To anyone struggling right now...

[Notgettingbetter]

... I'm sending you a hug (or some other equivalent if a hug is not wanted). You can get through this ❤️

[quote goldenochre]@OnwardsEverStridingOnwards I have been my bravest here in this group

So I am saying be kind to yourself, don't go if you feel anxious or if you do have to, block out everyone mentally and do it. Its easier said than done but you feel strangely calm and weightless

X[/quote]
@goldenochre Thank you for your message. It's an 'assignment workshop.' Which means everyone will be tapping away all night. My hands have been bad this week, so I'm going to work from home, I think. I received some new typing gloves for Christmas, which will hopefully help a little.

❤️😘

Hi all,

Not having a very good day today at all.

I've just completely lost it with the doctors. I've been having burning sensations in my legs and am still feeling exhausted. My head has started getting really fuzzy, too.

They've referred me to a neurologist, which is great, but of course I still don't know weather I've got fibromyalgia or not, because the doctor who's been dealing with my case 'isn't an expert' she's a bloody doctor!

So, I have to go all the way to my nearest town so that they can tell me, but they don't know when that'll be.

Meanwhile here I am, in terrific pain and wanting to die.

The doctor who I had the appt with asked me what I wanted for a solution, so I asked if I can go to another hospital. Apparently I can go private.

I can't pay for that, I can't work and I'm on universal credit!

So then I asked if she, as a doctor, could tell me If I had fibromyalgia or not. She said she couldn't tell me.

There's no appointments in the hospital I've been referred to. I've had enough. I feel like I'm wasting away and by the time they do deign to see me I'll either be in a wheelchair or dead.

Hope everyone is OK.