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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 4

958 replies

Ben10NeverAgain · 06/04/2012 19:43

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
fengirl1 · 04/06/2012 19:33

Pip - you have every justification in being worried about a bleed but do talk to the staff and express your concerns. I hope they can set your mind at rest. As far as bowels go, it's very common for them to go on strike but again talk to the staff. I wish I had asked more about that particular subject! Try not to worry and do absolutely NOTHING when you do go home. All WILL be well, and you should have a number to call if you are worried. Be kind to yourself. Smile

WhoKnowsWhereHerMajestyGoes · 04/06/2012 21:38

Just taking a quick break from the Jubilee concert.

Fen - glad you're starting to feel a bit better now.

Pip - if I was you I would be asking exactly what things you should be worried about, any questions about medication, what would be serious enough to phone in about, make sure you have got a phone no and know who it is you would be phoning, advice on what to expect toilet wise and anything specific (in my case for example I would have to ask about going up and downstairs as we have no upstairs loo and no way of sleeping downstairs).

I've got to start my three day urination diary tomorrow, got out my plastic cups and measuring jug, I bet I forget in the morning. My DCs are still young enough that we all wander in and out of the bathroom when each other is using it, think I might be locking the door tomorrow.

fengirl1 · 04/06/2012 21:56

Good luck Whoknows! You'll be fine!

surewoman · 05/06/2012 00:26

Pip - sorry you had such a nasty experience with the bleed. They wouldn't let you go home if they were concerned, so try not to worry.

I agree with what whoknows says. Also, ask if you can have a prescription for lactulose/movicol/suppositories or something to help you go as you will need to take it for while until things settle down again. Also, make sure you have painkillers to hand as you will need those and ask for advice on pelvic floor exercises, ie. when to start them, date with a physio, etc. Sick note and follow up consultation are important too... sure there is more I should suggest but can't think of anything right now. Good luck with getting dressed xxx

Piplysmelie · 05/06/2012 11:24

well you dont get refered to physio here how usless is that.

they seem very dissorganised about me leaving to be honest.

i will writemoree later but definately worth checking out aftercare at your hospital

surewoman · 05/06/2012 17:20

Pip - hope you are feeling ok and are back home again. Don't do too much and try and get lots of rest x

fengirl1 · 05/06/2012 22:08

Hi Pip, wishing you well for tomorrow. Smile

WhoKnowsWhereTheTimeGoes · 06/06/2012 21:46

Pip - hope you're comfortable at home now.

I've got my appt with the gynae consultant on Fri, I'm trying to make a list of questions but my mind has gone blank. What sort of things should I be asking him? I've got a rectocele which is very uncomfortable, it looks to me as though there's a cystocele too, also my cervix is quite low. No real continence issues, just feels as though everything could fall out!

fengirl1 · 06/06/2012 23:02

Whoknows - see what they intend to do an d if it doesn't address all of your issues ask why. Also check exactly what they will definitely do - I was supposed to definitely have a rectocele repair and didn't. Also ask about bm's - a big issue for some post-op ladies.
I'm off to the hosp tomorrow to see if things are now going as they should and to find out how all of the infection business has affected me (and to ask about vaginal length of which there doesn't seem to be much - I know because I've been using metronidazole gel), also to try to clear up the thrush I now have.....

fengirl1 · 07/06/2012 14:35

Sorry - me AGAIN! Now on antibiotics 6 and 7 and waiting for a scan appointment. Crikey this is a long haul.....

WhoKnowsWhereTheTimeGoes · 07/06/2012 17:38

Oh dear Fen, not surprised you've got thrush with that bombardment of ABs. What's the scan intended to show?

Thanks for your suggestions, I have been jotting down my questions as I fill in my wee diary, last day of that today.

fengirl1 · 07/06/2012 17:47

Good luck for tomorrow Whoknows. The scan is to see if there is a collection of fluid (for fluid read haematoma or abscess - do they think I'm daft?) as I have a very painful area that has been there all along. I would love to go along and be told there's nothing wrong and to go away..... They couldn't scan today but I think I will get an appointment quite soon - they asked if they had my contact numbers (or is this wishful thinking on my part?!) Let us all know how you get on at your appt. Oh, and ask if you will see a physio as this is incredibly variable! Smile

fengirl1 · 07/06/2012 18:15

Just have to add that after having a few tears at the hospital I was considerably cheered up to find that the pharmacy thought I had been prescribed 'virginal' cream! If only I could go back to that state so easily... Grin

WhoKnowsWhereTheTimeGoes · 07/06/2012 18:18

It would have avoided all this malarkey!

roseanna1 · 07/06/2012 19:37

Lol Fen can I have some too!

Just got back from gynae appt. Consultant was really nice and took his time explaining everything and made me feel like I wasn't the freak I feel like just now.

Anyhoo..said I have a rectocele after all, bladder issues more likely to be due to overactive bladder and will treat that separately with meds. Surgery booked for 19th June.

Kinda relieved and kinda scared at the same time ifywim....

Good luck tomorrow who knows :)

WhoKnowsWhereTheTimeGoes · 07/06/2012 19:45

Thanks Roseanna. Golly, that's quick for your surgery. I've been assuming I would be waiting months for surgery . Actually, the sooner the better really, I'm living with a lot of limitations at the moment and feel like an old lady. I want to get my life back.

I'm also bracing myself for telling my (male) boss about all this! I work for a small company, we all get along well, so far I have only told the female half of the staff about this, I am thinking I might just go for the tell everyone and we can make bottom jokes instead of being coy about it approach.

roseanna1 · 07/06/2012 20:10

I know whoknows...just about fell off the chair when he told me the date! It's being done privately through the work insurance so guess that speeds things up a lot.

Dreading telling work tomorrow that I'm stopping a week on friday. It's mostly women I work with so can be a bit more open about the problem, but they're quite an unsympathetic lot so not sure how it'll go. Good for you to have a laugh about it :D
It's all quite scarey, but like you I just want my life back so just want it done now if that makes sense. After tomorrow we might be surgery buddies :D :D :D

WhoKnowsWhereTheTimeGoes · 07/06/2012 20:25

No private healthcare here, a friend had this surgery with the same consultant last year and was told 9-12 weeks wait, so I'm thinking late summer. Not sure if term time or school hols would be worse logistically - my DCs are 6 and 8 and I'm the main carer. Luckily DH is self employed and very flexible.

I like the sound of a surgery buddy Smile

ThoughtBen10WasBadPokemonOMG · 07/06/2012 20:45

Oh Fengirl

I'm so sorry that it is still no better. I wouldn't be surprised if you do have a haemotoma if it has been this long now. At least they are taking it seriously now. Hope the scan comes through soon.

Just to give the rest of you a bit of comfort, I'm 2.5 months after surgery and the prolapse symptoms are now completely gone apart from a propesity to constipate still. However the poos are still straight Grin. I have no pain from the surgery anymore and that was after an infection (not as nasty as Fen's though :( ).

All the best. I don't post on this thread very often now but will pop in and say hello :)

surewoman · 08/06/2012 01:04

Thanks for the update ThoughtBen - nice to know there is a light at the end of the tunnel.

Fen - poor you!!! What can I say other than hope it all clears up soon. Try and keep positive, you will eventually feel better and it probably hasn't helped things with the worry over your mother and her op. x

Whoknows - hope all goes well tomorrow (probably today when you read this!)

Roseanna - my op is 22nd June so you may well just be coming out as I am going under the knife, Lol, so not quite op buddies but not far off. At least with your op date so soon you won't have too much time to think about it all. Regarding work, and telling your boss, I just told everyone that asked that it was gynae problems. Those that want to know more will ask for details Grin

Hope everyone else is ok - Nannsylv any news??

WhoKnowsWhereTheTimeGoes · 08/06/2012 11:04

Glad things are going well for you Ben10.

Just got back from my appt, had the uro-dynamics and the gynae consultation. They are going to book me in for rectocele repair, although there is a small cystocele the consultant advised against having both done together as he felt it might make the vagina too tight for comfortable intercourse. He said have the cystocele done separately later if needs be.

However I knew someone on here had recommended getting both done, and having scrolled back up to Surewomans post a few days ago I am feeling a bit worried. I might ring the consultant's secretary. Hmmm.

roseanna1 · 08/06/2012 18:54

Hi Ben10 -so glad you're doing well 'on the other side' so to speak. Lovely to have a good news story to cheer us up and give us hope so thank you.

Sure and whoknows- think we'll all be comparing notes :D

Fen - how are you feeling today?

fengirl1 · 08/06/2012 19:24

Whoknows - certainly worth a chat to set your mind at rest I think!
Roseanne - just be frank - if the people at work don't want to hear any more they will run away! I didn't go into minute detail but was very frank about what I was going in for.... Thanks for asking. I did phone ultrasound today to get an idea of when the scan would be -apparently they haven't received the request yet! I'm still not feeling good and have had a pain where I'm sore and strangely down my leg today.... However, this has all kind of gone on the back burner as dd1 went in to hospital today (luckily I didn't have to take her) for a treatment which all went pear-shaped as another problem was picked up which now means she had a different treatment and has to go back on Sunday and Tuesday for more.... Can't say this has made me feel any better.

roseanna1 · 08/06/2012 20:26

Lordy Fen...never rains and all that! Hope dd is ok and what she has can be fixed. It's awful when the kids get sick isn't it...my youngest is 17 and I still worry!

Can't believe they've let you go on the way you've been, though. Would've thought given the circumstances they would be looking to readmit you for iv abs and a fast track scan/ investigation to see what's going on. Obv. I'm no expert, but it does sound ridiculous that you're left to get on with it. Is there a patient's liaison or someone who you could escalate this to so at least you might get the scan sorted out quicker?

Re work - told them today. Just said gynae probs. Were less than sympathetic as I thought and only cared about who would cover my work. Any part of me feeling bad about being off for 8 weeks evaporated right there and then!

fengirl1 · 08/06/2012 22:01

Roseanna - I too work with people who couldn't care less as long as you're there but I was quite open about having to take painkillers / needing to sit down so they kept their mouths shut (I also lifted some stuff at work and made no secret of the fact it had done further damage). Ultimately I think you have to put yourself first and not worry - although I'm already feeling guilty about how long I've been off! (And rather sad that all my illusions about giving myself facials and pedicures have so far not come true...) Unfortunately dd1's condition while not immediately life threatening is life-long - and could significantly shorten her life. She is old enough to have control of her own medical care so all I can do is stand on the sidelines and try to help - very hard to do with a child of any age. The hospital have been made aware today of the huge impact it has on all of us so I hope they'll step up to the mark a bit in terms of making sure she's doing what she should to take care of herself. Not an easy situation, but ATM I can only do what I can and try to get well at the same time....Sad
Sorry for novel-length post!

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