Hi ladies, finally got time to sit down and write an essay!
I rang my GP first thing and managed to get a phone appointment (took 171 calls but hey ho!)
Whilst waiting for this I called Radiology to ask when I was likely to receive a date for the MRI, only to be told there was no request for one...the doctor hadn’t done it! 😡 I was pretty upset and rang the ward and spoke to the lovely HCA who did my bloods on Friday and she promised to speak to the doctor
My boss came down to see me during this and was really nice about it and suggested we ask one of our consultants to review my scans and put in an urgent MRI request which he very kindly did (I work in a role similar to a medical secretary in the main hospital in our city...ironic given my health anxiety, I know!). He wasn’t concern about the scan report and said if he’d received it back for one of his patients he’d have requested a routine gynae follow up but as he could see how upset and anxious I was he was happy to put it through as urgent
I then spoke to my GP who was extremely unimpressed with both the discharge summary she'd received due to inaccuracies on it plus the way things were handled, the vague and anxiety provoking info I was given before being discharged and that the MRI request wasn't done
She was lovely and spent ages explaining the blood test and scan results and really reassured me. Due to my job, although I'm not medically trained I do have a reasonable knowledge of medical terminology and she went into great detail about what everything meant and why they were positive signs
Basically my CA125 is 13 which is well within normal range and the ultrasound scan suggests a benign endometrioma based on the fact it is a singular cyst with a uniform appearance throughout and has no blood supply to it. I still need an MRI to confirm but so far the signs are good. I do have some fluid in my pelvis but only a small amount and this could also be endometriosis related
My GP actually called me back later too and said she'd since spoken to the nurse on the ward and aired her concerns about how I'd been treated and to ensure I'm definitely scanned in the next 2 weeks she's done a 2WW referral to cover all bases in case my consultant colleagues is rejected as he's not a Gynae
So, tentatively good news. I'm still very anxious but I feel a lot better now I have some results and know a plan is in place
Thank you all for thinking of me today 💗