TAMOXIFEN ****20****

[KurriKurri]

Hello ladies, - just taking the plastic wrapper off a brand new thread

Ah Ned, that's sad news. I hope the end was peaceful for her.

Kurri, Falls Clinic sounds like a sitcom.

Amber must be v.unnerving. Hope medics have some reassurance for you.

Hello all, have had a quick read of thread will do a more thorough one after dd to bed.
Been a busy weekend, more training walks , 10 miles in wind and rain this morning. And first day back to work tomorrow! Feel very well physically. Will take care not to burn out too quick tho.
Amber, your heart thing sounds v strange,is that a s/e of treatment did u say? What a lot to deal with.
Gig I had a DS who loved sleeping only on me, I spent a year doing nothing! He's 18 now and would cringe at the fact that he was a mummys boy. It is so tiring tho.
Anyone got snow? It's forecast here. Will b a fun walk to work if so!
Waves to all..fbs - dds bday cake (gigantic chocolate hedgehog!) X

hugs for ned - very sorry about your dad's cousin
holsten hope work is all ok tomorrow -take it easy though.

Sorry to hear about your dad's cousin, ned.

Holsten, are you going back full time or are they phasing you in? Well done on your walk :)

Been runnng errands for Aunty this afternoon. Up to her house to check for mail and walk to the Spar to top up her phone. Saw a steam train on the way back, and smelt it, so that was a treat!

Hello - may I please join you all? KurriKurri sent me ;)

I didn't have breast cancer, but a rare form of ovarian cancer. It was very curable, but I had to have my right ovary removed, and two rounds of BEP chemo (the type they use on testicular cancer) which was indescribable hell. That ended at the start of last November and now I just have regular check-ups, but it shouldn't come back.

I have a DD who's nearly 2. My fertility doesn't seem to have been affected, thank goodness, and we have some frozen embryos which we made before chemo, just in case.

I have up and down days, but the down days do seem to be decreasing now.

Anyway, hello :)

Hello sky blue. Sorry you are here (ifywim) but you are most welcome. Glad to hear that prognosis is good but I bet the new normal (ESP with the ttc issues) must be hard to get your head round.

I am currently midway through treatment for soft tissue sarcoma (had the op , waiting to start radio) so not all of us here have bc. I also have little dc (dd1 is nearly 4 and dd2 is 6 weeks - so have had an interesting time of it).

Hi everyone else- il visit not too bad. Mil only moderately mad (she has memory issues which makes for some comic as well as sad conversation) and dd2 duly cooed over ESP by ail. But knackered now (and no neither dh or I really knew it wa Mornjng earlier ).

Holsten good luck tomorrow.

Ned/amber -how you doing ?

Will put dairy milk on FBs trolley .

Good luck for first day back at work Holsten, - you've done real well pace yourself and take it gently to start with, - mind you with all your walking you are probably fitter than anyone else there!

hope your DD had a lovely birthday, - I'd love a slice of hedgehog cake - did you make it? >

I'm having a lot of what I think are tamoxifen aches and pains at the moment. Especially in my legs. My legs feel about 90 yrs old some days. Very annoying [grr]

Sil that should be- curse you iPhone

And Ned I am sorry for your dads cousin and hope you are doing ok xxxx

You have done really well. tsk.

Hello Bluesky - welcome, - I'm glad you found us

Hello Bluesky, sorry you've had such a tough time. Cancer's cancer no matter what type you have. Utterly terrifying in every way. Stick with us now you've found us.

Gig, I remember now my DS sleeping on me like that. I was beyond tired..! How on earth are you doing it?! Hope she lets you get a bit more sleep tonight. Does midi-Gig sleep through okay?

Kurri, aches and pains sound mighty annoying. Combination of Tamoxifen and the time of year is definitely not good for feeling sprightly. We need spring.. Might start a chant.

Midi gig is pretty good at sleeping.

The answer on coping is just about- I can sleep when midi in nursery on days nanny here. I worry for dh - although I do as much as I can at night he still gets woken at times (he won't sleep in spare room although can see that changing). Midi was same at this age and part of issue is that she too hated the Moses basket so am
Hoping a nice comfy cot helps. The other thing is its a growth spurt so I think need to Feed adding to the mix.

Blue- Agree cancer is shit and scary but so are a lot of other things and we can help each other live through this .

Hello all. Have read all and would love to comment individually but impossible! so will just hug you all (especially jane and amber) and wish everyone a good week.

DS1 played his clarinet in a school concert on Friday evening. They had to wear white shirts and black dicky bows (boys anyway) and looked gorgeous. Lovely evening.

We had snow today - in fact it 'poured with snow' for a while.

I reversed (slowly) into a neighbour's mother's car this afternoon when exiting our drive - it was parked on my exit route and not in rear view mirror due to slope and bush. Not much damage done but I burst into tears when I went to tell them . Am just so emotional these days, that wouldn't have happened before. Both cars just have scratched paintwork (my bumper caved in then popped back out again) so am hoping to sort it out without involving insurance.

Smee you beat me to it - brain was boggling at idea of Falls Clinic and coming up with same sort of images as you!

And big hugs for Ned and Topsy (you ok?) and new legs for Kurri x

Lime, am still laughing at old ladies being hurled onto crash mats. Kurri, that version's way more interesting.

Gig, we got so tired when DS was sleeping on us that we did something ridiculous. We picked up us, DS and a two man tent and trotted off to a small field somewhere in France. He was about the age of your dd and strangely it worked and was bizarrely wonderful. We'd chucked excess duvets and pillows into the car and sort of nested. DS slept in the moses basket under the trees during the day so we dozed alongside him and then at night, well it didn't seem to matter as much. Happy memories, though obviously am not suggesting you run off to France in a tent..

welcome to skyblue - stick with us !
LJ I think I'd cry at the car thing - hope you are ok xxx
hooray for ds and his clarinet
jane real steam trains ! I like that coal-y smell- we have the Watercress line running from our station which is not far from our house- you can see the steam and hear the engines puffing away.

Hi everyone, just popping in to say hello to everyone and its great to catch up with whats going on.

Here is a link to a website with lots of information which I have found really useful and hope some of you find it of interest.

breastcancernirvana.co.nz

My recovery is slow, having lots of side effects from drugs and it is starting to get me down. Am really grumpy and getting depressed which isnt good. My body hurts so much and doesnt seem to be getting better, I feel worse now than when I left hospital. I just need to change my attitude and get positive again!!!

Hugs to you all

Positive attitude is easier said then done IAm Seeing Stars but good luck with it - it is not surprising with all the treatment you have had you are feeling down.

Holsten - hope you have a good day back at work. I am finding it a sanity saver being able to go into work even if I am not accompolishing as much as I would normally. Luckily I have a very sympathetic boss. I am still waiting for my back to work appointment with occupational health - they are not very efficient.

Amber - hope you can get to a doctor this week to check-out the heart thing - it sounds extremely worrying and not something to ignore.

Welcome - skyblue

Ned - hope your feeling less down this week. Been having a few weepy moments myself. The behaviour of my dc has been diabolical lately - I suspect triggered by myself being tired and grumpy too but something I could really do without.

Hope everyone else has a good day.

stars am sorry it's proving to be a long and hard slog for you- you've had a massive assault on your poor bod though - hang in there-thinking of you xxx
Waves to oneineight !
Lots of luck today holsten

Am sending off some work today,then collecting my girl to mind.

Yup, making my way to specialists pronto, especially since I'm due another herceptin dose tomorrow and want to know whether we should go ahead with it or not. Found out that ibuprofen can also cause heart fluttering thingy and I take that sometimes for my arthritis ('cos there aren't other tablets that work). So possibly it's adding to the herceptin effect and causing this. Do I want to have bad arthritis, heart problems or cancer? Apparently, unless they tell me otherwise, I have to pick one

I need tea. Anyone else want something whilst I've got the kettle on?

The trickiest thing in a way is that I run a company, and I'm supposed to be The Answer To All Things and able to cope with all the crises, and frankly after this lot what I want to do is hide under my desk and not come out. My confidence is rubbish. Gee whizz. Just thinking out loud rather than hoping for solutions, really. Anything we do has to be longer term as there's no way I'm putting jobs at risk.

Skyblue - welcome from me too. I'm normally cheerful so apols that you've found me on a bad couple of days. Brew of some sort for you?

OneinEight, was wondering how you were. Very tough to keep things on an even keel through chemo - even without the weepy moments you can't have a lot of energy. Hope now weekend's over you can have some time for you. Are you rising out of it all again?

Lime, hope you don't have to claim on the insurance. So very easy to do that sort of bump. I'd have wailed too am sure.

Hello again Stars. Thanks for the link, I will have a look. Sorry you've been having such a tough time. MAS is right, it's a heck of a thing you've been through so will take time. I read somewhere (can't remember where!) that after huge amounts of treatment people quite often have a dip then get depressed. Something to do with you having put everything into getting the medical side, then expecting to be normal, so it's very tough when you're not. Come here more often and let us distract you. xx

Amber, blimey I suppose Arthritis out of that not at all desirable list. Hiding under desks sound sane to me. Skive off work and go for a walk in the wind, then curl up on the sofa with a good book or DVD - I'd bet that's something you never do as you're always so busy.

Ned, you asked about hair - I think about day 14 I had a shower and noticed it coming out in handfuls. Lots of people say their scalp hurts too, though mine didn't especially. It's quite a moment, but somehow easier if you're expecting it. Invest in a drain guard for the shower/ bath/ sink..! Hope you're feeling okay today.

Ramble, ramble. Had better do some work. Hope Holstein's okay on her first day back and not overdoing it. MAS is your voice back? Huge pot of coffee on the go here for anyone who wants it.

I curl up with a DVD and a warm hubby every evening for a few hours . Heart chap will see me on Friday.

That's a while to wait, Amber. Don't over do it 'til then.

morning,hope the weather is less dreary where you are.
I have spoken to gp and am going in to let her have a feel at 12.
Feel calmer today,but obviously I have to get this looked at even though I feel like a hypochondriac.I really don't want to be the boy who cried wolf but with 4 kids I can't ignore it,just in case.
Think I will tell dh a few days before the breast clinic appointment so he hasn't got to worry for as long and he will have chance to organise things to come with me.I don't think he would be pleased if I went without him.
Thats assuming I get referred.(sp?)

Thank you for keeping me company.

l4k, that sounds like a good plan in terms of your DH. Hope GP appt is positive though.