dh (again, sorry)

[misdee]

swollen ankles, and stomache. not good. both signs of heart failure. getting a feeling he'll be back in hospital in the next few days

Appointment was today. i have no idea how it went as his mum isnt back yet, she took him there as i dont drive. so am waiting for her to tell me whats happening.

Misdee I don't think we've ever spoken before but I've just spent the last 10 minutes reading all of the posts. I hope this gives you courage. Many people think you are amazing for coping not just with dh and his problems but also with your kids. Take care xx

i am not amazing. i just know that if i let it get to me and i lose it all together then everyone suffers. i do often think 'why dh, why our family' but i cant let it get to me. i know there are people out there with more serious problems, and i know there are families where generations are affected by DCM, i am fortunate that my kids are 'safe' for now and show no signs of DCM.

I admire by sister, mieow, as she also has a lot to deal with as 2 of her kids are disabled but she is always there for me and willing to help out. dont know how i'd cope without her and her dh support

Haven't read this but will start by saying don't you dare apologise, that is what we are here for. Right off to read it.

You are both wonderful. I'm absolutely gutted to read about this latest sequence of events. I hope that Harefield can pull something out of the bag soon. Enormous hugs to all of you. xxx

{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}]

icant do this anymore

he has gone downhill so much in 3 weeks. the docs were very shocked at how quickly he has detoriated. (just spoke to dh mum).

Oh babes

Oh missdee.

{{{hugs from me too}}

Just so you know quite how much I feel for you I have been on Mumsnet for 3 years and have never ever given a virtual hig before.

I just can't think of anything else to say.

oh misdee. I am so, so sorry.

its now a case of 'get him stable' then heart transplant. without it he will die.

There just has to be a heart for him, there has to be. So odd wanting that to happen to someone else, but he just must get one. xxx

Thinking of you misdee.

Do you have anyone with you, other than the kids ? Just to rant at, cry with, for comfort ? I'm so enormously sad for the way things are. Hopefully the seriousness of his condition will push him to the very top of the list.

i feel awful knowing that someone has to die for my dh to live.

You just mustn't think about them though misdee. Heaven knows you have more than enough to worry about.

It's a terrible thought, but it will save his life. A complete stranger will allow your wonderful DH to be with his family, to grow with his girls and to have a future, that stranger is wonderful. It will happen

Misdee - I really don't know what to say but wanted you to know that I am thinking about you and DH and your family and sending you lots of love and positive vibes. You sound like an amazing woman. Stay strong

So sorry to hear he's gone downhill in the last several weeks, I don't always post but I always read to hear about your dh. It's so sad. Good luck.

my parents just called and i cried down the phone at them.

am thinking of keeping dd1 off school tomorrow so she can go see him. dd2 has got another cold so cant go (she always get ills when dh goes into hospital), and i dont know the rules there about newborns being allowed in so dont know if i can take dd3 in to see him. so my dad will be in the cafe looking after her and he'll have dh number for his phone if dd3 needs feeding.

you ok hon? I can't come over now, but phone me tomorrow.... xxxx

i'm ok. just having a few minutes of tears. need to every now and then, just not in front of the kids.

I would go round now, but because I have been ill today, DH won't let me out

Misdee, MSN now!!