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***Tamoxigang - thread number 40!***

992 replies

GoodbyeRubyTuesday · 26/07/2013 22:08

Hello all! New thread as we have almost filled the last one. Help yourself to chocolate chip muffins from the trolley! :)

OP posts:
malteserzz · 01/08/2013 18:28

Ruby glad it went well Smile
Baking hot here have asked dh to pick up some ice lollies on his way home
Taste buds are a bit weird, it's a bit like being pregnant isn't it. I'm struggling to find nice things to drink, had some bottle green cordials but they taste a bit odd and I keep fancying milkshake which I never drink !

malteserzz · 01/08/2013 18:29

Forgot to say well done to Kitkat hope for few side effects for you

jchocchip · 01/08/2013 18:41

Eek about glucose kitkat- probably just the drug cocktail as they say, unless you have been comfort eating mars bars Grin. ( I had to do a gtt after eating a mars bar before ante natal apt oops ).
Exercise and stickers sound good ruby. Thanks copt. He doesn't seem to have picked up with any friends back from uni this year. I think most will have graduated this time
.. He has not been out of his room much today :( He does socialise with his dad a bit but not good at making his own arrangements. He is upset with me as I asked him for over 3 hours on and off to do dw and bin. Would have been much easier to do myself. We did go see worlds end last week as a family but he doesn't really go out on his own :( Would like to get him on part time degree in Sept - just one module would be a start. Or getting provisional and passport and learning to drive and going travelling. Dd1 has done that and is off to uni again in september - place now confirmed for fine art degree at Birmngham City Uni :) I'm rambling again. Friend came and I made coffee cake - have had nice day apart from worry of ds.

trice · 01/08/2013 19:23

I have been babysitting for dn today. She is a lovely cuddly giggly thing. I really enjoyed reading "that's not my tractor" to her fifty times, she laughs all the way through as though it is the highest point of literature.

I can't imagine dealing with dcs after university, mine are not even at secondary yet. Neither is particularly gifted (unless you count knowing all the words to horrible histories songs) but they are full of dreams and plans. I would hate to see them disillusioned and dissapointed. It must be heartbreaking jchoc.

kitkat1967 · 01/08/2013 19:33

hello again. No, don't think I am eating more sugar than usual but must admit my diet is all over place as I have strange cravings or want nothing and have to force a piece of toast down. Hopefully someone (probably Amber!!) will appear with some facts or experience of this (don't want to hit Dr Google).

Am fed up as quite nauseous again - so not fair Sad

malteserzz · 01/08/2013 19:59

Jchoc must be hard, at that age you can only do so much
Trice I love those that's not your books. I've had my friends 4 year old over this afternoon who kept me smiling, kids are great
Kitkat boo to the nausea have you got anything else you can take ? Can you try and sleep till it passes ?
Dh went shopping but forgot my ice lollies, he's going back later for them Grin
Thanks for all the comments about ADs I do feel a lot better today and have felt better as the days gone on. Sleep or lack of it does seem to make a huge difference to me

kitkat1967 · 01/08/2013 20:17

Hi Malt - I think it is at the point you are now that my tiredness goes and I start to feel better so fingers crossed you're on the up and will be in good spirts for the next 2 weeks.

HerNextDoorAt21 · 01/08/2013 20:25

Hello all ...... I Am Back from holidays as topsy has blamed me for getting her drunktold you. I am now sitting in her living room and SHE is demanding another BOTTLE of wine and a curry with chips (heathen). It is not me who enables her !!!!

GoodbyeRubyTuesday · 01/08/2013 20:35

kitkat I had to see a dietician last time I was in hospital and I told her I'm not worrying at all about what I'm eating, I just need to get through the chemo with as few problems as possible, and she completely agreed, basically eat anything you want that gives you some energy, doesn't make you sick and helps you cope with the chemo! Then worry about eating healthily later :) have you taken all your anti sickness meds and still feeling sick? If so, definitely phone your team and ask for something else :)

malt milkshakes were one of the things dietician recommended if feeling crap, they're easy to tolerate and full of energy to keep your strength up :) I hope you find something you like soon, it's horrid isn't it when nothing is quite right!

jchoc oh :( poor DS. It sounds like he's really lost his motivation. But he does need to pull his weight around the house so don't feel bad about asking! Maybe if you had a set list of chores for him to do then he would know what he had to do each day, then if he didn't want you to ask him he could just do them on time? Does he have any idea of what he wants to do?

trice your niece sounds lovely :)

Waving to everyone!

OP posts:
Gigondas · 01/08/2013 20:36

Welcome back hnd -I am amazed she survived without youGrin.

Trice-it's a good age dn. I enjoy how easy to please mini gig is compared to big gig. Big gig completely done in and spoiled after day out.

Kitkat well done but sugars thing sounds a quirk -steroids do odd thing to you. And agree malt that taste buds do go weird line pregnancy.

Chilling in bedroom as only cool place. Got packing for tesco trip tomorrow which am very excited about . Mr gig reckons op plans may disrupt French tesco trip but not if I can help it .

KurriKurri · 01/08/2013 20:39

Evening all - been out most toady. so just catching up on your posts. I did my 14 mile round trip cycle ride this morning, on the return journey I stupidly burdened myself with a rucksack full of tins of dog food (I can only get the sensitive digestion food she has from the pet shop in the nearest town, so thought I'd better pick some up while I was there) but my God it was heavy!! I got sun burned - stupid fool that I am, forgot to put on any sun block, as it was cool when I left the house.

So am red and sweaty and feeling a bit light headed and dehydrated.

Kitkat - odd about the glucose, maybe just a temporary blip - you sometimes get odd things that go a bit haywire on chemo. Pain about the nausea, hope it settles down soon, -what are you taking for it?

Trice - your niece sounds like a little sweetie, - nice that you had a lovely day with her Smile

Ruby - glad you enjoyed your exercise class, - bet it was hot though.

jchoc - I sympathise with your worries about DS, I sometimes feel DD is drifting a bit and seems to have no clear plan about what she wants to do now she has her degree. I try to leave her to it and not interfere (as that would only make her dig her heels in and do the exact opposite of anything I suggest!) But it can be very frustrating. I guess they will find their way in their own time.
DD is going to start some voluntary work in September, and is looking forward to it, - would your DS be interested in anything like that? - its all good experience to write on CVs etc.

Copt - you boaster - with your Waitrose shopping Grin Watrose won;t deliver to our village as it is full of Norfolk people and therefore highly dangerous

malteserzz · 01/08/2013 20:50

Kurri cycling with tins of dog food sounds tough ! Have lots of water and hope you recover soon
Gigs did you buy anything nice today ?
Just had lovely pineapple ice lolly Smile

Gigondas · 01/08/2013 20:55

14 miles!! Kurri wow. Any news on your mums flat?

Slouchy tops, legging, posh long woolly cardigan-basically just the thing for lounging in from white company. I know it's overpriced but hey.

GoodbyeRubyTuesday · 01/08/2013 20:57

kurri wow! No wonder you are sweaty and dehydrated. That's a fair old way, especially in this heat and with the tins! Shock I am full of admiration. I hope you've recovered now. Exercise class was in an air conditioned studio, thankfully!

OP posts:
GoodbyeRubyTuesday · 01/08/2013 20:58

Sounds lovely gigs :)

OP posts:
BetsyBoop · 01/08/2013 21:07

kitkat I definitely remember reading somewhere that dexamethasone can cause high blood sugar in some people, but it almost always settles down again when you stop taking them, so I guess that's why the onc has cut back on them this cycle. Hope the nausea passes soon, feeling sick is crap :(

malteserzz · 01/08/2013 21:12

Does sound lovely gigs, I miss shopping not been for weeks !

Gigondas · 01/08/2013 21:22

Internet or plan a good week outing?

malteserzz · 01/08/2013 21:32

Will take dd when I feel up to it my chemo talk said go anywhere but try and shop when it's quiet ! Guess not primark on a Saturday then Grin
Have made decision to ring nice hair salon in town tomorrow which has a special wig room looks good on the net, if I've got to have one I'm having a good one sod the money !

BetsyBoop · 01/08/2013 21:36

Good to hear you sounding a bit more chipper today malt - hopefully a sign you are on the up again this cycle - the first week is definitely the worst.

kitkat1967 · 01/08/2013 21:44

KK I am taking the following -

Emend - once a day for 3 days;
Ondansetron - one tablet twice a day for 6 doses;
Domperidone - 2 tablets twice a day (have 30 tablets).

I think the ones they have taken were indeed Dexamethasone.

kitkat1967 · 01/08/2013 21:46

Malt - I am currently sat here with grubby hair covered with an 'elasticated bandana' - really comfy and much easier to wear than the wig - have just ordered another off flea-bay.
(no clever tying required - just pull it on).

malteserzz · 01/08/2013 21:48

Thanks Betsy I hope so and like you say if it is a low period of the cycle at least dh and I will be ready for it next time and know it will pass
How are you doing now Kitkat ?

malteserzz · 01/08/2013 21:53

X posted Kitkat I guess wigs are really hot in this weather !

kitkat1967 · 01/08/2013 22:04

Malt - I'm OK - sitting quietly - not able to eat but don't feel like I will actually be sick so it's bearable.
If I'm honest I was most stressed so far this morning and the nausea was quite bad even before we left home (not uncommon apparently) so was not a good starting point. Hoping for a better day tomorrow - thinking positive as cyle 4 next - then nearly done Smile.
Had a wierd experience with the cold cap as well as it was uncomfortable for the whole 4 hours so couldn't read or watch a film. Nurse thinks I will go bald on top but the rest of the hair looks good - I decided i was happy with that as can stick a hairband on and it looks OK so will persevere for now.

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