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Elderly parents

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Need some help. Visiting my elderly father is excrutiating.

475 replies

needsomehelpwiththisone · 14/10/2018 17:17

I've done a new account for this post but I've been here for a long time.

I am desperate for some advice about visiting my elderly father, because I feel like the world's biggest bitch and I don't know what to do.

Background: We have nothing in common. We did not get on well when I was growing up. I am an only child (relevant). My mother is dead (also relevant).

A few years ago, dad, by then in his mid 80s (now late 80s) moved into sheltered accommodation about a half hour drive from me having previously lived seven hours away at the other end of the country. There was really no other option as due to my own poor health I could not make the visit to see him any more and he was all alone and beginnig to struggle on his own. Until the point where he moved, we saw each other once a year, perhaps twice at the very most - I would go "home" to visit for a couple of days at a time and we'd both be climbing the walls after a day. Visits were only ever two days at the most. My father is very insular. Conversations consisted of "Do you watch this television programme?" and nothing more. He was never interested in anything I had to say, so I didn't bother to tell him what was going on in my life. It was painful.

Now he lives near me and is older and still on his own, I am expected to visit once a week. In principle I agree with this, he's on his own after all and I'm his only living relative. But I find the visits absolutely excrutiating and I'm beginning to put off going. We are not close, and we have nothing to talk about. He doesn't listen to anything I have to say, so there's no point telling him anything. I arrive, I take him to the shop, but this only takes half an hour at the most, and then I don't know what to do. We sit there in silence. He doesn't do anything except watch television, so I can't ask him about his day. He's also very deaf, so conversation is almost impossible, even if he was interested in anything I had to say.

He also insists on phoning me twice a day just to "hear my voice" (he can make out my voice on the phone, apparently, but nobody else's). I understand why, he's very lonely, but I don't know what to say to him then either and vice versa. I have no clue how to relate to him at all and never have done. Our relationship growing up was fractious and argumentative and unpleasant - he's mellowed with age - but there are no nice memories to sit and talk about. I sometimes take him out for lunch, but again, conversation is so difficult that we sit and eat lunch in the pub in silence and then I take him home again.

Please, what can I do to make these visits more bearable for both of us? Not going is not an option, since he will call me and beg me to go if I don't. I dread going. I put it off for as long as humanly possible. And I feel terrible.

OP posts:
needsomehelpwiththisone · 14/10/2018 21:46

I'm not just "ruling stuff out", by the way, this is all stuff I've tried that he refuses to abide by.

Like with the washing, I've spoken to the care agency several times about it, they just say they can't force the issue and they can't make him do anything he doesn't want. I've spoken to him about it multiple times and told him his bedding needs to be washed, but all he says is "It just won't work out". The carers would have to put the washing in the communal washing machine and leave (they're only there for half an hour a day) and dad just keeps repeating "it won't work out" when I tell him he'll have to go and get the washing out himself when it's finished, and then he sits on the bed and cries and says "it won't work out, it won't work out" and I don't know what to do. I can't do this for him.

I've tried so hard, I really have, I'm not just saying "no this won't work" without having tried it.

OP posts:
pennycarbonara · 14/10/2018 21:51

What about if you phone him first to give you more control?

(I do have experience of relatives who do excessive contact like this BTW, but at a considerably younger age where dementia wasn't the issue.
I would be seeing this situation like a job. he's 90 so it's not like he's 60 and it could be going on for a very long time yet.

I think the thing getting in the way of being able to treat it like a job is because you have so much stuff from the past about him which you haven't processed. Do you have any access to counselling? Perhaps through a GP or local voluntary org if you can't afford to pay?

Do you still feel like he has power over you, as if you were still a kid? That might be one reason you can't treat it in a more detached way, e.g. like a job. You maybe need to rationalise that, whether there is any power now, such as a legacy that really matters because of your ill health, or if it's all about echoes of stuff from when you were younger.

needsomehelpwiththisone · 14/10/2018 21:53

@pennycarbonara, I'm not sure that I feel he still has power over me, more that it's like being on a damn lead and my overwhelming feeling is one of wanting him to go away and leave me the hell alone, and then I feel awful for feeling like that.

OP posts:
Stuckforthefourthtime · 14/10/2018 21:55

I’m not sure what you expect people to suggest that you haven’t already ruled out.

I'm with 64BooLane here. Maybe it's helpful to be really honest with yourself about what you are looking for?
You've clearly done a lot, despite your own issues - if you are looking for other people to tell you it's to say no to him, we're all on your side.
If you are stuck in a loop and want to hear that nothing is possible - perhaps unconsciously following his own example - that's also understandable, but maybe not very helpful for you. It sounds like you don't see any path out of the current situation, so maybe the key is either acceptance or changing it.
Flowers and best of luck, you've put so much effort in so far and you deserve to have things improve.

needsomehelpwiththisone · 14/10/2018 21:57

I'm stuck in a loop because he won't do any of these things.

Until he, for example, agrees to have his washing done, or agrees to stop phoning me thirty seven times in a row, I'm stuck here. But he won't.

OP posts:
64BooLane · 14/10/2018 21:59

Well, if you can’t live with blocking his number, presumably you must lump it with the ceaseless phone calls.

I don’t think it’s too cruel at all, not if what you say about the impact of the calls on you is true. Of course it would be cruel to block the calls if things were less extreme/more normal. But they’re not. You’re the one suggesting you can’t stand things as they are. Is that true? Because those are your choices basically - suffer through it, or take a fairly drastic step to change it.

And if he’s begging you to go see him, can’t you use that leverage to get him to agree to something that will make the visits less tense and silent?

“Yes, I will come to visit you and we can do X together [listen to a radio programme or whatever]. I’m not coming to sit in silence though, Dad”

Fortysix · 14/10/2018 22:00

Could you try getting him to listen to Radio 4 or audio books.
Could he do candy crush on an ipad?I
Could his room redesigned or reconfigured to be more conducive to having visitors?
Can you bundle him into a wheelchair and take him out or in a wheelchair taxi to the local shopping centre or pub?
Can you get him a dictaphone or recorder and ask him to make a tape talking about periods in his life during the time you are absent?
Could you get him a rug making kit?
He's just bored to tears. It must be really hard for you both.

needsomehelpwiththisone · 14/10/2018 22:03

But if I block his number and don't go to see him, who will do things like take him to the hospital or the memory clinic, or get his shopping, or take him to the doctors? There is literally nobody else to do it. There's no family, it's just me and him. I'm an only child and he has no other extended family as he was an only child too. If I do that, that would be consigning him to a life of literally just sitting in his room on his own and not going to the appointments that he needs to go to.

And yes, it is true, why would I make something like that up? :(

OP posts:
needsomehelpwiththisone · 14/10/2018 22:06

FortySix Of course he's bored, but I've tried to get him to do things and he refuses.

I've offered to buy him a radio, he says he doesn't like the radio and he doesn't want one.

I've offered to show him the internet, he says "that's all passed me by, I'm too old".

His room is about 11 x 11 with a bed and an armchair and his TV etc and there's nobody to visit him, apart from me - he doesn't know anyone else, because he moved across the country to come here. I've tried befriending services and he refuses, he actually shouted at me to stop them from coming.

I take him to the pub, we just sit in silence as we've got nothing to say to each other. And he can't go on his own because it's too far for him to walk and he refuses to pay for a taxi.

I've tried. I really have.

OP posts:
Fortysix · 14/10/2018 22:07

Sorry pressed too soon. Maybe it's time to move him from sheltered living to a higher level of looked after care if the agencies involved are questioning his capacity.

64BooLane · 14/10/2018 22:10

I’m not suggesting you stop seeing him. I’m suggesting you take control of how much you talk to him on the phone, and call him yourself when you feel up to it, and visit him on your own terms.

I am also not suggesting you’re making this up. When I said “if what you say is true”, I was being rhetorical to emphasise that you’re kind of making it nearly impossible to suggest anything at all that will help you, because you’re presenting us with two opposing issues that are irreconcilable (i.e. you really can’t stand things as they are/you really can’t possibly block his number).

needsomehelpwiththisone · 14/10/2018 22:10

I've asked him if he wants to go somewhere with more care, but again he refuses, he says he can't cope with another move, and he doesn't think he needs the care. When the carers come in every day they're supposed to check if he's wearing clean clothes and has washed/shaved and stuff and he says to me "of course i've bloody had a wash, do they think i'm an idiot", but then when I go he's wearing clothes that aren't clean. He mostly just tells them to go away and they refuse to insist on this stuff.

OP posts:
Fortysix · 14/10/2018 22:11

You obviously have tried and tried. It sounds like you need a team to care for him now and that it's escalated to a point beyond most of us could deal with

pennycarbonara · 14/10/2018 22:11

If you think it can't be changed then all you can try and deal with is how you feel about him and about the situation. (Even if there isn't much respite, with speaking to him twice daily.)

It's possible the memory clinic referral will lead to practical changes though. If not this time maybe in a year or two. If he is diagnosed as having problems then you should be able to get the carers to do more.

Have you talked to the sheltered housing provider about the phonecall situation? (So that they won't phone on his behalf if there isn't an emergency)

needsomehelpwiththisone · 14/10/2018 22:12

But 64, that is the actual situation, I'm not just being difficult. He's the one who's refusing all this stuff, not me. He refuses to stop, and I can't block him beacuse he has nobody else and he can't manage on his own, and yes, it is affecting my mental health, I've got to the point of screaming "go away, go away, go AWAY" every time the phone rings (not to his face, before I pick it up or when I put it down). He says if he hasn't got me then he might as well give up and die.

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EverardDigby · 14/10/2018 22:14

You could do something about the calls, I know you feel powerless, but if you had a job like teaching or nursing you wouldn't have your phone during the day and he'd have to do something else. How about a lifeline service for emergencies?

No one's saying stop contact with him, just to make it more on your terms.

I also think it would be useful for you to have some emotional support to work this through.

AbbieLexie · 14/10/2018 22:15

The phone. I'm still experiencing the side effects of my neighbour calling me. The calls started before 7am and would still be going on after 12MN. If I didn't answer - GP's surgery and local pharmacy would receive calls if it was light outside and 999 if dark! We would then have the police and first ambulance response at our door followed by the ambulance. Everyone was regaled how I'd not answered the phone etc. I was going in and giving her medication 4 times daily, taking meals through and sitting with her, encouraging her to eat, and I'd left at 22.30 and it was now 01.30. Nobody would believe me except for her niece who received some calls. She passed all the tests for assessment of dementia. Her memory was phenomenal. Her lawyer was nippy with me - the SW thought I was exaggerating .... I was becoming ill. Her niece and I despaired as no-one would listen. Luckily while niece was visiting the tel bill arrived. Pages of tel calls to me were listed. I totally understand the telephone. 3 years later I still find the ring of the house phone bordering on unbearable. Flowers Flowers I'm sorry I can only empathise.

ny20005 · 14/10/2018 22:15

But your allowing his behaviour to destroy your mental health !

You've got to break the cycle. Block his number & tell care home you are only to be contacted in an emergency.

Visit & shop for him but on your terms

mrsjackrussell · 14/10/2018 22:15

How about moving him to a residential home where residents have to eat together in a communal dining room and sit together in a living room.

He would get more interaction with people. More done for him like washing bedding washed etc.
Where does he eat now?
Do they have a dining room there?

needsomehelpwiththisone · 14/10/2018 22:16

It doesn't stop him doing it though. Even if I put my phone to silent when I'm working or out or just trying to have a lie in, when I pick it up there'll be 20 missed calls and just seeing them is enough to make me want to scream. It's the fact that he refuses to stop doing it. I can't make him stop. How do I make him stop?

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anniehm · 14/10/2018 22:16

In my experience (through work and grandparents) the trick is essentially to chat to them and provide most or all of the conversation, particularly useful with advanced dementia sufferers, but works with most. Happily chatting about this and that for half an hour is plenty, better than dragging it out for an hour or two and you resenting it. I discuss anything, current affairs, tv, weather, gossip - doesn't matter, the trick is to be animated (even when you would rather be anywhere else but there!)

The only other suggestion I have is getting out, we started taking grandparents out even though they resisted - we decide where, they are both wheelchair bound so limits options to paved places like gardens. The dog helps a lot too as he's an ice breaker.

EverardDigby · 14/10/2018 22:17

Is there a local carers' charity you can get support and practical ideas from? Or even social services, you may be entitled to a carer's assessment, though I'm not sure of the rules.

needsomehelpwiththisone · 14/10/2018 22:18

mrsjackrussell, he already eats in a communal dining room

The situation is he has his own bedsitting room and dining is communal and they eat with the other residents.

There are things going on in the place like coffee afternoons and he refuses to go to them, he just wants to sit in his room alone, but then he complains about being isolated. If he was moved to a care home he'd do exactly the same, no doubt.

Part of the whole point of moving him there was so that he'd have more social interaction but he refuses it.

OP posts:
needsomehelpwiththisone · 14/10/2018 22:20

also mrsjackrussel, I'm not sure you understand the situation. He has carers to do the washing and bedding for him, but he REFUSES to have it done. They try every day, he refuses, gets nasty, sends them away. It's not because it's not available. Moving him to a home wouldn't solve anything at all.

OP posts:
anniehm · 14/10/2018 22:20

For the bedding situation, can't he have two sets and you change it when you visit, then take it home with you for washing. A lot of what you have posted sounds like Nanna two years ago - she's now in residential care for advanced dementia

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