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Any old prolapse! Uterus/womb prolapse, rectocele, cystocele, enterocele, urethrocele, incontinence, pelvic floor, anterior and posterior repair, TVT etc part 4

958 replies

Ben10NeverAgain · 06/04/2012 19:43

This is thread 3 of a long-running series of posts from ladies suffering from pelvic prolapses to support each other through the process of diagnosis, repair and recovery.

Here are the previous threads:
Thread 1
Thread 2

Info from BBC Health

What is a pelvic prolapse?

As the muscles, ligaments and supporting tissues in the pelvis become weaker, they are less able to hold in the organs of the pelvis such as the womb (uterus) or bladder.

Gravity pulls these organs down and, in the more severe cases, may appear through the entrance to the vagina.

A variety of problems can occur, depending on where the weakness lies and which organs are able to descend, but in every case there is some degree of prolapse of the vaginal wall, which begins to invert (rather like a sock turning inside out).
Prolapse of the womb or uterus is the most common prolapse, affecting as many as one in eight older women to some degree
Prolapse of the bladder, known as a cystocele, is less common.
Prolapse of the urethra (the tube that carries urine out of the bladder) is known as a urethrocele.
Prolapse of the intestines is quite rare, and known as an enterocele or rectocele.

Symptoms

Symptoms depend on which tissues descend, and how severe the prolapse is.

They may include:
A sense of heaviness or pressure in the pelvis.
The appearance of a bulge of tissue in the genital area, which can be quite alarming, and is often red and sore.
Urinary problems, such as having to urinate more frequently, feeling the need urgently, being incontinent (losing control of the bladder) or, conversely, being unable to pass urine when you need to.
Pain in the pelvis or lower back.
Sexual problems, including pain and decreased libido.
Constipation.
Vaginal discharge or bleeding.

Treatment and recovery

Once a prolapse has developed, surgery to fix the affected organs is usually the only way to cure it effectively.

However, another option is to use a device known as a vaginal ring pessary. This is rather like a contraceptive diaphragm or cervical cap. It's made of silicone or latex, and placed in the vagina to push back the prolapsed organs and hold them in place. Many women happily manage their prolapse this way.

OP posts:
Nannasylv · 02/05/2012 02:24

Thanks for the good wishes. I'm trying to be calm, but (quite honestly) inside I'm sg bricks! Hugs to all!
XX

fengirl1 · 02/05/2012 07:06

Nannasylv - I've got everything crossed that you get some sensible answers AND a way forward today. If you don't, look the consultant in the eye and say 'Would you be happy with that if i was your wife/mother?' Good luck. X

gottagetthroughthis · 02/05/2012 07:28

footle - how long did you wait till you had the op - i am tryin to manage this doing my pve but don't know what happened but when i sit down now feels like somthing up my back passage (TMI!!Blush) Help! is this rectocele probs or piles?? doc has no idea!Confused

Ben10NeverAgain · 02/05/2012 07:31

Hi All

Good luck today Nannysylv x

Hi Gotta

Littlefish Power to the Laxido Grin I am now a regular daily poo-er

Well I'm 5.5 weeks post anterior/posterior repair. Feeling good. Am back to normal activity levels (albeit my activity levels are lower than most normally!). 6 week check up on Thursday at 6. DH is desperate for the green light to try out the new model Grin. I'm not so certain but I am v surprised at how little he has moaned about the lack! We shall go slowly and see...

i'm still concerned going forward about lifting. DS is 27kg and has ASD. I will have to lift and restrain him both for his own safety and to ensure that we get to places/leave places when he is refusing or in meltdown. Sometimes there is no option. ie yesterday we were going to see the paed and as he didn't realise that DH was coming he refused and went into one. Only way to get him to come.... oh well - I'll see how we get on!

OP posts:
Ben10NeverAgain · 02/05/2012 07:35

Gotta Have you been referred to a gynae? It could be constipation?

I was told that I would have the op within 18 weeks of being referred on the NHS but as I had private insurance I went with them and had it within 5 weeks of seeing the GP and that was with a 3 week wait to see the gynae as I saw him initially on the NHS. I was told that there was no way that mine would go away with PFE or even get better. It might keep them from getting worse.

OP posts:
Littlefish · 02/05/2012 09:03

Probably - that's so interesting about the olympic gymnasts! I feel so much better now. :-)

Ben - maybe we could start an offshoot of the "fallen fanjo" club "The daily dumpers" Grin

Nannasylv - good luck today. Let us know how you get on.

Ben10NeverAgain · 02/05/2012 11:17

Little is this the emoticon for the daily dumpers Shock

OP posts:
Littlefish · 02/05/2012 11:32

Grin Grin Grin

Footle · 02/05/2012 12:15

This reply has been deleted

Message withdrawn at poster's request.

Footle · 02/05/2012 12:15

This reply has been deleted

Message withdrawn at poster's request.

3isthemagicnumber · 02/05/2012 13:13

Good luck to those with appointments -hope you get the answers you need.

Having seen my consultant again yesterday , I am now properly and actually having a rectocle and cystocele repair on weds June 13th so 6weeks today !

Feeling relieved it's going to happen but now more worried about impact on family.....practises calm looking face for when forced to sit within inevitable mess and chaos

Littlefish · 02/05/2012 13:16

3 - just keep your eye on the big prize..... The day you join "The daily dumpers" Grin

Ben10NeverAgain · 02/05/2012 13:40

Yes, you get promoted from the Fallen Fanjos (((8))) to the Daily Dumpers Shock

Grin Grin

OP posts:
gottagetthroughthis · 02/05/2012 13:51

Ben - no am taking Movical and BM really easily - thought this was a progression of my rectoceleBlush not sure am very naive bout this atm - thing is how long does the op last or does that depend on what you do etc etc
love this thread Grin

Nan - good luck will be thinking of you

3 - at least it will all be over u soon

Ben10NeverAgain · 02/05/2012 14:14

My op itself was 1 hr for both cystocele and rectocele. I was in hospital for 4 days - my body is crap with recovery Grin. Many are out within a day or two. I'm 5.5 weeks after surgery and feel back to normal now.

OP posts:
Footle · 02/05/2012 14:58

This reply has been deleted

Message withdrawn at poster's request.

3isthemagicnumber · 02/05/2012 17:20

Thanks all.
Down to all the fallen fanjos. United our bits will rise again .
Huzzah!! Grin

tazzle · 02/05/2012 17:22

(((nanasylv)))

Nannasylv · 02/05/2012 18:29

Hi folks. No answers, he can see a rectocele, but it isn't bad enough to cause all the pain and other symptoms (in his opinion), so there's no point him repairing! He doesn't believe there is another channel running alongside my rectum, as he can't feel it. The mucosal fold is not worth worrying about. He asked had anyone mentioned irrigation? Has anyone done a transit scan (mouth to anus)? The pain can't be anything to do with what he can see on the scan. Everything must be coming through the same channel, despite being different diameter, texture, and containing stuff I haven't eaten in months. He doesn't see any reason to do a stool test, if there was anything sinister, it would definitely show on a scan. I want to scream and cry, but what would be the point? He is going to order a transit scan (can anyone give me any information on this?), and a test, at another hospital, to see how the muscles in my bowel are working (any info. please?), so I'll be waiting again for those. Meantime, there's no diagnosis, and the pain continues. I'm so down, and so angry. I just want my body working normally, and my life back.

Ben10NeverAgain · 02/05/2012 18:42

:( Nanna

Any idea how long you are going to have to wait for these other tests :( This has been going on so long now. Have you at least got some good painkillers?

OP posts:
tazzle · 02/05/2012 19:15

I am so sorry nannasylv that you still have no diagnosis. One of the problems is that they are looking for things that they know about, things that are more usual ... because more usual is what is more usual iykwim.

If it is something they don't have knowledge about and can't explain or they cannot find what it is by the tests they have done then not being able to make a diagnosis must be kinda unusual and they re trying to fit your symptoms to something that makes sense.

The saving grace for you is that at least the docs are still offering more detailed tests andnot just saying they cannot help.

I can empathise with the not getting a diagnosis ..... when I was 19 I was investigated for an eye problem that was unusual and I had tests for loads things they thought it was including a pituitary tumour. At one point someone thought they knew what it was and told me to prepare for getting a guide dog Shock . I then was refered to London to see top eye specilist and had days of all sorts tests ..... . students queued to look at my eyes.Grin

Was given a diagnosis but when eyes got worse and I went to birmingham (had moved) they disagreed with that one and said summat else *sigh ) although even I disagreed with this one as solar burns do not deteriorate of affect other eye years later !!!!

Roll on the years and whilst sight not great I still do not have a guide dog !!!

Sometimes they just dont know. I am sticking with macular degeneration even though I should by rights not have had it at 19.

Hang on in there ......

Nannasylv · 02/05/2012 19:16

Hi Ben10, I have Fentanyl patches (saw, on Silent Witness, they are 80 times stronger than Morphine, and they only take the edge off the pain!), as painkilling tablets constipate me. I know it's been developing over 16 years, which is crazy in a developed country, and for me it's been a blight on my life, but it's not urgent, in their opinion, so I'll just have to go to the bottom of yet another queue. My husband, and I, keep saying they won't find it until they get to post-mortem stage. Sick sense of humour, but it shows how little faith we have left!

Ben10NeverAgain · 02/05/2012 19:19

Ouch. That must be terrible pain then for Fentanyl to not be working. I wonder whether it is nerve pain as that affects me very differently to other pain. There are lots of drugs that they can give you for nerve pain if it were a possibility - anti-depressants and anti-convulsants (I'm on both). For me nerve pain is a burning pulsing pain.........

:( :( :( for you

OP posts:
fengirl1 · 02/05/2012 19:25

Oh Nannasylv, I'm sorry Sad.

Advice please! I'm in a right panic - know I need a nightie (obvs) but pj's too? Or trackies and top?? Clothes in and out sorted, just the in between bit I can't get my head round (not surprising after days of sorting out work and marking til all hours, arranging for cats and children etc.) Sad

tazzle · 02/05/2012 20:24

i took one pair pjs for when catheter came out Wink ....I hate nighties