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Original poster

Steve not very well at all today, Doctor has just been out to him

201 replies

onlyjoking9329 · 08/09/2007 20:56

he was in a lot of pain yesterday which has not improved today. he is much more confused so it is difficult to find out what is going on. his sight is much worse too and he is quite wobbly.
The doctor phoned the hospital and talked to them about it. the doc has given him a morphine injection and he is to go back on the steriods, which he has just been weaned off. the doctor will phone in the morning to see how he is. he is tucked up in bed now.

OP posts:
UCM · 08/09/2007 23:13

Nothing to add, but thinking of you and your family.x

Original poster
onlyjoking9329 · 08/09/2007 23:15

i am looking after myself the best i can i don't want to take anything to help me sleep as i need to be on call so to speak for steve & the kids. i have had a few drinkd thou

OP posts:
fawkeoff · 08/09/2007 23:16

))))))))))HUGE HUGS(((((((((((((((,I haven't really posted before but i want you to know that ur in my prayers and thoughts hun, and i hope there is a pot of gold at the end of the rainbow for your family because you really deserve it x x x x x

UCM · 08/09/2007 23:16

Good for you OJ

Original poster
onlyjoking9329 · 08/09/2007 23:25

i went to morrisons the other day to stock up on bacardi, it seems they have a new policy, the checkout lady asked me if i was over 21, how i laughed.

OP posts:
ggglimpopo · 08/09/2007 23:29

xxx

WaynettaVonSlob · 08/09/2007 23:29

(OJ - for what it's worth think you and your family are wonderful.......wishing you nuch happiness_)

Original poster
onlyjoking9329 · 08/09/2007 23:38

GGG good to see you, i think about you often

OP posts:
Original poster
onlyjoking9329 · 08/09/2007 23:39

dunno about wonderful, knackered would be more apt i feel!

OP posts:
TheQueenOfQuotes · 08/09/2007 23:44

thinking of you OJ

WendyWeber · 08/09/2007 23:48

Ahhh, oj, so sorry to hear this Glad the doctor came fast for him though. And you are a star, you know.

soapbox · 08/09/2007 23:53

I'm so sorry about this. Have you been introduced to the pain team at the hospital yet? If not perhaps you could ask your consultant to refer Steve to them?

Original poster
onlyjoking9329 · 08/09/2007 23:59

i yhink when we see the consultant next i will ask about the mac nurses and see if we can get the pain sorted, thou Steve doesn't want the mac nurses involved i will try to change his mind on that.

OP posts:
Sobernow · 09/09/2007 00:02

This reply has been deleted

Message withdrawn at poster's request.

Original poster
onlyjoking9329 · 09/09/2007 00:16

it is a rollercoaster ride that is for sure.
i do love him so much and i was probably guilty of taking our relationship for granted until this all happened.

OP posts:
Bubble99 · 09/09/2007 00:18

OJ. Do you think he's reluctant to get the Mac nurses involved because it feels like 'another stage?'

This must be so hard for you all.

Original poster
onlyjoking9329 · 09/09/2007 00:20

he doesn't want the mac nures cos that = cancer, he doesn't want to have cancer and often forgets that he has it.

OP posts:
Bubble99 · 09/09/2007 00:31

Has he had any counselling?

By the sounds of it he's (quite understandably) not wanting to acknowledge his cancer.

I worked as a Marie Curie nurse for several years and nursed people at home, at the end of their lives, to give respite to the family. IME, one of the hardest things for people to come to terms with was the anger and this would often go hand in hand with denial. I'm sure you know all of this. I don't want to go on..Those who had counselling, often thinking that it wouldn't help them, seemed to be able to come to find some kind of peace.

My heart goes out to you. It really does.

BBBee · 09/09/2007 00:59

I hope he is resting and I hope you are too.

Vent on here all you like. I often think about you and how you are doing.

hippipotami · 09/09/2007 09:04

How are you this morning oj? I hope you managed to get some sleep.

mummydoit · 09/09/2007 09:22

So sorry to hear this, OJ. Hope you managed to get some sleep last night and that Steve is better today.

Christie · 09/09/2007 10:34

This reply has been deleted

Message withdrawn at poster's request.

Original poster
onlyjoking9329 · 09/09/2007 11:10

Steve finds it hard to talk about it all, his memory is bad and he get angry and confused, i am hoping he will agree to talk to someone.
steve slept very well, i slept on and off. he has no pain this morning thou a bit woozy, his MS has flared up so numb arm and leg today but he is brighter then yesterday.
thanks for all your kind words and thoughts.

OP posts:
Tamum · 09/09/2007 11:16

I'm glad he's a bit more comfortable today oj, I do hope it gets better during the day.
xxx

gess · 09/09/2007 11:18

missed this yesterday oj. I'm glad things are a bit better now. Do get the nurses involved, it will make things a lot easier.