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Tamoxigang -the 39th thread ***

996 replies

MaryAnnSingleton · 04/07/2013 10:53

cooee ! we're over here - just in case the current thread hit 1000 without our noticing Grin Bring the trolley !

OP posts:
kitkat1967 · 26/07/2013 08:46

hi Malt - glad it's still going well. Did you sleep OK last night or were you up and buzzing at 5am?

malteserzz · 26/07/2013 08:57

NJ sorry you didn't get better news from the gp but hope you enjoy camping ( though enjoy and camping are not 2 words which go together for me Grin)
Kitkat woke up a few times but I did sleep, trying not to take the sleeping tablets feel I'm drugged up enough and I've been on them since may. How are you ?

kitkat1967 · 26/07/2013 09:21

Malt - yes I'm good. Am enjoying feeling so well and am busy using my time at home to get some jobs organised. Usually no-one is home during the week so it's nice to be able to arrange electricians, decorators etc.
I've reached the strange point in the cycle where I am keen to get the next dose done (am I mad!!). What I've found it that I do have a week of 'this is awful why do I have to do it etc...' but a week later I'm really keen to go again so I can tick another dose off!! I can hardly believe that this time next week I will be half way through.
No change in the lump though - I'm going to try to remember to ask the onc on Tuesday what will happen if there continues to be no change. Originally he said he would review and may try something different but I didn't ask about that at the time.

kitkat1967 · 26/07/2013 09:23

forgot to say I'm glad you managed to sleep - I really thought you'd be up with the steroids. You don't seem to have that many meds though so perhaps that is helping. Also maybe having finally done the chemo you are less stressed - the unknown is def the worst part.

BetsyBoop · 26/07/2013 09:27

trice that sounds lovely :) My DD is similar and would have really enjoyed that.

malt - you seem to be doing really well :) My sleeping patterns are all over the place for the first few days

notj sorry things didn't go so well at the GP. Enjoy the camping

Well I'm definitely starting with the hot flushes, phew, any top tips for coping with them? Onc did warn me that chemo is likely to tip me into menopause given my age (46) which tbh wouldn't be a bad thing as a ER+ team member. The good news is today I am anti-emetic free and nausea free so far anyway :)

BetsyBoop · 26/07/2013 09:30

kitkat I was a bit like that in the third week of my first cycle, partly relishing feeling well again and partly "I'm fine now lets get on with the next one" we are mad!

kitkat1967 · 26/07/2013 09:49

crikey Betsy - I'm 45 (soon to be 46) and since starting chemo I have had a period for the first time in years - got mirena coil but the chemo must be over-riding that somehow Shock. That's also on my list to ask onc about on Tuesday.
Anyway glad you're feeling well other than the flushes - but as you say it's kind of essential for your treatment.

Gigondas · 26/07/2013 09:53

No tips on flushes except cool room, shower before bed etc. I would be careful they don't mask infection as I was caught out like that.

Copthallresident · 26/07/2013 10:52

trice your day sounds lovely. It was my favourite day out with my girls, we have a great shallow river with a pond dipping jetty locally (I think I have mentioned it gigs the island in Crane Park nature reserve), the best fun to be had locally and it is free. The local alpha mums are so stuck in their cycle of endless extra curricular sport and music and summer camps that it used to be almost always empty, I took a perverse pleasure in taking their offspring there for some good simple fun, though sniffy looks when alpha mums handed, god forbid, wet wellies!! However be careful you may end up with a passionate biologist, it must be part of the reason why Big Copt is spending the summer looking at cells, it is certainly not genetic! However I built my own pond last summer and have countless frogs and I was thrilled to find a newt in their a couple of weeks ago. I also have sloe worms in my compost heap which is even more exciting Smile The girls and I often bond watching the frogs in the pond at night, before going in to watch Bridget Jones again Grin

Kitkat i had at least two humdingers of periods before they stopped during chemo. I think it just sends everything haywire. I was 43, and, given maternal history is supposed to be the indicator, heading for menopause in late 50s. I had two friends whose periods were not stopped by chemo, one 33 and other 40, so it isn't certain. And I have friends who went into menopause in early 40s naturally in any case. I carried on having the odd one, every 18 months or so, on Tamoxifen. Betsy I didn't have any symptoms of menopause until I came off Tamoxifen, I think sometimes it helps, sometimes it makes them worse. However I am now sweaty Betty in bed, cool bedroom, cotton pjs and sheets, a special cooling mattress topper, and good goose down duvet, mine splits in two supposedly for summer but for me generally, feb to November!! I haven 't really had them in the day though, I think you are supposed to avoid coffee, which I do because I don't like it!

I think the chemo is like childbirth, somehow your brain screens out the worst of it, and makes you quite happy to get on with the next one Grin

nj thought of you on way oop north, there was a convoy of camper vans, about 20 of them, painted all colours, in the slow lane Wink sorry you didn't get answers from GP.

gigs glad to hearing you sound so much better. American friend has gone off to charm all waiters, porters etc into submission in the countryside so will pm you. Bit scared of little gigs approaching with mouth open though Grin. Though possibly better than goon dogs nose thrust in crotch.

Day of cleaning and ironing here, feeling very hard done by that cleaner has selfishly gone on holiday Wink

Copthallresident · 26/07/2013 10:56

All of chemo gang. Do ring as soon as temperature climbs or you have any other symptoms. Do not sit at home nursing sore throat and feeling hot and cold for a day, not wanting to be melodramatic, that is how you end up in hospital for weeks, whilst they struggle to find anti biotic strong enough to fight raging infection and to bring up your white blood cell count. That was on A though which now seems to have been nailed as a culprit.

MaryAnnSingleton · 26/07/2013 11:27

Cooeee! Last day in Suffolk, so making for our favourite place at Walberswick... Yesterday was v nice, long hot day walking all round the RSPB at Minsmere...found a poorly blackbird and went to find RSPB person to assist, poor thing..had been attacked I think. Sat on the shingle at Dunwich afterwards...lots of folk swimming in the sea.
Hope all is well post chemo malt and as I can't follow ( or see MrGig's French pop ) everything apologies for not acknowledging people's posts... Back to normal-ish soon.

OP posts:
malteserzz · 26/07/2013 12:24

Copt will make sure I ring about anything worrying well will probably post on here too Grin your experience doesn't sound good
Still waiting to feel something here ! Just carrying on as normal till it does
Mas your holiday sounds like its been lovely bet it's done you the world of good

Copthallresident · 26/07/2013 14:06

malt Some people really don't get much in the way of side effects. Ask Amber, and I think there was someone else on her for whom life went on as normal. That would make you the fourth person I have known for whom chemo was like they said it was going to be in the nice shiny pink brochure they gave me when I started out Grin

kitkat1967 · 26/07/2013 15:07

another day another lunch out - this time with DH and DS as they are both home today so nice Smile

topsyturner · 26/07/2013 15:36

Malt I would say if the mad vomiting hasn't set in by now , them it's not going to .
You are a lucky lucky lady !
Enjoy x

malteserzz · 26/07/2013 15:57

I hope so but daren't count my chickens yet !

kitkat1967 · 26/07/2013 17:03

Malt - I also reckon you're OK on the sickness if it hasn't hit you by now.

Just watch out for the extreme tiredness - it doesn't hit me until day 3 and it lasts until at least day 5. I think Betsy got caught out with this this cylce. Mind you as I have to take 4 different lots of anti-sickness meds I don't what SE is from what!!

Rather wierdly I have just got some eye drops from the chemist as I have a red, sore and puffy eye (for the last 3 days) - she said it looked like an allergic reaction and gave me Piriton tablets and eye drops. I've never had an allergy in life - anyone know if this could be related to what the chemo has done???

Gigondas · 26/07/2013 17:07

It could be kitkat - I got a permanently runny nose on chemo. I would ask your team as they may be able to prescribe something better .

kitkat1967 · 26/07/2013 17:09

ah thanks Gig - will try this and if no improvement will check with someone.

topsyturner · 26/07/2013 17:13

Have you lost any eye lashes yet kitkat ?
Crap gets in your eyes so easily once they start falling out .

Copthallresident · 26/07/2013 17:28

I never lost my eyelashes or eyebrows, thinned a bit but not too noticeable. Down there thinned a bit too but anything that showed and my leg hairs continued to run rampant.......

smee · 26/07/2013 17:31

Sorry about not-so-good GP appt, NotJ. That must have been depressing to hear. Gig's mum's solution might be worth a go?

Trice, pond dipping sounds like fun. We haven't done that in ages. Smile

Yay for no sickness, Malt. That's brilliant. I'd say you're clear now too, as it usually hits pretty much straightaway. Smile

Kitkat, eye problem's probably because you're run down. The runny nose thing Gig mentions is due to hair loss as you lose the fine hairs inside your nose. Weird, but it means everything just runs out...

My lashes didn't go until I moved from FEC to Tax from memory. Very good idea to take a photo of your eyelashes so you can draw them back on, or I think some people get them tattooed.

My periods stopped at first chemo, so June 2010 and have never reappeared - I was 44 at the time and completely regular, so it was quite dramatic to go from that to nothing. I had hot flushes from that point on and still do, but not too sure if that's related to Tamoxifen. Definitely through though, as Onc tested bloods. Did you know Tamoxifen is a bone protectorate? Means even if you do have an early menopause it's helping prevent Osteoporosis. Smile

Gig, how are you feeling? Any less pain? Hope the little gigs are on full cute mode today. Smile

Ruby are things still improving there?? Really hope they are. x

Waving to all. In a mad rush as babysitter's arriving any minute and I haven't cleaned up the house. Also look a wreck and DH and I are heading out to dinner. Smile

BetsyBoop · 26/07/2013 17:49

kitkat one of the possible SEs of FEC is eye inflammation (I'm keeping a close eye (no pun intended!) for this as it could cause problems with my bleb from previous glaucoma surgery, but ok so far) - soothing eye drops are good :)

Gigondas · 26/07/2013 17:49

Eyelashes went after head but before eyebrows. I used eyeliner and make up to fill in. Only my leg hair remained at end..

Mini gig has just bitten big gigs bum but they are ok (if tired). I am not too bad - shoulder holding up well after Physio but hips a bit stiff so have retreated to bed for a rest. We are off to stay with friends tomorrow so don't want to be achy .

topsyturner · 26/07/2013 19:21

All my hair went .
Every last scrap of it .
Everywhere Grin

Gigs think you're going to have to have Baby Gigs fitted with a Hannibal Lector style mouth guard Grin