dh (again, sorry)

[misdee]

swollen ankles, and stomache. not good. both signs of heart failure. getting a feeling he'll be back in hospital in the next few days

[Bonkerz]

sorry to hear that misdee. sending you hugs(())) Be strong.

[Gwenick]

aww misdee - sorry to here that

[big hug] for you all




and If I here ONe more person say sorry today.......................

[Bearess]

oh misdee we haven't talked about this before but I am sorry

[lilsmum]

sorry to hear that, fingers crossed for you and him

[misdee]

i dont want him to go back to hospital. i want him home with me and the kids. i also dont want to be dealing with this day to day. just wish i could leave all this behind, even for one day and have a normal day for once.

[lilsmum]

is there nothing they can do to help him? xx

[Bearess]

of course you do, misdee, it's so unfair

[misdee]

pump him full of IV dirutics to get rid of the fluid (his weight has also increased by a stone and half in 2 weeks, which is another sign), then heart transplant. thats it.

[Bearess]

How long has he been ill misdee?

[lilsmum]

[misdee]

3years in april. was doing well till about 6months ago, then went downhill rapidly.

[Bearess]

Oh God, poor all of you. I would be in bits if it were my dh, do you get help from family etc?

[misdee]

family have been great.

i am selfishly thinking/wishing for dh to go into hospital after i have learnt to drive. i have theory test next week, then am booking intensive course if i pass the theory. dh will be in Harefield hospital for the transplant, and i need to be driving by then. plus we have a holiday booked for may, and dont want to go on my own with the kids.

[Bearess]

so (sorry, don't know how these things work) is he on a list for a transplant - and is he nearing the top?

[lilsmum]

misdee, tell me to mind my own business if you like ... but what is actually wrong with his heart? i have read quite a few of your posts about it all and cant even imagine what you are all going through

[misdee]

his heart is very enlarged, which was due to a flu virus. as the heart is a muscle, the enlargement has made the heart weak and 'floppy'. it isnt pumping properly. the heart rythym is also bad. as his heart isnt pumping properly he is at risk of blood clots as well. there has been detoration in the last six months (dont know how the mkeasure this), and he has now been assessed for transplant. he is on the list and on monday he will find out where he is prioty-wise.

[lilsmum]

from flu? oh my god!! your poor dh and you, how awful xx

[Gwenick]

misdee - I have to say I think you're handling it all incredibly well - if it had been me I'd have completely lost the plot by now, and the thought of having a baby as well would terrify me!

[another big hug]

[misdee]

if u want to read about DCM then its all there.

[misdee]

i think i may well lose it soon. have informed dh and my HV that when dh has had the transplant and is recovered, then i am booking myself a month of madness. if i lose it now, then the whole family will suffer.

[Bearess]

how damn unlucky, hope that the news on Monday is good, fingers crossed here.

[Gwenick]

just read it - sounds awful for you

[Bearess]

you sound like you are coping fabulously well, you may just crumple when all the horrible stuff is over and dh has had his transplant - I think a month of madness is a wonderful idea!

[lilsmum]

misdee, you must be a very strong person to deal with this as well as your dd's,much respect here, and good luck for monday, will be thinking of you xxx

[misdee]

i'm off to bed. dh has pinched some pillows to rest his legs on, must buy some more, so will have a night of kicking his feet pillows onto his side of the bed.