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Original poster

Steve not very well at all today, Doctor has just been out to him

201 replies

onlyjoking9329 · 08/09/2007 20:56

he was in a lot of pain yesterday which has not improved today. he is much more confused so it is difficult to find out what is going on. his sight is much worse too and he is quite wobbly.
The doctor phoned the hospital and talked to them about it. the doc has given him a morphine injection and he is to go back on the steriods, which he has just been weaned off. the doctor will phone in the morning to see how he is. he is tucked up in bed now.

OP posts:
toomanydaves · 11/09/2007 14:56

good for you oj. x

glitterandspangles · 11/09/2007 21:35

Glad you had a lovely day, i hope you have many more.
xxx

IGB · 11/09/2007 21:36

This is great (this is me, MB, btw)

Original poster
onlyjoking9329 · 11/09/2007 22:31

thanks again for your kind wishes, Steve has been like the old steve today, which was lovely cos i was really missing him, brain tumours are horrid cos they change the person so much, this is the nearest to the real steve that i have seen for months, the sad thing is that i don't know how long i will have my husband for as most of the time he is like a different person.

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LilyLoo · 12/09/2007 09:55

I know OJ but it's so werid as you think that's it and they have changed for good then you have a really good day like yesterday and you don't know where you stand. It's odd as there doesn't seem to be any natural progression with that type of tumour right until the end. Each day can be very different with good days and bad and lot's in between.
It's such a rough ride but you take thanks in every positive day you get. Hope today is another one

KerryMum · 12/09/2007 09:56

This reply has been deleted

Message withdrawn at poster's request.

Original poster
onlyjoking9329 · 12/09/2007 19:48

Stve decided he would go to the shop today on his own, he hasn't been able to do this since June, partly cos he gets lost/confused and comes out of the shop and cant remember where he is.
i was very nervous but acted cool. he went and returned with milk and some lovely flowers for me

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BreeVanDerCampLGJ · 12/09/2007 19:49
Grin
Blandmum · 12/09/2007 19:53

Oh, that is fantastic!

Oenophile · 12/09/2007 19:56

OJ I haven't posted on here before but I wanted you to know your lovely news really warmed me - so glad Steve had a better day - how lovely that he brought you flowers - the 'old Steve' IS still there - just wanted to give you a hug.

Original poster
onlyjoking9329 · 12/09/2007 19:57

MB how are you? how is DH today? glad you had fun last night

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Original poster
onlyjoking9329 · 12/09/2007 19:59

He is a sweetie, even when he couldn't walk he got his mum to take him to the jewwllers to buy me an eternity ring for our wedding anniversary

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Blandmum · 12/09/2007 20:01

yeh, he'd not too bad, we are seeing the macmillan nurse tomorrow to talk about pain relief, his 25 microgram fentanyl patch isn't cutting it

Our mate shave got me lightly pissed tonight as am a bit stressed. PMT on top of this lot isn't good. Steve sounds a real sweet heart!

in spite of it all we've been lucky enough to get two gems.

Original poster
onlyjoking9329 · 12/09/2007 20:07

Hope they get the pain relief right for your DH.
pissed is good, and i should know
i have been i to help with resources at kids school today i haven't been for ages, it was lovely to see everyone and just chat about "normal" stuff.
yes we do both have gems.

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LilyLoo · 12/09/2007 20:12

Bless him OJ , what a love.

glitterandspangles · 12/09/2007 20:43

you are of course right. he is a sweetie.
Glad to see he has had another good day, have you heard from the hospital yet?
reading yours and mb's posts really make me get a grip and stop sweating the small stuff, i have promised to not complain over my DH leaving the loo seat up anymore!

Original poster
onlyjoking9329 · 12/09/2007 21:27

should hear from the hospital this week (maybe )the loo seat is not a promblem in our house, we have three loos and one is girls only!

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fransmom · 13/09/2007 22:19

hi oj! i'm glad you had good days this week sorry haven't posted, haven't been on mn for nearly 4days so kind of

Original poster
onlyjoking9329 · 14/09/2007 00:00

we have had a couple of great days and for that i am thankful, today was not so good but the memories of the last two days have kept me smiling

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LilyLoo · 14/09/2007 19:48

just popping in to say hi lad you had good couple of days hope there more round the corner.

Original poster
onlyjoking9329 · 14/09/2007 19:57

was expecting a phone call from the hospital but they have not rung, looks like i will need to chase them up on monday.
it will be six weeks on monday since his op and gov guidelines say radio/chem shouls be given 4-6 weeks post op, we have yet to get a start date.

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ju · 15/09/2007 16:14

Popping my head round the door to say Hi OJ. Hope you have a good weekend.

Original poster
onlyjoking9329 · 15/09/2007 20:35

i am glad we had some good days as today has been awful, today we have had denial anger and confusion big time. this is just so hard steve is saying he may as well be dead as he is feeling so down and he doesn't think the treatment will help him.

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Blandmum · 15/09/2007 20:37

Sending you much love and hugs. Hold onto the memories of the good days, sweetheart.

Original poster
onlyjoking9329 · 15/09/2007 20:49

i do treasure the good days and it is daft but when we have a day day i think that we won't get anymore good days.
steves brother has told myself and steve all about his neighbours mate who had exactly the same as steve 7 years ago and is now in remission when i asked what sort of tumour and what grade, was it a GBM4 he said he didn't know what type or grade he had. so how the fuck is that exactly the same

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