Parents of anxious kids/teens support thread(part three)

[Stilllivinginazoo]

Filling up a second thread,here's a new one to keep that support running!

This thread is a supportive,non judgemental space for those who have anxious children,or care for children with anxiety

You can pop in and just offload,or stick with us and share ideas etc

Caring for an anxious child can feel like it dominates your existence and drains every last drop of energy you have,and the sadness of watching your child's distress can be overwhelming.only those who have lived it truly understand that

We also love to hear successes.it can be hard in real life sharing something you are proud of your child achieving if others do it as standard.we get that and it's good to have somewhere where people are pleased for those little wins

You are no longer alone

Apparently not day highly subscribed course and they probably can pick and choose who let do it
She's angry did all summer work for nothing

day you need to remember that's their child,and for them it's exciting and they want to show how proud they are.your child is no less special,regardless of where in his life path he is right now

DD has no idea what wants to do,it's a lot to expect if you think about it....we have meeting with school at 12 today to discuss options

Congratulations to DS' Day and DD Zoo.

Zoo Sorry to hear despite brilliant results DD2 is disappointed and can't go on to do what she wanted. I hope today's meeting goes well. Out of the subjects you listed, I think the first 3 go best with English and History, with sociology being the closest to psychology. Does timetabling allow DD2 to consider the other English?

While I feel sorry for you and DD, I understand needing a 5 in Maths. Otherwise the Maths content, particularly stats, may be a struggle with a 4, especially a surprise 4. It wouldn't be helpful for the school to allow her if she would struggle.

Day I'm glad DS is willing to try ADs. I saw your other threads.

Day agreeing to take meds is a huge win!

Oneshe decided on sociology in the end.we went into school masked uphad gel hands and teachers were behind perspex screens
She is beyond anxious about returning in sept.soesnt think she can do it.we will just have to take each day as it comes.im livid camhs still haven't given us the medic call which will give her some meds.we been wait 4weeks now.in that time she could've got past any side effects and be stabilising a little...
Any idea whom I can contact to chase that up/rant a little?

Zoo DD2 managed to attend yesterday, that's a positive you can remind her of when she is stressed. She was anxious, but she did it. Sociology is an excellent choice.

You could ask the GP to chase CAMHS up, or you could contact CAMHS direct (either whoever DD2 has already had contact with, a general contact line or the head of service). I would focus on DD2 deteriorating, it is that that will get her an appointment sooner. Did the SEN support worker get in touch with them?

Day I am surprised you got the medication to start so soon after DS decided to try them, and very surprised he didn't first have basic obs and bloods taken and possibly an ECG. That is rather remiss of CAMHS. With ADs things often get worse before they get better.

We were supposed to be going away today for a week. I know we are lucky and it's nothing in the grand scheme of things but it's still disappointing we've had 2 holidays cancelled this year.

My daughter started fluoxetine at the end of June and her anxiety did increase initially but within a week there were really noticeable differences. She’s younger and only on 10mg but it has really helped her access therapy and she has transitioned back into school very well. She was anxious but nowhere near as bad as before. @DayB1Day I really hope it helps your DS. @Stilllivinginazoo I also hope things move forward with meds for your DD.

Roxie that's wonderful news

Roxie that is brilliant.

Day I'm glad you've had obs and bloods done. I only mentioned it because most CAMHS wait until a decision to start medication is made because obviously obs and bloods can change over time especially if DC aren't eating properly.

Zoo I hope DD2 isn't too anxious today.

Melatonin starts to work about 1/2-1hr after taking it, but only when taken alongside good sleep hygiene. It would be inadvisable to start both ADs and melatonin at the same time, because you wouldn't know which one benefits or side effects/adverse reactions are attributed to.

Yesterday DS2 reminded DH that he promised they (DS2&3, DH) could camp in the garden for at least one night. I prefer an actual bed! They then went kayaking this morning - we have an inflatable kayak they are enjoying using.

During the week we are going to the beach one day. Although the weather could be better. DH, DD2 and DS2&3 also have go ape booked, DS1 wouldn't cope so I'll stay at home with him. I need to take DS2&3 for school shoes too. Other than that we'll be staying at home or just going to local parks/gardens because I'm still nervous about the potential risks to DS'.

Hi guys, hope your all well. Just wondering is it normal for a 6 year old with asd adhd ocd anxiety and separation anxiety to be refused mobility on dla zxx

Dolly for a child with DD's needs I would expect LRM. You can ask for a mandatory reconsideration. If you do, be aware that the award can go down as well as up. Personally, if you have HRC I might be tempted to leave it, if you have LRC or MRC I would challenge it, especially if you have worded the form right and have evidence.

I hope everyone else is OK.

My friends mum is a decision maker for DLA and she told me I should of recieved lower mobility. For her social anxiety, rigid in public, panic attacks when out and her ocd. Were if she has a compulsion to run back in the road for example, then she will regardless. She got middle care

Hi guys,hope everyone's doing ok
Been very Not Good here..
Dd2 is all but constant state panic.she is no longer able to distinguish if she's hungry,won't sleep til she literally can't stay awake another moment and has multiple huge panic attacks throughout the day.i know it's to do with school returning.every day she panics a tickle in her throat etc is covid,yet we have been ultra careful only walking in open air and shop locally in masks so I'd be exceptionally surprised if she could get it.once back in a school of over 1000+ per year without masks etc she will be beyond unmanageable over it.my anxiety can't cope with how high hers is and as she kicks off evetytime has try to eat I can't eat either...
I tried two big walks.sunday we walked 5 hours along canals and round a lake.yesterday we did 6hours,taking in two local villages,skirting part of a stunning reservoir,and then onto a lane that runs between rolling countrysideand onto a cycle track that runs where a train line used to be.we arrived home and I expect her to be too tired to kick off,but alas overtired seems to worsen both her and D's and he refused eat dinner and was get tearful by 10pm.i regret exhausting myself trying just tire them out to gain a bit of respite

Today's plan
Ring camhs consultation line and chase up dd2 medic app,if no joy ring g.p and get them to do it.sort out what we can do with her counselling at camhs as she's totally lost trust in worker had

DS a mess fearful of returning to school.hes now been out approaching 2years

I am beyond exhausted,anxious,and my depression us looming.not good signs before we even get into dark winter months.it seems without tight lockdown I simply cannot have enough quiet time to focus on doing things for myself/looking after me properly.i just slip off the end of the to do list

Sorry for the whine

Zoo Fingers crossed you get somewhere with CAMHS. I hope you can find time to rest today, otherwise you aren't going to be of use to anyone.

When overtired DS' can be a PITA, it definitely makes DS1's anxiety worse too.

Dolly With MRC I would ask for a MR because it's unlikely you will lose that, and if you do, tribunal are likely to reinstate it. Do you feel MRC is accurate? DD has night care needs too doesn't she? That would suggest HRC.

Miserable weather today.

@1hopforward2back yeah she has night terrors, panic attacks, sleeps walks. I sleep on her bedroom floor. There has been extra evidence since they made their decision, she has now been seen by camhs.

@Stilllivinginazoo My sister struggled really bad with her anxiety levels in her teen years, multiple suicide attempts, private schooling, home schooling and medicating from 11. She left school at 14 because she could not cope with the stress. I know I'm not being useful but just to let you know it was a hard few years, she is okay now with 2 beautiful children and just turned 30.