Keziah, City, Choc et al support thread

[Keziahhopes]

Hi - found us a new home. Just didn't like the title of my old thread - and have found your support so helpful but would also like this thread to be less egocentric .

Choc -hope cbt assessment goes well.

City - how are you doing?

My physio exercises are helping me, but don't see stroke consultant until beginning of July. Still not had OT assessment, but dont' think will need it by then - just been horrible for dh to do everything for me since Easter. Now more independend - just had my first shower by myself!!

Sorry forgot to thank dr city apologies for bringing her out of retirement . Will take your advice and report back tomorrow

Really enjoyed your post last night , Choc - I shrieked at your slow-acting plant food and fast dd , but my matchsticks broke before posting , sorry . Hope you're not too exhausted today , and that Keziah got a decentish sleep , with baby son napping in pram .

I was pressing send on this when had to leave house earlier , and indeed it didn't post , argh
Especially good to hear you've getting some time outdoors and diving back into weeding , the invincible foe . Brilliant to hear dd is so well recovered, Have you got any seedlings ready to go out yet , Keziah ? Wheee, your cosmos & peppers can get used to the outdoors , Choc ( I give them a few hours out at first to acclimatise them)

I must check which mountain I was muttering about the other day ...definitely not the ironing on , though I will get a board when I can

Thank you Choc for putting up with the fretful ministrations of old dr city ... I fear GP protocols don't allow her to investigate in dept in depth unless you've been several times with same issue - I feel really guilty nagging you about this , as she might assume it's the Vit D deficiency / mh struggle , which is not totally unreasonable but wouuldn't want you to feel not listened to

Hope the note and prescription stuff went OK , and you are on those Vit D drops .

Teeth are reslly interesting , aren't they - at yours shifting about ! Me too - I need numerous visits & registration at community dentists has probably lapsed ( during time trying to recover lost confidence , that is ) They were excellent , but I can't face them again as was so depressed & childlikke when they first knew me that I feel humiliated to go back (Don't forget to make the most of your maternity exemption with all that , Kezah )

Lots of progress with scary stuff here, but it's years of backlog so at best I'll still be saying that when Choc's dd is a MNer < looks forward to Gransnet >

< cloudy lemonade & dainty biscuits >

Hey - am going to dentist this week !

Oh had an amazing night sleep as baby son slept all night through - yay! My first full nights sleep for 12 weeks or more!! He is currently wide awake, gurgling away and having tried for ages to get him to sleep have given up - he is gurgling away, his latest "thing" trying to say "I am too cute to go to sleep!"

Dh is trying to teach ds to say "daddy" right now - mm, he is bright and alert but not that advanced yet silly daddy

Glad dd better choc and that you have that appointment to do the application. Loved your post about your gardening.

Futuredream was it the "cleaning" mountain?? I think when it is so sunny, time outside beats housework any day!

< heartily agrees baby son too cute to go to sleep >
Aaaaaaah , I remember elder niece telling calling her father "silly Daddy" often as a toddler What a lovely mental picture I now have of your Dh trying to teach son to speak < sniffling at silly Daddy >

Yaaaaaaaaaaaay at night's sleep- fabulous to hear , very surprised - good sleep "training" from his Mum.

Yes , been annoyed with self all evening notto have waved pompoms at your fabulous volunteering decion - internet went down- your work mentor must think very highly of you .Hope nothing too stressful at GPs , and had some calming outdoor time , if was possible

Thank you , Keziah - was indeed cleaning mountain!!- still unscaled < gets out sunhat and book >
Peaceful night to us allxxx

Ok baby son in bed by 10.30 - and he is curled up in the bottom of his cot with his right leg vertical against the end of his cot - wake him to make him look comfy or assume he got like that out of choice, so leave him and ensure he sleeps!

Decision = let dh decide!!

Beautiful sunny day, persuaded dh to work flexibly by 4pm and to go to a park for a walk by a lake!!

Hope all enjoying the sun and not getting burnt!

< waves to Keziah and Choc >Aaaaaaaaaaaaaaaaah at
eccentrically-positioned baby son. What did Dh decide to do , I wonder
? Hope you are OK and dc not too uncomfortable in heat ...often wonder what babies think when season changes dramatically for the first time ever, for them. Family walk with Dh sounds blissful

I read your joyous post ages ago now , but lost internet again before could post - big pipe fitting in road
Hope dentists , and all appts have gone well - am making lots more here , I promise
Argh at all the things I am having to apply forto get turned down but can say was refused

Hope you had a productive session trying to do your volunteer application , Choc- you'll be amazing at that , just who I would like on the other side of the desk for my next appt - but don't expect yourself to go straight into lf that types of succh demanding work till either feeling a bit stronger physically , or prepared to have to ask for a day or two off if not up to it yet .

Have minor ailments this week and glorious warm weather means I've lost about 2/3 of y "strength" < sulks and dozes alongside cat > but I love this sunshine

If either if you go past garden centre this week , I found wilting veg plants in reduced section much cheaper than previous years ( not justifiable otherwise ) - good fun , though probably blighty & infesting homegrown plants Still things can grow from seed - & Chelsea Garden Show is nice cooling viewing if you get chance

Peaceful night to us allxxx

Seconds Chelsea Flower show to watch

Sunshine is glorious ... know what you mean futuredream - I crashed in bed early last night as was shattered with heat.

Glorious cool breeze coming in through windows tonight .... perfect!

Tiredness has got to me I'm afraid can't stay awake well enough to post something coherent!! Will catch up soon :)

Argh , many sympathies on tiredness , Choc & Keziah ... wish there was free childcare & cleaners for those actually needing it for physical & emotional health . Glad cool breeze last night ( & thank you K for reminding early about sun protection- any recommendations on least - greasy one for face ? Style & Beauty board archive had two often mentioned, one Sunsense I think , only available on net (?) and the Neutrogena dry touch one , but I might get the zinc physical barrier sort ... how do you decide which sort to put on babies ? and can you get children to keep hats on ?

Glad you're enjoing the Chelsea on TV too, Keziah . I was impressed with the one by I think Korean gardener ,with native plants , like an art installation about the aftermath of war < cheery >
www.google.co.uk/search?q=aquilegia&hl=en&client=firefox-a&hs=KDJ&rls=org.mozilla:en-GB:official&channel=np&prmd=imvns&tbm=isch&tbo=u&source=univ&sa=X&ei=V-nAT461DfC20QW7w8DXCg&ved=0CK0BELAE&biw=1280&bih=865 Granny Bonnets for you belatedly , Choc

Still slowed down so missed alternative jubilee streetparty , but hoping for dry weather to stay as puts everyone in better mood & there loads of community parties round here- hope we all enjoy the atmospheree a

Sorry to sound so seriousVery blissed out by sunshine < puts out cloudy lemonade & giant icebox of picnic food >

Ta da!! It is I . Feeling very left out as haven't seen any of the Chelsea Flower Show! Thanks for link future - they certainly are very pretty. Also spooky you should have mentioned above about acclimitising the inside plants, as I had done before reading your post. But I put them out all day (might explain why some of them are looking a bit worse for wear). Hoping they will spring back to life. < choc wonders when she can leave them outside all the time >.

Wow dh is teaching ds to speak already Keziah! That is quick . And congrats on him sleeping through. Hopefully this will become a more regular occurence and you can get much needed rest .

Sounds like we've all been having appts this week. I tried to register dd with a dentist as she has two more wobbly teeth (this is getting expensive!) and one adult tooth halfway through and I thought it about time she saw one. But they're not accepting nhs patients so I will have to find some more to try. Grrr! As for my gp, her verdict is that it's the anxiety and/or venlafaxine causing the tiredness. She would like to try lowering the V but is reluctant at the moment because of the increased intrusive thoughts I've been having. So no change to dose - have to report back next week before bank holidays. Also, I'm severely vitamin D deficient . But have now collected my prescription and started taking the capsules. Lack of vit D can also result in tiredness (as well as putting me at increased risk of lupus and MS apparently so hopefully things will improve now it's being treated.

Oh no on missing the street party future. I was just reading on the Guardian on-line about the one in Nick Clegg's street < choc wonders if you were meant to be there at that one - and extra commisserations if you were >

Right, now off to make a jubilee outfit for school. Fortunately dd's at DMs tonight so I know I will get a lie-in tomorrow morning! Peace reigns, hurrah! xx

Oh and the odd disconnected feelings are also most probably another side-effect of the venlafaxine. Can't win hey!

Thank you for brilliant post , Choc , but I have a migrainey brain to go with an infection have had all week so need to rest a bit before waffling .

Glad you've started Vit D and reported tiredness & odd feelings to doc .. with MS , I believe there's only an association with deficiency - may be the body having trouble producing Vit D , plus all women of our age are at risk of the disease , most common gender & age for developing it. Loads of studies on Vit D with that & other health .

Hope you enjoyed your lie in < demands description of jubilee costume , but probably too identifying ... the mark of a proper grownup to me is one who can
rustle up a school costume < adds anarchist flag >

Hope you're getting a reasonable amount of sleep , Keziah , with breeze coming through window if possible , and sympathies to all on the heat (don't worry , Choc, been so hot that the plants probably only need taking in now at night as clear and quite chilly

Wasn't the big streetparty , thanks which I thought was a great idea

Sorry - that was meant to sayloads of studies on Vit D , MS and many other health conditions which supplements may benefit

Aaaah , sniff - was just stressing that I wish X or Y could be better for Dh ,when I saw lovely message to K and me in a post from you at bottom of page, Choc- very cheering !

< off to cool brain >

Little boy slept through last night - yippee , the whole day feels better with sleep!!

Choc yes when I was on Venlaflaxine I often felt as if my brain was numb or not working properly and rather disconnected. I had the slow release capsule type and found at middle dose I could function well but at the top dose I was more of a zombie. The psychologist I will be seeing is advocating I don't go back onto it, or any medication, as she said therapy should help more and I need not to be too numb to talk. So very about that! It can really help - I was on V for many years.

Choc vit D capsules, plus sunshine should really help with tiredness.

Hope jubilee outfit made for dd choc - am sure plants in ground will be fine now it is much warmer at nights.

future - hope lovely sunny weekend for you.

< yipeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee > at good sleep and psychologist's open mindedness
Just feel so bad that you two have had these side effects to dealwith , coward .

Faced scary appt today with bouncing optimism & was not even a workable conversation - just wish had used a dictaphone , as sme patients' rights people advocate . Been crying with rage for hours but will not be beaten by sadistic bully , & hopefully next people I see for appts will seem a breeze in comparison < wishes us all calm afor appts >d.

Fortunately , this person had no actual "power" over me , or I would probably be in her own mental health dungeon facility as we speak
Hope you get to at least one group this week , Choc , and have fewer moments of feeling disconnected .

Sorry for the stuff haven't caught up with yet . Terrible talk of slugs on other thread ...gorgeous sun here but fresh breeze , so I hope same for you two
Peaceful night to us allxxx
.

Me, me, me post I'm afraid . Feeling very rotten. Have been feeling nauseous for 3 days now. Eventually read my vit d3 info sheet this morning and nausea is listed as a side effect. Couldn't help but think all connected. Spoke to on-call gp who told me not to take for a few days. I'm still feeling sick, also pins and needles have come to join in fun. Was so close to attending a&e but the thought of hours waiting scared me! I've had just about enough. Maybe tomorrow I'll go if there hasnt been any trouble, Hope you two are doing better xx

(((((Choc)))))))) So sorry , didn't see new post here .
I difeel awful as when I saw you had Vit D tablets, I wondered whether they would cause nausea but didn't want you to feel negative about them- I don't mean that you would have not taken them , sorry , my brain not working yet ....so wish had said it after all

Feel awful for you as have lifelong phobia of nausea . You did "right" in phoning , and hopefully will start feeling less sick soon

Would be totally justiied in going to A&E , better tests but they might lump it in with your Vit D effects and send you home feeling worse < panics has happened >
So sorry if that has happened , but if so , you were wise to go and it will look very sensible on your medical records if P&N continues , to have gone to A&E today - this is just a distressing embarrassment if they mix up with sideffects etc - they will listen if P&N continues

Sorry for garbled answer < healing vibes against nausea > ... if you are ale to get anyone to bring you mints , sour sweets or alcohol free lager help with nausea, also rice & slightly salty foods , as I'm sure you found during pregnancy nausea
love to you both , hope you're OK , Keziah xxx

PS Choc - waiting times vary so much over days of week and now is likely to be a lot busy than coming week , plus there's always a backlog of people at GPs after long bank holiday weekend .

Don't despair if you do have to go in about the P&N and they don't seem to think much of it ... may take a slightly longer history of it , and maybe one or two an extra symptom to trigger tests - which is why the fatigue & odd feelings need to be recorded - yes may be the Vit D deficiency or side effects of V , but they need saying , as you were tired before startinng the new AD (and I think Keziah and I both thought you sounded really fatigued quite regularly - could have been a bad virus , of course ) Would not be unheard of to be all those causes making an unknown reason for fatigue & P&N worse .

Can't tell you how sorry I am not to have mentioned possible nausea.. I went through the pros and cons and believe me it must have seemed a convincing list to have got me not to < addled brain> ... I also thought you might mention any symptoms early on , then I'd suggest missing a couple of VitD pills to see if felt better ..I was forgetting we often don't update for a few days

Around all day but promise keep my wordiness down if you post
< kicks self for not doublechecking thread this morning >

Am powering on with appts, forms , helplines , thanks to all the support ...don't forget to come & sit in our beloved cybergarden for a bit of peace
< waves at baby son , hoping he's enjoying walks & time in garden wih Mummy >

" lot less busy than the coming week ", sorry

Oh that sounds awful Choc... hope you can go to A+E tonight or tomorrow if pins and needles continue, as bank hol will be much busier and you can have your dd with your mum for the long wait (take a book?) now if I am right? Goiong to a+e is a good way to get tests you might otherwise not get.

Futuredream great you diong those forms .....

Well we got a referral to a paediatrician, 2 months after ds got diagnosed with reflux and it hasn't got any better. So pleased with that referral - probably get told by paediatrician he is fine, but at least feel doing best for ds!

Will be away over Bank Hol, no idea if internet access, so if I am quiet don't worry. Will be first visit away with ds to family - eek

Yes , thinking about you , Choc , and please do not despair if fobbed off ... you will get a clearer picture eventually . Just hope symptoms are easing .

Sorry DS still got reflux , Keziah Excellent about referral , quite right too , and very well done

Very low this week after hateful woman laid into me , and with 3 scary appts in next fortnight - my and Dh 's confidence and strength disappeared ... < drowns in self-pity , remembers allvthe less fortunate people struggling with same , and feels worse >

Hope you have brilliant Bank Holiday sharing baby son , Keziah , and thank you for saying so we won't worry about your absence

< hangs out republican bunting and union jacks if our dc want them >

Sorry to be like that , Choc ... am so self-absorbed am even feeling traumatized at the thought of you trying to get tests , as can relate ( we all can here) ... please don't feel you daren't report back if you didn't feel you could go to A&E < smiling emoticon seems inappropriate >

Oh future lots of scary appointments sounds horrible - but can you use them for your DLA form? There is a page about medical help needed... you can say you are seeing people, even if no help yet offered etc. In fact saying you are struggling for help is a good thing to put on form!! - so 3 appointments for form. As put physical and mental issues raised by your conditions.

I too have a very scary appointment coming up in a few weeks... trying to think of lovely week with dh off work before it, to distract.

Am say typing, with ds in his bouncy chair which I am rocking with my foot as he is fighting sleep again! If I give him too much eye contact he will keep grissling to be picked up and then he will not sleep. He never sleeps lying flat so this is my new method I am trying. He is cuddling a soft toy that I put next to him that smells of me.... ah, 10 mins would mean less grizzly later on. He has been awake for 4 hours now!!

Lovely , lovely Keziah to write as rocking baby son to sleep , which
I hope worked . Sorry , pc been freezing as Skype sending spammy
update alerts -been hours since I read your massively encouraging words
and stated wailing again-- .

Your suggestions there have made me completey reassess my answers on the form < cartwheels > and revived my confidence so much - .

I have indeed been trying to show helping agencies , dla etc how desperate I've been in recent years , as a symptom of problems I need help with !!!!!, but I am surprised as am having real trouble with discrimination due to mh record However , hcps have mostly been kind and apologised for the discrimination , whilst still practising it , and a charity for my health condition tells me my problem with referrals is very common More to rant about ,but best not online , and you have a holiday weekend to pack for ! < waves leftover bunting to amuse K's baby son > < fails >

I was absolutely despairing about lack of referrals and medication to put on form ( to be fair , I wouldn't take most of the current meds anyway , which is another battle ) < excitedly prepares loooong scroll of physical & mental issues raised by my condition Keziah , your ideas cheered Dh up too . Your & Choc'sencouragement has made me believe more in myself , and stopped me giving up !

I felt rotten mentioning my appts when I know you have awful one in a few weeks - it's really looming even for your cyberfriends , and I wish you didn't have to see that person again < hepful >. The time off with Dh souns the very best thing you could do

We are bursting with positive thoughts and worries for you, lovely Choc , really on my mind , including of course overwhelming shame about not warning you nausea might be a risk . Hope that's mostly worn off , and that you've been able to talk to GP / hospital doc about the P & N and fatigue .

Would be good if you've been sleeping off this horrible week - though if you did feel up to ging to A&E and symptoms properly invessssssigated you might be kept in for a night or two ... It's qute a nightmare either way , and hopefully you'll hear a commonplace cause /s for symptoms soon .

Argh , cleaning mountain , backlog of bewildered relative & friends never contact < all goes on forms >

Hope you have a brilliant weekend , Keziah , and get lots of rest whilst relatives enjoy baby son
Hugs to us all xxxh