OMG dh is being admitted, tonight!!

[misdee]

had to call GP out earlier, gp felt that dh is cardiomyopathy is gettign worse so called dh cardiologist to get an emergency appt with her. she has just called and wants dh admitted NOW! he had a 24hr holter monitor done beginning of the week, and dh was vomiting a lot whilst on it. i have never known him to be called in this quickly.

thanks. cant visit till 2pm, so really should go do something to keep busy.

I've just made a list of what I need to do tady otherwise I'll spend it on my bum like yesterday

dh also has a letter from DWP, should i open it in case its his assessment for incapcity benefit?

Go for it!

have done. its a letter asking him to fill i na questionairre to see if he is fit for work. errrrrrrrrrrr no!! he cant even unload the dishwasher without having to stop.

think i need to rant about that on another thread

lol misdee....it's so not funny but what are they like??

i know. i knew it would be arriving soon, as they last assessed him 2yrs ago, the medical doc who examined him recommened they leave dh alone for 2yrs, so bang on date they contact us.

when i was waiting for my kidney it seemed like the longest time but when I had fully recovered all the bad times melted away and I wake up every day grateful for my new life.Although my heart has caused concern at times i am not in your dh's position It really will be a new life for you all when this is over BTW it is almost certainly the size of his heart pressing on lungs causing breathlessness as that happened to me The drugs I am on have slightly reduced the heart size and I am a lot less breathless so you are right.If he has swollen ankles etc that don't clear then his heart is getting less able to pump and so hopefully he will be near the top of the list.If you were closer to me I would be there like a shot lots of love to you all noddyxx

why doesn't he get incapacity benefit?

cheers noddy

he does get IB. but they want to assess him again.

They probably won't want to see him again, misdee, the questionnaires are usually just to make sure that nothing has improved, to make sure he's still entitled to IB. They're sent out by computer, it's nothing to worry about. Fill it in, send it back and you probably won't hear anything from them for another 2 years.

I hope he's doing OK today.

When i came onto this site i had never seen cardiomyopathy mentioned. since i have said about dh being ill, i have 'met' so many of you with different cardiomyopathy's. i think the only one i havent come across is restrictive cardiomyopathy.

misdee i don't want to hijack your thread but can I ask swilt a question?

go for it!!

you have HCM too dont you?

swilt I was diagnosed woth HCM in about 1999/2000.I would like to ask if you have had a pregnancy since diagnosis and also how you feel in general xx

thanks I had ds 10 yrs ago and although the docs say I may have had this since birth they can't agree !Have seen professor mckenna at st georges a few times and he still says my case has some strange characteristics and he isn't sure of its origin None of my family are affected just me.Do you have symptoms day to day?I am on disopyramide also hate the side effects I have been on atenolol aswell so know how you feel!Sorry about the questions but I don't know anyone else with this

dont feel guilty, glad that youhave both found someone to talk to about this.

Anyway, i justphoned the hospital, dh lungs are clear, which means all pneumonia has gone, no sign of infection etc, which is a good thing. But they are concerned about fluid retentions, breathlessness, fatigue etc, and it may be that he gets transferred to harefield hospital for further tests and adjustment of meds. Just gotta wait and see what happens now.