mind saying)?
Hope you've managed some sleep

treaclesoda · 14/04/2014 06:57

I'm so sorry you are going through this. What a terrible shock.

There are many many of us out here who can offer a virtual hand hold, you don't need to deal with this alone.

JohnBarleycorn · 14/04/2014 07:02

What an awful shock for you all. Praying you get through this and back to your lovely family.

YouDoVooDoo · 14/04/2014 07:03

So sorry to hear about your diagnosis. I know it depends on the type of leukaemia but I have a friend who has leukaemia and is doing fantastically - you almost forget she has it she is so well and living life as she was before diagnosis/treatment. I know you are a way off but there is hope.

mummy's star charity, which twentiethcenturygirl, mentioned looks a great port of call.

((((Hugs))))

RockPaperScissorsLizardSpock · 14/04/2014 07:15

Another hand and ear here x

Try and rest, I know it must be hard as you are just coming to terms with all the new information.

Are you able to contact a Macmillan nurse? Do you have a phone charger?

I'm close to both Barnet and Chase Farm, PM me if you like x

biscuitsandbandages · 14/04/2014 07:20

Thank you everyone. Im sorry I cant reply to all the messages... I just dont have the strength right now but i really appreciate your thoughts and hand holding and have been googling mummys star and Macmillan and emailing all the childminders on childcare.co.uk aswell. I have my phone and 3g seema to be working well here. I have charged it up a bit overnight when noone could see me plugging it in. Naughty I knkw but I need a lifeline. So happy to hear a positive story too xx

OP posts: