Not really. It’s about consent. No one can consent to or refuse a medical procedure on behalf of anyone else. No one. Ever. Not even a child.
If a person cannot consent, because they cannot take in or process the information needed to make a decision or communicate that decision unambiguously, the medical staff and the person’s family have to decide as a team what is in the person’s best interests. Obviously the medical teams are best placed to make clinical judgements and the family are best places to say what the person would have chosen, if they had been able. Very, very rarely, they just cannot reach a unanimous decision.
But neither of these groups is infallible. There are people who sadly do not or cannot act in the best interests of their children. There are medics who are incompetent, malicious or criminal. There are cases where it can’t be known what the best persons interests are, or where either, or neither, choice is in the persons best interest or is clearly a least worst option and there is no right answer and no compromise.
And then we need courts to step in. It is highly unusual for this to be a necessity and it’s an awful process for the individuals involved, but the process is right and necessary. I wish it wasn’t, and there is cost involved, but it’s the price of a fair and just society.
The other thing to bear in mind in relation to Hollie (and it must be hell for her) is that people with capacity to make decisions retain the right to make poor decisions. So a person making an unwise decision, does not automatically become unable to make that decision. Even if it is unambiguously ‘wrong’ or for the wrong reasons. If they understand the risk consequences, they can make the decision. However awful.
This is all as it should be, awful though it is. The thing that is not as it should be is the involvement of a religious pressure group who just possibly have an agenda that has nothing to do with any individual’s best interest, and a large number of individuals who did not know Archie, and clearly do not have even the most rudimentary medical knowledge and. This has muddied the waters significantly and the courts have rightly refused to engage with their agenda. It is not appropriate to use a dead child to further your political cause. The courts must decide what is best for Archie, nothing more. The family is entitled to support from relatives, friends, strangers and organisations and I don’t see how they can be prevented from being involved with Hollie, even if they are not well-intentioned only that the court and the medical team must (and admirably are) remain totally focussed on Archie’s best interests to the exclusion of all else. Poor Archie.